Reports, Research, and Literature

NCI has produced and collaborated on several reports that address the special challenges facing young people with cancer. A chapter in NCI’s SEER Cancer Statistics Review also focuses on cancers unique to adolescents and young adults and the variations in disease patterns within this age group. A monograph details information about cancer incidence and outcomes in adolescents and young adults. Additional young adult cancer-related research and reports include:

• Adolescent and Young Adult Health Outcomes and Patient Experience (AYA HOPE) Study
  This project will learn how best to obtain consent, collect medical records, and survey recently diagnosed AYA cancer patients in community settings in order to study treatment patterns and outcomes for these patients.
• NCI Funded Research Portfolio
  A database that contains information about research grant and contract awards made by the National Cancer Institute.
• Resources for Researchers
  A directory of research tools and services for cancer researchers.
• NIH Funding Opportunities and Notices
  Access to RFAs, PAs, and NIH medical and behavioral research grant policies and guidelines.
• Closing the Gap: Research and Care Imperatives for Adolescents and Young Adults with Cancer
  This comprehensive report from the Adolescent and Young Adult Oncology Progress Review Group (PRG) is a collaborative effort between NCI and the Lance Armstrong Foundation. It outlines recommendations for improving the outcomes for adolescents and young adults with cancer.