Alpha1 Association
The goal of this nonprofit organization is to further support, education, and research efforts for individuals and their families affected by alpha1-antitrypsin deficiency (A1AD).... Details >
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American Cleft Palate-Craniofacial Association / Cleft Palate Foundation
The American Cleft Palate-Craniofacial Association (ACPA) is an international, non-profit medical society of health care professionals, from 30 disciplines and 40 countries, who treat and/or research ... Details >
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American Cleft Palate-Craniofacial Association / Cleft Palate Foundation
The American Cleft Palate-Craniofacial Association (ACPA) is an international, non-profit medical society of health care professionals, from 30 disciplines and 40 countries, who treat and/or research ... Details >
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Angelman Syndrome Foundation
The Angelman Syndrome Foundation (ASF) is a parent support and research group founded in 1987 to provide information and support to families. Angelman syndrome is a neurological disorder associated w... Details >
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Beckwith-Wiedemann Support Network
Beckwith-Wiedemann Syndrome (BWS) is a congenital growth related disorder. There are roughly thirty characteristics which can be associated with BWS. Most often seen are enlarged tongue, umbilical h... Details >
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Children's PKU Network
Children's PKU Network is a nonprofit agency founded in 1991 by the parents of a child diagnosed with PKU (Phenylketonuria). The agency offers support through various programs to assist families with... Details >
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Health Resources and Services Administration (HRSA) Information Center
The HRSA Information Center is a nationwide point of entry for publications, resources and referrals on health care services for low-income, uninsured individuals and those with special health care ne... Details >
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International Joseph Diseases Foundation, Inc.
Established in 1977 as a not-for-profit voluntary organization, the International Joseph Diseases Foundation is dedicated to assisting individuals who are affected by or may be at risk for Joseph Dise... Details >
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Klinefelter Syndrome and Associates
Founded in 1989, this non-profit organization provides support to those with the genetic condition Klinefelter Syndrome and its variants. KSA's mission is to enhance the quality of KS individuals' li... Details >
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Klippel-Trenaunay Syndrome Support Group
The Klippel-Trenaunay Syndrome Support Group's mission is to provide support for K-T Syndrome patients and their families. Their objectives in accomplishing this mission are: to act as a support grou... Details >
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