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Protocol Number:
01-C-0203
- Title:
Long-Term Survival with HIV: A Study of the Psychological and Behavioral Factors Associated with the Transition From Adolescence To Young Adulthood
- Number:
01-C-0203
- Summary:
This study will examine the emotional and behavioral aspects of long-term survival of HIV/AIDS among adolescents and young adults with HIV infection.
HIV-infected individuals between 13 and 23 years of age may be eligible for this study. They must be aware of their HIV diagnosis, have been infected for at least 13 years and have been on an active NIH protocol during the past 5 years.
In addition to the usual stresses of growing up, children with HIV infection may have spent much of their time in hospitals and may have lost parents, friends and other loved ones. This study will explore psychological aspects of growing up with HIV, including self esteem, possible risk behaviors, how disclosure to others changes over time, the commonness of anxiety and depression, and the impact that losses have had on the adolescents' emotional health. To gather this information, participants will be interviewed and asked to fill out a set of forms. Caregivers will also fill out forms.
Patients who are not currently on an active NIH protocol will have the option of having a physical examination and routine blood work. The results will be sent to their home care provider.
- Sponsoring Institute:
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National Cancer Institute (NCI)
- Recruitment Detail
- Type:
Active Accrual Of New Subjects
- Gender:
Male & Female
- Referral Letter Required:
Yes
- Population Exclusion(s):
None
- Eligibility Criteria:
INCLUSION CRITERIA
HIV-infected adolescents 13-24 years of age with documented HIV infection for greater than or equal to 13 years.
On active protocol at NIH during the past 5 years.
Willingness to sign informed consent.
Ability to understand and read English.
EXCLUSION CRITERIA
Presence of psychotic symptoms.
Cognitive impairment or full scale IQ less than or equal to 75.
Not aware of HIV diagnosis.
- Special Instructions:
Currently Not Provided
- Keywords:
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HIV Infection
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Mental Health
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Risk Behaviors
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Post-Traumatic Stress Disorder
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Youth
- Recruitment Keywords:
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HIV
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Long Term Survivor
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Risk Behaviors
- Conditions:
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HIV Infection
- Investigational Drug(s):
- None
- Investigational Device(s):
- None
- Contacts:
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CSSC
Clinical Studies Support Center/NCI
164 Rollins Avenue
2nd FLoor
Rockville, MD 20852 Phone: (888) 624-1937 Fax: (301) 881-8239 Electronic Address: ncicssc@mail.nih.gov
- Citations:
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Psychologic adjustment of human immunodeficiency virus-infected school-age children
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Chronic illness, disability, and mental and social well-being: findings of the Ontario Child Health Study
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Psychosocial needs of long-term childhood cancer survivors: a review of literature
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Warren Grant Magnuson Clinical Center (CC) National Institutes of Health (NIH)
Bethesda, Maryland 20892. Last update: 10/16/2004
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