Spina Bifida Association of America
  


Jenna Gerner is in the hospital.  Tonight her family stands vigil beside her tiny crib and waits.

Learn more about Jenna and how you can help her and others like her.

70,000 Americans live with spina bifida. What is it?
Paralysis, hydrocephalus (fluid on the brain), bladder and bowel control difficulties, learning disabilities, depression, latex allergy and social and sexual issues are all symptoms of spina bifida. The effects are different for every person.

What's Health Got to Do With It?  Dot Nary and Pam Dickens are adult health care professionals with spina bifida who know that health has a lot to do with it!  Learn their tips for making the most of your health.

Folic acid—The best hope for prevention.
Spina bifida is a birth defect that can happen to anyone.  Women who take 400 micrograms of folic acid every day before they become pregnant reduce their risk by as much as 70 percent.

Has your Representative signed on to the Congressional Spina Bifida Caucus?  Find out!
Send an email to urge your Member of Congress to join with the 40 others who have pledged bipartisan support to improve the lives of people with spina bifida.

Proper urological care needs to start young.  Parents need to know how.
Most children with spina bifida will be born with a normal upper urinary tract.  Keeping their renal system healthy takes care and knowledge.

Latex List 2004!
An allergy to latex can be life threatening for many people with spina bifida. Latex is found in such common things as rubber bands, band-aids and balloons. People rely on SBAA’s Latex List for the latest information on latex-free items. Available in PDF and MS Word formats.

SBAA’s new Research Agenda will pave the way for better health care.
The findings of the Evidence-Based Practice in Spina Bifida: Building a Research Agenda conference presents a solid, research-based plan to improve the lives of all those with spina bifida from children to adults. 

Give the Gift that
Keeps on Giving


Give a Book from SBAA


32nd Annual Conference
2005 Conference Logo 
June 26-29, 2005
Minneapolis, Minnesota
 

Securing the Future
A National Spina Bifida Research Agenda

Got a Minute?
got a minute?
Take a minute now to help your patients reduce their risk of spina bifida