The National Neurofibromatosis Foundation, founded in 1978, provides neurofibromatosis patients and their families with information about the disorder and helps them in finding medical, social, and genetic counseling. The organization promotes and supports scientific research on the cause, prevention, and treatment of neurofibromatosis and acts as an information source for physicians and health workers in the field.
Publications
The Foundation publishes an information booklet for patients and families, a question-and-answer pamphlet, an information booklet about the child with neurofibromatosis type 1 (NF1), an information booklet about the adolescent with NF1, and an information booklet about neurofibromatosis type 2 (NF2), Facing Neurofibromatosis: A Guide for Teens and Achieving in Spite of...A booklet on Learning Disabilities. Serial publication: Lay newsletter, quarterly; research newsletter, quarterly.
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