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Home : Kidney & Urologic Diseases A-Z List of Topics and Titles : Directory of Kidney and Urologic Diseases Organizations
 

Directory of Kidney and Urologic Diseases Organizations

This directory lists voluntary, governmental, and private organizations. Some of the organizations offer educational materials and other services to patients and the public; others primarily serve health care professionals.

[Top]

Alport Syndrome Study

    410 Chipeta Way
    Room 155
    University of Utah
    Research Park
    Salt Lake City, UT 84108-1297
    Phone: (801) 581-5479
    Fax: (801) 585-3232
    Joyce Denison, Ph.D., Clinic Coordinator

Mission: To pursue basic laboratory and clinical research, addressing the genetic basis of various forms of hereditary nephritis (Alport syndrome) with the ongoing collection of clinical family histories and laboratory samples, which are maintained in a confidential database.

[Top]

American Association of Clinical Urologists

    1111 North Plaza Drive
    Suite 550
    Schaumburg, IL 60173
    Phone: (847) 517-1050
    Fax: (847) 517-7229
    Email: aacu@wjweiser.com
    Internet: www.aacuweb.org
    William F. Gee, M.D., President

Mission: To stimulate interest in the science and practice of urology and to promote understanding of socioeconomic and political affairs affecting medical practice among clinical urologists who are members of the American Urological Association and the American Medical Association.

Materials: AACU News (bimonthly) and AACU FAX (monthly legislative update distributed by facsimile).

[Top]

American Association of Genitourinary Surgeons

    Wake Forest University Baptist Medical Center
    Department of Urology
    Bowman Gray School of Medicine
    Medical Center Boulevard
    Winston-Salem, NC 27157
    Phone: (336) 716-4131
    Fax: (336) 716-5711
    David McCullough, M.D., Secretary/Treasurer

Mission: Professional society of urologists elected into membership because of their outstanding contributions to urology.

[Top]

American Association of Kidney Patients

    3505 East Frontage Road
    Suite 315
    Tampa, FL 33607
    Phone: 1-800-749-2257 or (813) 636-8100
    Fax: (813) 636-8122
    Email: info@aakp.org
    Internet: www.aakp.org
    Kris Robinson, Executive Director

Mission: To serve the needs and interests of kidney patients and their families. Founded by kidney patients to help others with kidney failure cope with its physical and emotional impact on their lives.

Materials: Renalife (quarterly journal) and The Renal Flash (monthly electronic newsletter).

Local Groups: 21

[Top]

American Board of Urology

    2216 Ivy Road
    Suite 210
    Charlottesville, VA 22903
    Phone: (434) 979-0059
    Fax: (434) 979-0266
    John M. Barry, M.D., President
    Stuart S. Howards, M.D., Executive Secretary

Mission: To identify for the public's knowledge those physicians who have satisfied the board's criteria for certification and recertification in the specialty of urology.

[Top]

American Foundation for Urologic Disease

    1128 North Charles Street
    Baltimore, MD 21201
    Phone: 1-800-242-2383
    Email: admin@afud.org
    Internet: www.afud.org
    Thomas Bruckman, Executive Director and CEO

Mission: To provide research grants, patient and public education and awareness, Government relations, and patient support group activities.

Materials: Informational brochure about AFUD, Family Urology (quarterly magazine), and patient education brochures.

Councils: Bladder Health Council, Kidney Health Council, Pediatric Urology Health Council, Prostate Health Council, Sexual Function Health Council.

[Top]

American Kidney Fund

    6110 Executive Boulevard
    Suite 1010
    Rockville, MD 20852
    Phone: 1-800-638-8299 or (301) 881-3052
    Fax: (301) 881-0898
    Email: helpline@akfinc.org
    Internet: www.kidneyfund.org
    Karen Sendelback, CFRE, Executive Director

Mission: To provide direct financial assistance, comprehensive educational programs, research grants, and community service projects for the benefit of kidney patients.

Materials: AKF Advocate, Clinical Strategies: The AKF Newsletter for Nephrology Professionals, and patient and public education brochures.

[Top]

American Lithotripsy Society

Mission: Professional membership society dedicated to addressing all aspects of lithotripsy as a medical treatment for stone disease.

Materials: ALS Quarterly News.

[Top]

American Nephrology Nurses' Association

    East Holly Avenue
    Box 56
    Pitman, NJ 08071-0056
    Phone: 1-888-600-2662 or (856) 256-2320
    Fax: (856) 256-7463
    Email: anna@ajj.com
    Internet: www.annanurse.org
    Mary Ann Gould, President

Mission: To advance nephrology nursing practice and positively influence outcomes for patients with kidney or other disease processes requiring replacement therapies through advocacy, scholarship, and excellence.

Materials: ANNA Journal, ANNA Update (bimonthly newsletter), Core Curriculum for Nephrology Nursing, position statements, and clinical monographs.

Local Groups: 4 regions, 100 chapters.

[Top]

American Prostate Society

Mission: To increase knowledge of prostate diseases and encourage the establishment of centers for diagnosis and treatment.

Materials: What You Don't Know About Your Prostate Can Kill You (brochure), Medication Versus Surgery (brochure), and quarterly newsletter.

[Top]

American Society for Artificial Internal Organs Inc.

    National Office
    P.O. Box C
    Boca Raton, FL 33429-0468
    Phone: (561) 391-8589
    Email: info@asaio.com
    Internet: www.asaio.com
    Karen Burke, Executive Director

Mission: ASAIO promotes the development, application, and awareness of organ technologies that enhance quality and duration of life.

Materials: ASAIO Journal (bimonthly peer-reviewed journal) and ASAIO Abstracts (for annual conference).

[Top]

American Society for Histocompatibility and Immunogenetics

    17000 Commerce Parkway
    Suite C
    Mt. Laurel, NJ 08054
    Phone: (856) 638-0428
    Fax: (856) 439-0525
    Email: ashi@ahint.com
    Internet: www.ashi-hla.org
    Robert Bray, Ph.D., President
    Len Morrissey, Executive Director

Mission: A professional society dedicated to advancing the science and practice of immunogenetics and its impact on the quality of human life.

Materials: Laboratory Procedures Manual, Human Immunology Journal, membership directory, ASHI Quarterly.

[Top]

American Society of Nephrology

    2025 M Street NW.
    Suite 800
    Washington, DC 20036
    Phone: (202) 367-1190
    Fax: (202) 367-2190
    Email: asn@dc.sba.com
    Internet: www.asn-online.org
    Karen Campbell, Executive Director

Mission: To advance the knowledge and practice of nephrology.

Materials: Journal of the American Society of Nephrology (JASN) and Highlights (member newsletter).

[Top]

American Society of Pediatric Nephrology

    James Whitcomb Riley Hospital for Children
    Wells Research Center
    702 Barnhill Drive, 2600 A
    Indianapolis, IN 46202
    Phone: (317) 278-0854
    Fax: (317) 278-3599
    Email: kmatteso@iupui.edu
    Internet: www.aspneph.com
    Frederick J. Kaskel, M.D., Ph.D., President

Mission: To promote public and professional educational programs in pediatric nephrology.

[Top]

American Society of Transplant Surgeons

    1020 North Fairfax Street
    Suite 200
    Alexandria, VA 22314
    Phone: 1-888-990-2787
    Fax: (703) 684-6303
    Email: asts@asts.org
    Internet: www.asts.org
    Gail Durant, Executive Director

Mission: To promote and encourage education and research with respect to organ and tissue transplantation so as to facilitate progress in the saving of lives and/or enhancing the quality of lives of patients afflicted with end stage organ failure. To collaborate with existing public and private organizations to promote and encourage education and research in transplantation and to participate and assist in the coordination of efforts or formulation of programs by all surgeons, physicians, scientists, agencies, and health personnel, which will provide maximal efficiency and optimal benefit to recipients of transplants.

[Top]

American Society of Transplantation

    17000 Commerce Parkway
    Suite C
    Mt. Laurel, NJ 08054
    Phone: (856) 439-0500
    Fax: (856) 439-0525
    Email: ast@ahint.com
    Internet: www.a-s-t.org
    Lawrence Turka, M.D., President

Mission: To promote and encourage education and research with respect to transplantation medicine and immunology. To provide a forum for the exchange of scientific information related to transplantation medicine and immunology. To give physicians and allied scientists interested in transplantation medicine and immunology an effective, unified, and authoritative voice in dealing with other Government, medical, and private agencies and organizations.

Materials: ASTP Newsletter (member newsletter), ASTP Primer on Transplantion, AST Washington Roundup.

[Top]

American Urogynecologic Society

    2025 M Street NW.
    Suite 800
    Washington, DC 20036
    Phone: (202) 367-1167
    Fax: (202) 367-2167
    Email: AUGS@dc.sba.com
    Internet: www.augs.org
    Stephen Kemp, Executive Director
    Peggy Norton, M.D., President

Mission: To promote research and education in urogynecology and to improve care for women with lower urinary tract disorders.

Materials: Quarterly newsletter.

[Top]

American Urological Association Inc.

    1120 North Charles Street
    Baltimore, MD 21201-5559
    Phone: (410) 727-1100
    Fax: (410) 223-4370
    Email: aua@auanet.org
    Internet: www.auanet.org
    G. James Gallagher, Executive Director

Mission: To promote the highest standards of urological clinical care through education, research, and the formulation of health care policy.

Materials: Clinical practice guidelines on urological diseases.

[Top]

Council of American Kidney Societies

    1444 I Street NW.
    Suite 700
    Washington, DC 20005
    Phone: (202) 712-9037
    Fax: (202) 216-9646
    Email: caks@bostromdc.com
    Joyce Williams and Claire Shandly, Presidents

Mission: To serve as a representative body of scientific and professional nephrology practice organizations engaged in the promotion and support of clinical and basic research and medical practice in the broad fields of adult and pediatric kidney diseases.

[Top]

Cystinuria Support Network

Mission: To provide a resource for putting individuals in touch with each other for support and practical advice dealing with issues concerning cystinuria.

Materials: Cystinuria Support Network Newsletter.

[Top]

The Diabetes Insipidus Foundation, Inc.

Mission: To foster improved treatment and ultimately the prevention and cure of all forms of diabetes insipidus through research; to promote a greater public awareness and understanding of the disease; and to serve patients and their families with informational material.

Materials: Endless Water (quarterly newsletter).

[Top]

Endourological Society

    c/o Department of Urology
    Long Island Jewish Medical Center
    270-05 76th Avenue
    New Hyde Park, NY 11040
    Phone: (718) 470-3900
    Fax: (718) 343-6254
    Arthur D. Smith, President

Mission: To educate urologists about research and treatment in the management of endourological problems.

Materials: Journal of Endourology.

[Top]

Hereditary Nephritis Foundation

Mission: To promote research into the causes of and cures for hereditary nephritis and to provide up-to-date general information about Alport syndrome and related conditions to patients, families, and physicians.

[Top]

IgA Nephropathy Support Network

    9 G Street
    Apt. B
    Turner Falls, MA 01376
    Phone: (413) 863-8663
    Dale M. Hellegers, President

Mission: To assist patients with IgA nephropathy and their families; to serve as a clearinghouse for dissemination of information about IgA nephropathy; and to promote research for a possible cure.

Materials: Newsletter and pamphlets.

[Top]

International Pediatric Nephrology Association

    Children's Hospital and Medical Center
    4800 Sand Point Way NE
    Seattle, WA 98105-0371
    Phone: (206) 526-2150
    Fax: (206) 527-3836
    F. Bruder Stapleton, M.D., Treasurer

Mission: To promote professional education and improve health care for children with kidney and urologic diseases.

Materials: Pediatric Nephrology.

[Top]

International Society of Nephrology

    Emory University
    Renal Division
    1639 Pierce Drive, WMB 338
    Atlanta, GA 30322
    Phone: (404) 727-8527
    Fax: (404) 727-3425
    Email: rmccier@emory.edu
    Internet: www.isn-online.org
    William E. Mitch, M.D., Treasurer
    Robert Atkins, M.D., President

Mission: To educate nephrologists about research and patient care.

Materials: Kidney International.

[Top]

International Transplant Nurses Society

    1739 E. Carson Street
    Box 351
    Pittsburgh, PA 15203-1700
    Phone: (412) 488-0240
    Fax: (412) 431-5911
    Email: itns@msn.com
    Internet: www.itns.org

Mission: Committed to the promotion of excellence in transplant clinical nursing through the provision of educational and professional growth opportunities, interdisciplinary networking and collaborative activities, and transplant nursing research.

Materials: ITNS Newsletter.

[Top]

Interstitial Cystitis Association of America, Inc. (ICA)

    110 North Washington Street
    Suite 340
    Rockville, MD 20850-2223
    Phone: 1-800-HELP-ICA or (301) 610-5300
    Fax: (301) 610-5308
    Email: info@ichelp.org
    Internet: www.ichelp.org
    Vicki Ratner, M.D., President

Mission: To assist patients with interstitial cystitis (IC), to educate the medical community about IC, and to promote IC research.

Materials: ICA (brochure), ICA Update (quarterly newsletter), transcripts of annual meetings, and patient and professional education materials.

Local Groups: 85

[Top]

Kidney Cancer Association

Mission: To provide information to patients and physicians; to sponsor research on kidney cancer; and to act as an advocate on behalf of patients with the Federal Government, insurance companies, and employers.

Materials: We Have Kidney Cancer (56-page booklet for patients), Kidney Cancer News (quarterly newsletter), and public policy papers.

Chapters: 24 major cities including New York, Los Angeles, Chicago.

Annual Convention: In July for both patients and physicians.

Other Services: Free information on kidney cancer and clinical trials.

[Top]

National Association for Continence (NAFC)

    P.O. Box 8310
    Spartanburg, SC 29305-8310
    Phone: 1-800-BLADDER or (864) 579-7900
    Fax: (864) 579-7902
    Email: memberservices@nafc.org
    Internet: www.nafc.org
    Kim Kelley Bishop, Director of Marketing

Mission: To improve the quality of life for people with incontinence. NAFC is a leading source of education, advocacy, and support to the public and to the health profession about the causes, prevention, diagnosis, treatment, and management alternatives for incontinence.

Materials: Quality Care (quarterly newsletter), The Resource Guide (annual directory of products and services for incontinence), and assorted educational leaflets on topics related to incontinence.

Other Services: Continence Resource Service, market research, and information clearinghouse services.

[Top]

National Association of Nephrology Technicians/Technologists

    11 West Monument Avenue
    Suite 510
    P.O. Box 2307
    Dayton, OH 45401-2307
    Phone: (937) 586-3705
    Fax: (937) 586-3699
    Email: nant@nant.meinet.com
    Internet: www.dialysistech.org
    Francine W. Rickenbach, CAE, Executive Director

Mission: To promote the highest quality of care for end-stage renal disease (ESRD) patients through education and professionalism by providing educational opportunities for the technical practitioner and other members of the integrated care team, representing the technical professional in the regulatory and legislative arena, developing technical professionals in leadership roles, achieving recognition for the role and significant contribution of the technical practitioner to the total care of the ESRD patient, and serving as a resource for the ESRD community to accomplish each of these goals.

Materials: Bimonthly newsletter, educational and technical manuals, regional educational meetings.

[Top]

National Bladder Foundation

    P.O. Box 1095
    Ridgefield, CT 06877
    Phone: (877) BLADDER
    Fax: (203) 431-0008
    Email: debsla@aol.com
    Internet: www.bladder.org
    Debra Slade, M.A., President

Mission: To achieve the rapid discovery of cures and preventive interventions for the most common bladder diseases, through the support of research.

Materials: Patient education brochures and support-lines services.

[Top]

National Foundation for Transplants
(formerly the Organ Transplant Fund)

    1102 Brookfield Road
    Suite 200
    Memphis, TN 38119
    Phone: 1-800-489-3863 or (901) 684-1697
    Fax: (901) 684-1128
    Email: natfoundtx@aol.com
    Internet: www.transplants.org
    Gary McMahan, Executive Director

Mission: To assist transplant candidates and recipients in raising funds for transplant-related care and needs not covered by insurance.

[Top]

National Kidney Foundation (NKF)

    30 East 33rd Street
    New York, NY 10016
    Phone: 1-800-622-9010 or (212) 889-2210
    Internet: www.kidney.org
    John Davis, Executive Director

Mission: To prevent kidney and urinary tract diseases, improve the health and well-being of individuals and families affected by these diseases, and increase the availability of all organs for transplantation.

Materials: Advances in Renal Replacement Therapy, American Journal of Kidney Diseases, CNSW Newsletter, CRN News and Briefs (newsletter), CNNT Newsletter, Family Focus (newsletter), Transplant Chronicles (newsletter), Journal of Renal Nutrition, Journal of Nephrology Social Work, For Those Who Give and Grieve (newsletter), and patient and public education materials.

State Groups: 52

Other Services: Council of Nephrology Nurses and Technicians (CNNT), Council of Nephrology Social Workers (CNSW), Council on Renal Nutrition (CRN), Council on Dialysis, Council on Transplantation, Council on Pediatric Nephrology/Urology, Council on Glomerulonephritis, Council on Polycystic Kidney Disease, National Donor Family Council, Patient & Family Council, transAction Council, Council on Diabetic Kidney Disease, Council on Hypertension.

[Top]

National Organization for Rare Disorders Inc. (NORD)

Mission: To act as a clearinghouse for information about rare disorders and provide a network for mutual support to match families with similar disorders; to foster communication among rare disease voluntary agencies, Government bodies, industry, scientific researchers, academic institutions, and concerned individuals; and to encourage and promote research and education about rare disorders and orphan drugs.

Materials: Fact sheets and reprints on rare disorders and Orphan Drug Update (newsletter).

[Top]

Nephrogenic Diabetes Insipidus Foundation

    Main Street
    P.O. Box 1390
    Eastsound, WA 98245
    Phone: 1-888-376-6343
    Fax: 1-888-376-3842
    Email: info@ndif.org
    Internet: www.ndif.org
    Bill Wulff, President

Mission: To support education, research, treatment, and cure for nephrogenic diabetes insipidus. To create a communication channel to serve the entire NDI community: patients and their families, researchers, physicians, and other health care providers.

[Top]

North American Society for Dialysis and Transplantation

Mission: Specialty conference on current issues in nephrology, dialysis, and transplantation.

[Top]

North American Transplant Coordinators Organization

    P.O. Box 15384
    Lenexa, KS 66285-5384
    Phone: (913) 492-3600
    Fax: (913) 599-5340
    Email: natco-info@applmeapro.com
    Dede Gish Panjada, Executive Director

Mission: To support, develop, and advance the knowledge and practice of its members and enhance the quality, effectiveness, and integrity of donation and transplantation.

Materials: In Touch newsletter and Progress in Transplantation journal.

[Top]

Organ Transplant Fund--see
National Foundation for Transplants

[Top]

Oxalosis and Hyperoxaluria Foundation (OHF)

    Home Office
    5727 Westcliffe Drive
    St. Louis, MO 63129-4265
    Phone: 1-888-721-2432, ext. 5392, or (314) 351-2177
    Fax: (314) 351-6368
    Email: execdirector@ohf.org
    Internet: www.ohf.org
    Lauri Royer, Executive Director

Mission: To seek the cause, improve the clinical treatment, and discover the cure of hyperoxaluria and oxalate stone disease and enhance the quality of life of patients and their families.

[Top]

Polycystic Kidney Disease Foundation

    4901 Main Street
    Suite 200
    Kansas City, MO 64112-2634
    Phone: 1-800-PKD-CURE or (816) 931-2600
    Fax: (816) 931-8655
    Email: pkdcure@pkdcure.org
    Internet: www.pkdcure.org
    Dan Larson, President and CEO
    Dale Culver, Vice President

Mission: To promote research in the cause, treatment, and cure of polycystic kidney disease.

Materials: Polycystic Kidney Disease (patient manual); PKR Progress (quarterly newsletter); Autosomal Recessive PKD, Questions and Answers; The Family and ADPKD; and Health Tips for Living with PKD.

[Top]

The Prostatitis Foundation

    1063 - 30th Street, Box 8
    Smithshire, IL 61478
    Phone: 1-888-891-4200
    Fax: (309) 325-7184
    Email: mcapstone@aol.com
    Internet: www.prostate.org
    Mike Hennenfent, President

Mission: To provide support to men with prostatitis and to push for prostatitis research funding.

Materials: The Prostatitis Foundation Information Packet.

[Top]

Renal Physicians Association

    4701 Randolph Road
    Suite 102
    Rockville, MD 20852
    Phone: (301) 468-3515
    Fax: (301) 468-3511
    Email: rpa@renalmd.org
    Internet: www.renalmd.org
    William Owen, Jr., M.D., President
    Dale Singer, MHA, Executive Director

Mission: To ensure optimal care under the highest standards of medical practice for patients with renal disease and related disorders, to act as a national representative for physicians engaged in the study and management of patients with renal disease and related disorders, and to serve as a major resource for the development of national health policy concerning renal disease.

Materials: RPA News, bimonthly, available at no cost to members; clinical practice guideline on adequacy of hemodialysis; ESRD in the Age of Managed Care: A Primer on Capitation.

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The Simon Foundation for Continence

Mission: To remove the stigma from incontinence and provide help to sufferers, their families, and the professional caregiver.

Materials: The Informer (quarterly newsletter), Managing Incontinence: A Guide to Living with the Loss of Bladder Control, several videos, slide presentations, and other educational materials.

[Top]

The Society for Urodynamics and Female Urology

    1111 North Plaza Drive
    Suite 550
    Shaumberg, IL 60173-4950
    Phone: (847) 517-7225
    Fax: (847) 517-7229

Mission: To act for charitable, scientific, and educational purposes, particularly in the advancement and dissemination of scientific knowledge in the fields of neurourology and urodynamics, including voiding dysfunction, female urology, incontinence, impotency, and bioengineering of the genitourinary system, and the application of such knowledge in the diagnosis and treatment of urologic diseases.

Materials: Neurourology and Urodynamics.

[Top]

Society of Government Service Urologists

    7027 Weathered Post
    San Antonio, TX 78238
    Phone: (210) 681-5800
    Fax: (210) 680-7725
    Email: sgsu@txdirect.net
    Preston Littrell, Administrator

Mission: Professional membership organization of Government service urologists.

[Top]

Society of University Urologists

    Ohio State University Medical Center
    Division of Urology
    4980 University Hospitals Clinic
    456 West 10th Avenue
    Columbus, OH 43210-1228
    Phone: (614) 293-3648
    Fax: (614) 293-3565
    Email: bahnson-1@medctr.osu.edu
    Robert R. Bahnson, M.D., Secretary/Treasurer

Mission: To promote high standards in the urology field by acting as a forum for the interchange of ideas and materials relative to university urology educational programs and by fostering a balance of all phases of academic work in urology. Members consist of urologists holding faculty or teaching positions in residency training programs.

Materials: Objectives for Urology Residency Education (guidelines for educational units).

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Society of Urologic Nurses and Associates

    East Holly Avenue
    Box 56
    Pitman, NJ 08071-0056
    Phone: 1-888-TAP-SUNA or (856) 256-2335
    Fax: (856) 589-7463
    Email: suna@ajj.com
    Internet: www.suna.org
    Rick Grimes, Executive Director

Mission: Professional organization committed to excellence in patient care standards and a continuum of quality care, clinical practice, and research through education of its members, patients, family, and community.

Materials: Program Newsletter, Urologic Nursing (official journal), and Standards of Urologic Nursing Practice.

Local Groups: 32

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Transplant Recipients International Organization (TRIO)

    1000 16th Street NW.
    Suite 602
    Washington, DC 20036-5705
    Phone: 1-800-TRIO-386 or (202) 293-0980
    Lisa Kory, Executive Director

Mission: An independent, not-for-profit, international organization committed to improving the quality of life of transplant candidates, recipients, donors, and their families. Through the TRIO Headquarters and a network of chapters, TRIO serves its members in the areas of

    Awareness: Promoting organ and tissue donation as an important social responsibility. Developing and supporting mechanisms to improve availability of organs and tissues on an equitable basis to meet the needs of transplant candidates.

    Support: Providing support to transplant candidates, recipients, donors, and their families to help alleviate the stresses and problems associated with the transplantation process.

    Education: Providing transplant candidates, recipients, donors, and their families with current information on developments in organ and tissue donation, transplantation, medications, social issues, and finances, as well as information on initiatives in the field of transplantation by Federal, State, and local government bodies.

    Advocacy: Making known to Federal, State, and local government bodies the concerns and needs that affect the welfare of transplant candidates, recipients, donors, and their families. Effectively communicating their views to the general public on issues in the field of transplantation and organ and tissue donation.

Materials: Lifelines (bimonthly), Membership Update (once a month for members).

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The Transplantation Society

Mission: To provide information and direct grants nationally to post-transplant recipients to offset the costs of immunosuppressive medications.

Materials: Transplantation and Transplantation Proceedings.

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United Network for Organ Sharing (UNOS)

    1100 Boulders Parkway
    Suite 500
    P.O. Box 13770
    Richmond, VA 23225
    Phone: (804) 330-8500
    Fax: (804) 330-8517
    Internet: www.unos.org
    Walter Graham, Executive Director

Mission: To advance organ availability and transplantation by uniting and supporting its communities for the benefit of patients through education, technology, and policy development.

Materials: UNOS Update and educational materials.

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United Ostomy Association Inc. (UOA)

    19772 MacArthur Boulevard
    Suite 200
    Irvine, CA 92612
    Phone: 1-800-826-0826 or (949) 660-8624
    Fax: (949) 660-9262
    Email: info@uoa.org
    Internet: www.uoa.org
    Nancy Italia, Executive Director

Mission: To offer practical assistance and emotional support to ostomy patients through trained UOA members and to produce and distribute materials about ostomy care and management.

Materials: Ostomy Quarterly (magazine) and patient education materials.

Local Groups: 550


National Kidney and Urologic Diseases Information Clearinghouse

3 Information Way
Bethesda, MD 20892-3580
Email: nkudic@info.niddk.nih.gov

The National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC) is a service of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK). The NIDDK is part of the National Institutes of Health under the U.S. Department of Health and Human Services. Established in 1987, the clearinghouse provides information about diseases of the kidneys and urologic system to people with kidney and urologic disorders and to their families, health care professionals, and the public. NKUDIC answers inquiries, develops and distributes publications, and works closely with professional and patient organizations and Government agencies to coordinate resources about kidney and urologic diseases.

Publications produced by the clearinghouse are carefully reviewed by both NIDDK scientists and outside experts.

This e-text is not copyrighted. The clearinghouse encourages users of this e-pub to duplicate and distribute as many copies as desired.


February 2002

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