NINDS - Support Organizations

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Science for the Brain
The nation's leading supporter of biomedical research on disorders of the brain and nervous system

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Patient Resources, Foundations, and Support Organizations
This listing is not intended to be a comprehensive listing of all not-for-profit health agencies in the United States, nor does inclusion of any particular organization imply endorsement by the National Institutes of Health or the Department of Health and Human Services. Our intent is to provide information useful to individuals nationally, and for this reason we have not included many local groups that offer valuable assistance to patients and their families within a limited geographic area. Many of the organizations listed in this directory have information available to the public on the World Wide Web.
Sort Organizations by Special-Purpose Indexes Government Resources \| Brain & Tissue Banks \| Caregiver \| Disability & Rehabilitation \| Patient Assistance \| Other Sort Organizations by Disorder-Specific Lists Brain Tumor \| Learning Disability \| Multiple Sclerosis \| Stroke \| Trauma
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A	ADA Business and Technical Assistance Program ALS Association (ALSA) ALS Therapy Development Foundation Acid Maltase Deficiency Association (AMDA) Acoustic Neuroma Association Agenesis of the Corpus Callosum/ ACC Network Aicardi Syndrome Foundation Aicardi Syndrome Newsletter, Inc. Alliance for Aging Research Alternating Hemiplegia of Childhood Foundation (AHCF) Alzheimer's Association Alzheimer's Foundation of America American Autoimmune Related Diseases Association American Behcet's Disease Association American Brain Tumor Association (ABTA) American Cancer Society American Chronic Pain Association (ACPA) American Council for Headache Education American Diabetes Association American Fibromyalgia Syndrome Association American Foundation for AIDS Research American Health Assistance Foundation American Heart Association American Liver Foundation American Pain Foundation American Parkinson Disease Association American RSDHope Group American Sleep Apnea Association American Speech Language Hearing Association (ASHA) American Stroke Association: A Division of American Heart Association American Syringomyelia Alliance Project (ASAP) Anencephaly Support Foundation Angel Flight Angelman Syndrome Foundation Angioma Alliance Antiepileptic Drug Pregnancy Registry Aphasia Hope Foundation Ara Parseghian Medical Research Foundation [For Niemann-Pick Type C Disease] Arthritis Foundation Association for Frontotemporal Dementias (AFTD) Association for Glycogen Storage Disease Association for Neuro-Metabolic Disorders Association for Science in Autism Treatment Ataxia Telangiectasia (A-T) Children's Project Ataxia Telangiectasia (A-T) Ease Foundation Ataxia Telangiectasia (A-T) Medical Research Foundation Ataxia Telangiectasia (A-T) Project Attention Deficit Disorder Association (ADDA) Attention Deficit Information Network Autism National Committee (AUTCOM) Autism Network International (ANI) Autism Research Institute (ARI) Autism Society of America Foundation Autism Society of America Autism Tissue Program

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B	Bachmann-Strauss Dystonia & Parkinson Foundation Barth Syndrome Foundation, Inc. Batten Disease Support and Research Association Benign Essential Blepharospasm Research Foundation Birth Defect Research for Children Boston Cure Project for MS Brachial Plexus Palsy Foundation Brain Aneurysm Foundation Brain Injury Association Brain Trauma Foundation Brain Tumor Society Brave Kids [For Children With Special Needs] Breaking New Ground Resource Center [For Farmers With Disabilities] BridgeMar Research Foundation

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C	C-Mac Informational Services/Caregiver News [For Alzheimer's Type Dementia Caregivers] CHADD - Children and Adults with Attention-Deficit/Hyperactivity Disorder CJD Aware! Canavan Disease Research Canavan Foundation Canavan Research Foundation Cancer Care, Inc. Carter Centers for Research in Holoprosencephaly Charcot-Marie-Tooth Association (CMTA) Charlie Foundation to Help Cure Pediatric Epilepsy Childhood Brain Tumor Foundation Children's Brain Disease Foundation [A Batten Disease Resource] Children's Brain Tumor Foundation Children's Gaucher Research Fund Children's Hemiplegia and Stroke Assocn. (CHASA) Children's Neurobiological Solutions (CNS) Foundation Christopher Reeve Paralysis Foundation/ Paralysis Resource Center Citizens United for Research in Epilepsy (CURE) Cody Unser First Step Foundation Coffin-Lowry Syndrome Foundation Coma Recovery Association Compassionate Friends Creutzfeldt-Jakob (CJD) Foundation Inc. Cure Autism Now (CAN) Foundation Cushing's Support and Research Foundation Cyclic Vomiting Syndrome Association-USA/Canada

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D	Dana Alliance for Brain Initiatives Daniel Heumann Fund for Spinal Cord Research Disability Resources Disabled Sports USA Dysautonomia Foundation Dystonia Medical Research Foundation

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E	Ear Foundation/Meniere's Network Easter Seals Elizabeth Glaser Pediatric AIDS Foundation Epilepsy Foundation Epilepsy Institute Exceptional Parent Magazine [Disability Resource]

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F	FOCUS Families FRAXA Research Foundation [for Fragile X Syndrome] Fabry Support & Information Group Facioscapulohumeral Dystrophy (FSHD) Society Familial Dysautonomia Hope Foundation, Inc. (FD Hope) Families of Spinal Muscular Atrophy Family Caregiver Alliance Fibromyalgia Network FightSMA/Andrew's Buddies Financial Assistance Network Foundation Fighting Blindness Friedreich's Ataxia Research Alliance (FARA) Friend's Health Connection

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G	Genetic Alliance Geoffrey Lance Foundation for SCI Research and Support Guardians of Hydrocephalus Research Foundation Guillain-Barre Syndrome Foundation International

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H	HEATH Resource Center National Clearinghouse on Postsecondary Education for Individuals with Disabilities/ American Council on Education Hazel K. Goddess Fund for Stroke Research in Women Head Injury Hotline Hereditary Disease Foundation Human Growth Foundation Hunter's Hope Foundation [A Leukodystrophy Resource] Huntington's Disease Society of America Hydrocephalus Association Hydrocephalus Support Group, Inc.

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I	Independent Living Research Utilization Center (ILRU) Institute for the Study of Aging International Dyslexia Association International Essential Tremor Foundation International Joseph Disease Foundation, Inc. International Multiple Sclerosis Support Foundation International Myotonic Dystrophy Organization International Radiosurgery Support Association (IRSA) International Research Foundation for RSD/CRPS International Rett Syndrome Association (IRSA) Intracranial Hypertension Research Foundation Iron Disorders Institute

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J	Jim Lambright Niemann-Pick Foundation John Douglas French Alzheimer's Foundation Joubert Syndrome Foundation Juvenile Diabetes Research Foundation, International

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K	Katie's Kids for the Cure [For Brain Tumor Research] Kennedy's Disease Association Kids'Cures

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L	Late Onset Tay-Sachs Foundation Learning Disabilities Association of America Les Turner ALS Foundation Lissencephaly Network Lowe Syndrome Association Lupus Alliance of America Lupus Foundation of America Lyme Disease Foundation Lymphoma Research Foundation

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M	MAAP Services for Autism, Asperger's, and PDD MUMS National Parent-to-Parent Network [For Parents of Children With Disabilities] Make-A-Wish Foundation of America March of Dimes Birth Defects Foundation Mayday Fund [For Pain Research] Medicine Program Meningitis Foundation of America, Inc. Miami Project to Cure Paralysis/ Buoniconti Fund Michael J. Fox Foundation for Parkinson's Research Moebius Syndrome Foundation Montel Williams MS Foundation Mucolipidosis IV Foundation (ML4) Multiple Sclerosis Association of America Multiple Sclerosis Foundation Muscular Dystrophy Association Muscular Dystrophy Family Foundation Musella Foundation for Brain Tumor Research and Information Myasthenia Gravis Foundation of America, Inc. Myelin Project Myoclonus Research Foundation Myositis Association

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N	NBIA Disorders Association Narcolepsy Network, Inc. Nathan's Battle Foundation [For Batten Disease Research] National Alliance for Autism Research (NAAR) National Aphasia Association National Association of Hospital Hospitality Houses National Association of People with AIDS National Ataxia Foundation (NAF) National Autism Hotline National Brain Tumor Foundation (NBTF) National Center for Learning Disabilities National Chronic Pain Outreach Association (NCPOA) National Council on Patient Information and Education National Disability Sports Alliance National Down Syndrome Society National Dysautonomia Research Foundation National Family Caregivers Association National Fibromyalgia Association National Fibromyalgia Partnership, Inc. National Fibromyalgia Research Association National Foundation for the Treatment of Pain National Fragile X Foundation National Gaucher Foundation National Headache Foundation National Health Council National Hospice and Palliative Care Organization /Natl. Hospice Foundation National Hydrocephalus Foundation National MPS Society, Inc. National Meningitis Association National Multiple Sclerosis Society National NeuroAIDS Tissue Consortium National Neurofibromatosis Foundation National Niemann-Pick Disease Foundation, Inc. National Organization for Rare Disorders (NORD) National Organization of Social Security Claimants' Representatives National Organization on Disability National Parkinson Foundation National Patient Air Transportation Helpline National Resource Center for Parents With Disabilities /Through the Looking Glass National Respite Network and Resource Center National Reye's Syndrome Foundation National Sleep Foundation National Spasmodic Dysphonia Association National Spasmodic Torticollis Association National Spinal Cord Injury Association National Stroke Association National Tay-Sachs and Allied Diseases Association National Vaccine Information Center National Vulvodynia Association Neurofibromatosis, Inc. (NF Inc.) Neuropathy Association

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O	Opsoclonus Myoclonus Support Network, Inc.

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P	Paralyzed Veterans of America (PVA) Parent Project Muscular Dystrophy (PPMD) Parents Against Childhood Epilepsy (PACE) Parkinson Alliance Parkinson's Action Network (PAN) Parkinson's Disease Foundation (PDF) Parkinson's Institute Parkinson's Resource Organization Pathways Awareness Foundation [For Children With Movement Difficulties] Patient Advocate Foundation Pedal with Pete [For Research on Cerebral Palsy] Pediatric Brain Tumor Foundation Pediatric Neurotransmitter Disease Association Pelizaeus-Merzbacher Disease Foundation Perspectives Network (TPN) [For Traumatic Brain Injury] Pituitary Network Association Polio Connection of America Post-Polio Health International Prader-Willi Syndrome Association Preuss Foundation, Inc. [For Brain Tumor Research] Primary Lateral Sclerosis Newsletter Project ALS Pseudotumor Cerebri Support Network Purine Research Society

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R	Reflex Sympathetic Dystrophy Syndrome Association (RSDSA) Rehabilitation International Research Center for Stroke and Heart Disease/ National Coalition for Stroke & Heart Disease Prevention Research!America Resources for Rehabilitation Restless Legs Syndrome Foundation Rett Syndrome Research Foundation (RSRF)

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S	Safe Minds [Mercury Exposure Resource] Sarcoidosis Research Institute Share and Care Cockayne Syndrome Network, Inc. Shy-Drager/Multiple System Atrophy Support Group, Inc. Sjogren's Syndrome Foundation Society for Progressive Supranuclear Palsy Sotos Syndrome Support Association Spastic Paraplegia Foundation Spina Bifida Association of America Spinal Cord Society Spinal Muscular Atrophy Foundation Stroke Clubs International Sturge-Weber Foundation Synapse: A PLS Newsletter

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T	TMJ Association The Arc of the United States Think First Foundation [National Injury Prevention Program] Tourette Syndrome Association Transverse Myelitis Association Trauma Foundation Trigeminal Neuralgia Association Tuberous Sclerosis Alliance Tuchman Foundation [For Parkinson's Disease Research]

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U	United Brachial Plexus Network United Cerebral Palsy (UCP) Research & Educational Foundation United Cerebral Palsy (UCP) United Leukodystrophy Foundation United Mitochondrial Disease Foundation

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V	VZV Research Foundation [For Research on Varicella Zoster] Vascular Birthmarks Foundation Vestibular Disorders Association (VEDA) Von Hippel Lindau Family Alliance

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W	Well Spouse Foundation Williams Syndrome Association Wilson's Disease Association, International Work Related Musculoskeletal Disorders Organization Worldwide Education & Awareness for Movement Disorders (WE MOVE)