HomeResearchIntramural ResearchResearch Branches at NHGRISocial & Behavioral Research Branch Chandros Hull Research

Sara Chandros Hull, Ph.D. Associate Investigator, Bioethicist Social and Behavioral Research Branch Director Bioethics Core B.A. Brandeis University, 1993 Ph.D. The Johns Hopkins University, 1999 (301) 435-8712 (301) 496-0760  shull@mail.nih.gov Building 10, Room 1C141 10 Center Drive, MSC 1156 Bethesda, MD 20892-1156 Selected Publications

In my research I have sought to understand public attitudes and preferences regarding genetics research and genetic technology, using a complement of both qualitative and quantitative research. My current research focuses on patient attitudes regarding the use of blood samples for genetic research; attitudes towards recruitment approaches in family research; content analyses of consent forms for genetic research; attitudes about the privacy of genetic information and genetic testing; targeting of specific populations for genetic testing services; and decision-monitoring in adolescent research. Previously I have examined variability in IRB review of multicenter research; direct-to-consumer marketing and sales of genetic testing; and the role of the study coordinator in informed consent.

I am also a member and administrator for the Institutional Review Board of the National Human Genome Research Institute.

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Last Updated: September 2004