HRSA Awards $3.6 Million to Improve State Sickle Cell Disease and Newborn Screening Programs
HHS’ Health Resources and Services Administration today announced 17 grants and a cooperative agreement totaling $3.6 million to improve services for infants with Sickle Cell Disease (SCD) and their families. SCD is an inherited red blood cell condition characterized primarily by chronic severe anemia, infections and periodic episodes of pain.
“These awards will support follow-up services for newborns whose screenings identify them with SCD or as SCD carriers,” said HRSA Administrator Elizabeth M. Duke. “Those services include notification to families, extended family testing, counseling and education.”
The 17 two-year grants are funded under HRSA’s SCD and Newborn Screening Program through its Maternal and Child Health Bureau. Projects will link state newborn screening programs, comprehensive sickle cell treatment centers and health care professionals with community-based organizations to provide services.
The Sickle Cell Disease Association of America, recipient of the two-year cooperative agreement, represents community-based SCD organizations, SCD treatment centers and state health agencies. Under the cooperative agreement, the association will coordinate and monitor funded projects, provide consultation and technical assistance, and spread the word nationwide on best practices.
The list of grantees and awards follows:
Sickle Cell Disease and Newborn Screening Program Grants
|
Cooperative Agreement, FY 2003
|
Organization
|
City
|
State
|
Award
|
Sickle Cell Disease Association of America, Inc.
|
Culver City
|
Calif.
|
$459,000
|
Community-Based Grants
|
Organization
|
City
|
State
|
Award
|
Sickle Cell Disease Association of America -- Central Alabama Chapter
|
Birmingham
|
Ala.
|
$185,000
|
Sickle Cell Foundation of Greater Montgomery, Inc.
|
Montgomery
|
Ala.
|
$185,000
|
Sickle Cell Disease of California
|
Culver City
|
Calif.
|
$185,000
|
Children’s Hospital & Research Center at Oakland
|
Oakland
|
Calif.
|
$185,000
|
Sickle Cell Foundation of Palm Beach County, Inc.
|
West Palm Beach
|
Fla.
|
$185,000
|
Sickle Cell Foundation of Georgia, Inc.
|
Atlanta
|
Ga.
|
$185,000
|
Sickle Cell Disease Association of Illinois
|
Chicago
|
Ill.
|
$185,000
|
Tulane University Health Sciences Center
|
New Orleans
|
La.
|
$185,000
|
Children’s Hospital Boston, Inc.
|
Boston
|
Mass.
|
$184,155
|
Sickle Cell Disease Association of the Piedmont
|
Greensboro
|
N.C.
|
$185,000
|
Brookdale University Hospital & Medical Center
|
Brooklyn
|
N.Y.
|
$185,100
|
Brooklyn Hospital Center
|
Brooklyn
|
N.Y.
|
$185,000
|
Children’s Hospital Medical Center - Cincinnati
|
Cincinnati
|
Ohio
|
$185,000
|
Ohio Sickle Cell and Health Association
|
Columbus
|
Ohio
|
$185,500
|
Children’s Hospital of Pittsburgh of UPMC Health System
|
Pittsburgh
|
Pa.
|
$185,000
|
Sickle Cell Disease Association of America – Philadelphia/Delaware Valley Chapter
|
Philadelphia
|
Pa.
|
$185,000
|
Sickle Cell Disease Association of America --Dallas Chapter, Inc.
|
Dallas
|
Texas
|
$185,000
|
TOTAL:
|
$3,603,155
|
|
