Publications

Each year, the Disability and Health Team receives about 100-150 questions and requests for information through our Website, by e-mail and regular mail. Our goal is to respond to those inquiries and encourage public health awareness by providing timely and accurate health statistics, research findings, and health promotion information to individuals with disabilities and their families, as well as professionals and policymakers.  

We welcome your feedback about our publications page. To search for other publications please use the NCBDDD publications search engine 

Page Navigation Links:

• Fact Sheets

• Conference Proceedings

• Published Research Findings

• CDC MMWR Articles

NOTE: Documents listed below are pdf formatted documents.  
To view a file:  Click on the link for the file you want to view. 
To download a file to your computer:  Click your RIGHT mouse button on link for the file you want to download.  If you are using Netscape, choose "Save Link As." If you are using Internet Explorer, choose "Save Target As."  Specify the filename you want the file saved as and the folder you want it saved in and click on OK. 
 

  Disability and Health at the National Center on Birth Defects and Developmental Disabilities (pdf document, updated September, 2002)

  Secondary Conditions: Children and Adults with Disabilities (pdf document, updated January, 2003)

  Healthy People with Disabilities in HP2010 Chapter 6 (pdf document, updated September, 2002)

  Healthy People with Disabilities HP2010 Data on Disparities (pdf document, updated September, 2002)

  Healthy People with Disabilities State Health Plans (pdf document, updated September, 2002)

Conference Proceedings

The Disability and Health Team has hosted several national conferences in the last decade. Health conferences provide an opportunity to exchange cutting-edge information. As an outcome, the conference proceedings guide our future research directions.

  2003, Disability and Secondary Conditions HP2010 Focus Area 6: 2002 Forum and 2001 Symposium proceedings. [text, pdf large file 6,928 KB]

  1999, August 2-5. Promoting the Health and Wellness of Women with Disabilities. San Antonio Texas. [pdf program and abstracts]

  1998, October 14-16. National Conference on Disability and Health: Building Bridges for Science and Consumers, Dallas, Texas. [text abstracts]

  1998, October. Healthy People 2010 Disability Objectives: Private Sector And Consumer Perspectives, Alexandria, Virginia. [text]

  1994, September 11-12. Preventing Disabling Conditions: The Role of the Private Sector, Washington, D.C. [text]

  1994, February 17-19. Preventing Secondary Conditions Associated with Spina Bifida or Cerebral Palsy Symposium, Crystal City, Virginia [text]

  1991, June 6-8. Proceedings of the National Conference on the Prevention of Primary and Secondary Disabilities.  These proceedings were scanned, proofed, and reformatted by James Belt Jr., CDC ORISE Fellow, Morehouse College. [pdf]

  1990, February 27-28. Proceedings of the First Colloquium on Preventing Secondary Disabilities among People with Spinal Cord Injuries. These proceedings were scanned by Dionte Johnson, a Fellow from Tennessee State University. [text]

This listing represents Disability and Health Team Staff and Grantee Manuscripts published after 1997. Please revisit this site periodically for updates.

  Disability Policy and Research Agendas 

Crews JE. (2000) The evolution of public policies and services for older people who are visually impaired. In: Silverstone B, Lang MA, Rosenthal BP, Faye EE, (eds). The lighthouse handbook on vision impairment and vision rehabilitation. New York: Oxford University Press.

Crews JE. (2000) Research issues in aging and disability from Healthy People 2010. Maximizing human potential. Quarterly newsletter of the Network on Environments, Services, and Technologies for Maximizing Independence of the American Society on Aging, 8:1-6.

Hough J (1999) Disability and health: a national public health agenda. In: Simeonsson RJ, McDevitt LN (eds). Issues in disability and health: the role of secondary conditions and quality of life. Chapel Hill (NC); University of North Carolina. p161-203.

 Assessing and Preventing Secondary Conditions

Traci MA, Seekins T, Szalda-Petree A, Ravesloot C. (Apr 2002) Assessing secondary conditions among adults with developmental disabilities: A preliminary study. Mental Retardation. 40(2):119-131.

Frey L, Szalda-Petree A, Traci MA, Seekins T. (Jun 2001) Prevention of secondary conditions in adults with developmental disabilities: A review of the literature. Disability Rehabilitation. 23(9):361-9.  

  Health Behaviors and Lifestyles

Campbell VA and Crews JE (2001) Smoking and drinking among older people reporting disabilities. Quarterly newsletter of the Network on Environments, Services, and Technologies for Maximizing Independence of the American Society on Aging.

Thierry JM (2000) Increasing breast and cervical cancer screening among women with disabilities. Journal of Women's Health and Gender-Based Medicine. 9(1):9-12.

  Health Promotion

Phillips VL, Vesmarovich S, Hauber R, Wiggers E, Egner A. (2001) Telehealth: Reaching out to newly injured spinal cord patients. Public Health Reports. 116 Suppl 1:94-102.  

Gray BR, McDermott S, Butkus S (2000) Effect of job coaches on employment likelihood for individuals with mental retardation. Journal of Vocational Rehabilitation (14) 5-11.

Thierry JM (1998) Promoting the health and wellness of women with disabilities. Journal of Women's Health. 7(5):505-7.

  Disability Prevalence

Lollar DJ (2001) Public health trends in disability: past, present, and future In Eds Albrecht Handbook of Disability Studies.

Campbell VA (2000) Disability distribution among racial ethnic groups in the United States, 1998. In: White GW, Branstetter, AD and Seekins T. (eds). Secondary conditions among people with disabilities from minority cultures: proceedings and recommendations of a working conference. March 12-14, 1999. Chicago, Illinois. Lawrence (KS): Research and Training Center on Independent Living, University of Kansas. p10-16.

  Surveillance and Data Collection

Campbell VA and Fedyko HJ (2001) The Healthy People 2010 process: difficulties related to surveillance and data collection. In: Tymchuk (eds). The Forgotten Generation.

  Health Care Needs

Clancy CM, Andresen EM. (2002) Meeting the health care needs of persons with disabilities. Milbank Quarterly. 80(2):381-391.

  Measure of Quality of Life

Andresen EM, Vahle VJ, Lollar DJ. (2001) Proxy reliability: Health-related quality of life (HRQoL) measures for people with disability. Quality of Life Research. 10(7):609-19. 

Andresen EM, Meyers AM (Dec 2000) Health-related quality of life outcomes measures. Archives of Physical Medicine and Rehabilitation. 81(12), Suppl 2.

Lollar, D (1999) Clinical dimensions of secondary conditions. In: Simeonsson RJ, McDevitt LN (eds). Issues in disability and health: the role of secondary conditions and quality of life. 

  Measures of Health Conditions and Functioning

Crews JE and Campbell VA (2001) An examination of activity limitations and conditions related to vision impairment in older people. In H.-W. Wahl & H.-E.Schulze (eds). On the Special Needs of Blind and Low Vision Seniors: Research and Practice Concepts. Amsterdam: IOS Press. 

Ravesloot C and Szalda-Petree A (Aug 2001) Health status of adult Montanans in supported and semi-independent living arrangements. Health Status Report.

Crews JE and Campbell VA (2001) Health conditions, activity limitations, and participation restrictions among older people with visual impairments. Journal of Visual Impairment and Blindness (95) 453-467.

Crews JE (2000) Patterns of activity limitation among older people who experience vision impairment. In Steun C, Arditi A, Horowitz A, Lang MA, Rosenthal B, & Seidman K. (eds). Vision rehabilitation: Assessment, intervention and outcomes. Exton (PA): Swets & Zeitlinger; p754-7. 

Turk, MA, Geremski, CA, Rosenbaum, PF, Weber, RJ. (1997) The Health Status of Women with Cerebral Palsy. Archives of Physical Medicine Rehabilitation 78, S-10-7.

  Measures of Health Outcomes

Moore JE, Giesen JM, Weber JM, and Crews JE (2001) Functional outcomes reported by consumers of the independent living program for older individuals who are blind. Journal of Visual Impairment and Blindness (95) 403-417.

Andresen EM, Lollar DJ, Meyers AR (Dec 2000) Disability outcomes research: why this supplement, on this topic, at this time? Archives of Physical Medicine and Rehabilitation. 81(12), Suppl 2. 

Andresen EM (Dec 2000) Criteria for assessing the tools of disability outcomes research. Archives of Physical Medicine and Rehabilitation. 81(12), Suppl 2.

Dijkers M, Whiteneck G, El-Jaroudi R (Dec 2000) Measures of social outcomes in disability research. Archives of Physical Medicine and Rehabilitation. 81(12), Suppl 2.

Lollar DJ, Simeonsson RJ, Nanda, U (Dec 2000) Measures of outcomes for children and youth. Archives of Physical Medicine and Rehabilitation. 81(12), Suppl 2. p 46-52.

Gray DB, Hendershot GE (Dec 2000) The ICIDH-2 developments for a new era of outcomes research. Archives of Physical Medicine and Rehabilitation. 81(12), Suppl 2.

Long RG, Crews, JE, Mancil R (2000) Creating measures of rehabilitation outcomes for people who are visually impaired: the FIMBA Project. Journal of Visual Impairment & Blindness. 94(5):292-306.

Meyers AR, Andresen EM, Hagglund KJ (Dec 2000) A model of outcomes research: spinal cord injury. Archives of Physical Medicine and Rehabilitation. 81(12), Suppl 2.

Meyers AR, Andresen EM (Dec 2000) Enabling our instruments: accommodation, universal design, and access to participation in research. Archives of Physical Medicine and Rehabilitation. 81(12), Suppl 2. 

Vhale VJ, Andresen, EM, Hagglund KJ (Dec 2000) Depression measures in outcomes research Archives of Physical Medicine and Rehabilitation. 81(12), Suppl 2. 

Hough J (1999) Surveillance and outcome measurement systems for monitoring disabilities In: Simeonsson RJ, McDevitt LN (eds). Issues in disability and health: the role of secondary conditions and quality of life. Chapel Hill (NC); University of North Carolina. p 95-128. 

  Aging

Crews JE and Whittington FJ (eds). (2000) Vision Loss in An Aging Society. AFB Press.
 

Centers for Disease Control and Prevention. Progress in chronic disease prevention arthritis program - Missouri. MMWR 1988. 37(6):85-7.

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This page was last updated August 05, 2004

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National Center on Birth Defects and Developmental Disabilities

The National Center on Birth Defects and Developmental Disabilities (NCBDDD) promotes the health of babies, children, and adults, and enhances the potential for full, productive living.  Our work includes identifying the causes of birth defects and developmental disabilities, helping children to develop and reach their full potential, and promoting health and well-being among people of all ages with disabilities.