NHLBI-Related Public Interest Organizations

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Focus of Organization: Cardiovascular Diseases | Lung Diseases | Blood Diseases and Resources | Sleep Disorders | Other Public Interest Organizations

Organizations Focusing on Cardiovascular Diseases
Adult Congenital Heart Association	American Heart Association
Cardiac Arrhythmias Research and Education Foundation, Inc. (CARE Foundation)	Children's Cardiomyopathy Foundation
The Children's Heart Foundation	Congenital Heart Anomalies Support, Education, and Resources, Inc.
The HELLP Syndrome Society	Kids with Heart National Association for Children's Heart Disorders, Inc.
The Mended Hearts, Inc.	National Stroke Association
Preeclampsia Foundation	The Vascular Disease Foundation
WomenHeart: the National Coalition for Women with Heart Disease

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Organizations Focusing on Lung Diseases
Allergy and Asthma Network - Mothers of Asthmatics, Inc.	Alpha 1 National Association
Alpha 1 Foundation	American Lung Association
ARDS Foundation	Asthma and Allergy Foundation of America
Central Indiana Sarcoidosis Support Group	Coalition for Pulmonary Fibrosis
COPD-Alert	Cystic Fibrosis Foundation
Emphysema Foundation for our Rights to Survive (EFFORTS)	Foundation for Sarcoidosis Research
The LAM Foundation	Let's Breath Sarcoidosis Support
Life and Breath Foundation	National Emphysema/COPD Association (NECA)
National Sarcoidosis Resource Center	Pulmonary Fibrosis Foundation
Pulmonary Hypertension Association, Inc.	Sarcoid Networking Association
The Sarcoidosis Awareness Network	Sarcoidosis Online Sites
Sarcoidosis Support Group of Greater Washington	Sarcoidoisis Research Institute

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Organizations Focusing on Blood Diseases and Resources
America's Blood Centers	American Hemochromatosis Society (AHS)
Aplastic Anemia and MDS International Foundation, Inc. (formerly the Aplastic Anemia Foundation of America, Inc.)	Cooley's Anemia Foundation, Inc.
Daniella Maria Arturi Foundation - Diamond Blackfan Anemia	Diamond Blackfan Anemia Foundation
Fanconi Anemia Research Fund, Inc.	Foundation for Children with Atypical HUS
The Hemochromatosis Foundation, Inc.	HHT (Hereditary Hemorrhagic Telangiectasia) Foundation International, Inc.
The Histiocytosis Association of America	Iron Disorders Institute
The Leukemia and Lymphoma Society (formerly the Leukemia Society of America)	Lymphoma Research Foundation (formerly the Cure for Lymphoma Foundation)
National Hemophilia Foundation	Neutropenia Support Association, Inc.
Platelet Disorder Support Association	Sickle Cell Disease Association of America, Inc.

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Organizations Focusing on Sleep Disorders
American Sleep Apnea Association	Better Sleep Council
Narcolepsy Network	National Sleep Foundation
Restless Legs Syndrome Foundation	The Sudden Infant Death Syndrome (SIDS) Alliance

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Other Public Interest Organizations
Action on Smoking and Health	American Autoimmune Related Diseases Association
American Institute of Stress	American Obesity Association
Barth Syndrome Foundation, Inc.	Caring Voice Coalition
The CFIDS Association of America, Inc. (Chronic Fatigue and Immune Dysfunction Syndrome)	Cushing's Support and Research Foundation
Hermansky-Pudlak Syndrome Network, Inc.	Juvenile Diabetes Foundation
The Klippel-Trenaunay Support Group	Lupus Foundation of America, Inc.
Lymphatic Research Foundation	Malignant Hyperthermia Association of the United States (MHAUS)
The Men's Health Network	National Foundation for Transplants
National Lymphedema Network, Inc.	National Marfan Foundation
National Minority Organ and Tissue Transplant Education Program (MOTTEP)	National Organization for Rare Disorders, Inc.
National Women's Health Network	Parent Project Muscular Dystrophy
Pediatric/Adolescent Gastroesophageal Reflux Association (PAGER)	The Pediatric Network for Chronic Fatigue Syndrome, Fibromyalgia and Orthostatic Intolerance
PXE International (Pseudoxanthoma Elasticum)	Scleroderma Foundation
The S.L.E. Foundation, Inc. (Systemic Lupus Erythematosus)	The TMJ Association, Ltd. (Temporomandibular Joint Disease)
TOPS Club, Inc. (Take Off Pounds Sensibly)	Transplant Recipients International Organization, Inc.
Tuberous Sclerosis Alliance	Williams Syndrome Association

Last modified: 12/8/03
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