NIH State-of-the-Science Conference on Improving End-of-Life Care December 6-8, 2004 Natcher Conference Center National Institutes of Health Bethesda, Maryland |
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The
National Institutes of Health (NIH) will convene a
State-of-the-Science Conference on Improving End-of-Life
Care on December 6-8, 2004. Improvements
in medical science and health care have gradually changed the
nature of dying. Death is no longer likely to be the
sudden result of infection or injury, but is now more likely
to occur slowly, in old age, and at the end of a period of
chronic illness. As a result, a demographic shift is
beginning to occur that will include an increase in the number
of seriously ill and dying people at the same time that the
number of caregivers decreases. To meet this challenge,
the best that science can offer must be applied to guarantee
the quality of care provided to the dying. The
1997 publication of the Institute of Medicine report
“Approaching Death: Improving Care at the End of
Life” triggered a series of activities to improve the
quality of care and the quality of life at the end of life.
Notable among these activities, the National Institute of
Nursing Research (NINR), part of the National Institutes of
Health, began a series of research solicitations that
focused on issues related to the end of life. Topics of the
NIH initiatives have included: the clinical management of
symptoms at the end of life; patterns of communication among
patients, families and providers; ethics and health care
decision making; caregiver support; the context of care
delivery; complementary and alternative medicine at the end of
life; dying children and their families; and informal
care-giving. Research initiatives by the Robert Wood
Johnson and Soros Foundations have also advanced the field.
The purpose of this conference is to examine the results of
these many efforts and to evaluate the current state of the
science. To
facilitate this evaluation, NINR and the Office of Medical
Applications of Research (OMAR) at NIH are sponsoring a
state-of-the-science conference regarding care at the end of
life. The conference will be held on December 6-8, 2004,
at the National Institutes of Health in Bethesda, Maryland. Specifically,
the conference will address the following key questions:
During
the first day and a half of the conference, experts will
present the latest end-of-life research findings to an
independent panel. After weighing all of the scientific
evidence, the panel will prepare a state-of-the-science
statement answering the questions above. On the final
day of the conference, the panel chairperson will read the
draft statement to the conference audience, and invite
comments and questions.
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