NIH Clinical Research Studies

Protocol Number: 01-C-0203

Active Accrual, Protocols Recruiting New Patients

Title:
Long-Term Survival with HIV: A Study of the Psychological and Behavioral Factors Associated with the Transition From Adolescence To Young Adulthood
Number:
01-C-0203
Summary:
This study will examine the emotional and behavioral aspects of long-term survival of HIV/AIDS among adolescents and young adults with HIV infection.

HIV-infected individuals between 13 and 23 years of age may be eligible for this study. They must be aware of their HIV diagnosis, have been infected for at least 13 years and have been on an active NIH protocol during the past 5 years.

In addition to the usual stresses of growing up, children with HIV infection may have spent much of their time in hospitals and may have lost parents, friends and other loved ones. This study will explore psychological aspects of growing up with HIV, including self esteem, possible risk behaviors, how disclosure to others changes over time, the commonness of anxiety and depression, and the impact that losses have had on the adolescents' emotional health. To gather this information, participants will be interviewed and asked to fill out a set of forms. Caregivers will also fill out forms.

Patients who are not currently on an active NIH protocol will have the option of having a physical examination and routine blood work. The results will be sent to their home care provider.

Sponsoring Institute:
National Cancer Institute (NCI)
Recruitment Detail
Type: Active Accrual Of New Subjects
Gender: Male & Female
Referral Letter Required: Yes
Population Exclusion(s): None

Eligibility Criteria:
INCLUSION CRITERIA

HIV-infected adolescents 13-24 years of age with documented HIV infection for greater than or equal to 13 years.

On active protocol at NIH during the past 5 years.

Willingness to sign informed consent.

Ability to understand and read English.

EXCLUSION CRITERIA

Presence of psychotic symptoms.

Cognitive impairment or full scale IQ less than or equal to 75.

Not aware of HIV diagnosis.

Special Instructions: Currently Not Provided
Keywords:
HIV Infection
Mental Health
Risk Behaviors
Post-Traumatic Stress Disorder
Youth
Recruitment Keywords:
HIV
Long Term Survivor
Risk Behaviors
Conditions:
HIV Infection
Investigational Drug(s):
None
Investigational Device(s):
None

Contacts:
CSSC
Clinical Studies Support Center/NCI
164 Rollins Avenue
2nd FLoor
Rockville, MD 20852
Phone: (888) 624-1937
Fax: (301) 881-8239
Electronic Address: ncicssc@mail.nih.gov

Citations:
Psychologic adjustment of human immunodeficiency virus-infected school-age children

Chronic illness, disability, and mental and social well-being: findings of the Ontario Child Health Study

Psychosocial needs of long-term childhood cancer survivors: a review of literature

Active Accrual, Protocols Recruiting New Patients

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