Notice to Limited English Proficient Individuals
NINR provides certain materials in Spanish. These materials are available free of charge. If you need more information about available resources in your language, please call 301-496-0207, or email us at info@ninr.nih.gov.
Palliative Care: The Relief You Need When You Have a Serious Illness
NINR’s palliative care brochure, describes a comprehensive treatment that helps reduce or eliminate the pain and other distressing symptoms of illness and medical treatments. To learn more about why NINR developed the palliative care brochure, visit https://www.ninr.nih.gov/newsandinformation/publications/palliative-care-brochure.
This publication is available in PDF and HTML formats.
Also available in Spanish:
Cuidados Paliativos: El alivio que necesita cuando tiene síntomas de una enfermedad grave
For Spanish-language information on why NINR developed the palliative care brochure, visit https://www.ninr.nih.gov/newsandinformation/publications/folleto-en-linea-sobre-cuidados-paliativos.
This publication is available in PDF and HTML formats.
Palliative Care for Children: Support for the Whole Family When Your Child Is Living with a Serious Illness
This brochure provides an overview of pediatric palliative care and answers questions that parents and families may have, such as:
To order complimentary print copies, please send an email specifying the quantity and language you prefer and your mailing address to info@ninr.nih.gov or call 301-496-0207.
Also available in Spanish:
Para solicitar ejemplares impresos gratuitos, envíe un correo electrónico, con la cantidad, el idioma y su dirección de correo postal, a info@ninr.nih.gov o llame al 301-496-0207.
A Family’s Perspective – Family Stories
In “A Family’s Perspective,” four families share their experiences with pediatric palliative care and how the care they receive impacts their children and their lives. The stories highlight the benefits of pediatric palliative care and provide families’ perspectives on this type of care.
To order complimentary print copies, please send an email specifying the quantity and language you prefer and your mailing address to info@ninr.nih.gov or call 301-496-0207.
Also available in Spanish:
Historias sobre cuidados paliativos pediatricos
Para solicitar ejemplares impresos gratuitos, envíe un correo electrónico, con la cantidad, el idioma y su dirección de correo postal, a info@ninr.nih.gov o llame al 301-496-0207.
Pediatric Palliative Care At-a-Glance Fact Sheet
The at-a-glance fact sheet provides a brief overview of pediatric palliative care and answers some common questions that families may have such as:
• When can palliative care start?
• How does it work?
• And where is care provided?
To order complimentary print copies, please send an email specifying the quantity and language you prefer and your mailing address to info@ninr.nih.gov or call 301-496-0207.
Also available in Spanish:
Breve descripcion de los cuidados paliativos pediatricos
Para solicitar ejemplares impresos gratuitos, envíe un correo electrónico, con la cantidad, el idioma y su dirección de correo postal, a info@ninr.nih.gov o llame al 301-496-0207.
Finding Family Support Resource Card
This resource about finding support is a 4”x9”, double-sided card with sections about different types of support that families may want to access – things like sibling support, respite care and school resources.
To order complimentary print copies, please send an email specifying the quantity and language you prefer and your mailing address to info@ninr.nih.gov or call 301-496-0207.
Also available in Spanish:
En busca de apoyo para la familia
Para solicitar ejemplares impresos gratuitos, envíe un correo electrónico, con la cantidad, el idioma y su dirección de correo postal, a info@ninr.nih.gov o llame al 301-496-0207.
The Palliative Care: Conversations Matter® Customizable Tear-off Pad
This tear-off pad - available in English or Spanish - is for providers to use with their patients. It offers tips, resources, and answers to common questions about palliative care to help encourage interactive discussions with patients and their families or caregivers.
This report looks at the trends in end-of-life and palliative care (EOL PC) research publications over the past 14 years, including information on federal research awards, funding patterns, and the contributions of public and private investments in EOL PC science.