Acid Maltase Deficiency Association
The AMDA, Acid Maltase Deficiency Association, was formed to assist in funding research and to promote public awareness of Acid Maltase Deficiency, a rare genetic disease. It is also known as Pompe's... Details >
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American Society of Human Genetics
The American Society of Human Genetics (ASHG) was established in 1948 to provide leadership in research, education and service in human genetics. ASHG is one of several human genetics societies and or... Details >
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A-T Children's Project
The A-T Children's Project was established to raise funds to support and coordinate biomedical research projects, scientific conferences and a clinical center aimed at finding a cure for Ataxia Telang... Details >
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Children's Blood Foundation
The Children's Blood Foundation (CBF) was founded in 1952 as a philanthropic organization to support the Division of Pediatric Hematological Oncology. The Division of Pediatric Hematology Oncology at... Details >
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Children's PKU Network
Children's PKU Network is a nonprofit agency founded in 1991 by the parents of a child diagnosed with PKU (Phenylketonuria). The agency offers support through various programs to assist families with... Details >
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Cystinosis Foundation
The Cystinosis Foundation is a nonprofit organization formed with the objectives of raising awareness among the general public and the medical community, as well as raising funds for research into the... Details >
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Division of Cancer Epidemiology and Genetics, National Cancer Institute/NIH
The responsibility of this office of the National Institutes of Health is to oversee population based research on environmental and genetics determinants of cancer. Intramural and collaborative interd... Details >
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Fanconi Anemia Research Fund, Inc.
Fanconi Anemia Research Fund, Inc., is a nonprofit corporation established in 1989. The purpose of the corporation is to assist Fanconi Anemia (FA) scientific research efforts. The Fund offers famil... Details >
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Genetic Alliance
Genetic Alliance, formerly the Alliance of Genetic Support Groups, is a consortium of national voluntary organizations for individuals and families who have genetic disorders. Dedicated to fostering ... Details >
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Health Resources and Services Administration (HRSA) Information Center
The HRSA Information Center is a nationwide point of entry for publications, resources and referrals on health care services for low-income, uninsured individuals and those with special health care ne... Details >
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