| News
and Updates |
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Mohegan Sun and Don
Zimmer team up for FSMA on Nov 13 - tickets
available now! |
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Chat Live with an Expert: Jo Anne Maczulski, OT
- transcript now available |
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Faces of SMA Exhibit
- Washington, DC |
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What keeps us
Connecting for a Cure? The children, of
course. See
June 2004 FSMA Family and Professional Conference
- reports and updates |
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More
News |
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Feature: Research |
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Families fund a
search for rare disease's cure - Group partners
with biotech firm to fight ailment drug giants
avoid - Sept 27, 2004 |
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FSMA awards 10 new
research grants - Feb 3, 2004 |
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Valproic Acid Shows
Promise for Treating Spinal Muscular Atrophy
- Mar 5, 2004 |
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FSMA and deCode Open Screening Capabilities to
Third-Party Compounds
Latest stage in aggressive drug development drive for Spinal Muscular
Atrophy - Jan 7, 2004 |
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FSMA
and Paratek Pharmaceuticals Announce Partnership
to Find a Treatment for SMA Nov.
20, 2003 |
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Project
Cure SMA Update |
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More
Research News |
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Feature: Fundraising |
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Fundraising Events
Calendar |
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Walk-n-Roll /
Race-n-Roll Across America to Cure SMA |
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Home for the Cure -
a
benefit auction |
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Real
Life Superheroes Battle Killer High Atop Times
Square - Dr. Louise Simard, Dr. Kathy Swoboda
and Audrey Lewis spent 56 hours atop the
Hershey’s Chocolate store at 48th and Broadway,
starting March 31.
See photos and more |
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"No SMA" pin now
available |
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"Look
in these Eyes" poster - downloadable
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Photos
and Newspaper Articles about FSMA Members' Amazing
Efforts to Raise Funds for a Cure |
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More
Interesting Fundraising Information |
Copyright
©2004 by Families
of SMA
All Rights Reserved. |
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"We are often contacted
to lend our name and support to worthwhile charities,
however, as parents, we feel that the research and
support given by Families of SMA is something we want to
stand behind." David Duchovny and Tea Leoni,
honorary chairpeople of the
Cure SMA Walk-n-Roll Across America |
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Walk-n-Roll / Race-n-Roll
Across America to Cure SMA!
All across the
country Families with SMA will be Walking, Rolling,
Riding, Pushing --- to find a cure for SMA. The goal is
simple: at least ONE EVENT IN EVERY STATE! Please join
us in this effort. |
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Families
of SMA was founded in 1984 for the purpose of raising
funds to promote research to find a cure for Spinal
Muscular Atrophy, and to support families affected by
SMA. FSMA is the largest private funder of SMA research
and is leading the way to find a cure. FSMA is
currently funding 2 multi-center clinical trials for 2
different drugs that have shown promise increasing SMN
protein levels and the largest, most aggressive drug
discovery programs ever undertaken to find a cure for
SMA. FSMA has funded $16 million towards SMA research,
and has already committed an additional $14 million over
the next three years. |
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Information in the FSMA Web site is for informational, educational and entertainment purposes only, and is not intended to replace, and should not be interpreted or relied upon as, professional advice.
Please read the Policy Statement,
Privacy Information, and Copyright before continuing. |
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