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Battling Bone Marrow Diseases
Health Highlights: Aug. 26, 2004
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Joubert Syndrome Information Center
Online information center provides resources, articles and reports related to joubert syndrome. Feeding & oral motor, hearing, legal help, medical journal articles and therapy are addressed.
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Joubert Syndrome Foundation, Inc
Joubert Syndrome Resources
Links to federal agencies, support groups and other nonprofit websites that provide information and resources for joubert syndrome.
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Joubert Syndrome Foundation, Inc
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Acid Maltase Deficiency Association
MUMS National Parent-to-Parent Network, Mothers United for Moral Support, Inc.
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Office of Disease Prevention and Health Promotion,
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Database Updated: Thursday, November 18, 2004
