An Inventory Of Federally Sponsored HIV And HIV-Relevant Databases

Center for Health Services Research and Policy
School of Public Health and Health Services
George Washington University Medical Center July 2000

Table Of Contents

Introduction

Methods

Use of Federally Supported HIV-Related Research

Filling Gaps In HIV-Related Research

Guide To Acronyms

Itemized Inventory
Department of Health and Human Services:

Agency for Healthcare Research and Quality (AHRQ)

AIDS Costs and Services Utilization Survey (ACSUS)
Healthcare Cost and Utilization Project (HCUP-3)
HIV Cost and Services Utilization Study (HCSUS)

Centers for Disease Control and Prevention (CDC), Division of HIV/AIDS Prevention, Surveillance, and Epidemiology

HIV Counseling and Testing Report Form
HIV/AIDS Reporting System (HARS)
Supplement to Routine HIV and AIDS Surveillance (SHAS) Project
Adult/Adolescent Spectrum of HIV Disease (ASD) Project
Pediatric Spectrum of HIV Disease (PSD) Project
HIV Epidemiologic Research Study (HERS)
HIV Outpatient Study (HOPS)
National School-Based Youth Risk Behavior Survey (YRBS)

Centers for Disease Control and Prevention (CDC), National Center for Chronic Disease Prevention

Behavioral Risk Factor Surveillance System (BRFSS)

Centers for Disease Control and Prevention (CDC), National Center for Health Statistics (NCHS)

National Health Examination Statistics Surveys (NHANES IV)
State and Local Area Integrated Telephone Survey (SLAITS)
National Survey of Family Growth (NSFG)
National Health Interview Survey (NHIS)
National Vital Statistics System (NVSS) Multiple Cause-of-Death Files
National Death Index (NDI)
National Health Care Survey (NHCS)
National Hospital Discharge Survey (NHDS)
National Survey of Ambulatory Surgery (NSAS)
National Ambulatory Medical Care Survey (NAMCS)
National Hospital Ambulatory Medical Care Survey (NHAMCS)
National Home and Hospice Care Survey (NHHCS)
National Nursing Home Survey (NNHS)

Health Care Financing Administration(now known as Centers for Medicare and Medicaid Services(CMS)) (HCFA(now known as CMS))

Medicaid Statistical Information System (MSIS)
Medicare

Health Resources and Services Administration (HRSA), HIV/AIDS Bureau (HAB)

AIDS Drug Assistance Program (ADAP) Monthly Report
Annual Administrative Report (AAR)
Uniform Reporting System (URS) Client Level Data Demonstration Project
Grantee Applications, Titles I and II of the Ryan White Comprehensive AIDS Resources Emergency (CARE) Act
Ryan White CARE Act Title III Program Data Report
Ryan White CARE Act Title IV Data Reporting System
Ryan White CARE Act Special Projects of National Significance (SPNS) Program
Ryan White CARE Act AIDS Education and Training Centers (AETC)
Ryan White CARE Act HIV/AIDS Dental Reimbursement Program

National Institutes of Health (NIH)

Adult AIDS Clinical Trial Group (AACTG)
AIDS Link to the Intravenous Experience (ALIVE)
Terry Beirn Community Programs for Clinical Research on AIDS (CPCRA) Observational Data Base (ODB)
HIV Vaccine Clinical Trials Network (HVTN) and HIV Prevention Clinical Trials Network (HPTN)
Multicenter AIDS Cohort Study (MACS)
Reaching for Excellence in Adolescent Care and Health (REACH) Project
Women’s Interagency HIV Study (WIHS)
Women and Infants Transmission Study (WITS)

Substance and Mental Health Administration (SAMSHA)

HIV Outreach Demonstration Program

Social Security Administration (SSA):

Office of Disability

Disability Claims: Title II, Title XVI Concurrent Determinations

Department of Veterans Affairs:

Veterans Health Administration

Immunology Case Registry (ICR)