Children's PKU Network
Children's PKU Network is a nonprofit agency founded in 1991 by the parents of a child diagnosed with PKU (Phenylketonuria). The agency offers support through various programs to assist families with... Details >
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Cystinosis Foundation
The Cystinosis Foundation is a nonprofit organization formed with the objectives of raising awareness among the general public and the medical community, as well as raising funds for research into the... Details >
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Iron Overload Diseases Association
The Iron Overload Diseases Association (IODA) was organized to serve hemochromatosis patients and families, to encourage research and public information, and to press for earlier diagnosis and more ef... Details >
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Maple Syrup Urine Diseases Family Support Group
The Maple Syrup Urine Disease (MSUD) Family Support Group provides opportunities for support and personal contact for those with MSUD and their families. MSUD, which derives its name from the distinc... Details >
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March of Dimes Birth Defects Foundation
The March of Dimes Birth Defects Foundation was established in 1938. Its mission is to improve the health of babies by preventing birth defects and infant mortality. The mission is carried out throu... Details >
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National Gaucher Foundation
The National Gaucher Foundation (NGF), founded in 1984, is a nonprofit organization whose primary objective is to help in finding a cure and viable treatment program for Gaucher's Disease (GD). NGF a... Details >
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National Oral Health Information Clearinghouse, National Institute of Dental and Craniofacial Research
A service of the National Institute of Dental and Craniofacial Research focuses on the oral health concerns of special care patients, including people with genetic disorders or systemic diseases that ... Details >
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National Urea Cycle Disorders Foundation
This non-profit organization is dedicated to the identification, treatment and cure of urea cycle disorders. The National Urea Cycle Disorders Foundation (NUCDF) provides information, education and su... Details >
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North American Society for Pediatric Gastroenterology, Hepatology and Nutrition
The North American Society for Pediatric Gastroenterology, Hepatology, and Nutrition (NASPGHAN), founded in 1972, is the only society in North America and the largest in the world dedicated to serving... Details >
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Organic Acidemia Association
The Organic Acidemia Association was founded in 1982 to foster communication between families and professionals who deal with some of the rarer metabolic disorders, such as the organic acidemias. The... Details >
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