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Dialysis Facility Related Websites

This page contains a list of helpful websites. The websites are categorized into the following six groups.


Chronic Kidney Disease Websites
American Association of Kidney Patients (AAKP)

On the AAKP website, you can sign up for a kidney disease magazine or email newsletter. You can download a book called Kidney Beginnings: A Patient's Guide to Living with Reduced Kidney Function. You can also access health tracking tools and ask a doctor questions.


Kidney School

At Kidney School learn what to expect and how to be an active partner in your care by choosing among sixteen 30-minute on-line modules. Topics include how kidneys work, treatments, anemia, coping, staying active, vascular access, sexuality and fertility, and others.


Life Options Rehabilitation Program

Life Options is dedicated to helping people live long and live well with kidney disease. Visit this site to read or download facts about kidney disease, risk factors, symptons, frequently-asked questions, and how you can keep your kidneys healthy.


National Kidney Foundation (NKF) - Kidney Learning System

The NKF is a voluntary health organization with many programs to help people with kidney disease. This link takes you to their Kidney Learning System, which focuses on chronic kidney disease. It includes a wide range of links and information on the causes and treatment of chronic kidney disease.


National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC)

Learn about the causes and types of kidney disease and what you can do to stay healthy. This government site also contains information on clinical trials, data, links, and brochures.


Polycystic Kidney Research Foundation

Visit the PKD Foundation website to learn about polycystic kidney disease. You can use a patient message board, read tips from other kidney patients and frequently-asked questions, ask for a mailed packet of PKD information, or find a chapter near you.


Healthfinder.gov

On this government site, you can find a wide range of information on kidney disease, including its causes, symptons, and treatment. You can also find information on other conditions that people with kidney disease might have, like heart disease, high blood pressure, and diabetes.


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Hemodialysis Websites
American Association of Kidney Patients (AAKP)

On the AAKP website, you can sign up for a kidney disease magazine or email newsletter, and download a booklet called Understanding Your Hemodialysis Options. It describes both in-center and home hemodialysis. You can also access health tracking tools and ask questions of a doctor.


America Kidney Fund (AKF)

Visit the AKF website to learn kidney disease facts and figures. Find out about AKF programs - including discount pharmacy cards and other medication programs, grants, minority outreach, educational materials, a helpline, and disaster relief for patients.


Forum of ESRD Networks

ESRD Networks oversee dialysis quality in each of 18 regions across the U.S. The Forum website helps you to find your Network or a dialysis center, locate other kidney disease resources, read articles about staying healthy with kidney disease, and learn about kidney-related meetings.


Kidney School

At Kidney School learn what to expect and how to be an active partner in your dialysis care by choosing among sixteen different, 30-minute on-line modules. Topics include nutrition, heart health, vascular access, anemia, coping, staying active, sexuality and fertility, and others.


Life Options Rehabilitation Program

Visit the Life Options site to download booklets and fact sheets to help you live long and well on dialysis. You can also talk to other patients, learn tips, read patient stories, follow links to other kidney sites, or access a toll-free helpline number.


National Kidney Foundation (NKF) - Home Page

The NKF is a voluntary health organization with many programs to help people on dialysis. Visit this site to download free brochures and newsletters, read a dialysis cookbook, or take a kidney quiz.


National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC)

This website includes information on what you can do to stay healthy on dialysis, including topics such as anemia, types of treatments, vascular access, and eating right. This government site also has information on clinical trials, kidney disease statistics, links, and a kidney failure glossary of terms.


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Peritoneal Dialysis (PD) Websites
American Association of Kidney Patients (AAKP)

On the AAKP website, if you do a search for the term "PD", you can find articles by patients who are using PD, articles about adjusting to PD, and information on PD adequacy in adults and children, and managing fluids.


Forum of ESRD Networks

ESRD Networks oversee dialysis quality in each of 18 regions across the U.S. The Forum website helps you find your Network or a dialysis center, locate other kidney disease resources, read articles about staying healthy with kidney disease, and learn about kidney-related meetings.


Kidney Directions

This website is focused primarily on PD issues. Register for a personal health planner, read patient stories, learn dialysis-friendly recipes, and access kidney disease and treatment information on this site. A glossary is also provided. A section for parents offers camp lists and links about kidney diseases that affect kids.


Kidney School

At Kidney School, you can learn about how PD works, how to follow the PD diet, and how to be an active partner in your dialysis care. A total of sixteen, 30-minute on-line modules are offered.


National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC)

Visit this government site to read or download short articles about how PD works. You can also learn about the types of PD, getting ready for PD, preventing problems, equipment and supplies, testing the effectiveness of PD, adjusting to changes, hope through research, and more.


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Websites for Children and Parents
National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC)

This website is a service of the National Institutes of Health and contains information for parents of children with kidney disease. Topics covered include an overview of kidney disease in children, treatment options, and managing growth, family and school issues.


NephKids

Visit the NephKids site to learn how to subscribe to a doctor-moderated email support group for parents of children or teens who have kidney disease. The site also contains information on kidney disease in children and links to kidney disease resources.


Children's Organ Transplant Association, Inc.

If you have a child who needs a kidney or other organ transplant, the Children's Organ Transplant Association (COTA) can give you financial and fundraising help. This site also has newsletters, real-life patient stories, and an annual report you can download.


Kidney Directions

This site provides information for kids who have kidney disease. It includes an overview of kidneys in health and disease, growth issues, nutrition, lifestyle concerns - like school and dating, the medical team, and resources. A special section for parents is also offered.


National Kidney Foundation (NKF) - Home Page

Type "kids" or "children" into the search box on this website. You will find a kids' glossary, camp lists, frequently asked questions for parents on topics like bedwetting and nutrition, a kidney cookbook for kids, and information about kids in the yearly transplant games.


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Kidney Transplant Websites
United Network for Organ Sharing (UNOS)

On the UNOS website, you can learn about transplant issues, read a glossary of transplant terms, learn about what UNOS does and how it was formed, and view press releases and download resources. There is also a long list of frequently asked questions.


Kidney Transplant

Visit this site to learn what to expect when getting or giving a kidney, including: lab tests, the surgery, recovery, possible complications, working with the care team, and transplant drugs. A glossary of terms and many diagrams are also included.


Organ Donation

Learn about how to become an organ or tissue donor. You can download an organ donor card, read transplant and donor stories, and get answers to common questions about organ donation on this site.


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Caregiver and Family Support Websites
National Family Caregiver Support Program (NFCSP)

This government site offers information and help to find caregiver support services in your area. You can also download brochures, read real-life caregiver stories, and find links to help you take good care of your own health.


NephKids

Visit the NephKids site to learn how to subscribe to a doctor-moderated email support group for parents of children or teens who have kidney disease. This site also contains kidney disease information and links to kidney disease resources.


Page Last Updated: September 16, 2004

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