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Most frequent inquiries are requests for general information on spinal cord injury and related topics such as current research information, information concerning consumer resources available. ASIA does not typically provide specific information in these areas but rather, when appropriate, offers information on where an individual might look to get the information they are seeking.
The following is a list of sources and web links, where available, for general information regarding spinal cord injury. As new sources are identified, they will be added to this list.
A National Database of Educational Resources on Spinal Cord Injury
Hard to find Information about nearly 600 resources on such topics as:
Overview of SCI
Medical Complications, e.g. pressure sores, bowel/bladder care
Coping with SCI- individual or family
Vocational Options
Sexuality
Environmental ModificationsCall or Write:
TIRR Library
RRTC in Community Integration for Individuals with SCI at Baylor College of Medicine
TIRR, D-112
1333 Moursund
Houston, TX 77030-3405
(phone) 713-797-5947
(fax) 713-797-5982
www.mscisdisseminationcenter.orgMEDLINEplus
www.nlm.nih.gov/medlineplusThe SCI Web
Special features available include: an alphabetical index of SCI-related terms to help search for specific information; table of contents with SCI topics arranged by categories; directory of SCI organizations; resaerch projects; surveys and more.
www.sci.rehabm.uab.eduFederation of Spine Associations (FOSA) www.aaos.org
Council of Musculoskeletal Societies (COMSS)
Web site for AAOS: www.aaos.orgAmerican Paraplegia Society (APS)
www.apssci.orgAmerican Academy of PM&R (AAPM&R)
www.aapmr.orgAmerican Board of Physical Medicine & Rehabilitation (ABPMR)
www.abpmr.orgCARF- The Rehabilitation Accreditation Commission
www.carf.orgModel Spinal Cord Injury System (MSCIS)
Web site for NIDRR - www.ed.gov/about/offices/list/osers/nidrr/index.htmlInternational Spinal Cord Society (ISCoS)
e-mail: admin@iscos.org.uk
www.iscos.org.uk
For information about the 2004 ISCoS meeting in Athens, Greece, go to: www.triaenatours.gr/iscos2004/National Spinal Cord Injury Association (NSCIA)
www.spinalcord.orgChristopher Reeve Paralysis Foundation
www.ChristopherReeve.orgChristopher and Dana Reeve Paralysis Resource Center
www.paralysis.orgSpinal Cord Injury Resource Center
www.spinalinjury.netParalyzed Veterans Of America
www.pva.orgEastern Paralyzed Veterans Associations
www.epva.orgFoundation for Spinal Cord Injury Prevention, Care & Cure (FSCIPCC)
www.fscip.orgNew Mobility
www.newmobility.comNational Rehabilitation Information Center
www.naric.comNational Library of Medicine
www.nlm.nih.govNational Organization on Disability
www.nod.orgNational Health Information Center
www.health.gov/nhic
www.healthfinder.govU.S. Department of Education,
National Institute on Disability and Rehabilitation Research
www.ed.govNational Statistical Center of the Model Spinal Cord Injury Care Systems
University of Alabama at Birmingham
www.spinalcord.uab.eduNational Center for the Dissemination of Disability Research (NCDDR)
www.ncddr.org
American Association of SCI Nurses
www.aascin.orgAmerican Association of SCI Psychologists and Social Workers
www.aascipsw.orgRehabilitation Research & Development for the Department of Veterans Affairs
www.vard.orgThe Bone and Joint Decade
www.usbjd.org
The Bone and Joint Decade's July 2003 Newsletter (requires Adobe Acrobat Reader, a free download) or read it online.Topics in Spinal Cord Injury Rehabilitation
www.thomasland.comOrthopaedic Research and Education Foundation
www.oref.orgAmerican Physical Therapy Association (APTA)
www.apta.orgAPTA Neurology Section
www.neuropt.org - Find information on the Special Interest Group here!North American Spine Society
www.spine.org/Research/ResearchProgram.cfm - NASS Research Grants and Fellowships ApplicationThe Miami Project to Cure Paralysis
www.themiamiproject.orgSpinal Cord Injury Association of Illinois
www.sci-illinois.orgModel SCI Systems Dissemination Center
www.mscisdisseminationcenter.orgSpinal Cord Injury Information Pages
www.sci-info-pages.comCareCure Community
carecure.rutgers.edu/spinewire/index.html
carecure.atinfopop.com/4/OpenTopic - Chat live with Wise Young, an ASIA member