Stigma and global Health: Developing a Research Agenda - An International Conference
September 5 - 7, 2001 Bethesda, Maryland, U.S.A. Bethesda Marriott 5151 Pooks Hill Road
Stigma - illustration
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Updated September 2001

Message from the Conference organizers (click here)

 

Agenda

Click on session titles to view Abstracts and Background Papers.  Click on speakers' names to view short biographies.

Wednesday, September 5, 2001     6 p.m. to 9 p.m.
6 - 6:45 p.m. Registration and Welcome Reception
6:45 - 7 p.m. Opening Remarks: Goals of Conference, Expected Outcomes
Gerald T. Keusch, M.D., Fogarty International Center
Steven E. Hyman, M.D., National Institute of Mental Health
Alan I. Leshner, Ph.D., National Institute on Drug Abuse
7 - 7:10 p.m. Conference Overview  Arthur M. Kleinman, M.D., Harvard University
7:10 - 7:30 p.m. Background Paper -  History of Stigma - Stigma, Contagion, Defect: Issues in the Anthropology of Public Health

Abstract Only

Veena Das, Ph.D., Johns Hopkins University
7:30 - 7:50 p.m. Background Paper Abstract - History of Stigma - Stigma, Race and Disease in Twentieth Century America Keith Wailoo, Ph.D., Rutgers University
7:50 - 8 p.m. General Discussion
8 - 8:30 p.m. Keynote Address - 
The Many Stigmas 
of Mental Illness
Kay Redfield Jamison, Ph.D., Johns Hopkins University
8:30 - 9 p.m. Video Documentary - Nkosi Johnson, 
South African 
AIDS Activist - 
Nkosi, A Voice of Africa's AIDS Orphans


Introduction by 
Filmmakers:
Anant Singh, Videovision Entertainment, 
South Africa
 
and 

Danny Schechter, M.S., Mediachannel
9 p.m. Adjourn
   
Thursday, September 6, 2001     7:30 a.m. to 6 p.m.
7:30 - 8 a.m. Registration


Session One:
Background on Stigma Research, Part 1

8 - 8:10 a.m. Introduction Arthur M. Kleinman, M.D., Harvard University
8:10 - 8:30 a.m. Background Paper - 
The Study of Potentially Stigmatizing Conditions: an Epidemiologic Perspective 
Arthur Reingold, M.D.,
University of California at Berkeley

8:30 - 8:50 a.m. Prepared discussants
1. Sylvia Kaaya, M.D., University of Dar es Salaam, Tanzania

2. Maureen Durkin, Ph.D., Dr. P.H., Columbia University
Dr. Durkin's abstract

8:50 - 9:10 a.m. General Discussion
9:10 - 9:30 a.m. Background Paper - 
On Stigma and 
its Public Health Implications

Abstract Only

Bruce Link, Ph.D., Columbia University

9:30 - 9:40 a.m.

Prepared Discussants

 


1. Linda Richter, Ph.D.University of Natal, South Africa

2. Laraine Glidden, Ph.D., St. Mary's College of Maryland
Dr. Glidden's abstract

9:40 - 10 a.m. General Discussion
10 - 10:30 a.m. Break


Session Two:
Background on Stigma Research, Part 2

10:30 - 10:50 a.m. Background Paper -  Interventions: Research on Reducing Stigma

Abstract only

Mitchell Weiss, M.D., Ph.D., Swiss Tropical Institute, Switzerland
10:50 - 11 a.m. Prepared Discussants
1. Maggie Bangser, M.P.P.M., Women's Dignity Project, Tanzania

2. Julie Pulerwitz, Sc.D., HORIZONS Project / PATH-D.C.
Dr. Pulerwitz's abstract

11 - 11:20 a.m. General Discussion
11:20 a.m. - 12 noon Panel Discussion 
[all Background Paper presenters]
Moderator: 
Susan Solomon, Ph.D., Office of Behavioral and Social Science Research, NIH 
12 noon - 12:45 p.m. Box Lunch [provided]


Session Three:
Exemplars of Health-Associated Stigma

12:50 - 1:20 p.m. AIDS Moderator:
Gregory M. Herek, Ph.D., University of California at Davis

1. Suniti Solomon, M.D., YRG Centre for AIDS Research and Education, India
Dr. Solomon's abstract

2. Zhang Konglai, M.D.Peking Union Medical College, China
Dr. Zhang's abstract

1:25 - 1:55 p.m. Epilepsy Moderator:
Joan K. Austin, D.N.S., R.N., F.A.A.N., Indiana University

1. Li Li Min, M.D., Ph.D., UNICAMP, Brazil
Dr. Min's abstract

2. Ann Jacoby, Ph.D., University of Liverpool, UK
Dr. Jacoby's abstract

2 - 2:30 p.m. Schizophrenia Moderator:
Paolo del Vecchio, Substance Abuse & Mental Health Services Administration, Center for Mental Health Services

1. Sing Lee, M.D., Chinese University of Hong Kong, China
Dr. Lee's abstract

2. Pablo Farias, M.D., The Ford Foundation, Mexico

2:35 - 3:05 p.m. Physical Anomalies: Congenital and Acquired 
Conditions
Moderator:
Nancy Berk, Ph.D., University of Pittsburgh

1. Craniofacial Disorder: 
Todd C. Edwards, Ph.D.
, University of Washington
Dr. Edwards' abstract

2. Paraplegia: Daniel D. Reidpath, Ph.D., Deakin University, Australia
Dr. Reidpath's abstract

3:05 - 3:45 p.m. Break


Session Four:
Two Faces of Stigma: The Complex Role of Stigma in Public Health

3:45 - 4:20 p.m. Alcohol and Drug Abuse Moderator:
Maristela G. Monteiro, M.D., Ph.D., World Health Organization

1.  Sheigla Murphy, Ph.D., Institute for Scientific Analysis
Dr. Murphy's abstract

2. Sharon Wilsnack, Ph.D., University of North Dakota
Dr. Wilsnack's abstract

4:25 - 4:55 p.m. Physical and 
Sexual Abuse
Moderator:
Mary Ellsberg, Ph.D., PATH-DC

1. James Garbarino, Ph.D., Cornell University

2. Gail Wyatt, Ph.D., University of California at Los Angeles


Session Five: 
Impact of the Media

5 - 6 p.m. Health-Associated Stigma and the Media 1.  Bill Lichtenstein, M.S., Lichtenstein Creative Media
Mr. Lichtenstein's abstract

2. Martin Fishbein, Ph.D., University of Pennsylvania
Dr. Fishbein's abstract

     
Friday, September 7, 2001     8 a.m. to 4 p.m.
8 - 8:10 a.m. Summary of Conference to present Arthur M. Kleinman, M.D., Harvard University


Session Six: 
Stigma, Health, and Society 

8:10 - 8:25 a.m. Moderator's Introduction Gerald T. Keusch, M.D., Fogarty International Center
8:25 - 8:40 a.m. Group Stigma in Population Genetics Partha Majumder, M.D., Ph.D., Indian Statistical Institute, India
8:45 - 9 a.m. Legal Aspects of HIV: The Relationship Between Stigma 
and the Law
(click here for abstract)

Scott Burris, J.D., L.L.D., Temple University
9:05 - 9:20 a.m. Policy and Gender Issues Florence Baingana, M.D., World Bank
9:25 - 9:40 a.m. Alternative Sexualities and Genders in Brazil
(click here for abstract)
Richard G. Parker, Ph.D., Columbia University
9:45 - 10 a.m. "Education is Whitey's Thing"
(click here for abstract)
Carl Bell, M.D., University of Illinois at Chicago and Community Mental Health Council and Foundation


Breakout Sessions

10 -10:10 a.m. Explanation of Panel Format Arthur M. Kleinman, M.D., Harvard University
10:10 - 10:30 a.m.
Break
10:30 - 12:30 p.m. Breakout Sessions
Stigma and... 
AIDS
Moderators:
Paul A. Gaist, Ph.D., M.P.H., Office of AIDS Research, NIH

Ellen Stover, Ph.D., National Institute of Mental Health

Rapporteur:
Suniti Solomon, M.D., YRG Centre for AIDS Research and Education, India

 

Stigma and... 
Epilepsy
Moderator: Sandra Cushner-Weinstein, RPT, LCSWC, Children's National Medical Center

Rapporteur: Margaret Jacobs, National Institute of Neuorological Disorders and Stroke  

 

Stigma and... 
Schizophrenia
Moderator: Wayne S. Fenton, M.D., National Institute of Mental Health 
 

Rapporteur: Bernice A. Pescosolido, Ph.D., Indiana University

 

Stigma and... 
Alcohol 
and Drug Abuse
Moderator:
Minda Lynch, Ph.D.
, National Institute on Drug Abuse

Rapporteur:
Kendall J. Bryant, Ph.D., National Institute on Alcohol Abuse and Alcoholism

 

Stigma and... 
Physical Anomalies:
Congenital and Acquired 
Conditions
Moderator: 
Patricia Bryant, Ph.D., National Institute of Dental and Craniofacial Research

Rapporteur: 
Coleen Boyle, Ph.D., M.S., Centers for Disease Control and Prevention

 

Stigma and... 
Population Genetics and 
Group Stigmatization
Moderator: 
Kenneth M. Weiss, Ph.D., Pennsylvania State University

Rapporteur: Jean E. McEwen, J.D., Ph.D., National Human Genome Research Institute

12:30 - 1:45 p.m. 
Box Lunch [provided]
1:45 - 3:45 p.m. Rapporteur Reports, Discussion
[All participants regroup in main conference room to discuss break-out session conclusions.]
3:45 - 4 p.m. Conclusion

 

Next Steps

Gerald T. Keusch, M.D., Fogarty International Center

Arthur M. Kleinman, M.D., Harvard University 

4 p.m. Adjourn  
To the top of the page


If you have any questions about the Conference, please contact:

Kathleen Michels, Ph.D.
Program Director
Fogarty International Center (www.nih.gov/fic)
National Institutes of Health
E-mail: stigmaconference@nih.gov
Telephone: 301-496-1653
Fax: 301-402-0779


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