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Genetic Counseling, Support and Advocacy Groups Online
- Chromosome Help-Station
www.chromosomehelpstation.com
The Chromosome Help-Station provides support and information to families with rare chromosome disorders.
- Clinic Directory
www.geneclinics.org/servlet/access?id=&key=&fcn=y&fw=1i1p&filename=/clinicsearch/searchclinic.html
Database of genetics clinics, searchable by location, population served and specialty. Users must register once at: www.geneclinics.org before accessing information. Hosted by GeneTests/GeneClinics.
- Coalition for Genetic Fairness
www.nationalpartnership.org/Content.cfm?L1=202&TypeID=1&NewsItemID=381
Advocacy group for federal legislation regarding genetics discrimination
- Family Village
www.familyvillage.wisc.edu/index.htmlx
Disability-related resources
- Gene Tests/Gene Clinics
www.geneclinics.org
Comprehensive information on genetic testing and genetic counseling. Includes Educational Materials:
- What is Genetic Testing?
- Who Should Have A Genetics Consultation?
- What is a Genetics Consultation?
- Users must register before accessing this information.
- The Genetic Alliance
www.geneticalliance.org
Wide array of genetic-related information
- Genetic Centers, Clinics and Departments
www.kumc.edu/gec/prof/genecntr.html
Comprehensive resource list for genetic counseling, with links to genetic centers and clinics, associations and university genetics departments. Hosted by the University of Kansas Medical Center.
- Genetics and Rare Conditions Site
www.kumc.edu/gec/support
Information on genetic conditions and birth defects for professionals, educators and individuals, including national and international advocacy and support groups. Comprehensive list of resources organized by disease/condition. Hosted by the University of Kansas Medical Center.
- Locating Genetic Counseling/Testing Services: ResourceLink
www.nsgc.org/resourcelink.asp
A searchable database of genetics counseling services. Search by location, name, institution, type of practice or specialty. Hosted by the National Society of Genetic Counselors.
- Mountain States Genetic Network (MoST GeNe)
www.mostgene.org/topics/cclin01.htm
Information on genetic counseling, including:
- Indications For Genetic Counseling Referrals.
- What to Expect from a Genetics Consultation.
- National Organization for Rare Disorders
www.rarediseases.org
Wide array of genetic-related information
- Online Genetic Support Group Directory
www.mostgene.org/support/index.html
Alphabetic index of genetic disorders with links to associations, support groups and disease-related resources. Hosted by the Mountain States Genetic Network (MoSt).
- Rare Genetic Diseases in Children
mcrcr2.med.nyu.edu/murphp01/homenew.htm
Focuses on pediatric genetic conditions
- What is a Jewish Genetic Disease?
www.sbhcs.com/genetics/what/index.html
Information on Jewish genetic diseases including screening, testing and counseling. Hosted by Saint Barnabas Health Care System.
Last Updated: May 2004
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