Agency for Toxic Substances and Disease Registry, U.S. Department of Health and Human Services The role of this agency is to implement the laws that protect the public from hazardous wastes and environmental spills of hazardous substances. ATSDR is charged under the Superfund Act of 1980 to ass... Details > List reviewed web resources |
Asian American Donor Program Asian American Donor Program (AADP) is a National Marrow Donor Program (NMDP) recruitment agency which provides education regarding the issue of unrelated marrow donation, and opportunities for the ge... Details > List reviewed web resources |
Batten's Disease Support and Research Association The Batten's Disease Support and Research Association (BDSRA) was formed by a group of families in the U.S. and Canada with a mission to offer emotional support, provide information and referrals, and... Details > List reviewed web resources |
Bone Marrow Foundation The Bone Marrow Foundation, through its Patient Aid Program, provide financial aid, education and support services to children and adults who will undergo a bone marrow transplant. Patients and famili... Details > List reviewed web resources |
Division of Cancer Prevention and Control, Centers for Disease Control and Prevention The Division of Cancer Prevention and Control (DCPC) serves as a leader for nationwide cancer prevention and control. Through its partnership with state health agencies and other key groups, DCPC is ... Details > List reviewed web resources |
Foundation for Ichthyosis and Related Skin Types, Inc. The Foundation for Ichthyosis and Related Skin Types, Inc. is a nonprofit organization incorporated in California in 1981. The Foundation is supported by public contributions and membership fees. Th... Details > List reviewed web resources |
Malignant Hyperthermia Association of the United States The Malignant Hyperthermia Association of the United States (MHAUS) is a non-profit educational organization whose purpose is to increase education and awareness of Malignant Hyperthermia and therefor... Details > List reviewed web resources |
National Marrow Donor Program® The National Marrow Donor Program (NMDP) is committed to its mission to extend and improve life through innovative stem cell therapies. The NMDP has facilitated more than 14,000 transplants throughou... Details > List reviewed web resources |
Progeria Research Foundation, Inc. The Progeria Research Foundation, Inc. (PRF) was established in March of 1999. The mission of PRF is to discover the cause, treatment and cure for Hutchinson-Gilford Progeria Syndrome (Progeria), a f... Details > List reviewed web resources |
PXE International, Inc. PXE International, Inc., a 501 (c) 3 organization, was founded in 1995. Its mission is three-fold: to support patients, provide resources for clinicians and encourage research.... Details > List reviewed web resources |