U.S. Department of Health and Human ServicesU.S. Department of Health and Human Services
This package--distributed at a national conference held at the Loews L'Enfant Plaza Hotel, Washington, D.C. on June 10-12, 2001--was prepared by the Office of Disability, Aging and Long-Term Care Policy) with the U.S. Department of Health and Human Services (HHS). Additional funds were provided by the Robert Wood Johnson Foundation, HHS Substance Abuse and Mental Health Administration, HHS Administration on Developmental Disabilities, HHS Centers for Medicare and Medicaid Services, HHS Administration on Aging, and the American Association of Retired Persons. For additional information, you may visit the DALTCP home page at http://aspe.hhs.gov/daltcp/home.htm or contact the ASPE Project Officer, Andreas Frank, at HHS/ASPE/DALTCP, Room 424E, H.H Humphrey Building, 200 Independence Avenue, SW, Washington, DC 20201. His e-mail address is: afrank@osaspe.dhhs.gov.
We are glad that you arrived safely in Washington, D.C. for the conference, and look forward to working closely with you over the next few days.
The conference, Independent Choices: A National Symposium on Consumer-Direction and Self-Determination for the Elderly and Persons with Disabilities, is intended to: (1) present research findings and convey the experiences of existing programs and demonstration projects, and (2) identify future directions for policy development and research and demonstration projects which promote effective and responsible consumer-directed service systems for the elderly and people with disabilities.
The conference will be successful if it achieves the following goals:
Educating a large group of representatives from federal, state, and local governments, associations, advocacy groups, funders, research institutions, consumer-directed providers, and self-advocates on available research evidence regarding consumer-directed programs for the elderly and people with disabilities.
Identifying gaps in the knowledge base that need to be filled if consumer-directed programs are to effectively serve people with long-term care disability-related needs, regardless of age or type of condition.
Stimulating new research to support more efficient and effective strategies for the financing, organization, and delivery of consumer-directed services to the elderly and people with disabilities.
This package contains a detailed agenda, the hotel layout, and a list of participants, participant bios, presentations and handouts. Additionally, restaurant and transportation information has been included to assist you in getting around and enjoying the Washington, D.C. area.
Data in this notebook should not be distributed unless the author personally agrees. The materials are compiled merely for purposes of discussion and debate.
Whereas we have tried to make sure that all information is correct at the time of printing, we understand that there may be additional changes that will need to be made. Please forward corrections to us at our fax number 202-401-7733 so that future copies will be correct.
We hope that you enjoy your time in Washington, D.C. If there is anything that we can do to make your stay more comfortable, please ask for Sharon Leeney or Andreas Frank at the conference Registration Desk.
U.S. Department of Health and Human Services
Office of the Assistant
Secretary for Planning and Evaluation
Office of Disability, Aging and
Long-Term Care Policy
The Robert Wood Johnson Foundation
Substance Abuse and Mental Health
Administration
Administration on Developmental Disabilities
Centers for
Medicare and Medicaid Services (formerly the Health Care Financing
Administration)
Administration on Aging
AARP
SUNDAY, JUNE 10, 2001
MONDAY, JUNE 11, 2001
TUESDAY, JUNE 12, 2001
Mary Adams, Associate Director of Health Services, South Plains Community Action Association, Inc., P.O. Box 94692, Lubbock, TX 79493, Tel: 806-797-6393, Fax: 806-797-6397, E-mail: MCZAdams@aol.com
Robert Applebaum, Professor/Associate Director, Miami University, Scripps Gerontology Center, 396 Upham, Oxford, OH 45056, Tel: 513-529-2914, Fax: 513-529-1476, E-mail: applebra@muohio.edu
Jeanne Argoff, Executive Director, Disability Funders Network, 2529 Kirklyn Street, Falls Church, VA 22043, Tel: 703-560-0099, Fax: 703-560-1151, E-mail: njargoff@aol.com (Bio)
Travis Arneson, South Dakota Developmental Disability Council, 3800 E Highway 34, c/o 500 E Capitol, Pierre, SD 57501, Tel: 605-773-5990, Fax: 605-773-5483, E-mail: arlene.poncelet@state.sd.us (Bio)
Benard Arons, MD, Director, Center for Mental Health Services, Department of Health and Human Services/SAMHSA, 5600 Fishers Lane, Room 17-99, Rockville, MD 20857, E-mail: barons@samhsa.gov (Bio)
Dawn Arsenault, Outreach Coordinator, Green Mountain Self-Advocates, 73 Main Street, Suite 401, Montpelier, VT 05602, Tel: 802-229-2600, Fax: 802-223-2132, E-mail: vpsn@sover.net (Bio)
Michael Auberger, National Organizer, ADAPT, 201 South Cherokee, Denver, CO 80223, Tel: 303-733-9324, Fax: 303-733-6211, E-mail: adaptmwa@home.com
Andrew Bader, Principal, Clarion Consulting Group, 108 Thurston Road, Newton, MA 02464, Tel: 617-527-5082, Fax: 800-840-7714, E-mail: andybader@mediaone.net (Bio)
Sandra Barrett, Assistant Director, Arkansas Division of Aging and Adult Services, P.O. Box 1437, Slot 1412, Little Rock, AR 72203-1437, Tel: 510-682-8531, Fax: 501-682-8155, E-mail: sandra.barrett@mail.state.ar.us (Presentation)
Andrew Batavia, JD, MS, Associate Professor, FL International University, 2845 Prairie Avenue, Miami Beach, FL 33140, Tel: 305-672-1128, E-mail: batavia1957@hotmail.com (Bio) (2000 Report)
Margaret (Maggie) Belton, Board Chair, Personal Assistance Service Council, 4730 Woodman, #405, Sherman Oaks, CA 91423, Tel: 818-206-7008, Fax: 818-206-8000, E-mail: lmbelton@mindspring.com (Bio)
A.E. (Ted) Benjamin, Professor, UCLA, Department of Social Welfare, 3250 Public Policy Building, Los Angeles, CA 90095-1656, Tel: 310-206-6044, Fax: 310-206-7446, E-mail: tedbenj@ucla.edu (Bio) (2000 Report)
Kari Benson, Policy Analyst, Administration on Aging, 300 Independence Avenue, S.W., Washington, DC 20201, Tel: 202-205-0624, Fax: 202-260-1019, E-mail: kari.benson@aoa.gov
Lee Bezanson, Medicaid Director, New Hampshire Department of Health and Human Resources, 120 Pleasant Street, Concord, NH 03301, Tel: 603-271-4348, E-mail: lbezanson@dhhs.state.nh.us (Bio)
Crystal Blyler, PhD, Social Science Analyst, Community Support Program Branch, SAMHSA Center for Mental Health Services, 5600 Fishers Lane, Room 11-C-22, Rockville, MD 20857, Tel: 301-443-3653, Fax: 301-443-0541, E-mail: cblyler@samhsa.gov (Bio)
Gloria Bonali, Chair, South Carolina State Legislative Committee, American Association of Retired Persons, 109 Timberline Drive, Conway, SC 29526-8959, Tel: 843-347-2374, Fax: 843-347-2374, E-mail: bonali@sccoast.net
Valerie Bradley, Human Services Research Institute, 2336 Massachusetts Avenue, Cambridge, MA 02140, Tel: 617-876-0426, Fax: 617-492-7401, E-mail: vbradley@hsri.com (Presentation) (1999 Report)
Hilary Brazzell, Office of Developmental Disabilities, Florida Department of Children and Families, 1317 Winewood Boulevard, Building 3, Room 325, Tallahassee, FL 32399-0700, Fax: 859-922-6456
Jon Brock, Member, CMHS National Advisory Council Subcommittee on Consumer/Survivor Issues, 816 Conroy Road, Birmingham, AL 35222, Tel: 205-591-8520, E-mail: jonbrocknc@aol.com (Bio)
Richard Browdie, Secretary, Pennsylvania Department of Aging, Forum Place, 555 Walnut Street, 5th Floor, Harrisburg, PA 17101-1919, Tel: 717-783-1550, Fax: 717-772-3382, E-mail: rbrodie@state.pa.us (Bio)
Joyce Brown-Moore, Administrative Assistant, ASPE/DALTCP, 200 Independence Avenue, S.W., Washington, DC 20201, Tel: 202-690-6443, Fax: 202-401-7733, E-mail: jbrown-m@osaspe.dhhs.gov
Mandee Buckley, Parent/Self Advocate, Project Leadership, 7366 South Redwood Road, #63, West Jordan, UT 84084, Tel: 801-281-4425, E-mail: Mandeegrt@aol.com
Frank Burns, Director of Planning and Evaluation, Administration on Aging, 200 Independence Avenue, S.W., Washington, DC 20201, Tel: 202-260-3931, Fax: 202-619-0850, E-mail: frank.burns@aoa.gov
Cliff Burt, Program Manager, Georgia Division of Aging Services, 2 Peachtree Street, N.W., Suite 36-385, Atlanta, GA 30303, Tel: 404-657-5336, Fax: 404-657-5285, E-mail: gcburt@dhr.state.ga.us (Bio)
Brian Burwell, Vice President, The MEDSTAT Group, 125 Cambridge Park Drive, Cambridge, MA 02140, Tel: 617-492-9302, Fax: 617-492-9365, E-mail: brian.burwell@medstat.com (Bio)
Donna Calame, Executive Director, San Francisco In-Home Support Services Public Authority, 939 Market Street, Suite 550, San Francisco, CA 94103, Tel: 415-243-4477 x303, Fax: 415-243-4407, E-mail: dcalame@sfihsspa.org
Lynne Camillo, JD, Internal Revenue Service, 1111 Constitution Avenue, Room 5329, Washington, DC 20224, Tel: 202-622-6040, Fax: 202-622-4817 (Bio)
Tina Campanella, Executive Director, ProLerna, 100 West Road, Suite 406, Towson, MD 21204, Tel: 410-583-0060, Fax: 410-583-0063, E-mail: tina818@aol.com
Jean Campbell, PhD, Research Assistant Professor, University of Missouri, Institute of Mental Health, 5400 Arsenal Street, St. Louis, MO 63139, Tel: 314-644-7829, Fax: 314-644-7934, E-mail: campbelj@mimh.edu (Bio) (Presentation)
Anthony Caputo, CPA, Concepts of Independence, Inc., 120 Wall Street, Suite 1010, New York, NY 10005, Tel: 212-293-9999, Fax: 212-293-3040, E-mail: conceptscdpa@earthlink.net (Bio)
Sylvia Caras, PhD, Founder, People Who, 146 Chrystal Terrace 5, Santa Cruz, CA 95060, Tel: 831-426-5335, E-mail: sylvia@peoplewho.org (Bio)
Michael Cardella, Self-Advocate, New York State Self Advocacy Association, 102 Windy Hill Road, Greenwich, NY 12834, Tel: 518-695-4568, Fax: 518-695-3062, E-mail: Barb102@earthlink.net (Bio)
Paul Carlino, JD, Internal Revenue Service, 1111 Constitution Avenue, Room 5329, Washington, DC 20224, Tel: 202-622-6040 (Bio)
George Caruso, 11 Coral Drive, Mercerville, NJ 08619, Tel: 609-587-7760, E-mail: gcaruso11@aol.com
Judi Chamberlin, Senior Training Associate, Center for Psychiatric Rehabilitation, 940 Commonwealth Avenue West, Boston, MA 02215, Tel: 781-777-1154, Fax: 781-777-1154, E-mail: MadPride@aol.com or judicham@bu.edu (Bio)
RoAnne Chaney, MPA, Senior Program Officer, Center for Health Care Strategies, 1009 Lenox Drive, Suite 204, Lawrenceville, NJ 08648, E-mail: roanne@sprynet.com (Bio)
Lisa Chevalier, Policy Analyst, Administration on Aging, 330 Independence Avenue, S.W., Washington, DC 20201, Tel: 202-205-0671, Fax: 202-260-1019, E-mail: lisa.chevalier@aoa.gov
Henry Claypool, Senior Advisor for Disability Policy, Centers for Medicare and Medicaid Services, 200 Independence Avenue, S.W., Washington, DC 20201, Tel: 202-260-2700, Fax: 202-690-6262, E-mail: hclaypool@cms.hhs.gov
Elizabeth Clemmer, Associate Director, Public Policy Institute, American Association of Retired Persons, 601 E Street, N.W., Washington, DC 20049, Tel: 202-434-3911, Fax: 202-434-6402, E-mail: eclemmer@aarp.org
Alette Coble-Temple, Research Associate II, World Institute on Disability, 510 16th Street, Suite 100, Oakland, CA 94612, Tel: 510-251-4337, Fax: 510-763-4109, E-mail: alette@wid.org
Theodore Cochran, Operating Partner, Aspen Management Group, LLC, 8500 West Markham Road, Suite 200, Little Rock, AR 772205, Tel: 501-217-8123, Fax: 501-217-8125 (Bio)
Bill Coffelt, Co-Chair, The National Coalition on Self-Determination, 2925 Viona Road, Pollock Pines, CA 95726, Tel: 530-647-8246, Fax: 530-647-8246, E-mail: wcoffelt@prodigy.net (Bio)
Darlene Coggins, President, People First of Georgia, Athens, GA 30602, Tel: 706-542-6086, Fax: 706-542-4815, E-mail: dcoggins@arches.uga.edu
Elias Cohen, Executive Director, Community Services System, Inc., 136 Farwood Road, Wynnewood, PA 19096, Tel: 610-896-7157, Fax: 610-658-2183, E-mail: elimarco@snip.net (Bio)
Marc Cohen, LifePlans, Inc., 2 University Office Park, 51 Sawyer Road, Waltham, MA 02154, Tel: 617-893-7600 x250
Diane Coleman, JD, MBA, Executive Director, Progress Center for Independent Living, 7521 Madison Street, Forest Park, IL 60130, Tel: 708-209-1500, Fax: 708-209-1735, E-mail: ndycoleman@aol.com (Bio)
Lou Comer, Senior Analyst, Florida Department of Elder Affairs, 4040 Esplanade Way, Room 2351, Tallahassee, FL 32399-7000, Tel: 850-414-2094, Fax: 850-414-2310, E-mail: comerl@elderaffairs.org
Lora Connolly, MS, Assistant Secretary, CA Health and Human Services Agency, 1600 Ninth Street, Room 460, Sacramento, CA 95814, Tel: 916-654-3301, Fax: 916-654-3343 (Bio)
James Conroy, PhD, Center for Outcome Analysis, 201 Sabine Avenue, Narbeth, PA 19072, Tel: 610-668-9001, Fax: 610-668-9002, E-mail: jconroycoa@aol.com (Bio) (Presentation)
Fred Cowell, Staff Director for Health Policy, Paralyzed Veterans of America, 801 18th Street, N.W., Washington, DC 20006, Tel: 202-416-7602, Fax: 202-331-1657, E-mail: fredc@pva.org
Suzanne Crisp, Assistant Director, Arkansas Division of Aging and Adult Services, P.O. Box 437, Slot 1412, Little Rock, AR 72203-1437, Tel: 501-682-2441, Fax: 501-682-8155, E-mail: suzanne.crisp@mail.state.ar.us
M. Doreen Croser, Executive Director, American Association on Mental Retardation, 444 North Capitol Street, N.W., Suite 846, Washington, DC 20001-1512, Tel: 202-387-1968, Fax: 202-387-2193, E-mail: dcroser@aamr.org (Bio)
Andy Curry, Project Coordinator, San Juan Center for Independence, 504 North Main, Aztec, NM 87410, Tel: 505-334-5805, Fax: 505-334-5528, E-mail: andycurry1@aol.com (Bio)
Adelaide Daskim, Field Coordinator, The Self-Advocacy Project, 44 Stelton Road, Suite 110, Piscataway, NJ 08854, Tel: 732-926-8010, Fax: 732-926-8030, E-mail: arcsap@dandy.net
Paolo del Vecchio, Acting Director, Office of External Liaison, Center for Mental Health Services/SAMHSA, 5600 Fishers Lane, Room 15-99, Rockville, MD 20857, Tel: 301-443-2619, Fax: 301-443-5163
Thom DeLilla, Bureau Chief, Bureau of Brain and Spinal Cord Injury Program, Florida Department of Health, 4052 Bald Cypress Way, BIN C#25, Tallahassee, FL 32399-1744, Tel: 850-245-4045, Fax: 850-921-0499, E-mail: thom_delilla@doh.state.fl.us (Bio)
Doris Dennison, P.O. Box 3874, Yahtahey, NM 87375, Fax: 505-334-5528
Roger Deshaies, Consultant, William M. Mercer, Inc., 3131 East Camelback Road, #300, Phoenix, AZ 85016, Tel: 602-522-6549, Fax: 602-957-9573, E-mail: roger.deshaies@us.wmmercer.com (2001 Report)
Tanya Dickens, Consumer, Florida Developmental Disabilities Consumer-Directed Care Project, 503 West Idlewild Avenue, Tampa, FL 33604, Tel: 813-237-3034, Fax: 813-237-8514, E-mail: sloans_2000@yahoo.com (Bio)
William Ditto, Executive Director, New Jersey Office on Disability Services, 222 South Warren Street, P.O. Box 700, Trenton, NJ 08625-0700, Tel: 609-292-7800, Fax: 609-292-1233, E-mail: wditto@dhs.state.nj.us (Bio) (Presentation)
Virginia Dize, Director, Center for the Advancement of State Community Services Programs, National Association of State Units on Aging, 1225 I Street, N.W., Suite 725, Washington, DC 20005, Tel: 202-898-2578, Fax: 202-898-2583, E-mail: vdize@nasua.org (Bio) (2000 Article)
Pamela Doty, PhD, Senior Analyst, ASPE/DALTCP, 200 Independence Avenue, S.W., Washington, DC 20201, Tel: 202-690-6443, Fax: 202-401-7733, E-mail: pdoty@osaspe.dhhs.gov (Bio) (2000 Report) (1996 Report)
Mary Jean Duckett, Director, Division of Benefits, Coverage and Payment, DEHPG/CMSO, Centers for Medicare and Medicaid Services, 7500 Security Boulevard, S2-14-26, Baltimore, MD 21244-1850, Tel: 410-786-3294, Fax: 410-786-3262, E-mail: mduckett@cms.hhs.gov
Brian M. Duke, Director, Geriatric Regional Initiative, Institute on Aging, University of Pennsylvania Health System, 3615 Chestnut Street, Philadelphia, PA 19104, Tel: 215-573-5105, Fax: 215-573-8684, E-mail: brianmd@mail.med.upenn.edu
Gerald Eggert, PhD, Executive Director, Monroe County Long Term Care Program, Inc., 349 West Commercial Street, Suite 2250, East Rochester, NY 14445, Tel: 716-248-8770, Fax: 716-383-1728, E-mail: GMEggert@aol.com (Bio)
Eileen Elias, MEd, Special Expert, SAMHSA/OA/OPPC, Parklawn Building, 12C-15, 5600 Fishers Lane, Rockville, MD 20857, Tel: 301-443-8742, Fax: 301-594-6159, E-mail: eelia@samhsa.gov
Catherine Ellis, National Coalition for Self-Determination, 453 South Orange Grove Boulevard, #5, Pasadena, CA 91105, Tel: 626-792-3605, Fax: 626-792-4727, E-mail: cathellis@aol.com (Bio)
Deborah Ellis, Program Manager, Independent Choices, Arkansas Division of Aging and Adult Services, P.O. Box 1437, Little Rock, AR 72206, Tel: 501-682-8082, Fax: 501-682-8706, E-mail: debby.ellis@medicaid.state.ar.us (Bio)
Pam Erkel, Consumer Support Options Supervisor, Minnesota Department of Human Services, 444 Lafayette Road, St. Paul, MN 55155-3857, Tel: 651-582-1908, Fax: 651-582-1962, E-mail: pam.erkel@state.mn.us
Nancy Eustis, Associate Dean and Professor, Humphrey Institute of Public Affairs, 301 19th Avenue South, #225, Minneapolis, MN 55455, Tel: 612-625-4534, Fax: 612-625-3513, E-mail: neustis@hhh.umn.edu (2000 Article)
Alan Factor, PhD, Research Assistant Professor/Associate Director, Rehabilitation Research and Training Center on Aging with Developmental Disabilities (M/C 626), University of Illinois at Chicago, 1640 West Roosevelt Road, Chicago, IL 60608-6904, Tel: 312-413-1510, Fax: 312-996-6942, E-mail: afactor@uic.edu (Bio)
Mary Faherty, Long Term Support Manager, LaCrosse County Human Services Department, 300 North 4th Street, LaCrosse, WI 54601, Tel: 608-785-6062, Fax: 608-785-6443, E-mail: faherty.mary@co.la-crosse.wi.us (Bio)
Cindy Farson, Director, Central Ohio Area Agency on Aging, 174 East Long Street, Columbus, OH 43215, Tel: 614-645-3879, Fax: 614-645-3884, E-mail: farson@coaaa.org
Lynn Friss Feinberg, MSW, Director of Research and Information Programs, Family Caregiver Alliance, 690 Market Street, Suite 600, San Francisco, CA 94104, Tel: 415-434-3388, Fax: 415-434-3508, E-mail: lfeinberg@caregiver.org (Bio) (2000 Article) (2000 Report)
James Firman, President and CEO, National Council on the Aging, 409 Third Street, S.W., Washington, DC 20024, Tel: 202-479-6601, Fax: 202-479-6602, E-mail: james.firman@ncoa.org
Dennis Fitzgibbons, Director of Operations, Alpha One, 127 Main Street, South Portland, ME 04106, Tel: 207-767-2189, Fax: 207-799-8346, E-mail: dennis_fitzgibbons@alpha-one.org (Bio)
Susan Flanagan, Senior Consultant, EP&P Consulting, Inc., 1201 Pennsylvania Avenue, N.W., Suite 325, Washington, DC 20004, Tel: 202-628-1134, Fax: 202-628-1140, E-mail: sflanagan@eppconsulting.com (Bio) (Presentation) (2000 Article) (1997 Report)
Lynda Flowers, Senior Policy Analyst, National Academy for State Health Policy, 2021 K Street, N.W., Suite 800, Washington, DC 20006, Tel: 202-293-1808, E-mail: lflowers@nashp.org
John Foley, Executive Director, The Arc of New Mexico, 3655 Carlisle N.E., Albuquerque, NM 87110, Tel: 505-883-4630, Fax: 505-883-5564, E-mail: jfoley@arcnm.com (Bio)
Sandra Foote, Director, Health Insurance Reform Project, George Washington University, 2131 K Street, N.W., Suite 500, Washington, DC 20037, Tel: 202-872-4036, Fax: 202-785-4749, E-mail: smfoote@gwu.edu
Marty Ford, Director of Legal Advocacy, The Arc of the United States, 1730 K Street, N.W., Suite 1212, Washington, DC 20006, Tel: 202-785-3388, Fax: 202-467-4179, E-mail: ford@thearc.org
Tommy Ford, CLASS Unit Manager, TX Department of Human Services, P.O. Box 149030, 701 West 51st Street, Austin, TX 78714-9030, Tel: 512-438-3689, Fax: 512-438-5135, E-mail: tommy.ford@dhs.state.tx.us (Bio)
Janice Fortner, 511 J.K. Street, Searcy, AR 72143, Tel: 501-268-7946, Fax: 501-268-9069, E-mail: cfortner@ipa.net
Wendy Fox-Grage, Senior Policy Specialist, National Conference of State Legislatures, 444 North Capitol Street, N.W., Suite 515, Washington, DC 20001, Tel: 202-624-3572, Fax: 202-737-1069, E-mail: wendy.fox-grage@ncsl.org (Bio)
Andreas Frank, Analyst, ASPE/DALTCP, 200 Independence Avenue, S.W., Washington, DC 20201, Tel: 202-690-6443, Fax: 202-401-7733, E-mail: afrank@osaspe.dhhs.gov
Richard L. Fredrickson, Vice President of Special Needs, AMERIGROUP, 399 Thornall Street, 9th Floor, Edison, NJ 08818, Tel: 732-452-6046, Fax: 732-906-2021, E-mail: rfredric@amerigroupcorp.com (Bio)
Lex Frieden, Senior Vice President, Institute for Rehabilitation and Research, 1333 Moursund, Houston, TX 77030, Tel: 713-797-5283, Fax: 713-799-7095, E-mail: lfrieden@bcm.tme.edu
Elizabeth Fuller, Deputy Director, Office of Senior and Long-Term Care Services, South Carolina Department of Health and Human Services, P.O. Box 8206, Columbia, SC 29202-8206, Tel: 803-898-2501, Fax: 803-898-4515, E-mail: fullerb@dhhs.state.sc.us
William Fuller, LSW, MBA, Consultant, PAAS, 156 Cole Lane, Winchester, VA, 22602, Tel: 804-225-3128, E-mail: buffel@wmfuller.com (Bio)
Suellen Galbraith, Director for Public Policy, American Network of Community Options and Resources, 4200 Evergreen Lane, Suite 315, Annandale, VA 22003, Tel: 703-642-6614, Fax: 703-642-0497, E-mail: suellenancor@radix.net
Robert Gallant, Executive Director, Highland Valley Elder Services, 1320 Riverside Drive, Suite B, Northhampton, MA 01062, Tel: 413-586-2000, Fax: 413-584-7076, E-mail: qll@highlandvalley.org (Bio)
Allan Garry, 10432 Dracat Lane, New Port Ritchey, FL 34654, Tel: 727-845-0975, Fax: 727-847-1698
Raymond Gerke, Self Advocate, WRC, 1251 334th Street, Woodward, IA 50276, Tel: 515-438-3139, Fax: 515-438-3122, E-mail: rgerke@dhs.state.ia.us (Bio)
Robert Gettings, Executive Director, National Association of State Directors of Developmental Disabilities Services, 113 Oronoco Street, Alexandria, VA 22314, Tel: 703-683-4202, Fax: 703-684-1395, E-mail: rgettings@nasddds.org (Bio)
Christine Gianopoulos, Director, Bureau of Elder and Adult Services, Maine Department of Human Services, 11 State House Station, 35 Anthony Avenue, Augusta, ME 04333-0011, Tel: 207-624-5335, Fax: 207-624-5361, E-mail: christine.gianopoulos@state.me.us (Bio)
Rosemary Gibson, Senior Program Officer, Robert Wood Johnson Foundation, College Road East/Route 1, Princeton, NJ 08543, Tel: 609-627-5970, Fax: 609-514-5447, E-mail: rgibson@rwjf.org
Patricia Gittens, 7311 South Sherrill Street, Tampa, FL 33616, Tel: 813-831-2584
Jacqueline Golden, Executive Director, Inclusion Research Institute, 1329 West 41st Street, Baltimore, MD 21211, Tel: 410-467-6015, Fax: 410-467-6015, E-mail: jlgolden@bellatlantic.net
Roselle Gonzales, Policy Analyst, National Governor's Association, Center for Best Practices, 444 North Capitol Street, Suite 267, Washington, DC 20081, Tel: 202-624-5486
Gladys Gonzalez-Ramos, PhD, Associate Professor of Social Work, School of Social Work, New York University, One Washington Square North, Room 309, New York, NY 10012, Tel: 212-998-5932, Fax: 212-995-4836, E-mail: gmgl@nyu.edu (Bio)
Donald Grantt, Program Specialist, Administration on Aging, 330 Independence Avenue, S.W., Washington, DC 20201, Tel: 202-619-2629, Fax: 202-260-1019, E-mail: donald.grantt@aoa.gov
Rick Greene, Policy Analyst, Administration on Aging, 330 Independence Avenue, S.W., Washington, DC 20201, Tel: 202-205-2814, Fax: 202-260-1012, E-mail: rick.greene@aoa.gov (Bio)
Mary Guy, Health Insurance Specialist, Centers for Medicare and Medicaid Services, CMSO/DEHPG/DASI, 7500 Security Boulevard, Room S2-14-25, Baltimore, MD 21244-1850, Tel: 410-786-2772, Fax: 410-786-9004, E-mail: mguy@cms.hhs.gov
Patti Hackett, MEd, MCHB/HRTW Consultant, Academy for Educational Development, 3151 Northwest 44th Avenue, #143, Ocala, FL 34482, Tel: 352-207-6808, Fax: 202-549-1111, E-mail: pattihackett@yahoo.com
Gayle Hafner, JD, Staff Attorney and Maryland ADAPT Organizer, Maryland Disability Law Center, 1800 North Charles Street, Suite 400, Baltimore, MD 21201, Tel: 410-727-6352, Fax: 410-666-5080, E-mail: marylandadapt@yahoo.com (Bio)
Ruth Hagestuen, National Program Director, National Parkinson Foundation, 4147 Vincent Avenue South, Minneapolis, MN 55410, Tel: 612-915-9126, Fax: 612-920-5276, E-mail: hagestuenr@aol.com (Bio)
John Halloran, Managing Director, European Social Network, 8 Paston Place, Brighton BN2 1HA United Kingdom, Tel: +44 1273 603546, Fax: +44 1273 670487, E-mail: john.halloran@socialeurope.com (Bio)
Judy Halstead, SC and QI Supervisor, Lincoln-Lancaster County Health Department, 3140 N Street, Lincoln, NE 68510, Tel: 402-441-6705, Fax: 402-441-6707, E-mail: jhalstea@ci.lincoln.ne.us
Thomas Hamilton, Director, Disabled and Elderly Health Programs Group, Centers for Medicare and Medicaid Services, 7500 Security Boulevard, Baltimore, MD 21244, Tel: 410-786-9493, Fax: 410-786-9004, E-mail: thamilton@cms.hhs.gov
Cindy Hannum, Assistant Administrator, Senior and Disabled Services Division, Oregon Department of Health Services, 500 Summer Street, N.E., #E13, Salem, OR 97301-1074, Tel: 503-945-5833, Fax: 503-378-8966, E-mail: Cindy.HANNUM@state.or.us (Bio)
Mary Harahan, Consultant, 1927 Beaver Lane, McLean, VA 22102, Tel: 703-532-1955, Fax: 703-536-1706, E-mail: mfharahan1@aol.com
Melissa Harris, Health Insurance Specialist, Centers for Medicare and Medicaid Services, 7500 Security Boulevard, Mail Stop S2-14-26, Baltimore, MD 21244, Tel: 410-786-3397, Fax: 410-786-3262, E-mail: mharris1@cms.hhs.gov (Bio)
James Head, Jr., Senior Vice President, South Carolina Hospital Association, 101 Medical Circle, West Columbia, SC 29171, Tel: 803-796-3080, Fax: 803-796-2938, E-mail: jhead@scha.org (Bio)
Michael Head, Principal, Head and Associates, P.O. Box 11156, Lansing, MI 48901, Tel: 517-202-9896, Fax: 517-371-2323, E-mail: mjhead0530@aol.com
Leslie Hendrickson, PhD, Assistant Commissioner, New Jersey Department of Health and Senior Services, P.O. Box 722, Trenton, NJ 08625-0722, Tel: 609-588-2611, Fax: 609-588-3499, E-mail: lhendrickson@doh.state.nj.us (Bio)
Mary Beth Hennigan, Attendant Care Manager, Abilities In Motion, 416 Lair Avenue, Reading, PA 19601, Tel: 610-376-0030, Fax: 610-376-0035, E-mail: aimcm@netcarrier.com
Betsy McDonel Herr, PhD, Evaluation Specialist, Center for Mental Health Services/SAMHSA, Parklawn Building, Room 11C-22, 5600 Fishers Lane, Rockville, MD 20857, Tel: 301-594-2197, Fax: 301-443-0541, E-mail: bmcdonel@samhsa.gov
Laura Hershey, Consumer/Consultant, 1466 South Lincoln Street, Denver, CO 80210, Tel: 303-733-8717, Fax: 303-733-9191, E-mail: laurahershey@compuserve.com
Chris Hess, Assistant Director, Milwaukee County Department on Aging, 235 West Galena Street, Milwaukee, WI 53212, Tel: 414-289-6104, Fax: 414-289-8590, E-mail: chess@milwaukeecounty.com (Bio)
Judith Heumann, President, Heumann and Associates, 3133 Connecticut Avenue, N.W., #427, Washington, DC 20008, Tel: 202-332-5497, E-mail: judithheumann@aol.com (Bio)
Nicolette (Nikki) Highsmith, MPA, Director of Policy, Center for Health Care Strategies, 1009 Lenox Drive, Suite 204, Lawrenceville, NJ 08648, Tel: 609-895-8101, Fax: 609-895-9648, E-mail: nh@chcs.org (Bio)
Susan Hill, Division Director, Centers for Medicare and Medicaid Services, 7500 Security Boulevard, Mailstop S2-14-26, Baltimore, MD 21244, Tel: 410-786-2754, Fax: 410-786-9004, E-mail: shill@cms.hhs.gov
Claude Holcombe, ADAPT of Connecticut, Hartford, CT, Tel: 860-951-4398
Kendra Holden, Participant, Florida Developmental Disabilities Consumer-Directed Care Project, 9437 Rockrose Drive, Tampa, FL 33647-2813, Tel: 813-973-0374, E-mail: kendraholden@aol.com (Bio)
Kenneth Holden, Participant, Florida Developmental Disabilities Consumer-Directed Care Project, 9437 Rockrose Drive, Tampa, FL 33647-2813, Tel: 813-973-0374, E-mail: bigkenholden@aol.com (Bio)
Claudia Hoppe, Consumer Directed Care Outreach Coordinator, Florida Department of Elder Affairs, 4040 Esplanade Way, Tallahassee, FL 34399-7000, Tel: 813-293-1230, Fax: 813-996-5139, E-mail: Cahoppe@earthlink.net (Bio)
Colleen Horton, Texas Center for Disability Studies, University of Texas, Texas Advocates for Supporting Kids with Disabilities, 2425 Trail of Madrones, Austin, TX 78746, Tel: 512-471-7621, Fax: 512-327-5127, E-mail: colleen.horton@mail.utexas.edu
Don Hruby, Director, Consumer Resources and Outreach Program, Division of Mental Health, Des Moines, IA 50319-0114, Tel: 515-281-7274, Fax: 515-281-4597
Mike Huckabee, Governor of Arkansas, State Capitol, Little Rock, AR 72201, Tel: 501-682-2345, Fax: 501-682-3597, E-mail: info@gov.state.ar.us (Bio)
Julia Huddleston, Manager, Rate Setting and Audit Unit, Senior and Disabled Services Division, Oregon Department of Human Services, 500 Summer Street, N.E., #E18, Salem, OR 97301-1074, Tel: 503-945-6392, Fax: 503-947-5044, E-mail: julia.a.huddleston@state.or.us (Presentation)
Gail Gibson Hunt, Executive Director, National Alliance for Caregiving, 4720 Montgomery Lane, Suite 642, Bethesda, MD 20814, Tel: 301-718-8444, Fax: 301-652-7711, E-mail: gailhunt.nac@erols.com (Bio)
Ed Hutton, Technical Director, Centers for Medicare and Medicaid Services/CMSO, 7500 Security Boulevard, Mail Stop S2-14-26, Baltimore, MD 21244, Tel: 410-786-6616, Fax: 410-786-3262, E-mail: ehutton@cms.hhs.gov (Bio)
Iris Hyman, Consumer Affairs Specialist, Center for Mental Health Services/SAMHSA, 5600 Fishers Lane, Room 15-99, Rockville, MD 20857, Tel: 301-443-9864, Fax: 301-443-5163, E-mail: ihyman@samhsa.gov
Beth Jackson, Associate Director, The MEDSTAT Group, 125 Cambridge Park Drive, Cambridge, MA 02140, Tel: 617-492-9326, Fax: 617-492-9365, E-mail: beth.jackson@medstat.com
Patricia Janik, Program Specialist, Administration on Aging, 330 Independence Avenue, S.W., Washington, DC 20201, Tel: 202-619-1352, Fax: 202-260-1012, E-mail: patricia.janik@aoa.gov (Bio)
Rick Jelinek, Executive Vice President, Business Development, Evercare, 9900 Bren Road East, Minnetonka, MN 55343, Tel: 952-936-6847, Fax: 952-936-6902 (Bio)
Bobby Jindal, Assistant Secretary for Planning and Evaluation, U.S. Department of Health and Human Services, 200 Independence Avenue, S.W., Washington, DC 20201, Tel: 202-690-7858, Fax: 202-690-7383 (Bio)
Catriona Johnson, Director of Public Policy Initiatives, Maryland Developmental Disabilities Council, 300 West Lexington Street, Box 10, Baltimore, MD 21201, Tel: 410-333-3688, Fax: 410-333-3686, E-mail: catrionaj@md-council.org (Bio)
J. Rock Johnson, JD, 1342 South 11th Street, Lincoln, NE 68502-1219, Tel: 402-484-0202, E-mail: jrock10@sprynet.com (Bio)
Judith Miller Jones, Director of National Health Policy Forum, Adjunct Professor for Department of Health Care Sciences, George Washington University, 2131 K Street, N.W., Suite 500, Washington, DC 20037, Tel: 202-872-1390, Fax: 202-862-9837, E-mail: jmjones@gwu.edu (Bio)
Meg Kane, Parent/Advocate, 6813 Dearwester Drive, Cincinnati, OH 45236, Tel: 513-984-3359, Fax: 513-984-1660, E-mail: aileen7@aol.com (Bio)
Audrey Karibiyak, 6060 Northwest 104 Lane, Parkland, FL 33076, Tel: 904-225-0066, Fax: 904-225-0066
Joyce Karr, The Self-Advocacy Project, 44 Stelton Road, Suite 110, Piscataway, NJ 08854, Tel: 732-926-8010, Fax: 732-926-8030, E-mail: arcsap@dandy.net
Judith D. Kasper, Professor, Department of Health Policy and Management, Johns Hopkins University, Bloomberg School of Public Health, 624 North Broadway, Baltimore, MD 21205, Tel: 410-614-4016, Fax: 410-955-0470, E-mail: jkasper@jhsph.edu (Bio) (1996 Report)
Ruth Katz, Acting Deputy Assistant Secretary, ASPE/DALTCP, 200 Independence Avenue, S.W., Washington, DC 20201, Tel: 202-690-6443, Fax: 202-401-7733, E-mail: rkatz@osaspe.dhhs.gov
Sharon Keigher, PhD, Professor of Social Work, School of Social Welfare, University of Wisconsin-Milwaukee, 2400 East Hartford, Milwaukee, WI 53201, Tel: 414-229-4414, Fax: 414-229-5311, E-mail: keigher@uwm.edu
Ann Kempski, Associate Director, Department of Public Policy, AFSCME, 1625 L Street, N.W., Washington, DC 20036, Tel: 202-429-1163, Fax: 202-429-1084, E-mail: akempski@afscme.org
Gavin Kennedy, Analyst, ASPE/DALTCP, 200 Independence Avenue, S.W., Washington, DC 20201, Tel: 202-690-6443, Fax: 202-401-7733, E-mail: gkennedy@osaspe.dhhs.gov
Sandy Khoury, Health Insurance Analyst, Centers for Medicare and Medicaid Services, 7500 Security Boulevard, Mail Stop S2-14-26, Baltimore, MD 21244, Tel: 410-786-8066, Fax: 410-786-3262, E-mail: skhoury@cms.hhs.gov
Kellie Kim-Sung, EdD, Policy Research Analyst, Public Policy Institute, American Association of Retired Persons, 601 E Street, N.W., Washington, DC 20049, Tel: 202-434-2225, E-mail: kellie@cox.rr.com (Bio)
James Knickman, PhD, Vice President of Research and Evaluation, Robert Wood Johnson Foundation, P.O. Box 2316, Princeton, NJ 08540, Tel: 609-627-5959, Fax: 609-627-6415, E-mail: jknickman@rwjf.org (Bio)
Dennis L. Kodner, Senior Vice President of Research and Innovation, Executive Director of the Institute for Applied Gerontology, Metropolitan Jewish Health System, 6323 Seventh Avenue, 3rd Floor, Brooklyn, NY 11220-4711, Tel: 718-630-2550, Fax: 718-630-2559, E-mail: dkodner@iag.mjhs.org (Bio)
Jan Kooistra, 1115 Waivers Specialist and Tribal Relations, Health Care Administration, Minnesota Department of Human Services, 444 Lafayette Road North, St. Paul, MN 55155-3852, Tel: 651-296-1090, Fax: 651-215-9453, E-mail: jan.kooistra@state.mn.us (Bio)
Diana Kubovcik, Client Services Director, Central Ohio Area Agency on Aging, 174 East Long Street, Columbus, OH 43215, Tel: 614-645-7286, Fax: 614-645-3884, E-mail: kubvcik@coaaa.org
Suzanne Kunkel, PhD, Associate Director, Miami University, Scripps Gerontology Center, 396 Upham, Oxford, OH 45056, Tel: 513-529-2914, Fax: 513-529-1476, E-mail: kunkels@muohio.edu
Patrick Liedtka, HCBS Waiver Analyst, Centers for Medicare and Medicaid Services Region III, 150 South Independence Mall West, Suite 216, Philadelphia, PA 19106, Tel: 215-861-4186, Fax: 215-861-4280, E-mail: pliedtka@cms.hhs.gov
Gary Lind, Director of Policy and Planning, New York Office of Mental Retardation and Developmental Disability, 44 Holland Avenue, Albany, NY 12229, Tel: 518-473-9697, Fax: 518-473-0054, E-mail: gary.lind@omr.state.ny.us
Carl Littlefield, Assistant Secretary and DD Coordinator, Florida Department of Children and Families, Developmental Services Program, Building 3, Room 325, 1317 Winewood Boulevard, Tallahassee, FL 32399-0700
Danielle Lloyd, Congressional Fellow, Ways and Means Subcommittee on Health, 239 Cannon Building, Washington, DC 20515, Tel: 202-225-5065, Fax: 202-226-3805, E-mail: danielle.lloyd@mail.house.gov
Ken Lovan, Vice President of Development, ResCare, 10140 Linn Station Road, Louisville, KY 40223-3813, Tel: 502-394-2335, Fax: 502-394-2206, E-mail: Klovan@rescare.com (Bio)
Jane Isaacs Lowe, PhD, Senior Program Officer, Robert Wood Johnson Foundation, Route 1 and College Road East, Princeton, NJ 08543, Tel: 609-627-5786, Fax: 609-514-5409, E-mail: jlowe@rwjf.org (Bio)
Cathy Ludlum, Chair, Community Options Task Force/Olmstead, Connecticut Council of Persons with Disabilities, 46 St. James Street, Suite 16, Manchester, CT 06040, Tel: 860-649-7110, E-mail: cludlum@coopinit.org (Bio)
Beverly Lynch, Parent Advocate, National Coalition on Self-Determination, 2045 Steve Drive, Paducah, KY 42003, Tel: 270-575-3060, E-mail: blynch@apex.net (Bio)
Andrew Mack, Health Insurance Specialist, Centers for Medicare and Medicaid Services, 7500 Security Boulevard, Mail Stop S2-14-26, Baltimore, MD 21244, Tel: 410-786-3005, Fax: 410-786-3262, E-mail: amack@cms.hhs.gov
Elizabeth Mack, Health Insurance Specialist, Centers for Medicare and Medicaid Services, 7500 Security Boulevard, Mail Stop S2-14-26, Baltimore, MD 21244, Tel: 410-786-1282, Fax: 410-786-3262, E-mail: emack@cms.hhs.gov
Kevin J. Mahoney, PhD, Associate Professor, National Project Director for Cash and Counseling Demonstration and Evaluation, Boston College Graduate School of Social Work, McGuinn Hall, Room 306, 140 Commonwealth Avenue, Chestnut Hill, MA 02467, Tel: 617-552-4039, Fax: 617-552-1975, E-mail: kevin.mahoney@bc.edu (Bio) (Presentation) (2000 Article) (2000 Article)
Jenny Manders, PhD, Program Development Coordinator, Institute on Human Development and Disability, University of Georgia, 850 College Station Road, Athens, GA 30602-4806, Tel: 706-542-2418, Fax: 706-542-4815, E-mail: jmanders@arches.uga.edu
Lisa Mangieri, 7 Pinho Avenue, Carteret, NJ 07008, Tel: 732-969-0716, E-mail: lisamangieri@compuserve.com (Bio)
Beth McArthur, Director of Planning and Development, Connecticut Department of Mental Retardation, 460 Capital Avenue, Hartford, CT 06106, Tel: 860-418-6132, Fax: 860-418-6003, E-mail: Beth.McArthur@po.state.ct.us (Bio) (Presentation)
Portia McCormack, Director of Membership Outreach, Independence Care System, 257 Park Avenue South, 2nd Floor, New York, NY 10010-7304, Tel: 212-584-2500, Fax: 212-584-2555, E-mail: mccormack@icsny.org (Bio)
Donna McDowell, Director, Wisconsin Bureau on Aging and Long-Term Care Resources, 1 West Wilson Street, Room 540, P.O. Box 7851, Madison, WI 53707, Tel: 608-266-2536, Fax: 608-267-3203, E-mail: mcdowdb@dhfs.state.wi.us
Joe Meadours, Consumer Information and Service Coordinator, Team PC/Kennedy Project, 310 South Peoria, Suite 201, Chicago, IL 60607, Tel: 312-226-5900, Fax: 312-253-7001
Mark R. Meiners, PhD, Associate Professor and Associate Director, University of Maryland Center on Aging, 1240 HHP Building, College Park, MD 20742, Tel: 301-405-2532, Fax: 301-314-2025, E-mail: mm56@umail.umd.edu (Bio)
Paul Mendelsohn, Customer Liaison for Disability Outreach, Center for Beneficiary Services, Centers for Medicare and Medicaid Services, 7500 Security Boulevard, Mail Stop S2-23-02, Baltimore, MD 21224-1850, Tel: 410-786-3213, Fax: 410-786-9665, E-mail: pmendelsohn@cms.hhs.gov
Robert Mollica, Deputy Director, National Academy for State Health Policy, 50 Monument Square, S502, Portland, ME 04101, Tel: 207-874-6524, Fax: 207-874-6527, E-mail: rmollica@nashp.org
Anne Montgomery, Government Accounting Office, 441 G Street, N.W., Mail Stop 5A-14, Washington, DC 20548, E-mail: montgomerya@gao.gov
Gretchen Morley, Program Examiner, Office of Management and Budget, 725 17th Street, N.W., Washington, DC 20503, Tel: 202-395-7827, Fax: 202-395-7840, E-mail: gmorley@omb.eop.gov
Michael Morris, Senior Vice President, Community Options, Inc., 1130 17th Street, N.W., Suite 430, Washington, DC 20036-4641, Tel: 202-721-0120, Fax: 202-721-0124, E-mail: michael.morris@comop.org (Bio)
Charles Moseley, EdD, Director, University of New Hampshire, Institute on Disability, National Program Office on Self-Determination, 7 Leavitt Lane, Suite 101, Durham, NH 03824-3522, Tel: 603-862-4810, Fax: 603-862-0615, E-mail: chas.moseley@unh.edu (Bio) (1999 Article) (Report)
Cindy Moseley, Corporate Operations Manager/Senior Financial Supervisor, Aspen Management Group LLC, 8500 West Markham, Suite 200, Little Rock, AR 72205, Tel: 501-217-8123, Fax: 501-217-8125, E-mail: moseleycindy@aol.com (Bio)
David Murday, Assistant Director for Health Policy, Center for Health Services and Policy Research, University of South Carolina School of Public Health, Columbia, SC 28208, Tel: 803-777-0692, Fax: 803-777-8065, E-mail: murday@sc.edu (Bio)
Christopher Murtaugh, Associate Director, Center for Home Care Policy and Research, Visiting Nurse Service of New York, 5 Penn Plaza, 11th Floor, New York, NY, 10001-1810, Tel: 212-290-5997, Fax: 212-290-3756, E-mail: cmurtaug@vnsny.org (Bio)
Bern Myers, JD, Executive Director, Barrier Free Futures, P.O. Box 4495, Santa Fe, NM 87502, Tel: 505-670-1251, Fax: 505-473-5887, E-mail: barrierfree@qwest.net (Bio)
Juliette Myers, ADAPT of Connecticut, Hartford, CT, Tel: 860-951-4398
Margaret Neal, Professor, Institute on Aging, Portland State University, P.O. Box 751, Portland, OR 97207-0751, Tel: 503-725-5145, Fax: 503-725-5100, E-mail: nealm@pdx.edu
Thomas Nerney, Director, Center for Self-Determination, 35425 Michigan Avenue West, Wayne, MN 48184, Tel: 734-722-6262, Fax: 734-467-7639, E-mail: tomnerney@earthlink.net (Bio) (2000 Article)
Liz Norris, Project Coordinator, Center for Health Services and Policy Research, Institute for Public Affairs, University of South Carolina, Columbia, SC 29208, Tel: 803-576-5618, Fax: 803-777-8065, E-mail: lnorris@iopa.sc.edu
Darlene (Dee) O'Connor, PhD, National Project Director, HCBS Resource Network, Boston College Graduate School of Social Work, Room 401, McGuinn Hall, Chestnut Hill, MA 02467, Tel: 508-867-8884, Fax: 508-867-8885, E-mail: darlene.oconnor@bc.edu (Bio)
Liz Obenmayer, Performance Consultant, Council on Quality and Leadership in Support for People with Disabilities, 100 West Road, Suite 406, Towson, MD 21204, Tel: 410-583-0060, Fax: 410-583-0063, E-mail: lizob@aol.com
Erin Ockunzzi, Legislative Assistant, Rep. Michael Bilirakis, Room 2269, Rayburn Building, Washington, DC 20515, Tel: 202-225-5755, Fax: 202-225-4085, E-mail: erin.ockunzzi@mail.house.gov
Nancy Olson, Project Coordinator, Respite Care Association of Wisconsin, 4614 Fuller Street, Schofield, WI 54476, Tel: 715-355-1522, Fax: 715-355-1522, E-mail: nolsonrn@aol.com (Bio)
Ronald L.G. Osterhout, Executive Director, Personal Assistance Service Council, 4730 Woodman, Suite 405, Sherman Oaks, CA 91423, Tel: 818-206-7006, Fax: 818-206-8000, E-mail: rosterhout@pascla.org (Bio)
Mike Oxford, Executive Director, Topeka Independent Living Resource Center, Inc., 501 Southwest Jackson, Topeka, KS 66603, Tel: 785-233-4572, Fax: 785-233-1561, E-mail: tilrcje@tilrc.org
Sheel Pandya, Policy Research Specialist, Public Policy Institute, American Association of Retired Persons, 601 E Street, N.W., Washington, DC 20049, Tel: 202-434-3865, Fax: 202-434-6402, E-mail: spandya@aarp.org
Jim Parker, Advocacy Projects Coordinator, New Mexico Governor's Committee on Concerns of the Handicapped, Room 117, Lamy Building, 491 Old Santa Fe Trail, Santa Fe, NM 87501, Tel: 505-827-6465, Fax: 505-827-6328, E-mail: 103203.400@compuserve.com (Bio)
Pam Parker, Manager, Minnesota Senior Health Options/DHH, 444 Lafayette Road, St. Paul, MN 55155-3852, Tel: 651-296-2140, Fax: 651-297-3230
Trudy Persky, 604 South Washington Square, Apt. #1602, Philadelphia, PA 29106, Tel: 215-592-8281, Fax: 215-592-6408, E-mail: TrudyPers@aol.com (Bio)
Barbara Phillips, Research Scientist, University of California, San Diego, 3350 La Jolla Village Drive, #111N-1, San Diego, CA 92161, Tel: 858-552-4325, Fax: 858-552-4321, E-mail: bphillips@ucsd.edu (Presentation) (2000 Report)
Russell Pierce, Community Liaison, Nebraska Parent Center, 1941 South 42nd Street, Suite 122, Omaha, NE 68105-2942, Tel: 402-346-0525, Fax: 402-346-5253, E-mail: rpierce@neparentcenter.org
Larry Polivka, PhD, Director, Florida Policy Exchange Center on Aging, USF 30437, 4202 East Fowler Avenue, Tampa, FL 33620-3043, Tel: 813-974-3468, Fax: 813-974-5788, E-mail: lpolivka@admin.usf.edu (Bio)
Elizabeth Priaulx, Community Integration Attorney, National Association of Protection and Advocacy Systems, 900 Second Street, N.E., Suite 211, Washington, DC 20002, Tel: 202-408-9514, Fax: 202-408-9520, E-mail: elizabeth@napas.org
Bobbie Quilleon, Florida Developmental Disabilities Consumer-Directed Care Project, 9437 Rockrose Drive, Tampa, FL 33647-2813, Tel: 813-973-0374, E-mail: bobbiequilleon@aol.com (Bio)
Seth Radus, Senior Legislative Assistant, Rep. Karen L. Thurman, Room 201, Cannon Building, Washington, DC 20515, Tel: 202-225-1002, Fax: 202-225-0329, E-mail: seth.radus@mail.house.gov
Heidi Reester, Medical Analyst, Department of Health and Human Services/ASMB, 200 Independence Avenue, S.W., Room 503H, Washington, DC 20201, Tel: 202-690-7196, Fax: 202-690-7867, E-mail: hreester@os.dhhs.gov
Tom Reimers, Project Director, Consumer-Directed Care Project, Florida Department of Elder Affairs, 4040 Esplanade Way, Room 280H, Tallahassee, FL 32399-7000, Tel: 850-414-2115, Fax: 850-414-2008, E-mail: reimerst@elderaffairs.org (Bio)
Susan Reinhard, PhD, Co-Director, Center for State Health Policy, Rutgers University, 317 George Street, Suite 400, New Brunswick, NJ 08901-2008, Tel: 732-932-3105 x230, Fax: 732-932-0069, E-mail: Sreinhard@cshp.rutgers.edu (Bio)
Judith Riggs, Deputy to the Vice President for Policy, Alzheimer's Association, 1319 F Street, N.W., Suite 710, Washington, DC 20004, Tel: 202-393-7737, Fax: 202-393-2109, E-mail: judith.riggs@alz.org (Bio)
Michael Rious, Senior Legislative Assistant, Rep. Albert R. Wynn, Room 434, Cannon Building, Washington, DC 20515, Tel: 202-225-8699, Fax: 202-225-8714, E-mail: mike.rious@mail.house.gov
David Robar, Public Information Coordinator, Granite State Independent Living, 21 Chenell Drive, P.O. Box 7268, Concord, NH 03302-7268, Tel: 603-228-9680, Fax: 603-225-3304, E-mail: david.robar@gsil.org (Bio)
Jim Rosmarin, Human Services Program Administrator, Ohio Department of Aging, 50 West Broad Street, 9th Floor, Columbus, OH 43215, Tel: 614-466-1220, Fax: 614-466-5741
Lisa Rotegard, Supervisor of Community Supports for Seniors, Minnesota Department of Human Services, 444 Lafayette Road, St. Paul, MN 55155-3844, Tel: 651-297-3829, Fax: 651-296-9797, E-mail: lisa.rotegard@state.mn.us (Bio)
Helen Coburn Roth, Executive Director, OPTIONS for Independence, 1095 North Main, Logan, UT 84341, Tel: 435-753-5353, Fax: 435-753-5390, E-mail: hroth@optionsind.org (Bio)
Marcie Roth, Director of Advocacy and Public Policy, National Council on Independent Living, 1916 Wilson Boulevard, Suite 209, Arlington, VA 22201, Tel: 703-525-3406, Fax: 703-525-3409, E-mail: marcie@ncic.org
John Rother, Director of Legislation and Public Policy, American Association of Retired Persons, 601 E Street, S.W., Washington, DC 20049, Tel: 202-434-2277, Fax: 202-434-3714
Charles Sabatino, Assistant Director, ABA Commission on Legal Problems of the Elderly, 740 15th Street, N.W., Washington, DC 20005, Tel: 202-662-8686, Fax: 202-662-8690, E-mail: sabatinoc@staff.abanet.org (1997 Report)
Marian Saulino, Chief Executive Officer, Community Interactions, Inc., 321 Woodland Avenue, Springfield, PA, Tel: 610-328-9008, Fax: 610-328-4597, E-mail: msaulino@ciinc.org
Paul Saulino, Chief Financial Officer, Community Interactions, Inc., 321 Woodland Avenue, Springfield, PA, Tel: 610-328-9008, Fax: 610-328-4597, E-mail: psaulino@ciinc.org
Marilyn Saviola, Director of Advocacy, Independence Care System, 257 Park Avenue South, 2nd Floor, New York, NY 10010, Tel: 212-584-2587, Fax: 212-584-2555, E-mail: saviola@icsny.org
Carole Schauer, Consumers Affairs Specialist, SAMHSA Center for Mental Health Services, 5600 Fishers Lane, Room 15-99, Rockville, MD 20857, Tel: 301-443-8304, Fax: 301-443-5163, E-mail: cschauer@samhsa.gov
Maggie Scheie-Lurie, Consumer Outreach Coordinator, National Alliance for the Mentally Ill, 2107 Wilson Boulevard, Suite 300, Arlington, VA 22201, Tel: 703-516-7990, Fax: 703-524-7600, E-mail: maggie@nami.org (Bio)
Carolyn Schimanski, Executive Director, Parent to Parent of New York State, 500 Balltown Road, Schenectady, NY 12304, Tel: 518-381-4350, Fax: 518-382-1959, E-mail: parent2par@aol.com
Claudia Schlosberg, Senior Civil Rights Analyst, HHS Office of Civil Rights, 200 Independence Avenue, S.W., Room 506F, Washington, DC 20201, Tel: 202-619-1750, Fax: 202-619-3818, E-mail: claudia.schlosberg@hhs.gov (Bio)
Barbara Schneider, Consultant, Independent Consultant, 173 Warwick Road, Elverson, PA 19520, Tel: 610-286-0120, Fax: 610-913-0520, E-mail: barschneider@earthlink.net
Kerry Schoolfield, Bureau Chief, Developmental Disabilities Program, 1317 Winewood, Building 3, Room 325, Tallahassee, FL 32399, Tel: 850-488-4257, Fax: 850-922-6456
Jennifer Schore, Deputy Project Director, Cash and Counseling Evaluation, Mathematica Policy Research, Inc., P.O. Box 2393, Princeton, NJ 08543, Tel: 609-275-2380, Fax: 609-799-0005, E-mail: jschore@mathematica-mpr.com (Bio) (Presentation) (2000 Report)
Karl Schwarzkopf, PhD, Deputy Director for Community Services, Division of Mental Health, Mental Retardation and Substance Abuse, Georgia Department of Human Resources, 2 Peachtree Street, N.W., Suite 22-108, Atlanta, GA 30303-3142, Tel: 404-463-8929, Fax: 404-657-1137, E-mail: khschwarzkopf@dhr.state.ga.us (Bio)
Mark Sciegaj, Assistant Professor, Heller School, Brandeis University, Mail Stop 035, 415 South Street, Waltham, MA 02454-9110, Tel: 781-736-3935, Fax: 781-736-3864, E-mail: sciegaj@brandeis.edu (Bio) (Presentation)
Linda Shandera, Long Term Care Services Coordination Program Manager, Nebraska Health and Human Services System, P.O. Box 95044, Lincoln, NE 68509-5044, Tel: 402-471-9462, Fax: 402-471-6352, E-mail: linda.shandera@hhss.state.ne.us (Bio)
Vicki Shepard, Vice President, Health Care Global Industry Group, EDS, 333 John Carlyle Street, Alexandria, VA 22314, Tel: 703-837-4840, Fax: 703-836-9762, E-mail: vicki.shepard@eds.com (Bio)
Lori Simon-Rusinowitz, MPH, PhD, Deputy Project Director, Cash and Counseling Demonstration and Evaluation, University of Maryland Center on Aging, 2360 HHP Building, College Park, MD 20742, Tel: 301-405-2548, E-mail: ls119@umail.umd.edu (Bio) (Presentation) (2000 Article) (2000 Article)
Joelle Simpson, Center for Health Care Strategies, Inc., 1009 Lenox Drive, Suite 204, Lawrenceville, NJ 08648, Tel: 609-895-8101, Fax: 609-895-9648, E-mail: nh@chcs.org
Rhonda Sloan, Representative, Florida Developmental Disabilities Consumer-Directed Care Project, 503 West Idlewild Avenue, Tampa, FL 33604, Tel: 803-237-3034, Fax: 813-237-8514, E-mail: sloans_2000@yahoo.com (Bio)
Marcia E. Smith, Chief Executive Officer, Evercare, 9900 Bren Road East, Minnetonka, MN 55343, Tel: 952-936-6847, Fax: 952-936-6902, E-mail: marcia_e_smith@uhc.com (Bio)
Robin Smith, Social Worker/Consultant, Division of Senior Services, 2916 State Road 15, Belle Glade, FL 33430, Tel: 561-992-1047, Fax: 561-992-1011, E-mail: RRSmith@co.palm-beach.fl.us
Shearon Smith, Special Assistant to the Director, Tuskegee University National Center for Bioethics, 1209 Chambliss Street, Tuskegee, AL 36088, Tel: 334-724-4561, Fax: 334-727-7221, E-mail: shercsmith@mindspring.com
Robert Sneirson, Systems Advocate, Boston Center for Independent Living, 95 Berkeley Street, Suite 206, Boston, MA 02116-6264, Tel: 617-338-6665, Fax: 617-338-6661, E-mail: RSneirson@aol.com (Bio)
Ed Sontag, Deputy Chief of Staff, U.S. Department of Health and Human Services, 200 Independence Avenue, S.W., Washington, DC 20201, Tel: 202-690-7431
C. Edgar Spencer, MEd, MSW, Director, Division of Developmental Disabilities/Special Populations, South Carolina Department of Mental Health, P.O. Box 485, Columbia, SC 29202, Tel: 803-898-8579, Fax: 803-898-8347, E-mail: ces64@co.dmh.state.sc.us (Bio)
William Spencer, CDC and Family Care Council, 2106 Two Lakes Road T2, Tampa, FL 33604, Tel: 813-915-9575, E-mail: wrsdjs@aol.com
Marie Squillace, PhD, Senior Researcher, National Council on the Aging, Research and Demonstrations Division, 409 Third Street, S.W., Washington, DC 20024, Tel: 202-479-6639, Fax: 202-479-0735, E-mail: marie.squillace@ncoa.org (Bio)
Tina Standing Soldier, P.O. Box 345, Wanblee, SD 57577 (Bio)
Glenn Stanton, Deputy Director, Disabled and Elderly Health Programs Group, CMS Center for Medicaid and State Operations, 7500 Security Boulevard, S2-14-27, Baltimore, MD 21244, Tel: 410-786-6768, Fax: 410-786-9004, E-mail: Gstanton@cms.hhs.gov (Bio)
Nancy Starnes, Associate Advocacy Director, Paralyzed Veterans of America, 801 18th Street, N.W., Washington, DC 20006, Tel: 202-416-7424, Fax: 202-416-7706, E-mail: Nancys@pva.org
Susan Stoddard, PhD, FAICP, President, InfoUse, 2560 Ninth Street, #216, Berkeley, CA 94710, Tel: 510-549-6520, Fax: 510-549-6512, E-mail: sstoddard@infouse.com (Bio)
Robyn Stone, Executive Director, Institute for the Future of Aging Services, 2519 Connecticut Avenue, N.W., Washington, DC 20008, Tel: 202-508-1206, Fax: 202-783-4266, E-mail: rstone@aahsa.org (2000 Article)
Michael K. Stracener, MSW, LCSW, Executive Director for Independent Choices, Aspen Management Group, LLC, 8500 West Markham, Suite 200, Little Rock, AR 72205, Tel: 501-217-8123, Fax: 501-217-8125, E-mail: mikestracener@aol.com (Bio)
Marilyn Straw, President, Voice of the Retarded, 5005 Newport Drive, Suite 108, Rolling Meadows, IL 60008, Tel: 847-253-6020, Fax: 847-253-6054, E-mail: vor@compuserve.com
Michael J. Sturman, Program Director, Concepts of Independence, Inc., 120 Wall Street, Suite 1010, New York, NY 10005, Tel: 212-293-9999, Fax: 212-293-3040, E-mail: conceptscdpa@earthlink.net (Bio)
Cathie Sullivan, Home Care Policy Analyst, Service Employees International Union, 1313 L Street, N.W., Washington, DC 20005, Tel: 202-898-3275, Fax: 202-898-3348, E-mail: sullivac@seiu.org (Bio)
Tammy Svihla, 11 Central Avenue, High Bridge, NJ 08829, Tel: 908-638-5827, E-mail: taminy@worldnet.com
Nancy R. Thaler, Deputy Secretary for Mental Retardation, Pennsylvania Department of Public Welfare, P.O. Box 2675, Harrisburg, PA 17105-2675, Tel: 717-787-3700, Fax: 717-787-6583, E-mail: nthaler@state.pa.us (Bio)
Sharon Lee Theodore, 2309 Route 71, Spring Lake Heights, NY 07762, Tel: 732-974-3110
Neva Thurston, Chair, Missouri Planning Council for Developmental Disabilities, P.O. Box 687, Jefferson City, MO 65102, Tel: 573-751-8611, Fax: 573-526-2755
Jane Tilly, Senior Research Associate, The Urban Institute, 2100 M Street, N.W., Washington, DC 20037, Tel: 202-261-5651, Fax: 202-223-1149, E-mail: jtilly@ui.urban.org (Bio) (2000 Article)
Maggie Tinsman, Iowa State Senator, 3541 East Kimberly Road, Davenport, IA 52807, Tel: 563-359-3624, Fax: 563-359-6671, E-mail: mtinsma@legis.state.ia.us (Bio)
Karen Topper, Advisor, Green Mountain Self-Advocates, 73 Main Street, Suite 401, Montpelier, VT 05602, Tel: 802-229-2600, Fax: 802-223-2132, E-mail: vpsn@sover.net (Bio)
Elsa Torres, 5318 Parker Street, Zephyr Hills, FL 33540, Tel: 813-779-8029
Jean Tuller, Special Programs Director, Disabled and Elderly Health Programs Group, CMS Center for Medicaid and State Operations, 7500 Security Boulevard, Mail Stop S2-14-26, Baltimore, MD 21244-1850, Tel: 410-786-6815, Fax: 410-786-9004, E-mail: jtuller@cms.hhs.gov (Bio)
Theresa Turgeon, Director, Office of Geriatric Services, Maine Department of Mental Health, Mental Retardation and Substance Abuse Services, State House, Station #40, Augusta, ME 04333, Tel: 207-287-4245, Fax: 207-287-4268, E-mail: Theresa.Turgeon@state.me.us (Bio)
John J. Tuskan, Jr., RN, MSN, Captain, U.S. Public Health Service, SAMHSA/Center for Mental Health Services, 5600 Fishers Lane, Room 17C-05, Rockville, MD 20857, Tel: 301-443-1761, Fax: 301-433-7912, E-mail: jtuskan@samhsa.gov (Bio)
Todd Tuten, Legislative Assistant, Rep. Michael Bilirakis, Room 2269, Rayburn Building, Washington, DC 20515, Tel: 202-225-5755, Fax: 202-225-4085, E-mail: todd.tuten@mail.house.gov
Sue Vaeth, Senior Care Manager, Maryland Department of Aging, 301 West Preston Street, Room 1007, Baltimore, MD 21201, Tel: 410-767-1108, Fax: 410-333-7943, E-mail: sjv@mail.ooa.state.md.us (Bio)
Laura Van Tosh, Consultant, Van Tosh Consulting, 1533 West Falkland Lane, #336, Silver Spring, MD 20910, Tel: 301-585-9455, Fax: 301-585-9467, E-mail: Lauravt@aol.com (Bio)
Forest Burns Vick, Jr., Public Policy Consultant, California Caregiver Resource Center System, P.O. Box 160695, Sacramento, CA 95816, Tel: 916-442-7239, Fax: 916-442-7305, E-mail: fburnsvick@worldnet.att.net
Thomas Volkert, Director of Mental Health/Aging Advocacy, Mental Health Association of Southeast Pennsylvania, 1211 Chestnut Street, Philadelphia, PA 19017, Tel: 215-751-1800 x266, Fax: 215-636-6312, E-mail: tvolkert@mhasp.org
Ruth Walden, Family Specialist, Children with Special Health Care Needs Program, New York State Department of Health, ESP-Corning Tower, Room 208, Albany, NY 12237-0618, Tel: 518-474-2001, Fax: 518-474-8762, E-mail: rxw03@health.state.ny.us
Grace Wall, 37821 Parke Street, Zephyr Hills, FL 33541, Tel: 813-788-3649
Paula Walsh, Heightened Independence and Progress, 131 Main Street, Suite 120, Hackensack, NJ 07601, Tel: 201-996-9100, Fax: 201-996-9422, E-mail: ber@hipcil.org
Brenda Wamsley, Executive Director, Center for Aging and Healthcare in West Virginia, Inc., 517 Market Street, Dils Center, Parkersburg, WV 26101, Tel: 304-422-2853, Fax: 304-422-2856, E-mail: bwamsley@citynet.net (Bio)
John Watson, Program Analyst, District of Columbia Office of Human Services, 3001 Veazey Terrace, N.W., #633, Washington, DC 20008, Tel: 202-363-8970, Fax: 202-363-0145, E-mail: jwwatson1@earthlink.net
Sherry Watson, Executive Director, San Juan Center for Independence, 504 North Main, Aztec, NM 87410, Tel: 505-334-5805, Fax: 505-334-5528, E-mail: sjci@fisi.net (Bio)
William West, Administrator, Consumer Directed Attendant Support Program, Colorado Department of Health Care Policy and Financing, 1575 Sherman, 5th Floor, Denver, CO 80203, Tel: 303-866-3358, Fax: 303-866-2573, E-mail: william.west@state.co.us (Bio)
Barbara Wheeler, Director of Adult Disability Programs, University of Southern California, UAP, P.O. Box 54700, MS53, Los Angeles, CA 90054-0700, Tel: 323-671-3829, Fax: 323-671-3835, E-mail: bwheeler@chla.usc.edu
Brad Whitney, MD, Division of Senior Health, Spartanburg Regional Healthcare System, 133 North Howard Avenue, Spartanburg, SC 29356, Tel: 864-560-9519, Fax: 864-457-7131, E-mail: rbwsrmc@aol.com
Gene Whitten-Legé, Administrator, In-Home Attendant Services, 1630 Elgin Street, Houston, TX 77004, Tel: 713-528-6499, Fax: 713-523-8592, E-mail: ihas@swbell.net (Bio)
Pat Whitten-Legé, Owner, In-Home Attendant Services, 1630 Elgin Street, Houston, TX 77004, Tel: 713-528-6499, Fax: 713-523-8592, E-mail: patwl@swbell.net (Bio)
Jane Wiley, Advocacy Representative, American Association of Retired Persons, South Carolina State Office, 1201 Main Street, Suite 1980, Columbia, SC 29201, Tel: 803-748-1231, Fax: 803-748-1288, E-mail: jwiley@aarp.org
Betty Williams, P.O. Box 1091, 104 North 19th Street, Richmond, IN 47375, Tel: 765-935-4319, Fax: 765-935-4319
Bob Williams, Policy Advisor, United Cerebral Palsy Associations, 1601 North Springwood Drive, Silver Spring, MD 20910, Tel: 202-973-7113, E-mail: bwilliams@ucp.org (Bio)
Kristen Parker Wills, Research Associate, Scripps Gerontology Center, Miami University, 396 Upham Hall, Oxford, OH 45056-1879, Tel: 513-529-2914, Fax: 513-529-1476, E-mail: parkerkc@muohio.edu (Bio)
Grace Wilson-Laudun, CDPCS Program Director, Access Alaska, Inc., Independent Living Center, 3901 Taft Street, Suites A&B, Anchorage, AK 99517, Tel: 907-248-4777, Fax: 907-248-0639, E-mail: amazing@pobox.alaska.net (Bio)
Denise Winslow, Division of Services for People with Disabilities, 120 North, 200 West, Suite 411, Salt Lake City, UT 84103, Tel: 801-538-4211, Fax: 801-538-4279, E-mail: dwinslow@hs.state.ut.us
Greg Wintle, Project Director, Kansas Division of Health Care Policy, 5th Floor North, Docking Building, 915 S.W. Harrison, Topeka, KS 66612-0557, Tel: 785-296-3561, Fax: 785-296-0557, E-mail: WGW@srskansas.org (Bio)
Buddy Wise, BSN, RN, Program Administrator/Chief Operations Officer, Independent Choices, Aspen Management Group, LLC, 8500 West Markham, Suite 200, Little Rock, AR 72205 (Bio)
John Wren, Director, Office of Program Development, Administration on Aging, 330 Independence Avenue, S.W., Washington, DC 20201, Tel: 202-260-1702, Fax: 202-260-1019, E-mail: john.wren@aoa.gov (Bio)
Barbara York, LPN, Senior Field Counselor, Independent Choices, Aspen Management Group, LLC, 8500 West Markham, Suite 200, Little Rock, AR 72205, Tel: 501-217-8123, Fax: 501-217-8125, E-mail: e-aspenrehab@earthlink.net (Bio)
B. Lee Zacharias, Consultant, 441 North Pownal Road, New Gloucester, ME 04260, Tel: 207-926-5767, Fax: 207-926-5763
Muriel Zgardowski, President, Concepts of Independence, Inc., 120 Wall Street, Suite 1010, New York, NY 10005, Tel: 212-293-9999, Fax: 212-293-3040, E-mail: murielw23@aol.com (Bio)
Jeanne
Argoff
Executive Director, Disability Funders Network, 2529
Kirklyn Street, Falls Church, VA 22043
Tel: 703-560-0099, Fax: 703-560-1151,
E-mail: njargoff@aol.com
Affiliation: Funder
Jeanne Argoff is Executive
Director of the Disability Funders Network (DFN), an association of foundations
and corporate giving programs. DFN's mission is to facilitate communication and
collaboration between the disability community and organized philanthropy to
increase grantmaking that will benefit people with disabilities.
Travis
Arneson
South Dakota Developmental Disability Council, 3800 E
Highway 34, c/o 500 E Capitol, Pierre, SD 57501
Tel: 605-773-5990, Fax:
605-773-5483, E-mail: arlene.poncelet@state.sd.us
Affiliation: Consumer
Travis Arneson is a graduate of Partners in Policymaking and is currently
participating in Project Leadership. He was recently elected to the Protection
and Advocacy for Developmental Disabilities (PADD) Board. Mr. Arneson has a
degree in computer programming and is married, with a young daughter. He owns
rental property and is starting a home health care business.
Benard Arons,
MD
Director, Center for Mental Health Services, Department of
Health and Human Services/SAMHSA, 5600 Fishers Lane, Room 17-99, Rockville, MD
20857
E-mail: barons@samhsa.gov
Dr. Bernard Arons is the Director,
Center for Mental Health Services (CMHS) has led a diverse career focused on
the improvement of mental health services. In 1993, Dr. Arons was appointed
Director of CMHS, Substance Abuse and Mental Health Services Administration.
CMHS is charged with providing national leadership in improving mental health
services for all Americans. He worked closely with Surgeon General David
Satcher to publish the first-ever Surgeon General's Report on Mental Health,
which is enhancing national awareness of mental health issues. Additionally, he
worked on a National Strategy for Suicide Prevention, to align researchers,
providers, advocates and consumers and develop a prevention plan to reduce
suicide in the United States. Dr. Arons practices psychiatry at the Center for
Mental Health, Inc., a private, nonprofit clinic in the District of Columbia.
He is a clinical professor of psychiatry on the faculty of the Georgetown
University School of Medicine. He is a graduate of Oberlin College and the Case
Western Reserve University School of Medicine. He regularly delivers
presentations and publishes articles on serious mental illness and health care
reform, and he has received major awards and other recognition for his
work.
Dawn
Arsenault
Outreach Coordinator, Green Mountain
Self-Advocates, 73 Main Street, Suite 401, Montpelier, VT 05602
Tel:
802-229-2600, Fax: 802-223-2132, E-mail: vpsn@sover.net
Affiliation:
Consumer Advocate
Dawn Arsenault used Medicaid waiver money to go to
college. The college she attended had the Enhance Program that helps people
with developmental disabilities to experience what college life is like. But
before starting college, Ms. Arsenault had to stay at her position for five
years before the agency would allow her to quit supported employment and use
her support money to attend college. Ms. Arsenault graduated with her
classmates and earned a certificate of completion. She currently works for
Green Mountain Self-Advocates and is also a board member of the Developmental
Disabilities Council and the University Affiliated Program.
Andrew
Bader
Principal, Clarion Consulting Group, 108 Thurston Road,
Newton, MA 02464
Tel: 617-527-5082, Fax: 800-840-7714, E-mail:
andybader@mediaone.net
Affiliation: Consultant
Andrew Bader is a
consultant to the pilot Consumer Direction program that is sponsored by
Highland Valley Elder Services, Inc., and funded by the Massachusetts Executive
Office of Elder Affairs. He is also helping to prepare a plan to replicate the
pilot across the state. In addition, Mr. Bader was a former Assistant Secretary
of Elder Affairs.
Andrew Batavia, JD,
MS
Associate Professor, Florida International University,
2845 Prairie Avenue, Miami Beach, FL 33140
Tel: 305-672-1128, E-mail:
batavia1957@hotmail.com
Affiliation: Researcher (2000
Report)
Professor Andrew Batavia teaches course in health care policy
and law. A former White House Fellow with degrees from Harvard Law School and
Stanford Medical School, he has served in several key policy positions in the
federal government, including as a senior staff member of the White House
Domestic Policy Council, Legislative Assistant to a U.S. Senator; Special
Assistant to the U.S. Attorney General; and Executive Director of the National
Council on Disability. He has published extensively on long-term care under the
independent living model, and has most recently been awarded a Mary E. Switzer
Distinguished Research Fellowship to write a book on these issues.
Margaret (Maggie)
Belton
Board Chair, Personal Assistance Service Council, 4730
Woodman, #405, Sherman Oaks, CA 91423
Tel: 818-206-7008, Fax: 818-206-8000,
E-mail: lmbelton@mindspring.com
Affiliation: Public Authority - In Home
Supportive Services (IHSS)
Maggie Belton graduated from Howard University in
1954 with a B.A. degree in Political Science/Sociology. She has a Nursing
Diploma from St. Joseph's School of Nursing (1965), and a B.S.R.N. and M.H.A.
from Indiana University/Purdue University. She is currently Vice President of
the Los Angeles County Area Agency on Aging Advisory Council; Vice Chair on the
Committee Concerning Elder Abuse, L.A. County A.A.A. Advisory Council; a member
of the Human Services Commission in Pasadena, CA; and has served as a member of
various committees/commissions associated with seniors/elders and disabled
communities.
A.E. (Ted)
Benjamin
Professor, UCLA, Department of Social Welfare, 3250
Public Policy Building, Los Angeles, CA 90095-1656
Tel: 310-206-6044, Fax:
310-206-7446, E-mail: tedbenj@ucla.edu (2000
Report)
Ted Benjamin is presently at UCLA, where he is Professor and
Chair in the Department of Social Welfare, School of Public Policy and Social
Research. His background is political science and social work, and his
interests involve long-term services for people with chronic conditions,
particularly comparative access and quality issues. He has performed research
across various populations with chronic health conditions in order to
understand the potential and basis for unifying rather than segmenting policy
responses to related service needs and groups. This research has involved the
elderly, younger adults with chronic condition, people infected with HIV, and
children with special health needs. His most recent research was supported by
the U.S. Department of Health and Human Services, the Robert Wood Johnson
Foundation, and the State of California. He is co-author (with Bob Newcomer) of
an edited volume entitled Indicators of Chronic Health Conditions,
published in 1997 by Johns Hopkins University Press.
Lee
Bezanson
Medicaid Director, New Hampshire Department of
Health and Human Resources, 120 Pleasant Street, Concord, NH 03301
Tel:
603-271-4348, E-mail: lbezanson@dhhs.state.nh.us
Affiliation: State
Government
Lee Bezanson is the New Hampshire Medicaid Director. She has a
background in psychiatric nursing and federal civil rights litigation. Ms.
Bezanson is currently a member of the National Association of State Medicaid
Directors (NASMD) Executive Committee and Chair of the NASMD Long-Term Care
Technical Advisory Group (TAG). She is also the Co-Chair of the Resource
Network.
Crystal Blyler,
PhD
Social Science Analyst, Community Support Program Branch,
SAMHSA Center for Mental Health Services, 5600 Fishers Lane, Room 11-C-22,
Rockville, MD 20857
Tel: 301-443-3653, Fax: 301-443-0541, E-mail:
cblyler@samhsa.gov
Affiliation: Federal Employee
Dr. Crystal Blyler is an
Evaluation specialist in the Community Support Program Branch of the Division
of Knowledge Development and Systems Change, which works to improve access to
and quality of public mental health programs in community settings. Dr. Blyler
directs two multi-state evaluation programs: a 5-year evaluation of services
that helps mental health consumers find and keep jobs, and a 4-year evaluation
of consumer-operated services. She is also involved in a 12-site demonstration
program, funded by SAMHSA and the Social Security Administration, that is
focused on removing disincentives to work for people with disabilities.
Jon Brock
Member,
CMHS National Advisory Council Subcommittee on Consumer/Survivor Issues, 816
Conroy Road, Birmingham, AL 35222
Tel: 205-591-8520, E-mail:
jonbrocknc@aol.com
Affiliation: Consumer/Survivor Advocate
Jon Brock
holds workshops on issues of parents with a psychiatric history. He initiated
Volunteer Access, a consumer-run program in which consumer/survivors work as
non-profit agency volunteers, as a way to reenter the community. Jon has
participated in efforts to accredit and certify consumer/survivor service
providers as a mechanism for community-based groups and individuals to access
legitimacy and funding. Traditional mental health policy is redistributive
policy. Though accreditation and certification, consumer/survivors can both
provide and also access developmental policy approaches to common issues.
Richard
Browdie
Secretary, Pennsylvania Department of Aging, Forum
Place, 555 Walnut Street, 5th Floor, Harrisburg, PA 17101-1919
Tel:
717-783-1550, Fax: 717-772-3382, E-mail: rbrodie@state.pa.us
Richard Browdie
has spent more than 30 years in the development and administration of services
to older persons and persons with physical and cognitive disabilities in
positions at the local, state and national level. Currently he is the Secretary
of the Pennsylvania Department of Aging (PDA), which manages a wide range of
services to seniors in Pennsylvania. Through the state's 52 Area Agencies on
Aging, PDA functions as the single point of entry for assessment, case
management and services for older persons funded by the Commonwealth and the
Older Americans Act as PDA also determines clinical eligibility for Medicaid
funded nursing home care, SSI personal care supplements, and Medicaid-funded
waiver services for the elderly. The department's HCBS system has featured a
large Family Care Giver Support Program since 1987, which has acted as a model
for the new Part-E of the Older Americans Act. In addition, PDA administers the
largest state-sponsored pharmacy assistance program for the elderly in the
United States. Based on the successful experience with consumer and family
control of services and payments in the Family Caregiver Support Program for
more than 10 years, and the growing use of similar methods in other
state-funded programs, PDA has been advancing the cause of consumer control and
flexibility in reimbursement systems for the last six years. It has become a
central principle of PDA's systems development efforts.
Cliff Burt
Program
Manager, Georgia Division of Aging Services, 2 Peachtree Street, N.W., Suite
36-385, Atlanta, GA 30303
Tel: 404-657-5336, Fax: 404-657-5285, E-mail:
gcburt@dhr.state.ga.us
Affiliation: Funder
Cliff Burt is the Alzheimer's
Program Director with the Georgia Division of Aging Services. Mr. Burt's
experience includes the administration of an Alzheimer Demonstration Grant,
funded by the Administration on Aging, which developed an innovative service
model called Mobile Day Care. This model has received national exposure
as a replicable program, and a self-directed care voucher program, entitled
Legacy Express, enabling caregivers of persons with Alzheimer's Disease
greater participation in planning and managing the services they need. Mr. Burt
has a bachelor's degree in Social Work from Florida State University, and a
master's degree in Public Administration and a Certificate in Gerontology from
Georgia State University.
Brian
Burwell
Vice President, The MEDSTAT Group, 125 Cambridge Park
Drive, Cambridge, MA 02140
Tel: 617-492-9302, Fax: 617-492-9365, E-mail:
brian.burwell@medstat.com
Brian Burwell is Vice President and Director of
Chronic Care and Disability within the Research and Policy Division of the
MEDSTAT Group. During his 17-year tenure with the company, Mr. Burwell has
directed over 30 studies for federal and state agencies, with a focus on three
areas of health policy: (1) Medicaid coverage policy for SSI recipients; (2)
the financing and delivery of long-term care services; (3) managed care models
for aged and disabled Medicaid beneficiaries. His Medicaid policy research
includes evaluations of Medicaid home and community-based waivers; analyses of
utilization and expenditure patterns of children with severe disabilities;
studies of Medicaid nursing home spend-down; analyses of Medicaid expenditure
trends for long-term care services, impacts of managed care on persons with
disabilities, evaluations of managed long-term care programs; evaluations of
innovative models for supporting persons with development disabilities in the
community; impacts of Medicaid estate planning practices on Medicaid
eligibility; and the impact of Medicare legislative changes on Medicaid
expenditures. Currently he is also currently the Managing Director of the
Resource Network for Home and Community-Based Services, a project jointly
funded by ASPE and HCFA (now CMS) to provide technical assistance on the
development of home and community-based service systems. He is also currently
the Project Director of a major HCFA-sponsored project to develop a national
Long-Term Care Consumer Awareness Campaign.
Lynne Camillo,
JD
Internal Revenue Service, 1111 Constitution Avenue, Room
5329, Washington, DC 20224
Tel: 202-622-6040, Fax: 202-622-4817
Lynne
Camillo has a Juris Doctor degree from Syracuse University College of Law and a
Master's of Law in Taxation from Georgetown University Law Center. She has 14
years of experience as a government attorney at both the Department of Labor
and the Internal Revenue Service. She currently handles employment tax and
fringe benefits issues as an Assistant Branch Chief in the Tax-Exempt and
Government Entities Division, Employment Tax Branch 2.
Jean Campbell,
PhD
Research Assistant Professor, University of Missouri,
Institute of Mental Health, 5400 Arsenal Street, St. Louis, MO 63139
Tel:
314-644-7829, Fax: 314-644-7934, E-mail: campbelj@mimh.edu (Presentation)
Affiliation: Consumer
Research
Dr. Jean Campbell is a Research Assistant Professor in Psychiatry
at the Missouri Institute of Mental Health in St. Louis, and Director of the
Program in Consumer Studies and Training. Dr. Campbell is an internationally
known mental health consumer researcher, speaker, and consultant. She leads the
effort to define valued outcome domains for service recipients in research and
evaluation, and to promote multi-stakeholder approaches. She is presently the
Principal Investigator of a coordinating center for a large, multi-site federal
research initiative to study the cost-effectiveness of consumer-operated
service programs as an adjunct to traditional mental health services.
Anthony Caputo,
CPA
Concepts of Independence, Inc., 120 Wall Street, Suite
1010, New York, NY 10005
Tel: 212-293-9999, Fax: 212-293-3040, E-mail:
conceptscdpa@earthlink.net
Anthony Caputo is a graduate of Rutgers
University with over 20 years of experience in providing auditing and
management advisory services to not-for-profit and government entities. He was
the engagement partner for hundreds of federal, state and local government
audit assignments. Currently, his expertise is working with Medicaid funded
home care programs in the City of New York.
Sylvia Caras,
PhD
Founder, People Who, 146 Chrystal Terrace 5, Santa Cruz, CA
95060
Tel: 831-426-5335, E-mail: sylvia@peoplewho.org, Web site:
http://www.peoplewho.org
Affiliation:
Senior with a Disability
Sylvia Caras has been active in electronic support
and advocacy since 1993. She is a mental health consumer consultant, especially
interested in widely distributing health and rights information, and in
developing a networked community of people who experience mood swings, fear,
voices and visions.
Michael
Cardella
Self-Advocate, New York State Self Advocacy
Association, 102 Windy Hill Road, Greenwich, NY 12834
Tel: 518-695-4568,
Fax: 518-695-3062, E-mail: Barb102@earthlink.net
Michael Cardella gives
presentations on disability awareness and the outcomes of inclusion for the New
York State Self Advocacy Association. He is a member of AmeriCorps*VISTA and a
1998 graduate of Schuylerville High School receiving an IEP diploma. Michael is
a provocative speaker, doing keynote presentations and workshops to national
and local audiences. He is helping to change public misconceptions about people
with disabilities. Michael is a participant in Project Leadership, a national
training program that brings key self-advocates and parent/family leaders to
Washington, DC, as well as New York State Partners in PolicyMaking. He is
employed by Home Depot.
Paul Carlino,
JD
Internal Revenue Service, 1111 Constitution Avenue, Room
5329, Washington, DC 20224
Tel: 202-622-6040
Paul Carlino has been
involved with choreworker issues on behalf of the Internal Revenue Service
Office of Chief Counsel since July 2000. Prior to this he served as
Attorney-Advisor to Judge Maurice Foley of the United States Tax Court. Mr.
Carlino also served as Law Clerk to Judge Peter D. Pizzuto of the New Jersey
Tax Court for the 1998-99 term. He attended the William and Mary School of Law
in Williamsburg, graduating with a Juris Doctor degree in May 1998.
Judi
Chamberlin
Senior Training Associate, Center for Psychiatric
Rehabilitation, 940 Commonwealth Avenue West, Boston, MA 02215
Tel:
781-777-1154, Fax: 781-777-1154, E-mail: MadPride@aol.com or
judicham@bu.edu
Judi Chamberlin is a psychiatric survivor and an activist
since 1971 in the survivor/consumer/ex-patient movement. Ms. Chamberlin is the
author of On Our Own: Patient-Controlled Alternatives to the Mental Health
System, originally published in 1978, and later republished in Britain,
Italy, and Japan. She has also written numerous articles about the movement,
self-help, and patients' rights. She is a co-founder of the Ruby Rogers
Advocacy and Drop-In Center in Somerville, Massachusetts, one of the earliest
member-run self-help centers, which has been operating since 1985. Ms.
Chamberlin is affiliated with the Center for Psychiatric Rehabilitation at
Boston University, where she has worked on numerous projects concerning
self-help and empowerment. She is a co-founder and associate at the National
Empowerment Center in Lawrence, Massachusetts, a federally funded technical
assistance center that has developed materials on self-help and recovery
models. She is a board member of the National Association for Rights Protection
and Advocacy (NARPA), the American Association of People with Disabilities
(AAPD), Mental Disabilities Rights International (MDRI), and the Center for
Public Representation. She also serves on the Massachusetts Mental Health State
Planning Council (co-chair), the Statewide Independent Living Council, and the
Governor's Special Advisory Commission on Disability Policy, among many other
boards and committees. Ms. Chamberlin recently stepped down as the Chair of the
Massachusetts Mental Health Protection and Advocacy Advisory Board, on which
she continues to serve ex-officio. She is a member of the editorial board of
Psychiatric Rehabilitation Journal. She is listed in Who's Who in
America, and is profiled in Extraordinary People with Disabilities,
a book for young people. She had spoken at conferences and meetings around the
world, with appearances in Canada, England, Scotland, Ireland, Iceland, Sweden,
Denmark, Norway, Finland, Holland, Portugal, Italy, Austria, Germany, Slovenia,
Hungary, Poland, Australia, New Zealand, Japan and Hong Kong. In 1992, Ms.
Chamberlin received the Distinguished Service Award of the President of the
United States from the President's Committee on Employment of People with
Disabilities, and the David J. Vail National Advocacy Award from the Mental
Health Association of Minnesota. In 1995, she was the recipient of the N. Neal
Pike Prize for Services to People with Disabilities from the Boston University
School of Law. In 2000, she was named one of 20 outstanding disability leaders
by Access Living, Chicago, and received a Lifetime Achievement Award from the
New York Association for Psychosocial Rehabilitation.
RoAnne Chaney,
MPA
Senior Program Officer, Center for Health Care
Strategies, 1009 Lenox Drive, Suite 204, Lawrenceville, NJ 08648
E-mail:
roanne@sprynet.com
RoAnne Chaney was recently hired at the Center for Health
Care Strategies as a Senior Program Officer. Her responsibilities are in the
areas of Medicaid long-term care, home and community-based services, and
consumer involvement. Ms. Chaney has experience in disability and managed care
issues in Michigan. Previously, she was the Operations Director for the
Michigan Disability Rights Coalition and coordinated Michigan's Assistive
Technology systems change project. RoAnne was also the Associate Director of
the Ann Arbor Center for Independent Living for 10 years where she and a team
developed a collaborative interagency process to assist individuals with a
variety of significant disabilities leave nursing home settings to live in the
community. She has a B.A. in Social Work and a Master's in Public
Administration from Eastern Michigan University.
Theodore (Tod)
Cochran
Operating Partner, Aspen Management Group, LLC, 8500
West Markham Road, Suite 200, Little Rock, AR 772205
Tel: 501-217-8123, Fax:
501-217-8125
Affiliation: Counseling and Fiscal Agency
Tod Cochran has a
B.A. from Connecticut College and a M.S. in Physical Therapy from Columbia
University. He worked from several years at Georgetown University Hospital both
in acute care and sports medicine. Mr. Cochran has direct patient care
experience in rehabilitation hospitals, nursing homes, and home care. Mr.
Cochran served as Clinical Coordinator for a multi-state rehabilitation company
before helping to start Aspen Rehab Group LLC in 1997. In 1998, Aspen Rehab
Group was awarded IndependentChoices contracts as CFA for 50 of 75 counties in
Arkansas. Mr. Cochran set up internal computerized systems for data tracking
and management assisted with tax matters for IndependentChoices participants.
In 2000, Aspen Rehab Group changed its name to Aspen Management Group, LLC.
Bill
Coffelt
Co-Chair (Parent), The National Coalition on
Self-Determination, 2925 Viona Road, Pollock Pines, CA 95726
Tel:
530-647-8246, Fax: 530-647-8246, E-mail: wcoffelt@prodigy.net, Web site:
http://www.oaksgroup.org
Affiliation:
Parent Advocate
Bill Coffelt is a retired widower and father of Bill Jr., a
23-year old man with significant developmental disabilities who has lived in a
state institution and currently his own home with 24-hour support. He is
co-founder of the Oaks Group, an organization advocating for community options
and lead plaintiff in the largest deinstitutionalization lawsuit of its kind,
resulting in the reduction of the population of California's state institutions
by over 2,000 individuals. Mr. Coffelt's recent activities include promoting
self-determination at the federal level, and promotion of the Community
Imperative, a declaration asserting the rights of all individuals to community
living.
Elias
Cohen
Executive Director, Community Services System, Inc.,
136 Farwood Road, Wynnewood, PA 19096
Tel: 610-896-7157, Fax: 610-658-2183,
E-mail: elimarco@snip.net
Affiliation: Policy Consultant and
Attorney-Advocate
Elias Cohen is currently Executive Director of Community
Services Systems, Inc., a non-profit agency engaged in the development and
production of educational materials and events in human services. He served as
Pennsylvania's first Commissioner of Aging for 12 years during which time he
was responsible for licensing long-term care facilities and community-based
services for the elderly. Prior to coming to Pennsylvania he served as
Assistant Commissioner of Mental Health in Indiana. He was the first President
and subsequently was a board member of the National Senior Citizens Law Center,
and Director of the Project on Law and Aging for the Public Interest Law Center
of Philadelphia (PILCOP). As a practicing attorney he has been active in
vindicating the rights of developmentally disabled persons to live in community
settings. He is the author of over 85 publications, including articles on
autonomy and ethics, in journals of law, gerontology, health, social work,
long-term care, and public administration. From 1976 to 1981, he served as
Editor-in-Chief of The Gerontologist. He has been honored by the State
of Pennsylvania and national organizations for his work in aging. In 1984, he
was the 20th Anniversary Awardee of the National Association of State Units on
Aging, and in 1985 was given the Retirement Research Foundation First Place
Media Prize and an American Film Festival Red Ribbon for his video documentary,
Alzheimer's Disease: You Are Not Alone. In 1991, he received the Arthur
S. Flemming Award for Outstanding National Contributions in Law, Aging and
Social Policy from the Joint Conference of the American Bar Association, AARP,
the National Senior Citizens Law Center, and the University of Michigan Center
for Social Gerontology. His involvement in Self-Determination occurs on two
fronts: in developmental disability, he continues to represent both providers
of community services and residents in zoning and related cases affecting the
right to small community living arrangements in residential areas; in aging, he
has been pursuing the paradox of the overwhelming public policy and actual
effective choice by the elderly to either elect or consent to nursing home care
despite the presence of community-based alternatives, all the while
articulating an abhorrence of the nursing home option.
Diane Coleman, JD,
MBA
Executive Director, Progress Center for Independent Living,
7521 Madison Street, Forest Park, IL 60130
Tel: 708-209-1500, Fax:
708-209-1735, E-mail: ndycoleman@aol.com
Affiliation: Consumer, Advocate and
Provider
Diane Coleman was Co-Director of the Technology Access Center of
Middle Tennessee, and served as Policy Analyst for the Tennessee Technology
Access Project, funded through the National Institute of Disability and
Rehabilitation Research from 1991 through 1995. Since 1996, Ms. Coleman has
been the Executive Director of Progress Center, a non-profit non-residential
consumer-directed center advocating on behalf of people with disabilities.
Since 1997, she has been the director of a Robert Wood Johnson Foundation
funded IndependentChoices demonstration project. The project is developing a
manual and video to help consumer-directed centers for independent living
provide training to home service agencies on consumer direction and assistive
technology.
Lora Connolly,
MS
Assistant Secretary, California Health and Human Services
Agency, 1600 Ninth Street, Room 460, Sacramento, CA 95814
Tel: 916-654-3301,
Fax: 916-654-3343, Web site: http://www.chhs.ca.gov
Lora Connolly is an
Assistant Secretary at the California Health and Human Services Agency. In this
capacity, she serves as advisor to the Secretary and the Governor on aging and
long-term care issues. She chairs the Executive Subcommittee of Agency's HHSA
Long-Term Care Council, providing leadership in the state's efforts to develop
a coordinated, statewide long-term care system. Lora previously served as the
Chief of the Office of Long Term Care in the Department of Health Services.
Prior to coming to the Department of Health Services, Lora served as a
consultant at the Assembly Office of Research for four years. While there, she
worked on the development of the California Partnership for Long-Term Care,
legislation authorizing the Public Employees Retirement System (PERS) long-term
care insurance offering, and other aging and long-term care research issues.
Lora holds a Masters of Science in Gerontology with an emphasis in public
policy and administration from the University of Southern California. She is a
fellow in the University of Minnesota's "Balancing Long Term Care Systems"
program and serves on the National Advisory Committee to the Robert Wood
Johnson Foundation's "Coming Home" program, which provides state grants to
develop affordable, rural assisted living. She has also written numerous
articles on long-term care delivery and financing issues.
James Conroy,
PhD
Center for Outcome Analysis, 201 Sabine Avenue, Narbeth,
PA 19072
Tel: 610-668-9001, Fax: 610-668-9002, E-mail: jconroycoa@aol.com
(Presentation)
Dr. James Conroy has
been a consultant to 18 federal agencies, and to more than 100 state and local
agencies since 1970, and has been Principal Investigator for more than 100
funded grants and contracts. He is the author of more than 250 formal reports
in the fields of disabilities, aging, child welfare and other human service
fields, including 25 articles in professional journals, 7 book chapters and
over 240 formal deliverable research reports to government agencies. Dr.
Conroy's work has been publicized on 60 Minutes; the Peter Jennings ABC Evening
News; NightLine; Public Television; the Philadelphia Inquirer; the New York
Times; the Chicago Tribune; multiple radio interviews; and other media. He
considers his work on the outcomes of deinstitutionalization in America to be
his definitive contribution toward better lives for people with disabilities.
Dr. Conroy has a B.A. from Yale University in Physiological Psychology, and a
M.A. in Sociology/Program Evaluation and a Ph.D. in Medical Sociology from
Temple University.
M. Doreen
Croser
Executive Director, American Association on Mental
Retardation, 444 North Capitol Street, N.W., Suite 846, Washington, DC
20001-1512
Tel: 202-387-1968, Fax: 202-387-2193, E-mail: dcroser@aamr.org,
Web site: http://www.aamr.org
Affiliation:
Association Executive
Doreen Croser has been serving as the first woman
Executive Director of AAMR for the last 13 years. Established in 1876, AAMR is
a professional organization concerned about improving the quality of life for
individuals with disabilities and their families through research, education,
training, and public policy initiatives. The Association publishes books,
journals and monographs. On the personal level, Ms. Croser became involved in
disabilities many years ago when her younger brother John was diagnosed with
multiple disabilities including mental retardation. Since that time, she has
served in many professional and volunteer capacities, including the Governor's
Developmental Disabilities Council in Maryland.
Andy Curry
Project
Coordinator, San Juan Center for Independence, 504 North Main, Aztec, NM
87410
Tel: 505-334-5805, Fax: 505-334-5528, E-mail:
andycurry1@aol.com
Affiliation: Consumer Advocate/Consumer Directed Personal
Care Option Provider
Andy Curry is a native of New Mexico. He is Project
Coordinator for the consumer directed personal care option, and an Independent
Living Specialist (ILS) for people with disabilities. His duties encompass such
activities as: outreach, resource development, information and referral,
consumer and attendant training, independent living skills training, consumer
and systems advocacy, peer support, intake and assessments. He is President of
the Excel Case Management Board of Directors, Vice President of San Juan
Partnership Board of Directors, Vice President of The Arc Thriftown Board of
Directors, and a Board of Directors member for Navajo United Methodist Center.
San Juan Center for Independence is the fiscal intermediary for the Medicaid
Consumer-Directed Personal Care Option. Mr. Curry suffered a spinal cord injury
10 years ago, and has been living independently for the last 8 years as a
quadriplegic.
Thom
DeLilla
Bureau Chief, Bureau of Brain and Spinal Cord Injury
Program, Florida Department of Health, 4052 Bald Cypress Way, BIN C#25,
Tallahassee, FL 32399-1744
Tel: 850-245-4045, Fax: 850-921-0499, E-mail:
thom_delilla@doh.state.fl.us
Affiliation: Direct Care Provider and Consumer
Advocate
Thom DeLilla has been actively involved in the disability movement
for the past 30 years in various professional capacities. He is currently
employed as the Bureau Chief for the Florida Department of Health, Brain and
Spinal Cord Injury Program. This is a statewide-coordinated program for
individuals who have sustained traumatic brain and/or spinal cord injuries. The
goal of the program is to integrate individuals back into the community
utilizing all available federal, state, and community resources. The Brain and
Spinal Cord Injury Program is also responsible for the administration of a
statewide medical/home and community-based waiver for the provision of
long-term community-based supports. Mr. DeLilla has been activity involved in
the development and implementation of several statewide initiatives to further
enhance the provision of community-based services and supports including the
Consumer Directed Care Project, the Nursing Home Transition Project and the
Personal Care Attendant Pilot Project. Mr. DeLilla obtained his B.S. degree
from the University of South Florida, completed extensive postgraduate studies
in rehabilitation counseling and public management at Florida State University,
and is a Certified Insurance Rehabilitation Specialist and Disability
Management Specialist. He has served on numerous boards and committees, and was
a former president of the Board of the National Spinal Cord Injury Association
and the state representative for the National Organization on Disability. He is
a 29-year survivor of a traumatic spinal cord injury and clearly recognizes the
obstacles of preventing individuals with disabilities from becoming fully
integrated into the mainstream of our society.
Tanya
Dickens
Consumer, Florida Developmental Disabilities
Consumer-Directed Care Project, 503 West Idlewild Avenue, Tampa, FL
33604
Tel: 813-237-3034, Fax: 813-237-8514, E-mail:
sloans_2000@yahoo.com
Affiliation: Consumer
Tanya Dickens is a young
woman with a developmental disability. Ms. Dickens attends an adult day program
where she does contract work. When not working, she is learning how to use a
computer. Above all else, Ms. Dickens's biggest dream is to learn how to read.
The Consumer Directed Care Project allows her to choose service providers
without restrictions. Ms. Dickens chose her sister who resides in a nearby town
to provide respite care for her as needed.
William
Ditto
Executive Director, New Jersey Office on Disability
Services, 222 South Warren Street, P.O. Box 700, Trenton, NJ 08625-0700
Tel:
609-292-7800, Fax: 609-292-1233, E-mail: wditto@dhs.state.nj.us
Affiliation:
State Government Official (Presentation)
William Ditto is the
Executive Director of the New Jersey Office on Disability Services. Mr. Ditto
has over 20 years of experience in program development and social service
administration. He was recruited by the New Jersey Department of Human Services
in 1985 to design and implement the Personal Attendant Demonstration Program, a
statewide program offering consumer-directed home care services to adults with
disabilities. He is the project director for the New Jersey Cash and Counseling
Demonstration. Mr. Ditto has an A.A. and B.A. degree from Monmouth College, New
Jersey, and a M.S.W. from Rutgers University, where he is currently an adjunct
faculty member. Prior to his employment with the state government, Mr. Ditto
was supervisor of handicapped services for the Monmouth County (NJ) Board of
Social Services, where he began his professional career in 1971. He helped to
found the Monmouth County Office for the Disabled. Mr. Ditto's primary
professional areas of interest and experience are disability and aging issues,
personal care services, consumer-directed services, long-term care services,
health care policy and financing, and family support.
Virginia
Dize
Director, Center for the Advancement of State Community
Services Programs, National Association of State Units on Aging, 1225 I Street,
N.W., Suite 725, Washington, DC 20005
Tel: 202-898-2578, Fax: 202-898-2583,
E-mail: vdize@nasua.org (2000 Article)
Virginia
Dize has more than 20 years experience in long-term care policy development,
advocacy, and program management. She is Director of the Center for the
Advancement of State Community Service Programs at the National Association of
State Units on Aging, providing leadership on long-term care issues to enhance
states' capacity to develop comprehensive, integrated service systems
responsive to older persons. She directed a Robert Wood Johnson Foundation
"IndependentChoices" project under which a consumer direction assessment tool
was developed. Eight states successfully used the assessment process as a
springboard for developing state-specific consumer direction reforms.
Pamela Doty,
PhD
Senior Analyst, ASPE/DALTCP, 200 Independence Avenue, S.W.,
Washington, DC 20201
Tel: 202-690-6443, Fax: 202-401-7733, E-mail:
pdoty@osaspe.dhhs.gov (2000 Report) (1996 Report)
Pamela Doty is a Senior Policy
Analyst in the Office of Disability, Aging and Long-Term Care Policy in the
Office of the Assistant Secretary for Planning and Evaluation (ASPE), U.S.
Department of Health and Human Services. Prior to joining this office in 1987,
she was a senior analyst in the Office of Legislation and Policy in the Health
Care Financing Administration, a Congressional Fellow at the Office of
Technology Assessment, and a Research Associate at the Center for Policy
Research in New York City. She received her Ph.D. in Sociology from Columbia
University. She is the author of a book and numerous other publications on
health and long-term care issues. In recent years, her research has focused
primarily on family caregiving, assisted living facilities, Medicaid spend-down
in nursing homes, variations in state approaches to home and community-based
long-term care services, consumer-directed personal assistance services,
private long-term care insurance, and cross-national comparisons of long-term
care financing and organization. She is currently the ASPE project officer for
the Cash and Counseling Demonstration and Evaluation, which is being
co-sponsored by the Robert Wood Johnson Foundation. She is also the ASPE
project officer for the Home and Community-Based Resource Network, which
is being co-sponsored by the Centers for Medicare and Medicaid Services.
Gerald Eggert,
PhD
Executive Director, Monroe County Long Term Care Program,
Inc., 349 West Commercial Street, Suite 2250, East Rochester, NY 14445
Tel:
716-248-8770, Fax: 716-383-1728, E-mail: GMEggert@aol.com
Affiliation:
Researcher
Gerald Eggert has been conducting HCFA (now CMS) demonstrations
with Medicare waivers since 1985. He is the Principal Investigator for A
Randomized Trial of Primary and Consumer-Directed Care for People with Chronic
Illness (HCFA No.95-C-90467/2-01), which examines the use of a
consumer-directed monthly voucher to purchase in-home services for an impaired
Medicare population. He is also Principal Investigator for a companion study
from the Office of Rural Health Policy, whose objective is to tailor the
voucher intervention to a rural environment.
Catherine M.
Ellis
National Coalition for Self-Determination, 453 South
Orange Grove Boulevard, #5, Pasadena, CA, 91105
Tel: 626-792-3605, Fax:
626-792-4727, E-mail: cathellis@aol.com
Affiliation: Advocate and
Trainer
Catherine Ellis is the parent of a developmentally disabled young
woman. She has been an advocate and trainer of parents and professionals on the
local, state and national levels for 18 years. She is immediate past Chair of
the California Developmental Disabilities Area Board 10, and immediate past
Vice Chair of the California State Organization of Area Boards. She was a
member of the first Project Leadership Class in Washington, DC in 2000, and is
a founding member of the National Coalition on Self-Determination.
Deborah K.
Ellis
Program Manager, Independent Choices, Arkansas Division
of Aging and Adult Services, P.O. Box 1437, Little Rock, AR 72206
Tel:
501-682-8082, Fax: 501-682-8706, E-mail: debby.ellis@medicaid.state.ar.us, Web
site: http://www.independentchoices.com
Deborah
Ellis began working with the Arkansas Department of Human Services in 1989. For
eight years she worked with Medicaid Management Information Systems and then
writing Medicaid policy. During this time she helped to design system changes
for Arkansas' Family Planning Waiver; created Edit, Audit and Procedure Code
Reports for entire Medicaid system. While working with Medicaid she initiated
the first Arkansas work groups to submit application for the Robert Wood
Johnson Foundation Cash and Counseling Grant. In 1997, she began working with
the IndependentChoices Program and does system design, implementation,
monitoring, and works with participants and Counseling Fiscal Agent
contractors.
Alan Factor,
PhD
Research Assistant Professor/Associate Director,
Rehabilitation Research and Training Center on Aging with Developmental
Disabilities (M/C 626), University of Illinois at Chicago, 1640 West Roosevelt
Road, Chicago, IL 60608-6904
Tel: 312-413-1510, Fax: 312-996-6942, E-mail:
afactor@uic.edu
Affiliation: Researcher
Alan Factor has conducted
national studies of person-centered supports for older adults with
developmental disabilities. He collaborated in developing and evaluating
Person-Centered Planning for Later Life, which enables adults to
actively plan for their later years by teaching aging concepts and
choice-making skills and co-authored Guidelines for Promoting Choices and
Options in the Community for Older Adults with Developmental
Disabilities. Dr. Factor is currently evaluating the Robert Wood
Johnson Foundation Independent Choices project to expand
consumer-direction in the delivery of agency-based home care services by
training older consumers with late-life onset disabilities and home care
workers in the independent living philosophy, consumer-direction, and assistive
technology.
Mary Faherty
Long
Term Support Manager, LaCrosse County Human Services Department, 300 North 4th
Street, LaCrosse, WI 54601
Tel: 608-785-6062, Fax: 608-785-6443, E-mail:
faherty.mary@co.la-crosse.wi.us
Mary Faherty has worked for the past 25
years in county government within social service departments in Wisconsin. For
the last eight years, she has worked in LaCrosse County in long-term support.
In April 2000, she became the Director of the Care Management Organization for
Family Care in LaCrosse. She is now the Long Term Support Manager for LaCrosse
County Department of Human Services.
Lynn Friss Feinberg,
MSW
Director of Research and Information Programs, Family
Caregiver Alliance, 690 Market Street, Suite 600, San Francisco, CA
94104
Tel: 415-434-3388, Fax: 415-434-3508, E-mail: lfeinberg@caregiver.org
(2000 Article) (2000
Report)
Lynn Friss Feinberg is the Director of Research and Information
Programs at the San Francisco-based Family Caregiver Alliance (FCA) where she
manages the agency's research, policy development, information clearinghouse,
and technical assistance programs. She directs the Statewide Resources
Consultant contract with the California Department of Mental Health,
coordinating the cross-site replication of FCA's model family support program
through a statewide system of 11 non-profit Caregiver Resource Centers in
California. In addition, she is Co-Principal Investigator of a research study,
funded by the Retirement Research Foundation, to examine decision-making and
service use in caregiving families over time. Ms. Feinberg has over 20 years
experience in the field of aging where she has also served as area agency
planner and evaluator, and conducted policy research at the University of
California, San Francisco. She is the author or co-author of over 30
publications and has lectured widely on family caregiving, long-term care
systems development, and the interface of research and practice. She serves on
the Board of Directors of the American Society on Aging (ASA); is a Delegate to
the National Council on the Aging's National Institute on Community-Based
Long-Term Care; an Associate Editor of The Journal of Mental Health and
Aging; and a member of ASA's Generations Editorial Board. She holds
a Master's degree in Social Welfare with a specialization in aging from the
University of California, Berkeley.
Dennis
Fitzgibbons
Director of Operations, Alpha One, 127 Main
Street, South Portland, ME 04106
Tel: 207-767-2189, Fax: 207-799-8346,
E-mail: dennis_fitzgibbons@alpha-one.org
Affiliation: Consumer Advocate and
Service Provider
Dennis Fitzgibbons is the Director of Operations for Alpha
One, a nationally recognized Center for Independent Living based in South
Portland, Maine. He is the Project Director of Home to the Community, a
Robert Wood Johnson Foundation grant to Alpha One that is enabling people with
disabilities to move out of Maine nursing homes and re-establish life in the
community. Mr. Fitzgibbons has served on numerous long-term care public policy
task forces at the state and national level. He has been instrumental in the
development and administration of consumer-directed fiscal and supportive
intermediary services for people with disabilities of all ages.
Susan
Flanagan
Senior Consultant, EP&P Consulting, Inc., 1201
Pennsylvania Avenue, N.W., Suite 325, Washington, DC 20004
Tel:
202-628-1134, Fax: 202-628-1140, E-mail: sflanagan@eppconsulting.com (Presentation) (2000
Article) (1997 Report)
Susan Flanagan is a
senior consultant at EP&P Consulting, Inc., in Washington, DC. She has over
19 years experience with long-term care and disability programs, finance and
quality assurance on the federal, state and corporate levels. Ms. Flanagan has
conducted extensive research on state and Medicaid-funded participant-driven
support service programs for persons with disabilities of all ages and the use
of various intermediary service organization (ISO) models to facilitate
individuals' use of these programs. Her research has resulted in the completion
of two reports for the U.S. Department of Health and Human Services' Office of
the Assistant Secretary for Planning and Evaluation. They are:
Consumer-Directed Attendant Services: How States Address Tax, Legal and
Quality Assurance Issues (1994) and Using ISOs to Facilitate the Use of
CD-PAS: Key Operational Issues for State Program Administrators (1997) with
Pamela S. Green. She has assisted seven states and four county government human
service agencies in developing and implementing self-determination projects
that use participant-driven support services and intermediary services, and she
is a frequent speaker on the topic. Ms. Flanagan is also an Adjunct Assistant
Professor in the Health Services Department at the Boston University School of
Public Health.
John W.
Foley
Executive Director, The Arc of New Mexico, 3655
Carlisle N.E., Albuquerque, NM 87110
Tel: 505-883-4630, Fax: 505-883-5564,
E-mail: jfoley@arcnm.com
John Foley is a parent of a 38-year-old daughter
with a developmental disability. He has worked for The Arc at local, state, and
national levels in organizational and public policy development in Nebraska and
New Mexico. He directed a regional service system in Nebraska.
Tommy Ford
CLASS
Unit Manager, Texas Department of Human Services, P.O. Box 149030, 701 West
51st Street, Austin, TX 78714-9030
Tel: 512-438-3689, Fax: 512-438-5135,
E-mail: tommy.ford@dhs.state.tx.us
Affiliation: Home and Community-Based
Medicaid Waiver Program Director
Tommy Ford is a graduate of Baylor
University with a B.A. in Secondary Education and an all-level Special
Education endorsement with experience as a teacher and Vocational Assessment
Coordinator. Mr. Ford was a Regional Director of nursing facilities, ICFs-MR,
ICF-MR/RC, and 1915(c) waiver programs for a provider agency in Texas. He
served on various state agency committees and on the board of Texas Health Care
Association. Mr. Ford has been the Unit Manager of the CLASS program at the
Texas Department of Human Services since November. CLASS will initiate the
state's Vendor Fiscal Intermediary Option, followed by all other home and
community-based programs in Texas.
Wendy
Fox-Grage
Senior Policy Specialist, National Conference of
State Legislatures, 444 North Capitol Street, N.W., Suite 515, Washington, DC
20001
Tel: 202-624-3572, Fax: 202-737-1069, E-mail:
wendy.fox-grage@ncsl.org
Wendy Fox-Grage is a Senior Policy Specialist at
the National Conference of State Legislatures (NCSL), a non-profit association
that represents state legislators and legislative staff. She has been employed
by NCSL (formerly the Intergovernmental Health Policy Project) for six years.
In this position, she follows initiatives across the 50 states regarding aging,
long-term care, and end-of-life issues. Specifically, she prepares analytic
reports on state activities; provides technical assistance; writes articles for
the biweekly newsletter; and conducts educational meetings for state
legislators and legislative staff.
Richard L.
Fredrickson
Vice President of Special Needs, AMERIGROUP, 399
Thornall Street, 9th Floor, Edison, NJ 08818
Tel: 732-452-6046, Fax:
732-906-2021, E-mail: rfredric@amerigroupcorp.com
Affiliation: Healthcare
Plan
Rick Fredrickson is responsible for the development and implementation
of health care programs for people with disabilities for Amerigroup
Corporation. Amerigroup is a public sector only managed care organization
serving over 300,000 members in five states. Mr. Fredrickson served in a
primary leadership role during the Star Plus, a pilot program for consumers
with disabilities in Houston, Texas. This innovative program combined acute
health and behavioral health services with home and community supports within
an integrated care coordination setting. The program serves over 55,000
consumers. Currently, he is leading Amerigroup's efforts in the roll-out of
managed care for people with disabilities in New Jersey. Previously, Mr.
Fredrickson served in a leadership capacity with United Healthcare in Miami,
Florida, in the nursing home diversion pilot, ElderCare. Additionally,
he serves on the board of Easter Seals NJ; the advisory board of the Camden
County Disabled Services; and the NJ Aged, Blind and Disabled Task Force. He is
an avid advocate of consumer choices and direction in all healthcare and
community support decisions. He has authored several position papers and
presented on "Advocacy from Within Healthcare Systems" to managed care
professional, consumers, and caregivers.
William E. Fuller, LSW,
MBA
Consultant, PAAS, 156 Cole Lane, Winchester, VA,
22602
Tel: 804-225-3128, E-mail: buffel@wmfuller.com
William Fuller had
polio at age two. He walked with braces and crutches until 1988 when wheelchair
technology and general accessibility improved to the point where he could get
around in a wheelchair faster than on braces and crutches. Mr. Fuller graduated
from West Virginia University in 1973 with a degree in Social Work and began a
career with the West Virginia Department of Vocational Rehabilitation. He began
as a rehabilitation counselor in 1974 and received a promotion to Administrator
of the Elkins, West Virginia, region in 1975. Mr. Fuller left the department in
1980 to pursue his interests in business and opened a hardware store that he
operated successfully until 1982 when he accepted an appointment as Director of
Finance and Development at Grafton School in Berryville, Virginia, a school for
children with autism. While working at Grafton School, Mr. Fuller earned a
Master's degree in Business Administration from Shenandoah University where he
concentrated in Finance and Information Management. Subsequently, he accepted
an appointment as Executive Director of Access Independence, an independent
living center serving severely disabled people in the Northern Shenandoah
Valley. In 1995, he designed the fiscal intermediary PAS system still in use in
Virginia. In 1997, Mr. Fuller opened a consulting firm, Paragon Consulting,
working with groups interested in improving independence and choice for people
with very serious disabilities. He holds several prestigious awards including
the President's Award, the Disabled Businessman of the Year award, and the
National Disabled Scholar Award. He is a former wheelchair athlete and
nine-time finisher of the Marine Corps Marathon. Mr. Fuller is a Ph.D.
candidate in Urban Services at Virginia Commonwealth University. He has
published several articles in the field of disability policy and recently
completed a Legislative Housing Study for the Virginia General Assembly,
Disability Services Commission chaired by Lt. Governor John Hager.
Robert
Gallant
Executive Director, Highland Valley Elder Services,
1320 Riverside Drive, Suite B, Northhampton, MA 01062
Tel: 413-586-2000,
Fax: 413-584-7076, E-mail: qll@highlandvalley.org
Affiliation: Consumer
Advocate
Robert Gallant holds Masters degrees from Middlebury and Columbia
University Teachers Colleges. He was President of Center for Understanding
Aging and Massachusetts Intergenerational Network, and had a gubernatorial
appointment on the Massachusetts Community Service Commission. He is Executive
Director of Highland Valley Elder Services, a non-profit Area Agency on Aging,
and Home Care Corporation, linking Western Massachusetts elders to resources
for Quality Long Living. He is nationally recognized for innovative, empowering
and positive approaches to aging, and developed Massachusetts's piloting of
Consumer Direction in Community-Based Long Term Care for statewide
implementation. Mr. Gallant is a graduate of National Leadership Institute on
Aging, and gives presentation on increasing participant and community
empowerment.
Raymond Gerke
Self
Advocate, WRC, 1251 334th Street, Woodward, IA 50276
Tel: 515-438-3139, Fax:
515-438-3122, E-mail: rgerke@dhs.state.ia.us
Raymond Gerke has worked for
WRC since 1977. His positions are Co-Chairperson on the Human Rights Committee,
Chairperson for the Environmental Awareness Committee, Committee member of the
Equal Employment Opportunity Committee. He is also the main staff support for
the Woodward Client Council, offering technical support, training activities in
self-advocacy and self-determination, and assists management by bringing issues
to the Council for input, arranging for a representative from management to
give presentations. He has been associated with several organizations within
Iowa over the last 30 years. Including United Cerebral Palsy of Iowa; Arc of
Iowa; Arc Dallas County, National Association for Persons in Supported
Employment; Iowa Association for Persons in Supported Employment; Legal
Services Corporation of Iowa, South Central Region; Mental Health/Developmental
Disabilities/Brain Injury Advisory Council for Dallas County; System Change
Network; Department of Vocational Rehabilitation Services, Independent Living
Advisory Council; Personal Assistant Service/Comprehensive Family Services
Council; and Medicaid Infrastructure Grant Workgroup for Personal Attendant
Services.
Robert M.
Gettings
Executive Director, National Association of State
Directors of Developmental Disabilities Services, 113 Oronoco Street,
Alexandria, VA 22314
Tel: 703-683-4202, Fax: 703-684-1395, E-mail:
rgettings@nasddds.org
Robert Gettings has served as Executive Director of
the National Association of State Director of Developmental Disabilities
Services since the organization opened its first headquarters office in 1970.
In this capacity, he is responsible for representing the interests of the 50
state developmental disabilities agencies in Washington, DC and facilitating
communication among the states concerning the most effective means of serving
citizens with lifelong disabilities. Prior to joining the Association, Mr.
Gettings was on the staff of the President's Committee on Mental Retardation
and the National Association for Retarded Children. Mr. Gettings has written
and lectured extensively regarding the impact of federal legislative and
administrative policy on the delivery of state and local services to persons
with mental retardation and other developmental disabilities and is widely
recognized as a leading expert in this area. He also helped many states solve a
variety of service delivery problems over the years and, consequently, is
well-versed in program developments and trends across the country. A Life
Member of the American Association on Mental Retardation, he recently was
recognized by the National Historic Trust on Mental Retardation as one of 36
major contributors to the mental retardation field during the 20th Century.
Christine S.
Gianopoulos
Director, Bureau of Elder and Adult Services,
Maine Department of Human Services, 11 State House Station, 35 Anthony Avenue,
Augusta, ME 04333-0011
Tel: 207-624-5335, Fax: 207-624-5361, E-mail:
christine.gianopoulos@state.me.us
Christine Gianopoulos has been the
Director of the Bureau of Elder and Adult Services, Maine's State Unit on
Aging, since 1987. The Bureau of Elder and Adult Services administers all state
and federally funded programs for elders; the adult Protective and Public
Guardianship programs; Medicaid home and community-based care service; the
state's long-term care pre-admission assessment services; and the Certificate
of Need program for nursing homes. Prior to joining the Bureau, she was a
Research Associate at the University of Southern Maine's Edmund Muskie
Institute of Public Affairs, specializing in the areas of vocational
rehabilitation and independent living. Ms. Gianopoulos has a B.A. in Economics
from the University of Pittsburgh and a M.P.A. from Syracuse University. Her
professional and community affiliation include serving on the boards of the
National Association of State Units on Aging and the Board for the Home and
Community-Based Services Resource Network project sponsored by HCFA and
ASPE. She is a past President of the NASUA. Closer to home, Ms. Gianopoulos
serves on the board of the Rural Community Action Ministry, a local community
development agency, as well as the Green Conservation commission.
Gladys Gonzalez-Ramos,
PhD
Associate Professor of Social Work, School of Social Work,
New York University, One Washington Square North, Room 309, New York, NY
10012
Tel: 212-998-5932, Fax: 212-995-4836, E-mail:
gmgl@nyu.edu
Affiliation: Educator and Researcher
Dr. Gladys
Gonzalez-Ramos has been involved in program development, service delivery,
research, and consultation to the Latino community for the past 20 years. As an
experienced mental health practitioner, she has helped to establish and
coordinate several mental health programs. More recently, she received private
foundation funding to design model services for indigent patients with
Parkinson's Disease and their caregivers. Dr. Gonzalez-Ramos is currently
co-chairing a national task force for the development of comprehensive services
for underserved communities with Parkinson's Disease.
Rick Greene
Policy
Analyst, Administration on Aging, 330 Independence Avenue, S.W., Washington, DC
20201
Tel: 202-205-2814, Fax: 202-260-1012, E-mail:
rick.greene@aoa.gov
Affiliation: Government
Rick Greene is involved in
implementing the National Family Caregiving Support Program and developing
health promotion programs for older adults. Prior to joining the Administration
on Aging, he was employed by the New Jersey Department of Health and Senior
Services for almost 30 years where he administered numerous service programs
for older adults and their caregivers.
Gayle M. Hafner,
JD
Staff Attorney and Maryland ADAPT Organizer, Maryland
Disability Law Center, 1800 North Charles Street, Suite 400, Baltimore, MD
21201
Tel: 410-727-6352, Fax: 410-666-5080, E-mail:
marylandadapt@yahoo.com
Gayle Hafner has been disabled for 44 years, a
wheelchair user for 35 years, a lawyer for 20, and a disability rights activist
for 6 years. For most of her legal career, she has been a children's advocate.
Ms. Hafner has successfully represented a child before the U.S. Supreme Court
and thousands of children in foster/kinship care reform class actions. She
served briefly as a state administrative law judge and advocated on behalf of
hundreds of people with low incomes in four different states' programs. As one
of the first OSI (Soros)-Baltimore Community Fellows, she helped empower
kinship caregivers for children with disabilities to be more effective
self-advocates and stronger voices with their children. Ms. Hafner's arrest
record, though short, is an important as her advocacy record. She has recently
started working with the P&A, MDLC.
Ruth A. Hagestuen, RN,
MA
National Program Director, National Parkinson Foundation, 4147
Vincent Avenue South, Minneapolis, MN 55410
Tel: 612-915-9126, Fax:
612-920-5276, E-mail: hagestuenr@aol.com
Affiliation: Developer of Care
Initiatives, Community Organizer and Consumer Advocate
Ruth Hagestuen has a
strong interest in the development of services designed to reach the whole
Parkinson's community, providing resources to achieve the best possible quality
of life. Her experience includes 15 years of leadership in a multi-disciplinary
team process dedicated to the development of specialized, comprehensive
services for persons with Parkinson's Disease. Ms. Hagestuen has recently
joined the National Parkinson Foundation and works collaboratively to develop
nationwide initiatives through networks of centers, chapters, and other
interested partners/funders.
John
Halloran
Managing Director, European Social Network, 8 Paston
Place, Brighton BN2 1HA United Kingdom
Tel: +44 1273 603546, Fax: +44 1273
670487, E-mail: john.halloran@socialeurope.com
John Halloran is the Managing
Director of the European Social Network, which represents 17 national
associations of directors of public social welfare. He directs a number of
European Commission funded social policy and good practice programs. Mr.
Halloran previously worked as a consultant in change management, including
research for the Department of Health and the Scottish Office. For 10 years he
was a senior manager of public welfare services in the city of Brighton,
responsible for residential and community services for the elderly, persons
with disabilities, and family and child protection services.
Cindy
Hannum
Assistant Administrator, Senior and Disabled Services
Division, Oregon Department of Health Services, 500 Summer Street, N.E., #E13,
Salem, OR 97301-1074
Tel: 503-945-5833, Fax: 503-378-8966, E-mail:
Cindy.HANNUM@state.or.us
Cindy Hannum is the Assistant Administrator of
Senior and Disabled Services Division overseeing long-term care quality
programs including nursing facility, community-based care, and in-home care
standards and programs. Ms. Hannum supervises nursing facility survey and
certification, state licensing for all community-based care facilities, such as
adult foster home and assisted living, and provider standards for all Medicaid
nursing facility and community-based care programs. Ms. Hannum has 25 years
experience in social service and long-term care programs for elderly and hold a
B.A. degree from the University of Michigan.
Melissa L.
Harris
Health Insurance Specialist, Centers for Medicare and
Medicaid Services, 7500 Security Boulevard, Mail Stop S2-14-26, Baltimore, MD
21244
Tel: 410-786-3397, Fax: 410-786-3262, E-mail:
mharris1@cms.hhs.gov
Affiliation: Government
Melissa Harris has been with
the Centers for Medicare and Medicaid Services (formerly the Health Care
Financing Administration or HCFA) since 1995, after graduating with a B.S.
degree in Accounting from Salisbury State University. She currently works in
the Division of Integrated Health Systems, within the Disabled and Elderly
Health Programs Group in HCFA's Center for Medicaid and State Operations. Her
main responsibilities include Program of All-inclusive Care for the Elderly
(PACE) policy and operations, and processing Section 1915(b) managed care
waiver and Section 1115 demonstration proposals. Ms. Harris also oversees the
management of funds awarded to five states to enhance the services provided to
children with life-threatening conditions and their families.
James L. Head,
Jr.
Senior Vice President, South Carolina Hospital
Association, 101 Medical Circle, West Columbia, SC 29171
Tel: 803-796-3080,
Fax: 803-796-2938, E-mail: jhead@scha.org
Affiliation: Researcher
James
Head presently serves as Senior Vice President of the South Carolina Hospital
Association, where he is responsible for overall coordination of Association
activities in the areas of health care finance, managed care, data, and
continuum of care. Prior to coming to SCHA in 1979, he worked with Ernst and
Whinney for five years as a health care consultant. A native of New York, Mr.
Head attended the U.S. Military Academy for two years before receiving his
undergraduate degree from Johns Hopkins University in 1972, and a M.B.A. from
the Amos Tuck School at Dartmouth College in 1974. He is a Fellow in the
American College of Healthcare Executives, a certified member of the American
Society of Association Executives, and a Fellow and past National Board member
of the Healthcare Financial Management Association.
Leslie Hendrickson,
PhD
Assistant Commissioner, New Jersey Department of Health and
Senior Services, P.O. Box 722, Trenton, NJ 08625-0722
Tel: 609-588-2611,
Fax: 609-588-3499, E-mail: lhendrickson@doh.state.nj.us
Affiliation: State
Medicaid Program
Leslie Hendrickson supervises home and community-based
Medicaid programs, pre-admission screening, the Community Choice
Program, and field office operations in New Jersey. Prior to working with
New Jersey, he worked in the Senior and Disabled Services Division of Oregon's
Department of Human Resources. In Oregon, Dr. Hendrickson supervised in-home
policy, eligibility, General Assistance policy, and provider relations. He has
over 15 years of Medicaid experience and holds a Ph.D. in Sociology from the
University of Oregon where he specialized in statistics and research
methods.
Chris Hess
Assistant
Director, Milwaukee County Department on Aging, 235 West Galena Street,
Milwaukee, WI 53212
Tel: 414-289-6104, Fax: 414-289-8590, E-mail:
chess@milwaukeecounty.com
Affiliation: Administrator
Chris Hess oversees
the Milwaukee County Department on Aging's Long Term Support programs. Her
department is involved in piloting Family Care, Wisconsin's managed care
initiative. Integral to this pilot is a program of Self-Directed
Supports (SDS). The Milwaukee SDS model includes utilization of an Advanced
Directive for Long Term Support, a curriculum to train elders for
self-determination, and a SDS peer-support group.
Judith E.
Heumann
President, Heumann and Associates, 3133 Connecticut
Avenue, N.W., #427, Washington, DC 20008
Tel: 202-332-5497, E-mail:
judithheumann@aol.com
Affiliation: Consultant, Disability Rights
Judith
Heumann served in the Clinton Administration's Department of Education as the
Assistant Secretary for the Office of Special Education and Rehabilitation
Services for the last eight years. Ms. Heumann was responsible for national
programs in special education, disability research, vocational rehabilitation
and independent living, serving youth and adults with disabilities. She now
heads her own consulting firm, Heumann and Associates. She has assisted in
legislation such as the Individuals with Disabilities Education Act and the
Americans with Disabilities Act. She also helped establish the first public
policy research think tank devoted to disability issues, known as the World
Institute on Disability. An internationally recognized leader in the disability
community, Ms. Heumann is a lifelong civil rights advocate for disadvantaged
people.
Nicolette (Nikki)
Highsmith, MPA
Director of Policy, Center for Health Care
Strategies, 1009 Lenox Drive, Suite 204, Lawrenceville, NJ 08648
Tel:
609-895-8101, Fax: 609-895-9648, E-mail: nh@chcs.org
Nikki Highsmith is
Director of Policy at the Center for Health Care Strategies, Inc., and is
Director of the State Medicaid/CHIP Purchasing Institute. The State
Medicaid/CHIP Purchasing Institute is a program designed to build the
purchasing capacity of state Medicaid and SCHIP agencies. She also manages many
of the Center's grantmaking and technical assistance activities under the
Robert Wood Johnson Foundation's Medicaid Managed Care Program. The
Center for Health Care Strategies is a non-profit, policy resource center that
promotes high quality care for low income populations and people with chronic
illnesses and disabilities. She has significant experience in Medicaid managed
care, both as a state purchaser and a federal budget official. Previously, Ms.
Highsmith was the Deputy Director of the Medicaid Managed Care Program for the
State of Massachusetts were she purchased health care on behalf of 150,000
Medicaid beneficiaries. Ms. Highsmith was also a senior Medicaid analyst at the
Office of Management and Budget, Executive Officer of the President in
Washington, D.C., where she was responsible for approving Medicaid managed care
waivers. She has a bachelor's degree in History from the University of Texas
and holds a Master's degree in Public Administration from American
University.
Kendra
Holden
Participant, Florida Developmental Disabilities
Consumer-Directed Care Project, 9437 Rockrose Drive, Tampa, FL
33647-2813
Tel: 813-973-0374, E-mail: kendraholden@aol.com
Affiliation:
Consumer
Kendra Holden, a moderately retarded lady, wants to improve her
abilities. She volunteered 100 hours at the VA Hospital and helps two days a
week at Hunters' Green Elementary with the physically impaired children. Ms.
Holden also works at a workshop. She likes choosing her employees. Ms. Holden's
father, her companion, taught her to use the computer and signed her up with
E-Buddies, a program that provides e-mail friendships. Speaking at the Loyola
University E-Buddy Conference was a huge accomplishment for this individual, a
diabetic, who required intensive therapy to walk and talk.
Kenneth
Holden
Participant, Florida Developmental Disabilities
Consumer-Directed Care Project, 9437 Rockrose Drive, Tampa, FL
33647-2813
Tel: 813-973-0374, E-mail: bigkenholden@aol.com
Affiliation:
Consumer
Kenneth Holden, a moderately retarded man, is an insulin-dependent
diabetic with other health problems. The freedom of choice has provided Mr.
Holden with knowledgeable companions. He volunteers with the physically
impaired children at Hunters' Green Elementary and works at a workshop. At age
six, his father died, leaving him emotionally shattered. With his mother's
remarriage, he developed a close relationship with his step-father. His
step-father, his companion, taught Mr. Holden how to use the computer to
e-mail. Mr. Holden was the first E-Buddy, a program of e-mail friendships and
this was shared on the Oprah Winfrey Show recently.
Claudia
Hoppe
Consumer Directed Care Outreach Coordinator, Florida
Department of Elder Affairs, 4040 Esplanade Way, Tallahassee, FL
34399-7000
Tel: 813-293-1230, Fax: 813-996-5139, E-mail:
Cahoppe@earthlink.net
Claudia Hoppe is the Outreach Coordinator for Consumer
Directed Care with the Department of Elder Affairs. Ms. Hoppe obtained her
degree in the field of Gerontology. She has expertise as a Geriatric Mental
Health Counselor; Training Specialist, Case Manager; CDC Consultant; and a
professional in the aging and social services professions. Ms. Hoppe worked as
a research assistant at the Department of Aging and Mental Health at University
of Southern Florida. She was the recipient of a graduate award for her research
in "Pain Management in the Elderly" in conjunction with the Senior Adult
Oncology Program at the Moffitt Cancer in Tampa, Florida. Her current
responsibilities include the oversight of ten outreach specialists for consumer
directed care covering 19 counties in the State of Florida.
Mike
Huckabee
Governor of Arkansas, State Capitol, Little Rock, AR
72201
Tel: 501-682-2345, Fax: 501-682-3597, E-mail: info@gov.state.ar.us
Mike Huckabee became governor July 15, 1996. As lieutenant governor, he
ascended to the office when the previous governor resigned. He became Arkansas'
44th elected governor November 3, 1998. Under Gov. Huckabee's leadership,
Arkansas: Created ARKids First, which provides preventive and primary health
insurance to children of working parents. Passed welfare reform measures that
helped reduce welfare rolls by almost 50%. For the first time in state history
saw a major, broad-based tax cut. Passed education reforms that encourage
character education in schools, expand the availability of college
scholarships, provide for the creation of charter schools and establish a new
approach to workforce education. Passed the "Property Taxpayers' Bill of
Rights." Passed legislation that simplifies auto registration, previously a
time-consuming enterprise. Began the largest road construction project in
Arkansas history. Saw to it that all of the tobacco settlement money was
devoted to improving the health of Arkansans.
Gail Gibson
Hunt
Executive Director, National Alliance for Caregiving,
4720 Montgomery Lane, Suite 642, Bethesda, MD 20814
Tel: 301-718-8444, Fax:
301-652-7711, E-mail: gailhunt.nac@erols.com
Affiliation: Research and
Advocacy
Gail Hunt is Executive Director of the National Alliance for
Caregiving (NAC), a non-profit organization dedicated to conducting research
and developing national programs for family caregivers and the professionals
who serve them. Prior to heading NAC, Ms. Hunt was President of her own aging
services consulting firm for 14 years. She conducted corporate elder care
research for the National Institute on Aging and the Social Security
Administration, developed training for caregivers with AARP and the American
Occupational Therapy Association, and designed a corporate elder care program
for EAP with the Employee Assistance Professional Association. Prior to having
her own firm, she was a senior manager in charge of human services for the DC
Office of KPMG Peat Marwick. She attended Vassar College and graduated from
Columbia University in New York.
Ed
Hutton
Technical Director, Centers for Medicare and Medicaid
Services/CMSO, 7500 Security Boulevard, Mail Stop S2-14-26, Baltimore, MD
21244-1850
Tel: 410-786-6616, Fax: 410-786-3262, E-mail:
ehutton@cms.hhs.gov
Affiliation: Researcher/Administrator
Ed Hutton has
10+ years with HCFA (now CMS) designing, administering, and evaluating health
services demonstrations. He contributes to Medicare and Medicaid
demonstrations, which provide care for families, children, aged, and persons
with disabling conditions. His current focus is Section 1115 demonstrations of
consumer-directed care and service delivery for the aged and persons with
disabling conditions; waiver programs of managed care for long-term care; and
permanent provider status for PACE.
Patricia
Janik
Program Specialist, Administration on Aging, 330
Independence Avenue, S.W., Washington, DC 20201
Tel: 202-619-1352, Fax:
202-260-1012, E-mail: patricia.janik@aoa.gov
Affiliation: Government
Service
Patricia Janik is a program specialist in the Office of State and
Community Programs, whose are of concentration is home and community-based
long-term care. She works on the new Caregiver program, the Alzheimer's
Demonstration Grants to states, and other home and community-based services
issues. Prior to this, Ms. Janik worked as a direct service provider.
Rick
Jelinek
Executive Vice President, Business Development,
Evercare, 9900 Bren Road East, Minnetonka, MN 55343
Tel: 952-936-6847, Fax:
952-936-6902
Rick Jelinek is Executive Vice President at Evercare, a
division of UnitedHealth Group. Evercare is a national health care service
organization focusing on the well-being of frail, elderly, and chronically ill
individuals residing in an institution or within home and community-based
settings. Evercare is a risk-based provider of Medicare and Medicaid programs
and currently participates in several Medicaid managed long-term care
initiatives across the country. Mr. Jelinek received has B.S. in Business
Administration from the University of Southern California, and a Master's
degree in Health Services Administration and a M.B.A. from the University of
Michigan.
Bobby P.
Jindal
Assistant Secretary for Planning and Evaluation, U.S.
Department of Health and Human Services, 200 Independence Avenue, S.W.,
Washington, DC 20201
Tel: 202-690-7858, Fax: 202-690-7383
Bobby Jindal
was sworn-in as the Assistant Secretary for Planning and Evaluation for the
Department of Health and Human Services on July 9, 2001. Prior to joining HHS,
he was the University of Louisiana System president, one of the largest higher
education systems in the nation. During his tenure, Mr. Jindal was instrumental
in raising graduation and retention rates, increasing private donations and the
number of endowed chair positions. He also implemented the state’s first
teacher guarantees and faculty rotation programs. In 1998, Mr. Jindal was named
executive director of the National Bipartisan Commission on the Future of
Medicare, a panel charged with developing a plan to reform Medicare. He brought
with him expertise as Louisiana’s Department of Health and Hospitals
Secretary, a position Mr. Jindal held from 1996 to 1998. As Secretary, Mr.
Jindal was responsible for a $4 billion budget, and managed to eliminate the
department’s $400 million deficit. He began his career as a consultant at
McKinsey & Company. Mr. Jindal graduated magna cum laude from Brown
University with degrees in biology and public policy. Mr. Jindal, a Rhodes
scholar, received his Master’s degree in politics from Oxford
University.
Catriona
Johnson
Director of Public Policy Initiatives, Maryland
Developmental Disabilities Council, 300 West Lexington Street, Box 10,
Baltimore, MD 21201
Tel: 410-333-3688, Fax: 410-333-3686, E-mail:
catrionaj@md-council.org
Affiliation: Parent, Advocate, Funder
Catriona
Johnson is the parent of an 8-year-old with autism and a Partners in
Policymaking graduate. She now works professionally in the field developing and
implementing systems-change activities in areas of early childhood, education,
health, family and individual support services, and housing on behalf of
individuals with disabilities. She monitors grants and serves on several task
forces and committees, including the Special Education State Advisory
Committee; State Interagency Coordinating Council; Developmental Disabilities
Administration Family Support Services and Individuals Support Services Task
Forces; Task Force on Educating Young Children with Autism; and Home of Your
Own Coalition. Ms. Johnson previously worked in areas of violence against
women.
J. Rock Johnson,
JD
1342 South 11th Street, Lincoln, NE 68502-1219
Tel:
402-484-0202, E-mail: jrock10@sprynet.com
Affiliation: Advocate
J. Rock
Johnson's experience includes serving as Director on the Board of the Nebraska
Protection and Advocacy Agency; NAMI, National Alliance for the Mentally Ill;
and public representative on the behavioral health advisory committee, Joint
Commission on the Accreditation of Healthcare Organizations; consultant to the
Bazelon Center for Mental Health Law and Psycho-Social Rehabilitation Project
in Sarajevo, Bosnia. He served on the Planning Board, Mental Health: A
Report of the Surgeon General, and participated in the White House
Conference on Mental Health. Mr. Johnson's interests include abolishing
restraint use and establishing the concepts of advance directives,
consumer-directed research and self-determination as normative for people with
mental illnesses.
Judith Miller
Jones
Director of National Health Policy Forum, Adjunct
Professor for Department of Health Care Sciences, George Washington University,
2131 K Street, N.W., Suite 500, Washington, DC 20037
Tel: 202-872-1390, Fax:
202-862-9837, E-mail: jmjones@gwu.edu
Judith Miller Jones has been Director
of the National Health Policy Forum (NHPF) at the George Washington University
since its inception in 1972. The Forum is a non-profit educational program
providing an informal, nonpartisan, off-the-record setting for congressional
staff and federal agency officials to meet with experts from various health
care arenas for discussions on a wide range of health policy issues. Over the
years, the Forum has developed a unique role and reputation for its in-depth
coverage of complex subjects, especially through its conduct of comprehensive
site visits and publication of issue briefs and other documents that are highly
regarded for their clarity and objectivity. Often referred to as the
"institutional memory" of health policy, NHPF has spawned look-alike programs
in Europe and a number of states, with many organizations now emulating various
of its products and activities. In 1988, Ms. Jones became a member of the
National Committee on Vital and Health Statistics and served as its chair from
1991 through 1996. This major advisory body to the Secretary of Health and
Human Services addresses a wide variety of data-related issues, including
administrative simplification and confidentiality. She is a lecturer at George
Washington University, serves as a mentor at the Wharton School's Health Care
Management Program, and on occasion consults with nonprofit groups across the
country. Previously, Ms. Jones served as Special Assistant in the Office of the
Deputy Assistant Secretary for Legislation in the Department of Health,
Education and Welfare, and, before that, as Legislative Assistant to the late
Sen. Winston L. Prouty (R-VT). Prior to her involvement in government, she
worked in education and program management in the private sector.
Meg
Kane
Parent/Advocate, 6813 Dearwester Drive, Cincinnati, OH
45236
Tel: 513-984-3359, Fax: 513-984-1660, E-mail:
aileen7@aol.com
Affiliation: Parent Advocate
Meg Kane is a parent
advocate of a son with developmental disabilities. She received leadership
training from Partners in Policymaking and Project Leadership in 2000. For
three years, she has been part of a planning task force for the Southwest Ohio
Alliance for Direct Support Professionals. In the past, Ms. Kane has
participated in Ohio's Governor's Summit on Workforce Shortage for Direct Care
staff, and worked as a job coach through the vocational rehabilitation agency,
Jewish Vocational Services. She is currently serving on the newly formed
Consumer Taskforce for the grants offered through HCFA (now CMS) and is also
Vice Co-Chair of the National Coalition on Self-Determination. Ms. Kane
graduated from the State University in New York at Albany with a B.S. in
Medical Technology.
Judith D.
Kasper
Professor, Department of Health Policy and Management,
Johns Hopkins University, Bloomberg School of Public Health, 624 North
Broadway, Baltimore, MD 21205
Tel: 410-614-4016, Fax: 410-955-0470, E-mail:
jkasper@jhsph.edu
Affiliation: Researcher (1996
Report)
Judith Kasper focuses on research related to health policy is
disability and long-term care and assessment of needs for care and service
provision to physically and mentally disabled people. She has published on the
impact of variations in opportunities for consumer-directed care in Medicaid
personal care programs (Doty, Kasper, and Litvak, 1996) and is particularly
interested in the implications of greater consumer direction for elderly
people.
Kellie K. Kim-Sung,
EdD
Policy Research Analyst, Public Policy Institute, American
Association of Retired Persons, 601 E Street, N.W. Washington, DC 20049
Tel:
202-434-2225, E-mail: kellie@cox.rr.com
Affiliation: Parent,
Researcher
Kellie Kim-Sung is the parent of a daughter with developmental
disabilities and a researcher. She strongly believes that full participation of
individuals with disabilities is not only the right of the people but also
enriches our society. Through involvement in The Arc of Northern Virginia and
participating in the year 2000 Project Leadership sponsored by the
Administration on Developmental Disabilities, Dr. Kim-Sung has gained extensive
up-to-date knowledge and understanding of the related policy implementation
including self-determination. She tries to share what she has learned with
other immigrant parents or caregivers of children or adults with disabilities
through a personal web site in Korean language (http://my.netian.com/~rugrats/) so
that they can become an educated consumer. Advocating for culturally and
linguistically competent service provision for minorities is another area of
interest for her.
James R. Knickman,
PhD
Vice President of Research and Evaluation, Robert Wood
Johnson Foundation, P.O. Box 2316, Princeton, NJ 08540
Tel: 609-627-5959,
Fax: 609-627-6415, E-mail: jknickman@rwjf.org
Affiliation: Funder
James
Knickman is Vice President for Research and Evaluation at the Robert Wood
Johnson Foundation (RWJ), one of the sponsors of the Cash and Counseling
Initiative. At RWJ, Dr. Knickman has responsibility for external
evaluations of national initiatives supported by the Foundation. He also is
active in a range of grantmaking related to long-term care services. He led the
team at RWJ that designed the Cash and Counseling Initiative with staff
at ASPE and the national program office. Prior to joining the RWJ staff in
1992, Dr. Knickman was on the faculty at New York University where he conducted
research on issues related to long-term care finance and delivery.
Dennis L.
Kodner
Senior Vice President of Research and Innovation,
Executive Director of the Institute for Applied Gerontology, Metropolitan
Jewish Health System, 6323 Seventh Avenue, 3rd Floor, Brooklyn, NY
11220-4711
Tel: 718-630-2550, Fax: 718-630-2559, E-mail:
dkodner@iag.mjhs.org
Affiliation: Researcher
Dr. Dennis L. Kodner
oversees strategic planning and R&D activities at Metropolitan Jewish
Health System (MJHS)--a major "continuum of care" health system serving the
elderly and other populations with chronic and disabling conditions. In
addition, he directs the Institute for Applied Gerontology--which is MJHS's
research and education arm--and is on the faculties of New York Medical
College, New York University, and Maastricht University, in the Netherlands.
Dr. Kodner's research, policy, and practice interests include health services
for the elderly and people with disabilities, long-term care financing and
delivery, home and community-based services, care management for vulnerable
populations, managed care systems, chronic care management, and
consumer-directed care. Dr. Kodner was one of the designers of the social
health maintenance organization (HMO) demonstration and served as the first
Executive Director of Elderplan--the Social HMO sponsored by MJHS. He is also
the developer and Principal Investigator of HomeFirst--a new
home-centered managed care program for the frail elderly with various
consumer-directed features.
Jan
Kooistra
1115 Waivers Specialist and Tribal Relations, Health
Care Administration, Minnesota Department of Human Services, 444 Lafayette Road
North, St. Paul, MN 55155-3852
Tel: 651-296-1090, Fax: 651-215-9453, E-mail:
jan.kooistra@state.mn.us
Jan Kooistra has worked for the past 11 years in
state government, with a focus on policy development and program planing for
people with disabilities. In her current position with the Department of Human
Services, she develops and oversees the implementation of 1115 waivers that
demonstrate and evaluate consumer-directed service delivery models.
Ken Lovan
Vice
President of Development, ResCare, 10140 Linn Station Road, Louisville, KY
40223-3813
Tel: 502-394-2335, Fax: 502-394-2206, E-mail:
Klovan@rescare.com
Affiliation: Provider
Ken Lovan has over 25 years of
varied experience in the developmental disabilities field. He currently serves
as Vice President of Development for ResCare, which is a large multi-state
provider. During his 18 years with ResCare, he has worked in a variety of
capacities and has participated in ResCare's growth in becoming one of the
nation's leading private providers of services to persons with disabilities.
Mr. Lovan's current position calls for working closely with national
associations, state governments, local and regional boards, and with providers
from around the country. As such, he has a unique exposure to and involvement
in a vast array of service systems, trends and developments. Mr. Lovan is also
working within ResCare to promote systems change and development of
consumer-directed services. He also serves on the Board of Directors of ANCOR
and is on a newly created "steering committee" for ANCOR's Campaign for
Increased Medicaid Funding for Persons with Disabilities.
Jane Isaacs Lowe,
PhD
Senior Program Officer, Robert Wood Johnson Foundation, Route
1 and College Road East, Princeton, NJ 08543
Tel: 609-627-5786, Fax:
609-514-5409, E-mail: jlowe@rwjf.org
Jane Isaacs Lowe is a Senior Program
Officer at the Robert Wood Johnson Foundation. Before joining RWJF, she was a
faculty member in the School of Social Work at the University of Pennsylvania.
Prior to working at the university, she worked at Mt. Sinai Medical Center (New
York City) where she served as a faculty member in the medical school's
Department of Community Medicine and as a hospital social work administrator.
Dr. Lowe has extensive experience in clinical social work, community-based
health, program planning and interdisciplinary education. She earned her
Bachelor's degree in Sociology and Education from Cedar Crest College, her
Master's degree in Social Work from Columbia University and her Doctorate in
Social Welfare Policy and Planning from Rutgers University.
Cathy
Ludlum
Chair, Community Options Task Force/Olmstead,
Connecticut Council of Persons with Disabilities, 46 St. James Street, Suite
16, Manchester, CT 06040
Tel: 860-649-7110, E-mail:
cludlum@coopinit.org
Affiliation: Person with a Disability, Advocate for
Housing and Support
Cathy Ludlum's personal and professional activities
focus on the inclusion of people with disabilities in all areas of community
life. She incorporates writing, speaking, and facilitation of meetings on the
development of individualized support systems and various models of home
ownership. Ms. Ludlum was a founder of Co-op Initiatives, a nonprofit housing
developer which works to create integrated, mutually supportive communities.
She has written several books, including a manual on hiring personal
assistants. Ms. Ludlum has been a leader in Connecticut's response to the
Olmstead decision. She has been hiring personal assistants since 1988, and has
lived in a housing cooperative since 1992.
Beverly
Lynch
Parent Advocate, National Coalition on
Self-Determination, 2045 Steve Drive, Paducah, KY 42003
Tel: 270-575-3060,
E-mail: blynch@apex.net
Affiliation: Parent
Beverly Lynch is a parent of
a 10-year old son (Nevada) who has multiple complex disabilities. Nevada lives
at home with his parents and is included in the 4th grade class at his
neighborhood school. Ms. Lynch currently serves as a consumer representative on
the Kentucky Developmental Disabilities Council; parent representative on the
Kentucky Commission on Services and Supports for Individuals with Mental
Retardation and Other Developmental Disabilities; and parent representative on
the Person-Centered Funding subcommittee of the Kentucky Olmstead Plan
Committee. Ms. Lynch is founding member of the National Coalition on
Self-Determination; a 2000 graduate of Project Leadership; a 1996 graduate of
Kentucky Partners in Policymaking; and a supporter of the Community
Imperative.
Kevin J. Mahoney,
PhD
Associate Professor, National Project Director for Cash and
Counseling Demonstration and Evaluation, Boston College Graduate School of
Social Work, McGuinn Hall, Room 306, 140 Commonwealth Avenue, Chestnut Hill, MA
02467
Tel: 617-552-4039, Fax: 617-552-1975, E-mail: kevin.mahoney@bc.edu (Presentation) (2000 Article) (2000 Article)
Kevin J. Mahoney is a faculty member
at the Boston College Graduate School of Social Work where he serves as
Associate Professor as well as National Program Director for the Cash and
Counseling Demonstration and Evaluation, a policy-driven evaluation of one of
the most unfettered forms of consumer direction of personal assistance
services, funded by the Robert Wood Johnson Foundation and the Office of the
Assistant Secretary for Planning and Evaluation at the U.S. Department of
Health and Human Services. During his 25 year career in gerontology and
long-term care, Dr. Mahoney has served in a number of policy making and
administrative positions in the state governments of Connecticut and
California. Prior to coming to Boston College in 1999, he held academic
appointments at Yale University, the University of Connecticut, the University
of California-San Francisco and the University of Maryland. From 1978 to 1987,
Dr. Mahoney served as Chief of Research and Program Development at the
Connecticut Department on Aging where he was responsible for that state's home
care programs for the frail elderly. From 1987 to 1995, Dr. Mahoney developed
and implemented innovative partnerships between private insurance and Medicaid
to finance long-term care--first in the State of Connecticut and then in the
State of California. An expert on state government and long-term care
innovation, he speaks and writes extensively on consumer-direction, the roles
of the public and private sectors in financing long-term care, long-term care
insurance and care management. Most recently, Dr. Mahoney became Deputy
Director of the Home and Community-Based Services Resource Network established
by the U.S. Department of Health and Human Services.
Lisa Mangieri
7
Pinho Avenue, Carteret, NJ 07008
Tel: 732-969-0716, E-mail:
lisamangieri@compuserve.com
Lisa Mangieri graduated Ramapo College in New
Jersey with a B.A. in Psychology. While she lived on campus, she became a pilot
member of the now successful PASP. Ms. Mangieri is a member of the Middlesex
County Local Advisory Council on the Personal Assistance Services Program;
wrote feature articles (1995-1997) for the Alliance for the Disabled in Action;
and Monday Morning Advocacy Network of Middlesex County which gives people with
disabilities a role in creating public policy. Additionally as a disabled
consumer, she contributes to the Medical Assistance and Health Services
Advisory Council which discusses plans for New Jersey Medicaid and the New
Jersey Personal Preference Program, which empowers Medicaid consumers.
Beth
McArthur
Director of Planning and Development, Connecticut
Department of Mental Retardation, 460 Capital Avenue, Hartford, CT
06106
Tel: 860-418-6132, Fax: 860-418-6003, E-mail:
Beth.McArthur@po.state.ct.us
Affiliation: State Administrator (Presentation)
Beth McArthur served as
one of the state's co-directors for the Robert Wood Johnson Foundation
Self-Determination Initiative's 4-year grant that formally ended in January
2001. As Director of Planning and Development in the department's Strategic
Leadership Center, she continues to lead the state's effort to shift its
traditional service system to one that is self-directed by consumers and
families. She has worked for the Department of Mental Retardation for over 20
years, directing and supporting system change initiatives including
person-centered planning, positive behavioral supports, and quality
improvement.
Portia
McCormack
Director of Membership Outreach, Independence Care
System, 257 Park Avenue South, 2nd Floor, New York, NY 10010-7304
Tel:
212-584-2500, Fax: 212-584-2555, E-mail: mccormack@icsny.org
Portia
McCormack coordinates the marketing and enrollment activities of Independence
Care System (ICS), a non-profit, Medicaid managed long-term care plan in New
York City. ICS is especially designed to meet the needs of people with physical
disabilities who are over the age of 21. ICS provides assistance to people with
disabilities to manage their own individual care needs including facilitating
access to consumer-directed personal assistance. Ms. McCormack has a Master's
degree in Social Work from the Hunter College School of Social Work, and has
many years of experience in health care practice and administration. In her
previous position as the Corporate Director of Social Work Services for the New
York City Health and Hospitals Corporation, Ms. McCormack frequently advocated
for the younger disabled population who had difficulty accessing coordinated
home and community-based care.
Mark R. Meiners,
PhD
Associate Professor and Associate Director, University of
Maryland Center on Aging, 1240 HHP Building, College Park, MD 20742
Tel:
301-405-2532, Fax: 301-314-2025, E-mail: mm56@umail.umd.edu, Web site:
www.inform.umd.edu/aging
Mark
Meiners is Associate Professor and Associate Director for the University of
Maryland Center on Aging in College Park. He is the Director of the Robert Wood
Johnson Foundation (RWJ) Medicare/Medicaid Integration Program, an initiative
designed to help states develop new systems of care that better coordinate
acute, post-acute, and long-term care. He is also the Director of RWJ
Partnership for Long-Term Care, an innovative state-based long-term care
insurance program, and has led this initiative since its beginning in 1987. Dr.
Meiners holds a Ph.D. and M.A. in Economics from Georgetown University, and a
B.A. from the University of Wisconsin. Dr. Meiners specializes in the areas of
aging and health with emphasis on financing and reimbursement issues. He has
written numerous publications including articles on nursing home costs,
long-term care insurance, and cost of illness analysis. Dr. Meiners is
nationally recognized as one of the leading experts on financing and program
development in long-term care. His path-breaking research on long-term care
insurance has been a major catalyst to the current interest in this topic. He
has been voted one of the 100 most influential people in long-term care by
McKnight's Long-Term Care News Editorial Advisory Board.
Michael
Morris
Senior Vice President, Community Options, Inc., 1130
17th Street, N.W., Suite 430, Washington, DC 20036-4641
Tel: 202-721-0120,
Fax: 202-721-0124, E-mail: michael.morris@comop.org
Affiliation: Researcher,
Advocate
Michael Morris is the Director of the Center on Innovations
established by Community Options, Inc., in 1998 in Washington, D.C. The Center
is currently involved in a dozen research and demonstration projects that are
regional or national in scope. A common strand among projects is a focus on
empowerment and advancing self-sufficiency of individuals with disabilities.
Two major projects of the Center is the U.S. Department of Education and NIDRR
funded Research and Training Center on Workforce Investment and Employment
Policy for Persons with Disabilities and the Administration with Developmental
Disabilities funded Project Leadership which is building a nationwide network
of parent and self-advocate leaders with advanced knowledge and skills in
public policy development at a federal level to advance self-determination. Mr.
Morris has over 20 years of experience at a state and federal level in systems
change activities focused on problem solving through dialogue with diverse
stakeholders; demonstration activities in partnership with government,
corporations, communities, individuals with disabilities and families; and
training activities to overcome challenges to individual choice and equal
opportunity. Mr. Morris has a Juris Doctor degree from Emory University School
of Law. He is a former Counsel to the U.S. Senate Subcommittee on the
Handicapped and Small Business Committee. He was employed by United Cerebral
Palsy Associations for 14 years, first as Director of Government Relations and
in his last two years as National Executive Director. In 1981, he came to
Washington, D.C. as the first Kennedy Foundation Public Policy Fellow.
Charles Moseley,
EdD
Director, University of New Hampshire, Institute on
Disability, National Program Office on Self-Determination, 7 Leavitt Lane,
Suite 101, Durham, NH 03824-3522
Tel: 603-862-4810, Fax: 603-862-0615,
E-mail: chas.moseley@unh.edu
Affiliation: Researcher (1999 Article) (Report)
Charles Moseley is the Director of the
National Program Office on Self-Determination at the Institute on Disability
and an Adjunct Professor at the University of New Hampshire. As Director of the
Self-Determination Project, he manages contracts and provides technical
assistance to states, individuals, and people with disabilities on
self-directed supports and alternatives to managed care. Prior to working at
the National Program Office on Self-Determination, he was the Director of the
Vermont Division of Developmental Services where he led the efforts to close
the state's institution, transition services for individuals with developmental
disabilities to individualized community-based alternatives, and restructure
the service delivery system to incorporate principles of self-directed
services. Dr. Moseley has consulted nationally and internationally with states
and organizations on individualized support alternatives, public policy and the
development of effective strategies to change service delivery systems to
implement the principles of self-determination. He holds a Doctorate in Special
Education from Syracuse University.
Cindy
Moseley
Corporate Operations Manager/Senior Financial
Supervisor, Aspen Management Group LLC, 8500 West Markham, Suite 200, Little
Rock, AR 72205
Tel: 501-217-8123, Fax: 501-217-8125, E-mail:
moseleycindy@aol.com
Affiliation: Counseling/Fiscal Agency
Cindy Moseley
has served in account management and operations functions in health care for
over 13 years. She has served roles in physician practice management, medical
financial services and direct customer services to health care consumers in a
variety of medical practice settings. In 1998, Ms. Moseley served an
instrumental role in the implementation of the first counseling and fiscal
agency in the State of Arkansas involved in the IndependentChoices
consumer-direction program for personal care. As Senior Financial Supervisor,
she continues to oversee the provision of financial services within the
counseling/fiscal agency of Aspen Management Group.
David
Murday
Assistant Director for Health Policy, Center for
Health Services and Policy Research, University of South Carolina School of
Public Health, Columbia, SC 28208
Tel: 803-777-0692, Fax: 803-777-8065,
E-mail: murday@sc.edu
David Murday is Assistant Director for Health Policy,
University of South Carolina (USC) Center for Health Services and Policy
Research, and Adjunct Assistant Professor at the USC School of Public Health.
His work at the Center includes funded projects working with consumer-directed
services for the elderly and providing consultation to the USC State Traumatic
Brain Injury Advisory Committee. Before joining the Center in 1995, he spent 10
years as Director of Research for the South Carolina General Assembly's Joint
Legislative Health Care Planning and Oversight Committee. The Committee was
responsible for monitoring and developing legislative initiatives involving
health policy and health financing.
Christopher M.
Murtaugh
Associate Director, Center for Home Care Policy and
Research, Visiting Nurse Service of New York, 5 Penn Plaza, 11th Floor, New
York, NY, 10001-1810
Tel: 212-290-5997, Fax: 212-290-3756, E-mail:
cmurtaug@vnsny.org
Affiliation: Researcher
Christopher Murtaugh joined
the Research Center at the Visiting Nurse Service of New York in October 1996.
At the Center, he is responsible for directing policy relevant studies
concerning access to and the cost, quality and outcomes of home and
community-based care. Currently, Mr. Murtaugh is conducting research on state
financing and delivery systems for home and community-based services and how
these impact elders' use of formal and informal home care. Prior to joining the
Center, Mr. Murtaugh worked for the Agency for Health Care Policy and Research
(now AHRQ) where he was the principal or co-principal investigator for numerous
studies of elderly persons with disabilities.
Bern Myers,
JD
Executive Director, Barrier Free Futures, Inc., P.O. Box 4495,
Santa Fe, NM 87502
Tel: 505-670-1251, Fax: 505-473-5887, E-mail:
barrierfree@qwest.net
Affiliation: Consumer Advocate
Bern Myers is the
Executive Director of Barrier Free Futures, Inc., which assisted the New Mexico
Medicaid division to seek and receive legislative approval and funding for
inclusion of the optional coverage for both consumer-directed personal care and
for the category of working disabled individuals in the Medicaid program.
Thomas
Nerney
Director, Center for Self-Determination, 35425
Michigan Avenue West, Wayne, MN 48184
Tel: 734-722-6262, Fax: 734-467-7639,
E-mail: tomnerney@earthlink.net
Affiliation: Director (2000 Article)
Thomas Nerney directs the Center for
Self-Determination which includes self advocates, family members, and
professionals from around the country who have acquired extensive experience in
self-determination from design to implementation. He served as Co-Director of
the Robert Wood Johnson Foundation's National Program Office on
Self-Determination, and directed RWJ's first pilot on Self-Determination in New
Hampshire. Mr. Nerney articulated the theory and implications of
self-determination in a series of monographs and papers beginning a decade ago.
The Center's work today concentrates on second generation issues in
self-determination including pervasive poverty and lack of freedom for
individuals with disabilities.
Darlene (Dee) O'Connor,
PhD
National Project Director, HCBS Resource Network, Boston
College Graduate School of Social Work, Room 401, McGuinn Hall, Chestnut Hill,
MA 02467
Tel: 508-867-8884, Fax: 508-867-8885, E-mail:
darlene.oconnor@bc.edu
Affiliation: Policy Analyst
Dee O'Connor is
Associate Research Professor and National Project Director for the Home and
Community-Based Services Resource Network, a collaborative project of ASPE and
HCFA (now CMS), administered by the MEDSTAT Group and Boston College. She was
previously Director of Health and Long-Term Care Policy for the Connecticut
Department of Social Services where she led the state's Olmstead planning
efforts.
Nancy Olson
Project
Coordinator, Respite Care Association of Wisconsin, 4614 Fuller Street,
Schofield, WI 54476
Tel: 877-266-9207, Fax: 715-355-1522, E-mail:
nolsonrn@aol.com
Affiliation: Consumer, Consumer Advocate
Nancy Olson is
the Project Coordinator for the Respite Care Association of Wisconsin, and also
a Registered Nurse and mother of two children with special needs. It was her
family's need for community-based services that got her involved in the area of
disability services and the unmet needs of other families that keep her
involved. Ms. Olson's recent efforts involved working through the maze of
interests that coalesced in a statewide respite initiative. Her work involved
collaborations with grassroot folks all the way up to the interface with state
legislators. After more than two years of concentrated effort, advocacy,
education and coalition building, Wisconsin passed its first lifespan respite
legislation. Ms. Olson is a member of numerous committees that are addressing
ways to streamline and strengthen community-based services for individuals with
disabilities and their families in Wisconsin. These committees include: the
Children's Long Term Care Redesign Committee, the Legislative Council's Special
Committee on Developmental Disabilities, the Survival Coalition, and the
Lifespan Respite Care Taskforce. In January 2001, she was among those chosen to
participate in the National Project Leadership class of 2001.
Ronald L.G.
Osterhout
Executive Director, Personal Assistance Service
Council, 4730 Woodman, Suite 405, Sherman Oaks, CA 91423
Tel: 818-206-7006,
Fax: 818-206-8000, E-mail: rosterhout@pascla.org
Affiliation: Director,
Public Authority
Ronald Osterhout was educated with a BA and MBA in
finance/economics coupled with graduate studies in law. He has spent a career
in the public and private sectors in the United States and internationally. Mr.
Osterhout was Coordinator of Government Affairs for Texaco, served as an
auditor for the U.S. Army in Thailand, directed a career management firm as
Senior Vice President; held a senior accounting position in the insurance
industry, served at the Board level of a major arts organization raising
substantial funds and currently holds the position of Executive Director of the
Public Authority in Los Angeles County. In that position, he directly oversees
the enhancement of the IHSS program. Mr. Osterhout has traveled the world,
worked with foreign governments, as well as organizations aiding the
disabled.
Jim
Parker
Advocacy Projects Coordinator, New Mexico Governor's
Committee on Concerns of the Handicapped, Room 117, Lamy Building, 491 Old
Santa Fe Trail, Santa Fe, NM 87501
Tel: 505-827-6465, Fax: 505-827-6328,
E-mail: 103203.400@compuserve.com
Jim Parker is an advocate for long-term
service expansion and improvement in New Mexico and nationally (NCIL PAS
subcommittee). He worked to institute State Medicaid Option for Personal Care,
which has strong consumer control and direction component; and worked to bring
Medicaid "buy-in" for working disabled individual to New Mexico. Mr. Parker is
currently working on the 1115 Waiver Committee to combine waiver (excluding
developmental disabilities) and nursing home funds under one umbrella; also
with a strong consumer control and direction component. Mr. Parker is a
long-term ADAPT advocate for MiCASSA and accessible transportation, and a DRACH
housing advocate. He worked for two independent living centers (Ability Center,
Las Cruces, New Mexico; and Atlantis Community, Denver); City of El Paso,
Texas; with 10 years as newspaper reporter/editor. He was a VISTA Volunteer for
Coalition of Texans with Disabilities.
Trudy Persky
604
South Washington Square, Apt. #1602, Philadelphia, PA 29106
Tel:
215-592-8281, Fax: 215-592-6408, E-mail: TrudyPers@aol.com
Affiliation:
Consumer Advocate
Trudy Persky has experience as a clinical social worker
that spans four decades. In addition to founding a Mental Health-Aging Advocacy
organization in Philadelphia, she has been a member of the Pennsylvania Mental
Health Planning Council advocating for improved elderly mental health care.
Currently, Ms. Persky is the co-facilitator of the Mental Health Consumer
Council for a SAMHSA project based at the University of Pennsylvania and ten
other sites in the nation. She is also Consumer Council Facilitator for the
Philadelphia COMHAR Mental Health Council Hispanic Outreach Project. In 1995,
Ms. Persky was a member of the White House Conference on Aging Pennsylvania
Delegation.
Larry Polivka,
PhD
Director, Florida Policy Exchange Center on Aging, USF 30437,
4202 East Fowler Avenue, Tampa, FL 33620-3043
Tel: 813-974-3468, Fax:
813-974-5788, E-mail: lpolivka@admin.usf.edu
Affiliation:
Researcher
Larry Polivka has served as Director of the Florida Policy
Exchange Center on Aging at the University of South Florida since September
1992. Prior to this, Dr. Polivka worked at the State of Florida's Health and
Rehabilitative Services as Assistant Secretary for Aging and Adult Services
from August 1989 through September 1992, and as Policy Coordinator for Health
and Human Services, Office of Planning and Budget, Executive Office of the
Governor from August 1986 through August 1989. The Policy Exchange Center
conducts policy analysis and applied research projects designed to generate
information for use by state and national policymakers. The major priorities of
the Center are health care reform, long-term care, housing and legal/ethical
issues. The Center publishes several reports annually, including the bi-annual
publication Aging Research and Policy Report. Dr. Polivka is Co-Editor
of the Journal of Aging and Identity and the author of several articles
on humanities and aging.
Bobbie
Quilleon
Florida Developmental Disabilities Consumer-Directed
Care Project, 9437 Rockrose Drive, Tampa, FL 33647-2813
Tel: 813-973-0374,
E-mail: bobbiequilleon@aol.com
Affiliation: Consumer Advocate
Bobbie
Quilleon is the parent of five children, two of who are mentally retarded
(Kenneth and Kendra Holden). She has been an advocate for people with mental
retardation her entire adult life. A graduate of Texas Woman's University with
a degree in English and journalism, Ms. Quilleon has used her writing and
speaking skills to promote programs for the mentally retarded. Experiencing
constant frustration with lack of med-waiver services, she is excited to
participate in the experimental group. Freedom of choice enables her to enhance
her children's social skills, build on their self-esteem, and seek programs
that rekindle their learning abilities.
Tom
Reimers
Project Director, Consumer-Directed Care Project,
Florida Department of Elder Affairs, 4040 Esplanade Way, Room 280H,
Tallahassee, FL 32399-7000
Tel: 850-414-2115, Fax: 850-414-2008, E-mail:
reimerst@elderaffairs.org
Affiliation: RWJ Grantee
Tom Reimers is the
Project Director for Florida's Consumer-Directed Care Project, one of
the Robert Wood Johnson Foundation's Cash and Counseling research projects. He
is employed by the Florida Department of Elder Affairs, Division of Statewide
Community-Based Services. Prior to joining the Consumer-Directed Care
Project, he was the Coordinator of the agency's Education, Wellness and
Volunteers Initiatives. Mr. Reimers has more than 19 years of management
experience in state and city government and the private sector. He was
previously employed in the recreation management field for 14 years. Born in
New York and raised in North Carolina, Mr. Reimers earned a B.A. in Business
Management from North Carolina State University in 1981.
Susan Reinhard,
PhD
Co-Director, Center for State Health Policy, Rutgers
University, 317 George Street, Suite 400, New Brunswick, NJ 08901-2008
Tel:
732-932-3105 x230, Fax: 732-932-0069, E-mail:
Sreinhard@cshp.rutgers.edu
Affiliation: Researcher, Policy
Dr. Susan
Reinhard is the Co-Director of Health Policy at Rutgers University's Center for
State Health Policy. She is also the Executive Director of the Center for
Medicare Education in Washington, D.C. Dr. Reinhard investigates and
disseminates innovative practices in long-term care, consumer education,
workforce, and other critical areas will affect the future of long-term care
services. Prior to these appointments, Dr. Reinhard was the Deputy Commissioner
of the New Jersey Department of Health and Senior Services, where she
supervised quality oversight of long-term care, developed the Community Choice
Counseling Program to help people transition from a nursing home to other
long-term care options, and secured significant funding to initiate more home
care for older adults and people with disabilities. Her background includes
clinical care, education, research, policy development, and governmental
relations. She holds a Master's degree in Nursing from the University of
Cincinnati, and a Ph.D. in Sociology from Rutgers University.
Judith Riggs
Deputy
to the Vice President for Policy, Alzheimer's Association, 1319 F Street, N.W.,
Suite 710, Washington, DC 20004
Tel: 202-393-7737, Fax: 202-393-2109,
E-mail: judith.riggs@alz.org
Affiliation: Consumer Advocate
Judith Riggs
co-manages the Public Policy Office of the Alzheimer's Association in
Washington, D.C., and directs initiatives designed to improve access to and
quality of health and long-term care for people with dementia. Since 1988, the
Association has been a lead organization in broad-based coalitions to improve
financing and delivery of long-term care: first the Long Term Care Campaign and
now Citizens for Long Term Care. She is author of numerous articles and
publications on Alzheimer's and long-term care, including "The health and
long-term care policy challenges of Alzheimer's disease," forthcoming in
Aging and Mental Health (2001) 5 (Supplement 1).
David Robar
Public
Information Coordinator, Granite State Independent Living, 21 Chenell Drive,
P.O. Box 7268, Concord, NH 03302-7268
Tel: 603-228-9680, Fax: 603-225-3304,
E-mail: david.robar@gsil.org
Affiliation: Consumer, Consumer Advocate,
Direct Care Provider
David Robar is the Public Information Coordinator at
Granite State Independent Living (GSIL), New Hampshire's only consumer run,
consumer controlled, community-based, cross disability independent living
center. GSIL has administered a Personal Care Attendant Program for people with
physical disabilities in New Hampshire since 1980. He became a consumer of
disabilities services in 1990 when he sustained a spinal cord injury. Since
then he has become a strong advocate on disability issues. Most recently he has
been involved with the implementation of the Ticket to Work, Work Incentives
Improvement Act.
Lisa
Rotegard
Supervisor of Community Supports for Seniors,
Minnesota Department of Human Services, 444 Lafayette Road, St. Paul, MN
55155-3844
Tel: 651-297-3829, Fax: 651-296-9797, E-mail:
lisa.rotegard@state.mn.us
Affiliation: Funder, Developer, Regulator
Lisa
Rotegard currently supervises the Community Supports for Seniors unit within
the Aging Initiative. This unit oversees policy development and implementation
related to delivery and purchase of the home and community-based services
programs including the Elderly Waiver, Alternative Care and Pre-Admission
Screening and Consultation. Previous to her employment with the State of
Minnesota, Ms. Rotegard served as a research scientist and consultant for the
Center for Community Services at the University of Minnesota.
Helen Coburn
Roth
Executive Director, OPTIONS for Independence, 1095 North
Main, Logan, UT 84341
Tel: 435-753-5353, Fax: 435-753-5390, E-mail:
hroth@optionsind.org
Affiliation: Consumer Advocate
Helen Roth is a new
member of the Home and Community-Based Services Resource Network Board where
she is representing older people who have aged with disabilities. She also
serves on the Board of the American Association of People with Disabilities,
was a long time officer and member of the National Council on Independent
Living, and is the immediate past President of the Association for Independent
Living of Utah. Over a lifetime of service she has participated in many other
activist groups including the League of Women Voters. Ms. Roth has a Master's
degree from the Pennsylvania State University and has done extensive graduate
work at Harvard University. She is a strong advocate for disability rights,
consumer control, and cross disability issues.
Maggie
Scheie-Lurie
Consumer Outreach Coordinator, National Alliance
for the Mentally Ill, 2107 Wilson Boulevard, Suite 300, Arlington, VA
22201
Tel: 703-516-7990, Fax: 703-524-7600, E-mail:
maggie@nami.org
Affiliation: Consumer Advocate
Maggie Scheie-Lurie has
worked for the National Alliance for the Mentally Ill (NAMI) for over 16 years,
focusing on consumer empowerment programs. Currently, she provides technical
assistance to NAMI's Consumer Council, its national network of consumer
leaders. Coordinating its activities through the Executive Director's office,
the Consumer Council promotes consumer involvement in NAMI policy initiatives,
supports implementation of consumer education and support programs, and fosters
consumer integration within local and state NAMI organizations. Ms.
Scheie-Lurie has helped develop, manage, and provide training in NAMI consumer
support and recovery education programs. She also managed NAMI's 800 Helpline
for five years.
Claudia
Schlosberg
Senior Civil Rights Analyst, HHS Office of Civil
Rights, 200 Independence Avenue, S.W., Room 506F, Washington, DC 20201
Tel:
202-619-1750, Fax: 202-619-3818, E-mail:
claudia.schlosberg@hhs.gov
Affiliation: Federal Government
Claudia
Schlosberg is a senior civil rights analyst and policy advisor with the Office
of Civil Rights (OCR). She is responsible for developing federal policy to
promote, monitor and enforce compliance with federal civil rights laws that
prohibit discrimination based on race, color, national origin and disability in
health and welfare programs funded by HHS. She advises the director, provides
technical assistance to regional staff and assists in the investigation and
resolution of OCR complaints. Ms. Schlosberg has nearly 20 years of experience
as an attorney and policy analyst in the fields of health and civil rights.
Prior to working for OCR, Ms. Schlosberg staffed the Washington, D.C. Office of
the National Health Law Program where she was responsible for promoting access
to health care for low-income people through federal legislative and
administrative advocacy, policy analysis, litigation, training and technical
assistance. Ms. Schlosberg also has worked for the Bazelon Center for Mental
Health Law and the American Association of Retired Persons, where her primary
responsibilities involved monitoring and promoting the rights of adults and
seniors with disabilities to quality health care in the most integrated setting
and on investigating individual and systemic complaints regarding quality care
in mental hospitals, nursing homes and non-institutional, community-based
settings. She has written extensively on health care rights, provided expert
consultation to public and private entities, served as an expert witness and
court monitor, conducted trainings nationwide on health care and quality and
has taught health law and advocacy at the Columbus School of Law of the
Catholic University of America. She received her law degree from Antioch School
of Law in 1981, and graduated from Union College with a B.A. in History in
1976.
Jennifer
Schore
Deputy Project Director, Cash and Counseling
Evaluation, Mathematica Policy Research, Inc., P.O. Box 2393, Princeton, NJ
08543
Tel: 609-275-2380, Fax: 609-799-0005, E-mail:
jschore@mathematica-mpr.com
Affiliation: Researcher (Presentation) (2000
Report)
Jennifer Schore (M.S., M.S.W.) began her career as a health
policy analyst on the Evaluation of the National Long-Term Care Channeling
Demonstration, and has been with Mathematica since 1974. Her special
interests are delivery systems for home and community-based services for
elderly people and people with disabilities, and care coordination for people
with chronic illnesses. Ms. Schore is currently Deputy Project Director for the
Evaluation of the Cash and Counseling Demonstration, and Co-Principal
Investigator for HCFA's Evaluation of Programs of Coordinated Care and
Disease Management.
Karl Schwarzkopf,
PhD
Deputy Director for Community Services, Division of Mental
Health, Mental Retardation and Substance Abuse, Georgia Department of Human
Resources, 2 Peachtree Street, N.W., Suite 22-108, Atlanta, GA
30303-3142
Tel: 404-463-8929, Fax: 404-657-1137, E-mail:
khschwarzkopf@dhr.state.ga.us
Affiliation: State Agency Staff
Karl
Schwarzkopf has a Ph.D. in psychology and is experienced in the areas of
disability, aging, and long-term care as a direct service provider, educator,
and planner. He has developed and managed programs in almost all areas of
health care and human services, including both public and private sector
organizations. The main focus of Dr. Schwarzkopf's activities was on increasing
community options for individuals in need of support.
Mark
Sciegaj
Assistant Professor, Heller School, Brandeis
University, Mail Stop 035, 415 South Street, Waltham, MA 02454-9110
Tel:
781-736-3935, Fax: 781-736-3864, E-mail: sciegaj@brandeis.edu
Affiliation:
Researcher (Presentation)
Mark Sciegaj
is Chairperson of the Heller Graduate School Concentration in Aging and
Disability. He is also on the senior staff of both the Schneider Institute for
Health and the Starr Center for Mental Retardation. He was the Principal
Investigator of a research project, funded by the Robert Wood Johnson
Foundation that examined racial/ethnic differences in elder preferences for
consumer-directed long-term care and has also examined these differences in
elder judgments.
Linda
Shandera
Long Term Care Services Coordination Program
Manager, Nebraska Health and Human Services System, P.O. Box 95044, Lincoln, NE
68509-5044
Tel: 402-471-9462, Fax: 402-471-6352, E-mail:
linda.shandera@hhss.state.ne.us
Linda Shandera is Manager of Nebraska's
Services Coordination for Long Term Care System--Elderly, Adults and Children
with Disabilities; Children with Special Health Care Needs; Early Intervention,
HCBS Waiver. She was past Program Coordinator of HCBS Quality Improvement
Process. Ms. Shandera is the Manager of HCBS, CSHCN and EI staff development
(Co-Lead with Nebraska Department of Education). She has experience as a Child
Protective Services and Adoption Supervisor.
Vicki
Shepard
Vice President, Health Care Global Industry Group,
EDS, 333 John Carlyle Street, Alexandria, VA 22314
Tel: 703-837-4840, Fax:
703-836-9762, E-mail: vicki.shepard@eds.com
Affiliation: Consumer Advocate,
Care Provider
Vicki Shepard has extensive leadership in public and private
sectors: presidential appointee at Health and Human Services. She ran state
agencies for two California governors. Ms. Shepard's expertise spans health
care delivery. social services, aging and long-term care. She maintains close
relationship with MIT Age Lab, and is active in professional, volunteer and
advocacy organizations. Ms. Shepard also spent ten years as a primary
caregiver.
Lori Simon-Rusinowitz, MPH,
PhD
Deputy Project Director, Cash and Counseling Demonstration
and Evaluation, University of Maryland Center on Aging, 2360 HHP Building,
College Park, MD 20742
Tel: 301-405-2548, E-mail: ls119@umail.umd.edu (Presentation) (2000
Article) (2000 Article)
Lori Simon-Rusinowitz
is a faculty member in the University of Maryland Department of Public and
Community Health and Deputy Director of the Cash and Counseling
Demonstration and Evaluation Project in the Center on Aging. Her research
focus has been in the field of aging and disability policy issues for the past
14 years. As part of the Cash and Counseling Project, she has overseen a study
of consumers' preferences for consumer-directed personal care. She has also
conducted research concerning older worker issues. She has published
extensively in both areas. Prior to joining the University of Maryland in1992,
Dr. Simon-Rusinowitz held positions at the George Washington University
National Health Policy Forum and The Gerontological Society of America. Dr.
Simon-Rusinowitz earned a PhD in Health Policy at the University of Illinois at
Chicago and an MPH from the University of Michigan.
Rhonda
Sloan
Representative, Florida Developmental Disabilities
Consumer-Directed Care Project, 503 West Idlewild Avenue, Tampa, FL
33604
Tel: 803-237-3034, Fax: 813-237-8514, E-mail:
sloans_2000@yahoo.com
Affiliation: Parent/Consumer Advocate
Rhonda Sloan,
mother of Tanya Dickens, is a participant in the Consumer-Directed Care Project
in Florida. This consumer driven project enables her to have complete control
of her daughter's budget and services rendered. An advocate for all people with
disabilities, Ms. Sloan has served on the Family Care Council and is on the
Board of Directors for the Hillsborough Association for Retarded Citizens.
Additionally, she is an Independent Information Coordinator contracted by the
Department of Children and Families/Suncoast Region to present informational
seminars on the Medicaid waiver in Florida to consumers and consumer
families.
Marcia E.
Smith
Chief Executive Officer, Evercare, 9900 Bren Road East,
Minnetonka, MN 55343
Tel: 952-936-6847, Fax: 952-936-6902, E-mail:
marcia_e_smith@uhc.com
Marcia Smith, CEO of Evercare, leads the strategic
direction for this unique company that serves the needs of frail and vulnerable
individuals in 16 states through contracts with HCFA (now CMS) and state
Medicaid programs. Originally focused on providing enhanced medical care to
frail elderly living in institutions, Evercare's recent acquisition of Lifemark
Corporation created a comprehensive platform to serve the long-term care needs
of individuals in community-based settings as well. Ms. Smith's broad-based
managed care experience provides a firm foundation for her executive
responsibilities at Evercare. Prior to Evercare, she led innovative strategies
for evaluating the performance of health care delivery to improve service, cost
and quality for United HealthCare's 20-plus owned and managed health plans. She
also was instrumental in the introduction and application of the nation's first
"Report Card," United HealthCare's tool for measuring health care delivery
performance. She holds a B.S.N. from the University of Colorado and M.S.N. with
emphasis on long-term care from George Mason University in Virginia.
Robert
Sneirson
Systems Advocate, Boston Center for Independent
Living, 95 Berkeley Street, Suite 206, Boston, MA 02116-6264
Tel:
617-338-6665, Fax: 617-338-6661, E-mail: RSneirson@aol.com
Affiliation:
Consumer Advocate
Robert Sneirson received a B.A. in Political Science from
Tufts University in 1989 and an M.A. in Political Science from Boston
University in 1993. From 1991-1996, he served on the Massachusetts
Developmental Disabilities Council in various positions including a two-year
stint as Secretary of the Council. Currently, Mr. Sneirson is Systems Advocate
for the Boston Center for Independent Living. He is also the Chairperson of the
Disability Policy Consortium, a statewide cross-disability policy development
organization, and is a member of the 2000 Project Leadership Class.
C. Edgar Spencer, MEd,
MSW
Director, Division of Developmental Disabilities/Special
Populations, South Carolina Department of Mental Health, P.O. Box 485,
Columbia, SC 29202
Tel: 803-898-8579, Fax: 803-898-8347, E-mail:
ces64@co.dmh.state.sc.us
Affiliation: Program Manager
Edgar Spencer holds
a Master's degree in Education Administration from the University of South
Carolina, and a Master's degree in Social Work from the Virginia Commonwealth
University. As the Deputy Commissioner of Addictions, he interfaces facility
and local center services with other state and federal systems, expands new
services, evaluates ongoing ones, and relates to Probate Judges, 301
Commissions, SCCADA and area hospitals. From 1990 to now, Mr. Spencer has been
directly responsible for South Carolina Department of Mental Health division
for policy development, human and fiscal elements, programs, critical linkage
and evaluation to local service system for the following areas: Hard of
Hearing/Deaf; Developmental Disabilities; Community Pharmacy Consultation;
Senior Services; Telepsychiatry System; Aiken and Berkeley Mental Health
Centers; and Agency Disaster Response Network.
Marie R. Squillace,
PhD
Senior Researcher, National Council on the Aging, Research
and Demonstrations Division, 409 Third Street, S.W., Washington, DC
20024
Tel: 202-479-6639, Fax: 202-479-0735, E-mail:
marie.squillace@ncoa.org
Affiliation: Researcher
Marie Squillace is a
Senior Researcher for the National Council on the Aging (NCOA), and Adjunct
Researcher for the University of Maryland, Center on Aging. Dr. Squillace is
the Principal Investigator for NCOA on a joint NASUA/NCOA project entitled,
Mainstreaming Consumer Direction in the Aging Network. This RWJF project begins
the second phase of NCOA's and NASUA's efforts to transfer models of
consumer-direction from the disability arena into the aging service system and
extends prior activities under RWJF's Independent Choices Program. At the
University of Maryland, she is currently involved in exploratory research to
understand and gauge interest in approaches to consumer-direction in managed
care (specifically, plans that provide long-term care benefits under capitation
agreements with their state Medicaid agencies). Prior to coming to NCOA in
2000, Dr. Squillace held an academic appointment at the University of Maryland
as a Faculty Research Associate. In this position, she was involved in a study
of consumers' preferences for consumer-directed personal care to inform the
Cash and Counseling Demonstration and Evaluation funded by the Robert Wood
Johnson Foundation and the Office of the Assistant Secretary for Planning and
Evaluation at the U.S. Department of Health and Human Services.
Tina Standing
Soldier
P.O. Box 345, Wanblee, SD 57577
Affiliation:
Consumer Advocate
Tina Standing Soldier is a graduate of Partners in
Policymaking, and is currently participating in Project Leadership. She is a
mother and a grandmother. Her son, Harlan, has multiple disabilities and lives
out-of-the-home because of a lack of services in their home community. Ms.
Standing Soldier was the recipient of a National Hero Award.
Glenn
Stanton
Deputy Director, Disabled and Elderly Health Programs
Group, CMS Center for Medicaid and State Operations, 7500 Security Boulevard,
S2-14-27, Baltimore, MD 21244
Tel: 410-786-6768, Fax: 410-786-9004, E-mail:
Gstanton@cms.hhs.gov
Glenn Stanton has 20 years of service within the public
health care sector at the county, state and federal levels, much of that time
devoted to assisting persons with disabilities. His experiences have included
managing the direct provision of supports and services for persons with
disabilities as well as policy development and oversight. In his current role,
within HCFA (now CMS), he provides leadership and organizational management for
issues related to Medicaid state plan and waiver services directed to older
adults and persons with disabilities. Previously, he was the Director for the
Bureau of Quality Management and Service Innovation, within the Michigan
Department of Community Health. During that time, he was responsible for the
development and dissemination of innovative service and support models for
persons with disabilities, including consumer-directed services and the
development of person-centered planning practice guidelines for persons with
mental illness and developmental disabilities. He was also responsible for the
quality management system for Michigan's Medicaid specialty services and
supports waiver. Prior to joining the State of Michigan, Mr. Stanton served as
the Executive Director of a three-county Community Mental Health Service
Program in Michigan. This agency managed and provided direct services and
supports to persons with mental illness, developmental disabilities or
substance abuse conditions.
Susan Stoddard, PhD,
FAICP
President, InfoUse, 2560 Ninth Street, #216, Berkeley, CA
94710
Tel: 510-549-6520, Fax: 510-549-6512, E-mail:
sstoddard@infouse.com
Affiliation: Researcher/Evaluator
Susan Stoddard
evaluated the Rehabilitation Services Administration's "Choice" program,
examining the results of expanded consumer choice in vocational rehabilitation,
as well as other disability and independent living programs. She has published
a series of Chartbooks on Disability, including Work and Disability, and
developed the Program Review process of the National Institute on Disability
and Rehabilitation Research. Dr. Stoddard collaborated with the University of
California at Los Angeles in ASPE's study of the client-directed model of
Personal Assistance Services in California's IHSS program. InfoUse is currently
developing interactive training for consumer-directed personal assistance
services in the NIH SBIR program.
Michael K. Stracener, MSW,
LCSW
Executive Director for Independent Choices, Aspen Management
Group, LLC, 8500 West Markham, Suite 200, Little Rock, AR 72205
Tel:
501-217-8123, Fax: 501-217-8125, E-mail: mikestracener@aol.com
Affiliation:
Counseling Fiscal Agency
Michael Stracener has been a Masters level
counselor, social worker, medical case manager and health care manager for 19
years, providing services in the areas of mental health, geriatrics, physical
disability, brain trauma and physical rehabilitation. His management roles have
included Neuro-Rehabilitation Program Manager, Regional Operations Director for
a multi-state rehabilitation company and Founder/Operating Partner of Aspen
Management Group, LLC. As Executive Director for the Aspen Management Group
Consumer-Directed Services, he established in 1998 the Counseling and Fiscal
Agency providing services to the clients of the Arkansas Department of Aging
and Adults Services IndependentChoices program, and continues to oversee the
operations of the Counseling/Fiscal Agency.
Michael J.
Sturman
Program Director, Concepts of Independence, Inc., 120
Wall Street, Suite 1010, New York, NY 10005
Tel: 212-293-9999, Fax:
212-293-3040, E-mail: conceptscdpa@earthlink.net
Michael Sturman has been in
the health care field for 30 years, the last 15 years directing programs in the
home care industry. Mr. Sturman received his B.A. in Psychology from Brooklyn
College, New York, and his M.A. in Counseling and Educational Psychology from
the University of Mississippi. He also served as a Commissioned Officer in the
U.S. Army. Mr. Sturman is well known in the field of home care as a dedicated
and enthusiastic professional committed to advocating for individuals with
disabilities, and has recently been appointed to the position of Director of
Concepts of Independence, Inc.
Cathie
Sullivan
Home Care Policy Analyst, Service Employees
International Union, 1313 L Street, N.W., Washington, DC 20005
Tel:
202-898-3275, Fax: 202-898-3348, E-mail: sullivac@seiu.org
Cathie Sullivan
is a Home Care Policy Analyst with the Health Care Division at Service
Employees International Union (SEIU/AFL-CIO) in Washington, D.C. She is
responsible for providing research support for the union and its 175,000 member
home care workers. Previously, Ms. Sullivan was Research Director at the
National Association for Home Care in Washington, D.C. where she focused on the
Medicare home health benefit. Prior to that, she worked as a research analyst
at the Brookings Institution with a focus on long-term care financing and
delivery. Ms. Sullivan received a Master's degree in Public Administration from
New York University in 1992.
Nancy R.
Thaler
Deputy Secretary for Mental Retardation, Pennsylvania
Department of Public Welfare, P.O. Box 2675, Harrisburg, PA 17105-2675
Tel:
717-787-3700, Fax: 717-787-6583, E-mail: nthaler@state.pa.us
Affiliation:
State Administrator
Nancy Thaler has been Deputy Secretary for Mental
Retardation in the Pennsylvania Department of Public Welfare since 1992. She
served as the Director, Bureau of Community Programs for six years prior to
being appointed Deputy Secretary. Before her career in state government, she
worked for 16 years in a large non-profit agency in southeastern Pennsylvania,
Ken-Crest Services. While with that agency, Ms. Thaler served eight years as a
direct care worker, including four years as a house parent and another eight
years in administrative positions. As Deputy Secretary for Mental Retardation,
she is responsible for the state's services to people with mental retardation,
including 1,800 people in state institutions, 75,000 people in the community,
and a budget of $1,8 billion.
Jane Tilly
Senior
Research Associate, The Urban Institute, 2100 M Street, N.W., Washington, DC
20037
Tel: 202-261-5651, Fax: 202-223-1149, E-mail:
jtilly@ui.urban.org
Affiliation: Researcher (2000
Article)
Jane Tilly has 17 years experience in public policy analysis
and research related to Medicaid and disability policy. At present, she is
conducting research in four areas: (1) Medicaid's role in state home and
community services, (2) end-of-life care, (3) pharmaceutical assistance
programs, and (4) long-term care workers. She also recently completed research
on consumer-directed home and community services at the national and
international levels. Before joining the Urban Institute, Dr. Tilly was
Associate Director for Long-Term Care Policy Research at AARP. Her work there
involved directing a team that conducted research on public benefit programs
serving older persons. Her research responsibilities at AARP included
consumer-directed services and state long-term care systems.
Maggie
Tinsman
Iowa State Senator, 3541 East Kimberly Road,
Davenport, IA 52807
Tel: 563-359-3624, Fax: 563-359-6671, E-mail:
mtinsma@legis.state.ia.us
Maggie Tinsman, first elected to the Senate in
1988, is the current Chair of the Health and Human Rights Appropriations
Subcommittee. She is also the Vice Chair of the Senate Human Resources
Committee. Senator Tinsman serves on several health-related boards including
the American Lung Association Board of Directors and the Tobacco-Use Control
Commission. She is a former commissioner of the Department of Elder Affairs.
She has co-sponsored several pieces of legislation to help senior citizens,
including helping to establish the Senior Living Trust Fund. Senator Tinsman
has worked hard over the last 12 years to eliminate the State tax on Social
Security Benefits. She also initiated the allocation of additional funds for
heating bill assistance for low-income senior citizens. She has worked to
establish housing alternatives for seniors including group-family homes and
assisted living homes. Senator Tinsman earned her Bachelor's degree from the
University of Colorado and a Master's in Social Work from the University of
Iowa.
Karen
Topper
Advisor, Green Mountain Self-Advocates, 73 Main
Street, Suite 401, Montpelier, VT 05602
Tel: 802-229-2600, Fax:
802-223-2132, E-mail: vpsn@sover.net
Affiliation: Advocate
Karen Topper
works as an advisor for Vermont's statewide self-advocacy network. She also
supports a SABE board member. For years, Ms. Topper worked providing community
services and supporting the inclusion of all students in regular education. She
currently works as an advisory to self-advocates.
Jean
Tuller
Special Programs Director, Disabled and Elderly Health
Programs Group, CMS Center for Medicaid and State Operations, 7500 Security
Boulevard, Mail Stop S2-14-26, Baltimore, MD 21244-1850
Tel: 410-786-6815,
Fax: 410-786-9004, E-mail: jtuller@cms.hhs.gov
Affiliation: Federal
Government
Jean Tuller is the Special Programs Director for the National
Program Office on Self-Determination at the University of New Hampshire. She is
based in the Center for Medicaid and State Operations at HCFA (now CMS). Her
policy analysis responsibilities include self-determination and the impact of
the American with Disabilities Act, especially as it has been interpreted in
the Olmstead v. L.C. Supreme Court decision. Ms. Tuller previously
served as Project Director for the Maryland Self-Determination Initiative, a
broad-based systems change effort. She holds a Master's degree in Public
Administration from the University of Massachusetts, and graduated from the
Senior Executive Management Program of the Kennedy School of Government at
Harvard University.
Theresa
Turgeon
Director, Office of Geriatric Services, Maine
Department of Mental Health, Mental Retardation and Substance Abuse Services,
State House, Station #40, Augusta, ME 04333
Tel: 207-287-4245, Fax:
207-287-4268, E-mail: Theresa.Turgeon@state.me.us
Affiliation: State
Agency
Theresa Turgeon served as an advocate for several disenfranchised
individuals and groups for many years until four years ago, when she became the
Director of the Office of Geriatric Services. When she first started, this
office worked exclusively with issues related to older persons and mental
health. In the past two years, it has expanded its focus to include older
persons with disabilities and substance abuse issues.
John J. Tuskan, Jr., RN,
MSN
Captain, U.S. Public Health Service, SAMHSA Center for Mental
Health Services, 5600 Fishers Lane, Room 17C-05, Rockville, MD 20857
Tel:
301-443-1761, Fax: 301-433-7912, E-mail: jtuskan@samhsa.gov
Affiliation:
Funder, Federal Project Officer
John Tuskan is a Senior Program Management
Officer in the Center for Mental Health Services (CMHS). He provides mental
health technical assistance and consultation to the Office of Refugee
Resettlement, and coordinates CMHS planning and funding for faith-based and
community organizations.
Sue Vaeth
Senior
Care Manager, Maryland Department of Aging, 301 West Preston Street, Room 1007,
Baltimore, MD 21201
Tel: 410-767-1108, Fax: 410-333-7943, E-mail:
sjv@mail.ooa.state.md.us
Affiliation: Funder
Sue Vaeth manages the Senior
Care Program, which provides case management and gapfilling services to frail
elderly people. Gapfilling services include personal care, chore,
transportation, medications, medical supplies, meals, emergency response
systems and adult day care, as well as grants, so families can purchase
services on their own.
Laura Van
Tosh
Consultant, Van Tosh Consulting, 1533 West Falkland
Lane, #336, Silver Spring, MD 20910
Tel: 301-585-9455, Fax: 301-585-9467,
E-mail: Lauravt@aol.com
Affiliation: Consumer, Advocate
Laura Van Tosh is
an independent consultant and provides expertise in mental health policy
development, analysis, and services research to a variety of organizations,
including: government agencies; public and private health care organizations;
university and research institutions; and national advocacy organizations. Ms.
Van Tosh is founder and coordinator of the Mental Health Policy Roundtable--an
educational forum funded by the John T. and Catherine T. MacArthur Foundation.
The Roundtable is a knowledge-transfer effort designed to exchange information
between established leaders in mental health policy with the next cadre of
policy leaders in the mental health field. She has a team-oriented work
approach and brings her experience to the following areas: behavioral health
systems planning and oversight; consumer rights and education; quality
assurance; health care reform; and, data and information. She has written
extensively on health and mental health care consumer issues such as
consumer-operated services, homelessness, quality and accountability, and
served as a contributor and peer reviewer on the U.S. Surgeon General's
Report on Mental Health. Ms. Van Tosh has been an active member of the
mental health community for 15 years and has held various director-level
positions in direct service and mental health policy settings. She is involved
in her local community and serves on the Maryland State Mental Health Planning
Council, the advisory council of the Maryland Disability Law Center, and she is
a member of NAMI and On Our Own of Montgomery County. Ms. Van Tosh is a member
of the Public Policy Committee of the National Association of State Mental
Health Planning and Advisory Councils. She serves a member of the Expert Panel
for the National Institute of Mental Health Constituent Outreach and Education
Program. Ms. Van Tosh served on the Advisory Panel to the Rosalynn Carter
16th Annual Symposium on Mental Health Policy (2000), and is a former
member of the Mental Health Statistics Improvement Program Policy Group.
Ms. Van Tosh was awarded the Consumer Advocate Award from the International
Association of Psychosocial Rehabilitation Services in 1997 and in 1991, she
served on the Federal Task Force on Homelessness and Mental Illness Advisory
Committee which issues the report, Outcasts on Mainstreet.
Brenda Wamsley,
MSW
Executive Director, Center for Aging and Healthcare in West
Virginia, Inc., 517 Market Street, Dils Center, Parkersburg, WV 26101
Tel:
304-422-2853, Fax: 304-422-2856, E-mail: bwamsley@citynet.net
Affiliation:
Researcher
Brenda Wamsley is Executive Director of a non-profit agency that
specializes in conducting applied research on health and aging policy issues.
She is Co-Principal Investigator for A Randomized Trial of Primary and
Consumer-Directed Care for People with Chronic Illness, which examines the
use of a consumer-directed monthly voucher to purchase in-home services for an
impaired Medicare population. Ms. Wamsley is the Principal Investigator for a
qualitative analysis entitled Medicare Vouchers for In-Home Care: A viable
Policy Option? funded by the Retirement Research Foundation. Both studies
are in progress. She is also a doctoral candidate at Case Western Reserve
University.
Sherry
Watson
Executive Director, San Juan Center for Independence,
504 North Main, Aztec, NM 87410
Tel: 505-334-5805, Fax: 505-334-5528,
E-mail: sjci@fisi.net
Affiliation: Consumer Advocate, Consumer-Director
Personal Care Option Provider
Sherry Watson is a native of Aztec, New
Mexico, and is the Executive Director of San Juan Center for Independence
(SJCI). She has worked in the independent living movement for more than 10
years, in outreach, resource and management positions. Ms. Watson has extensive
hands-on experience as well, in teaching independent living and self-advocacy
skills, and in peer counseling, training and group facilitation. She also
served as President of the National Head Injury Association Survivors Council
and has served on many board and advisory committees responsible for overseeing
independent living and traumatic brain injury activities. Currently, she is
President of the New Mexico Protection and Advocacy Board of Directors and Vice
President fo the New Mexico Governors Committee on Concerns of the Handicapped
Board of Directors. SJCI is the fiscal intermediary for the Medicaid
Consumer-Directed Personal Care Option. Ms. Watson graduated from Fort Lewis
College and is a survivor of a severe traumatic brain injury.
William F.
West
Program Administrator, Consumer Directed Attendant
Support Program, Colorado Department of Health Care Policy and Financing, 1575
Sherman, 5th Floor, Denver, CO 80203
Tel: 303-866-3358, Fax: 303-866-2573,
E-mail: william.west@state.co.us
Affiliation: State Program Staff,
Consumer
Bill West has worked with special populations since 1976, and he
has a disability as well. Mr. West has worked in the areas of mental health,
independent living, and state rehabilitation. He was a mediator with the Client
Assistance Program; and he worked for the Colorado Assistive Technology
Project for eight years. Mr. West has been the Administrator for the
Consumer-Directed Attendant Support Program within the Colorado
Department of Health Care Policy and Financing since 1998. He is also the
coordinator for Olmstead planning for the Medicaid agency in Colorado.
Gene Whitten-Legé,
LMSW-ACP
Administrator, In-Home Attendant Services, 1630 Elgin
Street, Houston, TX 77004
Tel: 713-528-6499, Fax: 713-523-8592, E-mail:
ihas@swbell.net
Affiliation: Direct Care Provider
Gene
Whitten-Legé is an Administrator and Co-Founder of In-Home Attendant
Services (IHAS), which is privately owned and operated by he and his wife, Pat
Whitten-Legé. They founded the company in 1996. I-HAS state contracts
and three HMOs fund personal assistance services and emergency client services
for aged and disabled persons living at home. Mr. Whitten-Legé is a
Master's level licensed professional social worker. Following graduation from
the University of Texas Graduate School of Social Work, his career began as a
child protective service case worker and various management roles with the
Texas State Department of Human Services. He served as Executive Director of
non-profit human service organizations where he achieved national
accreditation. As Executive Director of Houston's Harris County Child Welfare,
Mr. Whitten-Legé provided a decade of leadership in program and policy
development, public funding, and multi-agency initiatives. He has practiced
individual and family psychotherapy privately and with privately funded
organizations. For more than another decade, he worked with various home health
agencies to develop and implement new programs for aged and disabled persons.
Active at the statewide level in the development of programs designed to place
more control in the hands of the service recipients, Mr. Whitten-Legé
testifies and advocates for social programs at legislative hearings. He is
currently named to a committee charged with implementing recent Texas
legislation that mandates client-managed services as a consumer option
statewide across several state agencies. The committee is developing a
prototype model for one of the Medicaid programs that can be customized by
other Medicaid programs.
Pat Whitten-Legé,
LMSW-AP
Administrator, In-Home Attendant Services, 1630 Elgin
Street, Houston, TX 77004, Tel: 713-528-6499, Fax: 713-523-8592, E-mail:
patwl@swbell.net
Affiliation: Direct Care Provider
Pat
Whitten-Legé is an Administrator and Co-Founder of In-Home Attendant
Services (IHAS), which is privately owned and operated by her and her husband,
Gene Whitten-Legé. They founded the company in 1996. I-HAS state
contracts and three HMOs fund personal assistance services and emergency client
services for aged and disabled persons living at home. Ms. Whitten-Legé
is a Master's level licensed professional social worker. Following graduation
from the University of Texas Graduate School of Social Work, her career began
as a child protective service case worker and various management roles with the
Texas State Department of Human Services. She served as Executive Director of
non-profit human service organizations where she achieved national
accreditation. As Executive Director of Crisis Intervention of Houston, a
United Way agency, Ms. Whitten-Legé worked extensively with community
volunteers and with private and corporate philanthropy. Ms. Whitten-Legé
is also experienced in the management of state and federal contracts in the
greater Houston area.
Bob
Williams
Policy Advisor, United Cerebral Palsy Associations,
1601 North Springwood Drive, Silver Spring, MD 20910
Tel: 202-973-7113,
E-mail: bwilliams@ucp.org
Bob Williams served as the Commissioner of the
Administration on Developmental Disabilities and then as the Deputy Assistant
Secretary for Disability, Aging and Long-Term Care Policy in the U.S.
Department of Health and Human Services from 1993-2001. Prior to this, he
worked for United Cerebral Palsy Associations (UCPA) on the passage of the
Americans with Disabilities Act and the development of personal assistance
policy. He also served as the Deputy Director of the Pratt Monitoring Office,
which oversaw the closing of Forest Haven. In the spring of 2001, he rejoined
the Government Activities Office of UCPA, and also currently serves as the
Project Coordinator for the National Council on Disability's Study on the
Implementation of the Constitutional Rights of Institutionalized Persons
Act.
Kristen Parker
Wills
Research Associate, Scripps Gerontology Center, Miami
University, 396 Upham Hall, Oxford, OH 45056-1879
Tel: 513-529-2914, Fax:
513-529-1476, E-mail: parkerkc@muohio.edu
Affiliation: Researcher
Kristen
Parker Wills is a Research Associate at the Scripps Gerontology Center, where
she is involved in several projects involving consumer voice and choice in
long-term care. Her long-term care research focuses on the role of the case
manager in consumer-directive initiatives in community-based long-term care
program; consumer-direction implementation strategies; and training issues. Ms.
Wills is currently the content coordinator for an upcoming regional conference
sponsored by Scripps Gerontology Center that will feature presentations on
consumer education initiatives, consumer satisfaction measures, and evaluations
of consumer-directed demonstrations around the nation.
Grace K.
Wilson-Laudun
CDPCS Program Director, Access Alaska, Inc.,
Independent Living Center, 3901 Taft Street, Suites A&B, Anchorage, AK
99517
Tel: 907-248-4777, Fax: 907-248-0639, E-mail:
amazing@pobox.alaska.net
Grace Wilson-Laudum received a Bachelor of Social
Work degree from the University of Alaska in 1999, and has worked as an
Independent Living Specialist and certified Care Coordinator with Access
Alaska, Inc. She is currently collaborating with advocates from across the
state to develop Alaska's first Consumer-Directed Personal Care Services
program. This effort involves the Division of Medical Assistance, the Division
of Senior Services, the State Independent Living Council, consumers, personal
care assistants, and the Independent Living Centers statewide.
Greg
Wintle
Project Director, Kansas Division of Health Care
Policy, 5th Floor North, Docking Building, 915 S.W. Harrison, Topeka, KS
66612-0557
Tel: 785-296-3561, Fax: 785-296-0557, E-mail:
WGW@srskansas.org
Greg Wintle has assisted Kansans with developmental
disabilities in a variety of capacities over the past 16 years. For the past
six years, he was the Co-Executive Director of an agency that assists consumers
and their families who self-direct their supports. In February 2001, he
returned to the State of Kansas as the State Director of the Kansas
Self-Determination Project.
Buddy Wise, BSN,
RN
Program Administrator/Chief Operations Officer, Independent
Choices, Aspen Management Group, LLC, 8500 West Markham, Suite 200, Little
Rock, AR 72205
Tel: 501-217-8123, Fax: 501-217-8125, E-mail:
e-buddwayne@aol.com
Affiliation: Counseling/Fiscal Agency
Buddy Wise
received a Bachelor of Science in Nursing in 1996 from the University of
Central Arkansas and since then has provided Registered Nursing services in
emergency, critical care, consulting, and management settings. In his role as
Program Manager for the Certified Nurse Assistant Training Division of Aspen
Management Group, Mr. Wise was responsible for all aspects of operation
including the design and implementation of training curriculum meeting state
and federal guidelines for personal care services, phlebotomy services and
certified nursing assisting. In his current role of Program Administrator/Chief
Operations Officer, Mr. Wise manages all activities of the Independent Choices
consumer-direction program of Aspen Management Group.
John Wren
Director,
Office of Program Development, Administration on Aging, 330 Independence
Avenue, S.W., Washington, DC 20201
Tel: 202-260-1702, Fax: 202-260-1019,
E-mail: john.wren@aoa.gov
John Wren currently oversees the Administration on
Aging's (AoA) discretionary grants program and its interagency policy agenda on
home and community-based care. Prior to AoA, Mr. Wren was Vice President of the
National Council on the Aging, and directed the National Aging Program at the
Pew Charitable Trusts. He also worked for the New York State Office for the
Aging as the Deputy for Policy and Program Development. He has an M.P.A. from
the Maxwell School at Syracuse University, and received advanced training at
Harvard University's Kennedy School of Government.
Barbara York,
LPN
Senior Field Counselor, Independent Choices, Aspen Management
Group, LLC, 8500 West Markham, Suite 200, Little Rock, AR 72205
Tel:
501-217-8123, Fax: 501-217-8125, E-mail:
e-aspenrehab@earthlink.net
Affiliation: Consumer-Direction Counselor
Barb
York has been a Licensed Practical Nurse for 7 years, providing nursing
services in the hospital, nursing home and physician office setting. In 1998,
Ms. York became one of the first nursing professional in the State of Arkansas
to provide counseling and training services to individuals participating the
Arkansas consumer-direction program: Independent Choices. As a Field Counselor
for Aspen Management Group, the Counseling/Fiscal Agency for consumer-direction
services in Arkansas, Ms. York assisted in the development of training
materials and service systems to assist program participants in achieving
self-direction of personal care services. Currently, she serves as the Senior
Field Counselor for Aspen Management Group. In this role, Ms. York trains and
supervises the Aspen Field Counselor staff, and monitors the quality of field
services provided.
Muriel
Zgardowski
President, Concepts of Independence, Inc., 120
Wall Street, Suite 1010, New York, NY 10005
Tel: 212-293-9999, Fax:
212-293-3040, E-mail: murielw23@aol.com
Affiliation: Consumer
Advocate
Muriel Zgardowski is a retired commercial artist who ambulates by
motorized wheelchair and is on life support owing to the fact that she has
muscular dystrophy. She has been an advocate for disability rights for more
than 30 years, and she is one of the founders of Concepts of Independent.
America Restaurant, 50 Massachusetts Avenue, N.E., Washington, DC
20002, 202-682-9555
HOURS: 11:30am-11:30pm, Sun-Thurs; 11:30am-12:30am,
Fri-Sat
ACCESSIBILITY: Handicap Accessible Downstairs
DINNER ENTREES: $8
to $20
LOCATION: Located inside Union Station
Armand's Chicago Pizzeria, 226 Massachusetts Avenue, N.E.,
Washington, DC 20002, 202-547-6600
HOURS: 11:30am-11:00pm
ACCESSIBILITY:
Handicap Accessible Downstairs
DINNER ENTREES: $8 to $15
LOCATION:
Closest Metro Stop is Union Station
Capitol City Brewing Company, 2 Massachusetts Avenue, N.E.,
Washington, DC, 202-842-2337
HOURS: 4:30pm-11:00pm, Sun-Thurs;
4:30pm-12:00am, Fri-Sat
ACCESSIBILITY: Handicap Accessible
DINNER
ENTREES: $11 to $23
LOCATION: Located right across the street from Union
Station
Old Ebbitt Grill, 675 15th Street, N.W., Washington, DC 20005,
202-347-4800
HOURS: 7:30am-1:00am, Mon-Fri; 8:00am-1:00am, Sat;
9:30am-1:00am, Sun
ACCESSIBILITY: Handicap Accessible
DINNER ENTREES: $10
to $25
LOCATION: Closest Metro Stop is Metro Center
The Occidental Grill, 1475 Pennsylvania Avenue, N.W., Washington,
DC 20004, 202-783-1475
HOURS: 4:30pm-10:30, Mon-Thurs; 4:30pm-11:00,
Fri-Sat; 4:00pm-9:30pm, Sun
ACCESSIBILITY: Handicap Accessible
DINNER
ENTREES: $18 to $33
LOCATION: Closest Metro Stop is Metro Center
Two Quail, 320 Massachusetts Avenue, N.E., Washington, DC 20004,
202-347-4499
HOURS: 5:30pm-10:00pm, Sun-Thurs; 5:30pm-11:00pm,
Fri-Sat
ACCESSIBILITY: Not Handicap Accessible
DINNER ENTREES: $15 to
$24
LOCATION: Closest Metro Stop is Union Station
Cafe Berlin, 322 Massachusetts Avenue, N.E., Washington, DC
20002, 202-543-7656
HOURS: 11:00am-10:00pm, Mon-Fri; 12:00pm-11:00pm, Sat;
4:00pm-10:00pm, Sun
ACCESSIBILITY: Only the Patio is Handicap
Accessible
DINNER ENTREES: $41 to $75
LOCATION: Closest Metro Stop is
Union Station
Gerard's Place, 915 15th Street, N.W., Washington, DC 20005,
202-737-4445
HOURS: 5:30pm-9:00pm, Mon-Thurs; 5:30pm-10:00pm, Fri-Sat,
Closed Sunday
ACCESSIBILITY: Handicap Accessible
DINNER ENTREES: $30 to
$50
LOCATION: Closest Metro Stop is MacPherson Square
La Colline, 400 North Capitol Street, N.W., Washington, DC 20001,
202-737-0400
HOURS: 6:00pm-10:00pm, Mon-Sat; Closed on
Sunday
ACCESSIBILITY: Handicap Accessible
DINNER ENTREES: $76 to
$140
LOCATION: Closest Metro Stop is Union Station
Galileo, 1110 21st Street, N.W., Washington, DC 20036,
202-293-7191
HOURS: 5:30pm-10:00pm, Sun-Thurs; 5:30pm-10:30pm,
Fri-Sat
ACCESSIBILITY: Handicap Accessible
DINNER ENTREES: $20 to
$32
LOCATION: 3½ blocks from Foggy Bottom/Farragut North Metro
Stop
I Ricchi, 1220 19th Street, N.W., Washington, DC 20036,
202-835-0459
HOURS: 5:30pm-10:30pm, Mon-Sat; Close Sunday
ACCESSIBILITY:
Handicap Accessible
DINNER ENTREES: $76 to $140
LOCATION: Closest Metro
Stop is Dupont Circle
La Lomita, 1330 Pennsylvania Avenue, S.E., Washington, DC 20003,
202-546-3109
HOURS: 5:00-10:30pm, Mon-Fri; 5:00pm-11:00pm, Sat;
5:00pm-10:00pm Sun
ACCESSIBILITY: Handicap Accessible
DINNER ENTREES: $10
to $15
LOCATION: Closest Metro Stop is Potomac Avenue
Jaleo, 480 7th Street, N.W., Washington, DC 20004,
202-628-7949
HOURS: 11:30am-10:00pm, Sun-Thurs; 11:30am-12:00am,
Fri-Sat
ACCESSIBILITY: Handicap Accessible
DINNER ENTREES: $10 to
$20
LOCATION: Closest Metro Stop is Gallery Place
White Tiger, 301 Massachusetts Avenue, N.E., Washington, DC
20002, 202-546-5900
HOURS: 5:30pm-10:00pm, Sun-Sat
ACCESSIBILITY: Not
Handicap Accessible
DINNER ENTREES: $11 to $15
LOCATION: Closest Metro
Stop is Union Station
Bis - Hotel George, 15 E Street, N.W., Washington, DC 20001,
202-347-4200
HOURS: 5:30pm-10:30pm
ACCESSIBILITY: Handicap Accessible
through the Hotel
DINNER ENTREES: $18 to $25
LOCATION: 1½ Blocks
from Union Station Metro Stop
McCormick & Schmicks, 1652 K Street, N.W., Washington, DC,
202-861-2233
HOURS: 3:30pm-12:00am, Sun-Sat
ACCESSIBILITY: Handicap
Accessible
DINNER ENTREES: $12 to $25
LOCATION: Closest Metro Stops are
Farragut West and Farragut North
Georgia Brown's, 950 15th Street, N.W., Washington, DC 20005,
202-393-4499
HOURS: 5:30pm-10:30pm, Sun-Thurs; 5:30pm-11:30pm,
Fri-Sat
ACCESSIBILITY: Handicap Accessible
DINNER ENTREES: $15 to
$23
LOCATION: Closest Metro Stop is MacPherson Square
Washington, D.C. Convention and Visitors
Association
1212 New York Avenue, N.W., Suite 600, Washington, DC
20005-3992, 202-789-7000, Fax 202-789-7037
For the physically challenged travelers, Washington, DC is one of the most accessible and welcoming cities in the world. Nearly every museum, hotel, restaurant, shopping mall and public transit system can accommodate travelers with special needs, whether it be wheelchair ramps, menus in braille, telephone numbers for the hearing-impaired or large print brochures.
The following information outlines how physically disabled visitors can make the most of their visit to the "capital city!"
Some of Washington's more traditional attractions, such as the Lincoln and Jefferson Memorials, have always been equipped to accommodate physically disabled visitors. Both are outfitted with special handicapped parking facilities and elevators to the interior chambers of the memorials. The staff at the Washington Monument keeps a wheelchair on the premises and allows physically disabled visitors a "right of way" policy to bypass waiting lines. In addition, wheelchair patrons may obtain a hand-held periscope to experience the view from the monument.
The National Capital Park Service, which operates all three monuments as well as a host of other national treasures in the Washington area, has made an effort to make its properties accessible to all visitors. For instance, large print information brochures and sign language interpreters are available at certain park sites. For complete information on special services for physically disabled visitors at sites operated by the National Capital Park service call (202)619-7222 or (202)619-7083 (TDD).
The White House, another favorite destination for visitors, is accessible to the physically disabled. A special entrance on Pennsylvania Avenue is reserved for visitors arriving in wheelchairs, and no admission ticket is required. White House tour guides may allow blind visitors to touch some of the articles and furnishings during the tour. For more information, call (202)456-2200 or (202)456-6213 (TDD).
The Smithsonian Institution, a magnificent assembly of 15 distinctive museums, (ten of which line the National Mall) also caters to the thousands of disabled travelers who come through their doors. All museum buildings are accessible to wheelchair visitors. With at least two weeks advance request, members of the Smithsonian staff may serve as sign language interpreters or "touch tour" leaders. The Smithsonian also publishes large print, braille and cassette materials for several of its museums. Its monthly calendar of events, which includes information from all its museums, is published in the Friday Washington Post and is made available on audio cassette tape.
"Smithsonian Access," a free publication explaining special resources for disabled visitors, is available in large print, braille, audio cassette and from America OnLine (keyword: Smithsonian). For copies, write Smithsonian Information, SI 153 MRC 010, Washington, DC 20560, or call (202)357-2700 (voice) or (202)357-1729 (TTY).
The newer sights, which have given the city a more modern, cosmopolitan atmosphere, also welcome disabled visitors. A beautiful gallery of boutiques and restaurants, The Shops at National Place, is equipped with a wheelchair ramp at one of its entrances, as well as elevators and escalators to accommodate people of limited mobility. Wheelchairs may be obtained at any of the gallery's security offices on each floor as long as you call ahead, (202)662-1250. The Pavilion at the Old Post Office, a colorful collection of eateries, cafes and gift shops, is also equipped with a wheelchair ramp and internal elevators, as is Georgetown Park, an expansive luxury mall in the heart of Georgetown. Union Station is fully accessible, including all AMTRAK facilities.
Many of the larger theatres in town have installed special listening systems for the hearing impaired theatre buff. The John F. Kennedy Center for the Performing Arts installed infrared listening systems in three of its six main theatres. A hearing impaired patron may simply borrow a set of headphones before the performances, sit anywhere in the house, adjust the volume and enjoy. The Kennedy Center provides for its blind patrons by writing and recording special scripts and detailed descriptions of sets and costumes in some shows performed in the Opera House, Eisenhower and Terrace Theatres. "Touch tours" of the Kennedy Center can be arranged for visually-impaired patrons and sign language interpreters can accompany hearing-impaired visitors on their tours. All the theatres within the Center are accessible for patrons arriving in wheelchairs. For further information, call (202)467-4600.
The National Theatre, in the heart of downtown Washington, also provides for its disabled patrons. Once a month, the main house performance is narrated for visually impaired theatre-goers. The National Theatre is the only theatre in the country maintaining a permanent booth near the mezzanine staff by a narrator who describes the show scene-by-scene. To obtain earphones for the narration, or to secure infrared headsets for hearing-impaired patrons, simply see an usher before the performances. The National Theatre also offers a limited number of half-priced tickets for disabled patrons on Tuesday and Wednesday evenings, and for Sunday matinees. For further information, call (202)628-6161.
As a disabled traveler, the question of how to get around town once you've arrived can be a difficult one. In Washington, the answer is easy--ride Metrorail, Washington's subway system.
The Metrorail system is a comprehensive, modern railway line built above and beneath the city. Each metro station is equipped with an elevator (complete with braille number plates) to reach train platforms. To aid visually-impaired travelors, the driver makes station and on-board announcements of train destinations and stops. And, as an extra measure of safety for hearing-impaired travelers, the Metrorail system warns of an approaching train by pulsating lights along the edge of the platform.
In addition to stations with elevators and trains with wide aisles to accommodate wheelchairs, the Metrorail system offer reduced fares and priority seating. And don't forget the Metrobus system! Certain Metro buses are equipped with state-of-the-art wheelchair lifts. For a free guide that provides information on Metro's bus and rail system for the physically disabled, as well as the elderly (202)635-6434.
For a special tour of Washington and other nearby sites, including Arlington Cemetery and Mt. Vernon, disabled sightseers may ride aboard a Tourmobile Sightseeing tram. Regular Tourmobile trams are easily accessible to the physically impaired tourists, and narrators provide a documentary of each sight. Tourmobile also operates a special air-conditioned van for immobile travelers, complete with a wheelchair lift. Reservations for the van must be made at least 24 hours in advance. For more information, call (202)554-7020.
Washington Ear, Inc., a non-profit organization for the blind, provides a Radio Reading Service for the blind. Patrons may hear newspapers, magazines and books being read, once a specialized radio is obtained from Washington Ear, Inc. (free of charge). Large print and tactile atlases of the Washington metro area and the state of Maryland with audio cassette commentary can be purchased from Washington Ear. These maps outline major streets and highways, building, bodies of water, the DC metro system, and include an extensive index. For more information on the guidebook or the atlases, call (301)681-6636.
Free transportable tactile maps of the Washington Metro system can be obtained from Columbia Lighthouse for the Blind, a non-profit organization, by calling (202)462-2900.
Columbia Lighthouse for the Blind
202-462-2900 x3005
Contact:
Robin Draper
Good Resource for Information:
National Library Service for the Blind
& Physically Handicapped
202-707-5100
Sign Language Associates
301-946-9710
Contact: Kamille Gillies
Good Resource for Information:
National Information Center on
Deafness
202-651-5505
Centralized Interpreter Referral Service
410-243-3800
Partners In Sign
202-638-5630
Bimbaum Interpreting Service
301-587-8885
Area Access
703-573-2111
Wheaton Party Rental (no scooters)
301-937-7600
Convalescent Aids, Inc.
202-363-9242
Grubbs' Care Pharmacy
202-543-4400
Health Care Concepts (no scooters)
301-568-0600 or 703-750-0914
LNN Oxygen (no scooters)
301-868-8079 or 800-445-1116
New Hampshire Pharmacy & Medical Equipment (no
scooters)
202-726-3100
AA&N Transportation
301-588-6055
Red Top Cab
703-522-3333
Battle's Transportation Inc.
202-462-8658
Safe Transportation
301-445-6168
Elrod Transportation Service
202-829-6721
Ironsides
301-585-1100
Handi Ryde Inc.
703-971-8122
Wheelchair Mobile Transport, Inc.
301-294-0600