Aging Issues
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Older people today are more visible, more active, and more independent than ever before. They are living longer and in better health. But as the population of older Americans grows, so does the hidden problem of elder abuse, exploitation, and neglect. Every year an estimated 2.1 million older Americans are victims of physical, psychological, or other forms of abuse and neglect. Those statistics may not tell the whole story. For every case of elder abuse and neglect that is reported to authorities, experts estimate that there may be as many as five cases that have not been reported. Recent research suggests that elders who have been abused tend to die earlier than those who are not abused, even in the absence of chronic conditions or life threatening disease. Agnes, 85 years old, lost her husband last year. Because of her own problems with arthritis and congestive heart failure, Agnes moved in with her 55-year-old daughter, Emily. The situation is difficult for all of them. Sometimes Emily feels as if she’s at the end of her rope, caring for her mother, worrying about her college-age son and about her husband, who is about to be forced into early retirement. Emily has caught herself calling her mother names and accusing her mother of ruining her life. Recently, she lost her temper and slapped her mother. In addition to feeling frightened and isolated, Agnes feels trapped and worthless. Like other forms of abuse, elder abuse is a complex problem, and it is easy for people to have misconceptions about it. Many people who hear "elder abuse and neglect" think about older people living in nursing homes or about elderly relatives who live all alone and never have visitors. But elder abuse is not just a problem of older people living on the margins of our everyday life. It is right in our midst:
Elder abuse, like other forms of violence, is never an acceptable response to any problem or situation, however stressful. Effective interventions can prevent or stop elder abuse. By increasing awareness among physicians, mental health professionals, home health care workers, and others who provide services to the elderly and family members, patterns of abuse or neglect can be broken, and both the abused person and the abuser can receive needed help. What Is Elder Abuse?
Madeline is 75 and suffers from congestive heart failure. She lives alone, with home health nurses and nurses’ aides coming in daily to provide nursing care and personal assistance. She depends on the home health agency’s personal assistant to help her with the routine tasks around the house and to provide interaction with someone from the outside world. At first, the assistant was sweet to Madeline, but lately, the assistant has started ignoring Madeline’s requests, snapping at her, and bumping into her with the vacuum cleaner or dusting brush while cleaning. Madeline thinks the assistant is bumping her on purpose, but she doesn’t know for sure, and she’s afraid to confront her.
Sometimes older adults harm themselves through self-neglect (e.g., not eating, not going to the doctor for needed care) or because of alcohol or drug abuse. In this pamphlet, the focus is on elder abuse that is perpetrated by others. However, one of the most difficult problems family members face is achieving a balance between respecting an older adult’s autonomy and intervening before self-neglect becomes dangerous. Older adults who show signs of dementia may become abusive as part of the disease process, and the object of the abuse may be another older adult, for example, a spouse who is caring for the impaired elder. The abuse may take the form of hitting or gripping the caregiver to the extent of causing bruises, or creating hazards such as setting furniture on fire. Although the behavior can be explained by the impairment, it is still unacceptable. Importantly, while abuse comes in many guises, the net effect is the same. Abuse creates potentially dangerous situations and feelings of worthlessness, and it isolates the older person from people who can help.
Physical Abuse
Emotional/Psychological Abuse
Sexual Abuse
Financial Abuse or Exploitation
Neglect
Why Does Elder Abuse Happen?
Family Situations and Elder Abuse Family situations that can contribute to elder abuse include discord in the family created by the older person’s presence, a history and pattern of violent interactions within the family, social isolation or the stresses on one or more family members who care for the older adult, and lack of knowledge or caregiving skills. Intergenerational and marital violence can persist into old age and become factors in elder abuse. In some instances, elder abuse is simply a continuation of abuse that has been occurring in the family over many years. If a woman has been abused during a 50-year marriage, she is not likely to report abuse when she is very old and in poor health. Sometimes, a woman who has been abused for years may turn her rage on her husband when his health fails. If there has been a history of violence in the family, an adult child may take the opportunity to "turn the tables" on the abusing parent by withholding nourishment or by overmedicating the parent. But that doesn’t have to be the case—many adult children who were badly treated by their parents become attentive caregivers. Family stress is another factor that can trigger elder abuse. When a frail or disabled older parent moves into a family member’s home, the lifestyle adjustments and accommodations can be staggering. In some instances, the financial burdens of paying for health care for an aging parent or living in overcrowded quarters can lead to stress that can trigger elder abuse. Such a situation can be especially difficult when the adult child has no financial resources other than those of the aging parent. Sometimes, there may be marital stress between an older couple when they must share a home with their adult children. Or, the new living arrangements could cause tension between an adult child and his or her spouse. When problems and stress mount, the potential for abuse or neglect increases. Social isolation can provide a clue that a family may be in trouble, and it also can be a risk factor for abuse. Social isolation can be a strategy for keeping abuse secret, or it can be a result of the stresses of caring for a dependent older family member. Isolation is dangerous because it cuts off family members from outside help and support they need to cope with the stresses of caregiving. Isolation also makes it harder for outsiders to see and intervene in a volatile or abusive situation to protect the older person and to offer help to the abuser. Caregiver Issues and Elder Abuse Personal problems of the caregiver that can lead to abusing a frail older person include caregiver stress, mental or emotional illness, addiction to alcohol or other drugs, job loss or other personal crises, financial dependency on the older person, a tendency to use violence to solve problems. Sometimes the person being cared for may be physically abusive to the caregiver, especially when the older person has Alzheimer’s or another form of dementia. Caregiver stress is a significant risk factor for abuse and neglect. When caregivers are thrust into the demands of daily care for an elder without appropriate training and without information about how to balance the needs of the older person with their own needs, they frequently experience intense frustration and anger that can lead to a range of abusive behaviors. The risk of elder abuse becomes even greater when the caregiver is responsible for an older person who is sick or is physically or mentally impaired. Caregivers in such stressful situations often feel trapped and hopeless and are unaware of available resources and assistance. If they have no skills for managing difficult behaviors, caregivers can find themselves using physical force. Particularly with a lack of resources, neglectful situations can arise. Sometimes the caregiver’s own self-image as a "dutiful child" may compound the problem by causing them to feel that the older person deserves and wants only their care, and that considering respite or residential care is a betrayal of the older person’s trust. Dependency is a contributing factor in elder abuse. When the caregiver is dependent financially on an impaired older person, there may be financial exploitation or abuse. When the reverse is true, and the impaired older person is completely dependent on the caregiver, the caregiver may experience resentment that leads to abusive behavior. James is a financially secure 90-year-old man who has been healthy and active until the last year. He has finally agreed to move in with his oldest daughter, Lorraine, who now believes her father "owes her" more of his money than her brother and two sisters are entitled to. She talks her father into giving her power of attorney for his bank accounts "as a convenience," then writes herself large checks that she tells herself are for "expenses." Soon she has come up with excuses to transfer a significant portion of his investment holdings into her name. James has no energy to oversee his finances and is totally trusting that his daughter has his best interests at heart. Emotional and psychological problems of the caregiver can put the caregiver at risk for abusing an older person in their care. A caregiver who is addicted to drugs or alcohol is more likely to become an abuser than one who does not have these problems. Indeed, caregiving can lead to greater use of alcohol, in an attempt to mange stress. Also, a caregiver with an emotional or personality disorder may be unable to control his or her impulses when feeling angry or resentful of the older person. Cultural Issues and Elder Abuse
Lack of respect for the elderly may contribute to violence against older people. When older people are regarded as disposable, society fails to recognize the importance of assuring dignified, supportive, and nonabusive life circumstances for every older person. The idea that what happens at home is "private" can be a major factor in keeping an older person locked in an abusive situation. Those outside the family who observe or suspect abuse or neglect may fail to intervene because they believe "it’s a family problem and none of my business" or because they are afraid they are misinterpreting a private quarrel. Shame and embarrassment often make it difficult for older persons to reveal abuse. They don’t want others to know that such events occur in their families. Religious or ethical belief systems sometimes allow for mistreatment of family members, especially women. Those who participate in these behaviors do not consider them abusive. In some cultures, women’s basic rights are not honored, and older women in these cultures may not realize they are being abused. They probably could not call for help outside the family and may not even know that help is available. How Can We Prevent Elder Abuse?The first and most important step toward preventing elder abuse is to recognize that no one—of whatever age—should be subjected to violent, abusive, humiliating, or neglectful behavior. In addition to promoting this social attitude, positive steps include educating people about elder abuse, increasing the availability of respite care, promoting increased social contact and support for families with dependent older adults, and encouraging counseling and treatment to cope with personal and family problems that contribute to abuse. Violence, abuse, and neglect toward elders are signs that the people involved need help—immediately. Education is the cornerstone of preventing elder abuse. Media coverage of abuse in nursing homes has made the public knowledgeable about—and outraged against—abusive treatment in those settings. Because most abuse occurs in the home by family members or caregivers, there needs to be a concerted effort to educate the public about the special needs and problems of the elderly and about the risk factors for abuse. Respite care—having someone else care for the elder, even for a few hours each week—is essential in reducing caregiver stress, a major contributing factor in elder abuse. Every caregiver needs time alone, free from the worry and responsibility of looking after someone else’s needs. Respite care is especially important for caregivers of people suffering from Alzheimer’s or other forms of dementia or of elders who are severely disabled. Social contact and support can be a boon to the elderly and to the family members and caregivers as well. When other people are part of the social circle, tensions are less likely to reach unmanageable levels. Having other people to talk to is an important part of relieving tensions. Many times, families in similar circumstances can band together to share solutions and provide informal respite for each other. In addition, when there is a larger social circle, abuse is less likely to go unnoticed. Isolation of elders increases the probability of abuse, and it may even be a sign that abuse is occurring. Sometimes abusers will threaten to keep people away from the older person. Counseling for behavioral or personal problems in the family can play a significant role in helping people change lifelong patterns of behavior or find solutions to problems emerging from current stresses. If there is a substance abuse problem in the family, treatment is the first step in preventing violence against the older family member. In some instances, it may be in the best interest of the older person to move him or her to a different, safer setting. In some cases, a nursing home might be preferable to living with children who are not equipped emotionally or physically to handle the responsibility. Even in situations where it is difficult to tell whether abuse has really occurred, counseling can be helpful in alleviating stress. What You Can Do About Elder AbuseIf you suspect that an older person is being abused or neglected...
Do not put the older person in a more vulnerable position by confronting the abuser yourself unless you have the victim’s permission and are in a position to help the victim immediately by moving him or her to a safe place. If you feel you are being abused or neglected... Your personal safety is most important. If you can safely talk to someone about the abuse (such as your doctor, a trusted friend, or member of the clergy) who can remove you from the situation or find help for the abuser, do so at once. If your abuser is threatening you with greater abuse if you tell anyone, and if the abuser refuses to leave you alone in a room with others who could help, you are probably afraid to let anyone know what is happening to you. A good strategy is to let your physician know about the abuse. The physician has a legal obligation to report the abuser and to help you find safety. If you are able to make phone calls, you can call protective services or a trusted friend who can help you find safety and also find help for the person who is abusing you. If you feel you have been abusive or are in danger of abusing an older person in your care... There is help available if you have been abusive to an older person or if you feel you want to hurt someone you are caring for. The solution may be to find ways of giving yourself a break and relieving the tension of having total responsibility for an older person who is completely dependent on you. There are many local respite or adult day care programs to help you. If you recognize that abuse, neglect, or violence is a way you often solve problems, you will need expert help to break old patterns. There is help and hope for you, but you must take the first step as soon as possible. You can learn new ways of relating that are not abusive. You can change. Talk with someone who can help—a trusted friend or family member, a counselor, your pastor, priest, or rabbi. If alcohol or drugs are a problem, consider contacting Alcoholics Anonymous or some other self-help group. Therapists specialize in helping people change destructive behaviors; to find a competent therapist, ask your physician or your health plan for a recommendation. If you cannot afford private therapy, call your city or state mental health services department to find out what your options are. The most important thing for you is to be honest—with yourself and with those who want to help you—about your history of violent behavior and about your abusive relationship with the older person. Someone’s life—and your own—may depend on it. Where To Go for HelpNational Center on Elder Abuse NCEA is a resource for public and private agencies, professionals, service providers, and individuals interested in elder abuse prevention information, training, technical assistance, and research. Eldercare Locator is sponsored by the Administration on
Aging (AoA). If you know the address and ZIP code of the older person being
abused, Eldercare Locator can refer you to the appropriate agency in the area to
report the suspected abuse. Area Agency on Aging Medicaid Fraud Control Units (MFCU) Adult Protective Services National Domestic Violence Hotline ReferencesThe National Elder Abuse Incidence Study. (1998). U.S. Department of Health and Human Services, Administration on Aging (www.aoa.dhhs.gov/abuse/report/default.htm). Diagnostic and Treatment Guidelines on Elder Abuse and Neglect. American Medical Association. A Profile of Older Americans. (1998). American Association of Retired Persons (AARP) and the Administration on Aging, (www.aoa.gov/aoa/stats/profile/default.htm). Understanding and Combating Elder Abuse in Minority Communities. (1998). Archstone Foundation and the National Center on Elder Abuse. Domestic Mistreatment of the Elderly: Toward Prevention. AARP. About
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