Office of Rare Disease

Research and Scientific Conference Programs

Welcome to the Site

This Web site provides information about ORD-sponsored biomedical research, scientific conferences, rare and genetic diseases in English and Spanish (Genetic and Rare Diseases Information Center), and a portal to information on major topics of interest in the rare diseases community. If you cannot locate on this Web site the specific information you seek, please call (301) 402-4336 or email ord@od.nih.gov

A list of names of more than 6,000 rare diseases and related conditions with links to select government databases.

Information for patients and their families, health care professionals, biomedical researchers, and the general public. El Centro de Informaci�n sobre Enfermedades Gen�ticas y Raras

Conferences & Meetings

Future ORD Co-Sponsored Scientific Conferences

Pseudoxanthoma Elasticum Research Meeting 2004 Building on the Basics, October 14-15

The First International Symposium on Translational Clinical Research for Inherited and Orphan Retinal Diseases, November 5-7

Genetic Susceptibility and Second Primary Cancers, November 8-9

ORD Co-Sponsored Meetings

National Organization for Rare Disorders (NORD) Family Conference,
October 15-17

Gaining Access to Research Resources
(for leaders of national patient support groups),
January 28-30, 2005

ORD Co-Sponsored Meetings Archives

Other Meetings

First International Symposium on Malignant Mesothelioma,
October 14-16

Other Meetings Archives

NIH Research and Training Opportunities

The Rare Diseases Clinical Research Network

Other Rare Diseases Related Research and Training Opportunities

Press Announcements and Other Related News

NIH Roadmap Accelerates

Clinical Research Center Ribbon Cutting Ceremony

Notice: Enhanced Public Access to NIH Research Information

NIH Road Map Frequently Asked Questions

Scientists Begin Validation Study of Test to Detect Recurrence of Bladder Cancer

Artificial Neural Networks Can Predict Clinical Outcomes of Neuro Blastoma Patients

Studies Strengthen Kidney and Heart Disease Link

In the Spotlight Archives

Last Reviewed: October 12, 2004