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Genetic and Rare Diseases Information Center

Established by the National Human Genome Research Institute (NHGRI) and the Office of Rare Diseases (ORD), the Genetic and Rare Diseases Information Center employs experienced information specialists to answer in English or Spanish questions from the general public, including patients and their families, health care professionals and biomedical researchers.

By Telephone
Monday - Friday, 12:00 p.m. to 6:00 p.m. Eastern Time
(888) 205-2311 (Phone)
(888) 205-3223 (TTY)

By E-mail or Fax
(Answered within 5 to 10 working days)
(240) 632-9164 (Fax)

By U.S. Mail
(Answered within 5 to 10 working days)
The Genetic and Rare Diseases Information Center
P.O. Box 8126
Gaithersburg, MD 20898-8126

For information on rare cancers, please contact the National Cancer Institute's Cancer Information Service (CIS) toll-free at (800) 4-CANCER.

Note: The Genetic and Rare Diseases Information Center does not give medical advice, provide treatment, or diagnose illness.

Resource Materials
Printed materials that describe the assistance offered by the Genetic and Rare Diseases (GARD) Information Center are available online from NHGRI.

Preview Available Materials

GARD Information Center Brochure

GARD Center Brochure Cover

Provides basic information about genetic and rare diseases and a brief description of the services that GARD offers. The brochure covers such topics as:

  • A brief overview on genes and genetic diseases.
  • Background information on the Office of Rare Diseases and NHGRI.
  • Full contact information for GARD.
  • PDF file   PDF File         HTML File

*Note: Adobe's Acrobat Portable Document Format (PDF) presents a "photographic" image of a document that can be reviewed electronically via this Web page, downloaded to your computer, or printed out. To view this document, you must have Adobe Acrobat Reader installed on your computer.

The "About GARD" Card

A handy card that provides contact information for GARD's team of experienced information specialists.


Newsletter Article and Sidebar for Health-Care Professionals
Designed for use in newsletters aimed at health-care professionals, the article and sidebar describe the free services that GARD offers health-care professionals and lists GARD contact information. Groups are welcome to edit the article to suit their needs. The newsletter article and sidebar can be downloaded directly from this Web site.

For copies of the GARD Card and the Brochure, contact:

Mini Nair
(301) 402-0955

For information about NHGRI, please visit http://www.genome.gov

Last Reviewed: May 15, 2003

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