Info:
As of August 20, 2018, the dbGaP Authorized Access System will allow a PI to initiate the transfer of their dbGaP Project at any point during the access period. To initiate the project transfer, the PI will submit the transfer request to the Institutional Signing Official (SO) for approval. Once the SO approves the transfer request, the PI who requested the transfer will no longer have access to the dbGaP project and access to the dbGaP project is transferred to the new PI. Any data held by the original PI is to be transferred to the new PI in a manner consistent with the https://osp.od.nih.gov/wp-content/uploads/NIH_Best_Practices_for_Controlled-Access_Data_Subject_to_the_NIH_GDS_Policy.pdf. For record keeping purposes, the dbGaP Authorized Access System maintains a record of PI transfers in the “Processing History” of dbGaP project applications.

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dbGaP Data Download

The management portal to request and download individual level data

Click here to login to the dbGaP controlled-access portal and to begin a project request. For guidance on the development of a data access request to complete project requests, please see Tips for preparing a successful Data Access Request.

Who can apply for access?

Senior Investigators
  • Extramural Investigators must be permanent employees of their institution at a level equivalent to a tenure-track professor or senior scientist with responsibilities that most likely include laboratory administration and oversight. Laboratory staff and trainees such as graduate students and postdoctoral fellows are not permitted to submit project requests.
NIH Investigators
  • NIH Intramural Investigators must be tenure-track investigators, senior investigators, senior scientists, senior clinicians, or staff scientists.
  • NIH extramural scientific staff must have administrative responsibility for the data; have substantial research involvement in the award that generated the data; or need access to carry out research unrelated to their portfolio management responsibilities.

How does one apply?

Senior Investigators NIH Investigators

Why is Access Controlled?

Respect for, and protection of the interests of research participants are fundamental to NIH’s stewardship of human genomic and associated phenotypic data. The NIH Genomic Data Sharing (GDS) Policy sets the expectation that the informed consent under which the data or samples were collected is the basis for determining the appropriateness of sharing data through unrestricted-access databases or NIH designated controlled-access data repositories (e.g. dbGaP).

Questions about the NIH GDS Policy? Review the NIH GDS FAQs or contact NIH GDS Policy staff.

dbGaP Data Browser - View Only

With dbGaP Data Browser approval through the simplified controlled-access application, users may view the collection “Compilation of individual-level data from general research use (GRU).”

What is the purpose of the dbGaP Data Browser; why is it useful?

The dbGaP Data Browser is a tool that allows approved users to find and view discrete regions of a dbGaP genomic sequence dataset, at nucleotide level resolution, without having to download the datasets to their local hardware. In addition to viewing genomic sequence data, approved browser users may view aggregate variant data (e.g., allele frequency) and individual genotypes, if available.  

In addition to the “Compilation of Individual-Level Data for General Research Use (GRU)” collection, users with approved project can also use the dbGaP Data Browser to view those data.  

How does one apply?

To Log in to the portal as described for controlled-access data and select the “Data Browser” tab. Requests are made through a simplified controlled-access application.

Additional help.

  • For polices governing NIH Genomic Data Sharing (GDS), refer to NIH GDS Policy
  • Questions regarding review, approval, and renewal of data access requests, as well as project annual progress report should be directed to the Data Access Committee (DAC). DAC information can be found here.
  • dbGaP maintains a help desk to assist investigators, institutional signing officials and NIH staff with authorized access management, and answer any questions related to the application process. Contact the help desk with your queries.
  • FAQs and tutorials are also available.