Guidelines
for Registry Development: National Forum November 29-30, 2001 The
goal of the forum was to develop a set of guidelines intended to assist governments
or private organizations interested in strengthening existing donor registries
or developing new registries and to discuss potential Federal roles in improving
registry effectiveness. Participants included
representatives of organ and tissue procurement organizations, State governments,
and national transplantation and legislative organizations.
Recommendations
- Make Organ Donation a Public Health Imperative
- Clarify
Consent vs. Intent
- Retain and Respect State Autonomy
- Do Not Establish
a National Registry at this Time
- Define the Federal Role
- Minimize
Public Confusion
- Provide Opportunities for the Public to Register
- Continue
Ongoing Evaluation and Accountability of Registries
Reports |