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| Current Bibliographies in Medicine | |
Current Bibliographies in Medicine 2000-7
Health Risk Communication
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Table of Contents Series Note PDF Version of This CBM Sample Citations Introduction Bibliography: Overview, Background, and History Global Issues and Cultural Diversity Public Understanding of Science Models, Techniques, and Strategies of Risk Communication Government and Other Agency Role in Risk Communication Subject Specific Issues in Risk Communication |
January 1990 through October 2000, plus selected earlier citations 847 Citations Prepared by 2000 October U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES National Library of Medicine Each bibliography in the Current Bibliographies in Medicine (CBM) series covers a distinct subject area of biomedicine and is intended to fulfill a current awareness function. Citations are usually derived from searching a variety of online databases. NLM databases utilized include MEDLINE®, BIOETHICSLINE®, HEALTHSTARTM, LocatorPlus® , POPLINETM, PubMed®, and TOXLINE®. The only criterion for the inclusion of a particular published work is its relevance to the topic being presented; the format, ownership, or location of the material is not considered. Other publications in the Current Bibliographies in Medicine series are available at no cost to anyone with Internet access through the Library's World Wide Web site at http://www.nlm.nih.gov/pubs/resources.html. Comments and suggestions on this series may be addressed to: Karen Patrias, Editor PubMed® and Internet Grateful Med® To make online searching easier and more efficient, the Library offers two user-friendly interfaces to its databases. Both PubMed and Internet Grateful Med are available from the World Wide Web. The user with Internet access need only point a compatible Web browser to the NLM Web site http://www.nlm.nih.gov. No other software at the user end is required. Searching through either PubMed or Internet Grateful Med is free-of-charge. Further information on both PubMed and Internet Grateful Med may be found at the NLM Web site given above. For those users without access to the World Wide Web, please contact the Library's Customer Service Desk at 1-888-FINDNLM (301-594-5983 international) or send e-mail for information on alternative ways to search. Beginning with the 2000 CBMs, two formats are offered: HyperText Markup Language (HTML) and Portable Document Format (PDF). PDF documents require the use of the Adobe® Acrobat® Reader, which can be downloaded from Adobe's Web site at no charge. The PDF version of this CBM can be downloaded directly from http://www.nlm.nih.gov/pubs/cbm/health_risk_communication.pdf. Citations are formatted according to the rules established for Index Medicus®*. Sample journal and monograph citations appear below. For journal articles written in a foreign language, the English translation of the title is placed in brackets; for monographs, the title is given in the original language. In both cases the language of publication is shown by a three letter abbreviation appearing at the end of the citation. Note also for journal articles that an availability statement follows many citations. This statement contains the Internet address for the citation in the NLM PubMed® retrieval system. The PubMed record includes an abstract for most articles and may also provide a link to the publisher's Internet site. Journal Article: Example: Order, with separating punctuation: Monograph: Example: Order, with separating punctuation: * For details of the formats used for references, see the following publication: Patrias, Karen. National Library of Medicine recommended formats for bibliographic citation. Bethesda (MD): The Library; 1991 Apr. Available from: NTIS, Springfield, VA; PB91-182030. |
Health Risk Communication
There are many challenges in how we communicate risk, especially risks to health. Few areas continue to stir debate more than advances in medicine and biotechnology. Stem cell research, vaccine development, and genomic manipulation are but a few of the areas under recent attack. Even public health successes that have decreased morbidity and mortality--such as vaccination, air bags, and fluoridation--have been surrounded by controversy. Scientific and health literacy require understanding, but the incremental and imprecise nature of science and experimentation that contribute to defining risk thrives on doubts, criticism, and debate, which often translate into only theoretical causality and "risk." Furthermore, scientifically valid information is not absolute and may change over time. Translating theoretical (imprecise and incomplete) and changing knowledge of causality and risk has developed into its own body of knowledge called "risk communication." According to a 1996 National Research Council report* risk communication "emphasizes the process of exchanging information and opinion with the public."
Recognizing the challenges to health progress that lie in the communication process, not in the laboratory, we created this issue for the Current Bibliographies in Medicine (CBM) series. Our overarching goal was to identify a body of published knowledge relating to risk communication from multiple perspectives. This bibliography was also developed to complement the presentations at the International Symposium on Health Risk Communication: Uncertainty, Stakeholders, and Public Health Action held on November 1-3, 2000 in Bethesda, Maryland. The Symposium was sponsored by the Subcommittees on Risk Communication and Education and International Health of the US Department of Health and Human Services Environmental Health Policy Committee. Citations for the bibliography were gathered from sources including, but not limited to, bibliographic databases, online catalogs, the Internet, and printed publications. Single words ("risk" and "communication") and the phrase "risk communication" were used to search electronically. The contents of some journals were also searched and reviewed in print or electronically. From the 4,000 bibliographic citations located through these sources, English language publications about risk communication were selected which focus primarily on risk communication of scientific information rather than on risk assessment, risk management, risk factors, risk behavior, risk taking, decision making, hazard communication, duty to warn/informed consent, or other dimensions of communicating about health risks. Similarly, this publication does not focus on health interventions, health education, health promotion, or advertising, although these are important topics in the overall picture of how scientific risks are communicated to the public. The scholarship in each of these other subjects alone is far greater than could be represented here. Our concern for this bibliography is with the presentation of scientific risk information; the strategies, tactics, and models that are used to communicate scientific risk information to an audience; and the difficulty of translating scientific knowledge in a meaningful way to enable the public to make informed health decisions.
In the efforts to meet the challenges imposed by scientific progress, perhaps this CBM can help to advance a common lexicon for health literacy, risk comprehension, and public health priorities. Use of such terms such as "infinitesimal" and "probable" in defining risk place a great responsibility on those who determine what information is valuable and salient for their audience. A high ethical standard has thus become necessary for the purveyors of health--whether they are in academia, marketing, publishing, (new) media, or other fields of public address. To facilitate optimal decision making, finding ways to increase the quality of information becomes more important than increasing the quantity of information. Ideally, this CBM and the symposium it supports will contribute to the body of communication knowledge that advances salient, valuable, factual, and ethical risk information.
The compilers wish to thank Dorothy Moore of the Specialized Information Services Division, NLM, for her valuable assistance in the production of this bibliography.
This publication is not copyrighted and may be freely reproduced. However any reproductions of this bibliography, in whole or in part, should include all credits. If you wish to cite this bibliography, the correct format is:
Zorn, Marcia; Ratzan, Scott, compilers. Health risk communication [bibliography on the Internet]. Bethesda (MD): National Library of Medicine (US); 2000 Oct [insert cited year month day in brackets]. [insert no. of screens or lines in brackets]. (Current bibliographies in medicine; no. 2000-7). 847 citations from January 1990 through October 2000, plus selected earlier citations. Available from: http://www.nlm.nih.gov/pubs/resources.html.
* Stern, Paul C.; Fienberg, Harvey V., editors. Understanding risk: informing decisions in a democratic society. Washington (DC): National Research Council, Committee on Risk Characterization; 1996. p. 27
Overview, Background, and History
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Brehmer B, Sahlin N, editors. Future risks and risk management. Boston (MA): Kluwer Academic Publishers; 1994. 251 p. (Technology, risk, and society; 9).
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Cottle S. Ulrich Beck, 'risk society' and the media - a catastrophic view? Eur J Commun 1998 Mar;13(1):5-32.
Covello V, Allen F. Seven cardinal rules of risk communication. Washington (DC): Environmental Protection Agency (US); 1988.
Covello VT, McCallum DB, Pavlova MT, editors. Effective risk communication: the role and responsibility of government and nongovernment organizations. New York (NY): Plenum; 1989. 370 p. Workshop on the Role of Government in Health Risk Communication and Public Education, held January 21-23, 1987 in Washington, D.C., sponsored by the Task Force on Environmental Cancer and Heart and Lung Disease. (Contemporary issues in risk analysis; vol. 4).
Davies CJ, Covello VT, Allen FW, editors. Risk communication: proceedings of the national conference. Washington (DC): The Conservation Foundation; 1987.
Department of Health and Human Services (US), PHS Environmental Health Policy Committee, Subcommittee on Risk Communication and Education. Recommendations to improve health risk communication: a report on case studies in health risk communication [monograph on the Internet]. Washington (DC): The Department; 1994 Nov [modified 1999 Oct 8; cited 2000 Sep 25]. Available from: http://www.health.gov/environment/Recomm/reportTOC.htm
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Fischoff B. Risk: a guide to controversy. In: National Research Council (US). Report of the Committee on Risk Perception and Communication, Commission on Social Sciences and Education. Washington (DC): The Council; 1989. p. 211-319.
Fisher A. Risk communication challenges. Risk Anal 1991 Jun;11(2):173-9.
Fong GT, Rempel LA, Hall PA. Challenges to improving health risk communication in the 21st century: a discussion. J Natl Cancer Inst Monogr 1999;(25):173-6. Fulltext at http://jncimonographs.oupjournals.org/cgi/content/full/1999/25/173. Available from: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db;=PubMed&list;_uids=10854475&dopt;=Abstract
Freire-Maia A. Nuclear and other risks: evaluation on their acceptability. Interciencia 1997;22(5):264-8.
Garrick BJ, Gekler WC. The analysis, communication, and perception of risk. Proceedings of the Annual Meeting of the Society for Risk Analysis; 1989 Oct 29-Nov 1; San Francisco. New York (NY): Plenum Press; 1991. 713 p. (Advances in risk analysis; 9).
Garvey WD, Griffith BC. Scientific communication as a social system. The exchange of information on research evolves predictably and can be experimentally modified. Science 1967 Sep 1;157(792):1011-6. Available from: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db;=PubMed&list;_uids=6036230&dopt;=Abstract
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Global Issues and Cultural Diversity
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Subject Specific Issues in Risk Communication
Medical Risk
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Bostrom A. Vaccine risk communication: lessons from risk perception, decision making and environmental risk communication research. Risk [serial on the Internet] 1997 Spring [cited 2000 Sep 25];8:173 passim [20 screens]. Based in part on a May 1996 presentation at the Vaccine Safety Forum workshop, Institute of Medicine. Available from: http://www.fplc.edu/RISK/vol8/spring/bostrom.htm
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Brown J, Chapman S, Lupton D. Infinitesimal risk as public health crisis: news media coverage of a doctor-patient HIV contact tracing investigation. Soc Sci Med 1996 Dec;43(12):1685-95. Available from: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db;=PubMed&list;_uids=8961412&dopt;=Abstract
Brown P. The risk of bovine spongiform encephalopathy ('mad cow disease') to human health. JAMA 1997 Sep 24;278(12):1008-11. Available from: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db;=PubMed&list;_uids=9307349&dopt;=Abstract
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Buetow S, Cantrill J, Sibbald B. Risk communication in the patient-health professional relationship. Health Care Anal 1998 Sep;6(3):261-8. Available from: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db;=PubMed&list;_uids=10185178&dopt;=Abstract
Cancer Risk Communication: What We Know and What We Need to Learn. December 10-11, 1998. J Natl Cancer Inst Monogr 1999;(25):1-185. Available from: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db;=PubMed&list;_uids=10854446&dopt;=Abstract
Chatterton HT. Efficacy, risk, and the determination of value: shared medical decision making in the age of information [editorial]. J Fam Pract 1999 Jul;48(7):505-7. Available from: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db;=PubMed&list;_uids=10428246&dopt;=Abstract
Chen RT, Hibbs B. Vaccine safety: current and future challenges. Pediatr Ann 1998 Jul;27(7):445-55. Fulltext at: http://www.cdc.gov/nip/vacsafe/research/peds.htm. Available from: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db;=PubMed&list;_uids=9677616&dopt;=Abstract
Conway JJ. Communicating risk information in medical practice. Radiographics 1992 Jan;12(1):207-14. Available from: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db;=PubMed&list;_uids=1734476&dopt;=Abstract
Croyle RT, Lerman C. Risk communication in genetic testing for cancer susceptibility. J Natl Cancer Inst Monogr 1999;(25):59-66. Fulltext at http://jncimonographs.oupjournals.org/cgi/content/full/1999/25/59. Available from: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db;=PubMed&list;_uids=10854459&dopt;=Abstract
Dayan AD. Risk assessment and risk communication. Drugs Pharm Sci 2000;103:305-20.
Dearfield KL. Information requirements and regulatory approaches for heritable genetic risk assessment and risk communication. Mutat Res 1995 Aug;330(1-2):35-40. Available from: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db;=PubMed&list;_uids=7623869&dopt;=Abstract
Donohoe KJ, Brill AB, Brill DR, Conway JJ, Silberstein EB, Whipple C. How to be an effective risk communicator [news]. J Nucl Med 1996 Jul;37(7):20N-22N. Available from: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db;=PubMed&list;_uids=8965215&dopt;=Abstract
Donohoe KJ, Brill AB, Brill DR, Conway JJ, Silberstein EB, Whipple C. How to be an effective risk communicator--Part 1 [news]. J Nucl Med 1996 Jun;37(6):23N-26N. Available from: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db;=PubMed&list;_uids=8683303&dopt;=Abstract
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Earle TC, Cvetkovich G. Risk judgment, risk communication and conflict management. In: Brehmer B, Joyce CR, et al., editors. Human judgment: The SJT view. Amsterdam (Netherlands): North-Holland; 1988. p. 361-400. (Advances in psychology; 54).
Edwards A, Elwyn G. How should effectiveness of risk communication to aid patients' decisions be judged? A review of the literature. Med Decis Making 1999 Oct-Dec;19(4):428-34. Comment in: Med Decis Making 1999 Oct-Dec;19(4):504-5. Available from: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db;=PubMed&list;_uids=10520681&dopt;=Abstract
Edwards A, Hood K, Matthews E, Russell D, Russell I, Barker J, Bloor M, Burnard P, Covey J, Pill R, Wilkinson C, Stott N. The effectiveness of one-to-one risks-communication interventions in health care: a systematic review . Med Decis Making 2000 Jul-Sep;20(3):290-7. Available from: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db;=PubMed&list;_uids=10929851&dopt;=Abstract
Edwards A, Matthews E, Pill R, Bloor M. Communication about risk: diversity among primary care professionals. Fam Pract 1998 Aug;15(4):296-300. Available from: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db;=PubMed&list;_uids=9792343&dopt;=Abstract
Edwards A, Matthews E, Pill R, Bloor M. Communication about risk: the responses of primary care professionals to standardizing the 'language of risk' and communication tools. Fam Pract 1998 Aug;15(4):301-7. Available from: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db;=PubMed&list;_uids=9792344&dopt;=Abstract
Edwards A, Pill R, Stott N. Communicating risk. Use of standard terms is unlikely to result in standard communication [letter]. BMJ 1996 Dec 7;313(7070):1483. Comment on: BMJ 1996 Sep 28;313(7060):799-802. Available from: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db;=PubMed&list;_uids=8973257&dopt;=Abstract
Edwards A, Prior L. Communication about risk--dilemmas for general practitioners. The Department of General Practice Working Group, University of Wales College of Medicine. Br J Gen Pract 1997 Nov;47(424):739-42. Available from: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db;=PubMed&list;_uids=9519524&dopt;=Abstract
Edwards IR, Hugman B. The challenge of effectively communicating risk-benefit information. Drug Saf 1997 Oct;17(4):216-27. Available from: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db;=PubMed&list;_uids=9352958&dopt;=Abstract
Eiser JR. Communication and interpretation of risk. Br Med Bull 1998;54(4):779-90. Available from: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db;=PubMed&list;_uids=10367414&dopt;=Abstract
Elwyn G, Gray J, Clarke A. Shared decision making and non-directiveness in genetic counselling. J Med Genet 2000 Feb;37(2):135-8. Available from: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db;=PubMed&list;_uids=10662816&dopt;=Abstract
Environmental Protection Agency (US), Office of Toxic Substances, Economics and Technology Division. Toxics in the community: national and local perspectives. Washington (DC): The Agency; 1990.
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Last updated: 15 December 2003
First published: 31 October 2000
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