Current Bibliographies in Medicine 2001-3

Health Communication and Follow-Through Related to Early Identification of Deafness and Hearing Loss in Newborns

Table of Contents

Series Note

PDF Version of This CBM

Sample Citation

Introduction

Bibliography:

Newborn Hearing Screening

Overview
Specific Tests and Screening Tools
False-Positive Findings and Other Screening Barriers
Health Communication and Health Education on Early Screening
Follow-Up Studies
Patient Compliance
Nontraditional Settings
State and Other Program Models
Standards and Recommendations

Treatments and Interventions after Screening in Infants and Children

Legal and Ethical Issues

Economic Issues

Educational and Psychosocial Issues

Registries, Organizations, and Web Sites

Health Communication

Medical Home for Children

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January 1990 through June 2001

633 Citations

Prepared by
Ronald L. Gordner, M.L.S., National Library of Medicine
Kathleen A. Shanahan, M.P.I.A., M.L.I.S., National Library of Medicine
Marin P. Allen, Ph.D., National Institute on Deafness and Other Communication Disorders
Shirley LaBella, M.H.R., National Institute on Deafness and Other Communication Disorders
Amy Donahue, Ph.D., National Institute on Deafness and Other Communication Disorders

2001 July

U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES
Public Health Service
National Institutes of Health

National Library of Medicine
Reference Section
8600 Rockville Pike
Bethesda, Maryland 20894

Series Note

Each bibliography in the Current Bibliographies in Medicine (CBM) series covers a distinct subject area of biomedicine and fulfills a current awareness function. Online databases and the Internet are the primary sources for citations in these bibliographies. Relevance to the subject is the only criterion for inclusion of works in a CBM; the format, ownership, or location of the material are not considered.

Other publications in the Current Bibliographies in Medicine series are available through the Library's World Wide Web site at http://www.nlm.nih.gov/pubs/resources.html.

Comments and suggestions on this series may be addressed to:

Karen Patrias, Editor
Current Bibliographies in Medicine
Reference Section
National Library of Medicine
Bethesda, MD 20894
Phone: 301-496-6097
E-mail: custserv@nlm.nih.gov

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Sample Citation

Citations are formatted according to the rules established for Index Medicus®*. Sample journal and monograph citations appear below. For journal articles written in a foreign language, the English translation of the title displays in brackets and the three letter abbreviation for the language of publication appears at the end of the citation.

Note also for journal articles than an availability statement follows many citations. This statement contains an Internet hyperlink to the citation in the NLM PubMed retrieval system. The PubMed record includes an abstract for most articles and may also provide a link to the publisher's Internet site.

Journal Article:

Example:
Borgstein BM, Raglan E. Parental awareness and the detection of hearing loss. Pediatr Rehabil 1998 Oct-Dec;2(4):165-72. Available from: PubMed; PMID 10048100

Order, with separating punctuation:
Authors. Article Title. Abbreviated Journal Title Date;Volume(Issue):Pages. Availability.

Monograph:

Example:
Roush J, editor. Screening for hearing loss and otitis media in children. San Diego (CA): Singular; 2001. 245 p.

Order, with separating punctuation:
Authors. Monograph Title. Place of Publication: Publisher; Date of Publication. Total Number of Pages.

* For details of the formats used for references, see the following publication: Patrias, Karen. National Library of Medicine recommended formats for bibliographic citation. Bethesda (MD): The Library; 1991 Apr. Available from: NTIS, Springfield, VA; PB91-182030.

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Introduction

Health Communication and Follow-Through Related to Early Identification of Deafness and Hearing Loss in Newborns

Approximately two out of every thousand infants are born deaf or with a hearing loss sufficient to affect his or her ability to acquire spoken language*. In addition one more child in every 1,000 will have a hearing loss before entering school. Recognizing that the optimal time for acquiring language, spoken or signed, is within the first years of life, legislators across the country, supported by the efforts of health and medical professionals, have enacted laws to screen infants either in the newborn nursery or within the first three months of life. The infants identified with deafness or hearing loss in the screening process are tested further and diagnosed, after which the appropriate intervention strategy should be begun before six months of life. The intervention strategy should also be based upon the needs of the individual child and the family. This return for further testing, diagnosis, and intervention is referred to as "follow-through." The intervention by six months is necessary in order to optimize educational and social outcomes for these children. However early results indicate that some families are not understanding the importance of follow-through and some messages are not being passed from professional to professional or family. This constitutes a health communication problem. Communicating the importance of follow-through after infant screening to professionals and families is a new area of inquiry for health communication professionals.

This bibliography was prepared in support of a working group on "Communicating Follow-Through to Insure the Best Outcomes for Children Who are Identified in the Newborn Nursery as Deaf or Hard of Hearing" held July 23, 2001 in Bethesda, MD by the National Institute on Deafness and Other Communication Disorders (NIDCD) Office of Health Communication and Public Liaison and the Hearing and Balance Section of the Division of Extramural Research of NIDCD. The conference will address several key questions related to how to ensure that children are not "lost to follow-up:" Who handles the baby from the time he/she is brought into the newborn nursery until the child is in an appropriate intervention program? What information do each of these individuals have and what information is needed? What are the local and practical issues surrounding decision-making? How does the system differ in urban, suburban, and rural environments as well as in differing cultural environments? What needs to be conveyed to the parents, and by whom? How and what do we communicate to pediatricians, family practice physicians, nurses, audiologists, state health officers, and information dissemination outlets? Who are the "others" who need to be considered? What are the current best practices in early infant deafness follow-through and in other programs that involve cooperation by parents for follow-up with infants and young children and their health care professionals? What are the barriers to follow-through and what contributes to successful follow-through?

This bibliography also emphasizes population studies and reviews the literature on health communication strategies, including compliance and follow-through pertaining to other childhood diseases and disorders as well as material on the medical home. Literature from the fields of audiology, speech-language pathology, otolaryngology, nursing, sociology, and ethics were searched in addition to the general medical literature. The bibliography further updates material from the National Institutes of Health Consensus Development Conference on Early Identification of Hearing Impairment in Infants and Young Children** held March 1-3, 1993 on the NIH campus in Bethesda, Maryland, and also includes selected older citations back to 1990. English language journal articles, books, book chapters, audiovisuals, technical reports, and Internet sites are presented. Citations are arranged alphabetically by author in each section.

This publication is not copyrighted and may be freely reproduced. However any reproductions of this bibliography, in whole or in part, should include all credits. If you wish to cite this bibliography, the correct format is:

Gordner, Ronald L.; Shanahan, Kathleen A.; Allen, Marin P.; LaBella, Shirley; Donahue, Amy, compilers. Health communication and follow-through related to early identification of deafness and hearing loss in newborns [bibliography on the Internet]. Bethesda (MD): National Library of Medicine (US); 2001 Jul [insert cited year month day in brackets]. [insert no. of screens or lines in brackets]. (Current bibliographies in medicine; no. 2001-3). 633 citations from January 1990 through June 2001. Available from: http://www.nlm.nih.gov/pubs/resources.html.

* Reports of prevalence from State programs:

Texas, 3.14 per 1,000:

Finitzo T, Albright K, O'Neal J. The newborn with hearing loss: detection in the nursery. Pediatrics 1998 Dec;102(6):1452-60.

Hawaii, 1.4 per 1,000:

Mason JA, Herrmann KR. Universal infant hearing screening by automated auditory brainstem response measurement. Pediatrics 1998 Feb;101(2):221-8.

New Jersey, 3.3 per 1,000:

Barsky-Firkser L, Sun S. Universal newborn hearing screenings: a three-year experience. Pediatrics 1997 Jun;99(6):E4. Table 1, Screening, failure, and identification rates; p. 5.

Colorado, 2.56 per 1,000:

The prevalence of permanent childhood hearing loss. Sound Ideas 1998 Jan 15;2(1):3. Figure 1, Rate per 1,000 of permanent childhood hearing loss in UHS programs; p. 3.

** Klein, Lori J.; Huerta, Lynn E., compilers. Early identification of hearing impairment in infants and young children [bibliography on the Internet]. Bethesda (MD): National Library of Medicine (US); 1992. (Current bibliographies in medicine; no. 92-10). 861 citations from January 1988 through December 1992. Available from: http://www.nlm.nih.gov/pubs/cbm/hearing.html

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Newborn Hearing Screening

- Overview

Albright K, Finitzo T. Early hearing detection and intervention programs. Neonatal Intensive Care 1998 May-Jun;11(3):15-6.

Albuquerque W, Kemp DT. The feasibility of hospital-based universal newborn hearing screening in the United Kingdom. Scand Audiol Suppl 2001;(53):22-8. Available from: PubMed; PMID 11409773

Apuzzo ML, Yoshinaga-Itano C. Early identification of infants with significant hearing loss and the Minnesota Child Development Inventory. Semin Hear 1995 May;16(2):124-39.

Bachmann KR, Arvedson JC. Early identification and intervention for children who are hearing impaired. Pediatr Rev 1998 May;19(5):155-65. Available from: PubMed; PMID 9584525

Bamford J, Davis A. Neonatal hearing screening: a step towards better services for children and families. Br J Audiol 1998 Feb;32(1):1-6. Available from: PubMed; PMID 9643301

Bamford J, Davis A, Boyle J, Law J, Chapman S, Stewart-Brown S, Sheldon T, Wilson P, Turner Boutle M, Sharp F. Pre-school hearing, speech, language and vision screening [Internet]. York (U.K.): University of York NHS Centre for Reviews and Dissemination; 1998. 12 p. (Effective health care; vol.4, no.2). Available from: http://www.york.ac.uk/inst/crd/ehcb.htm

Bassett C. Why don't clients follow my advice? Prof Care Mother Child 1996;6(6):150-1. Available from: PubMed; PMID 9077248

Bernstein ME, Morrison ME. Are we ready for PL 99-457? Am Ann Deaf 1992 Mar;137(1):7-13. Available from: PubMed; PMID 1605103

Bess FH, Dodd-Murphy J, Parker RA. Children with minimal sensorineural hearing loss: prevalence, educational performance, and functional status. Ear Hear 1998 Oct;19(5):339-54. Available from: PubMed; PMID 9796643

Brand HJ, Coetzer MA. Parental response to their child's hearing impairment. Psychol Rep 1994 Dec;75(3 Pt 1):1363-8. Available from: PubMed; PMID 7892406

Brasic JR, Will MV, Ahn SC, Nadrich RH, McNally G. A review of the literature and a preliminary study of family compliance in a developmental disabilities clinic. Psychol Rep 1998 Feb;82(1):275-86. Available from: PubMed; PMID 9520565

Brookhouser PE. Sensorineural hearing loss in children. Pediatr Clin North Am 1996 Dec;43(6):1195-216. Available from: PubMed; PMID 8973508

Butler KG. Hearing impairment and language disorders: assessment and intervention. Gaithersburg (MD): Aspen Publishers; 1994. 231 p. (Topics in language disorders series).

Byrne MR. Diversity within the deaf or hard of hearing population: Wisdom from seeing the whole. Early Child Dev Care 1998;147:55-70.

Christophersen ER, editor. Pediatric compliance: A guide for the primary care physician. New York : Plenum Medical Book Co/Plenum Publishing Corp; 1994. 475 p. (Critical issues in developmental and behavioral pediatrics).

Cone-Wesson B, Vohr BR, Sininger YS, Widen JE, Folsom RC, Gorga MP, Norton SJ. Identification of neonatal hearing impairment: infants with hearing loss. Ear Hear 2000 Oct;21(5):488-507. Available from: PubMed; PMID 11059706

Corley VM, Crabbe LS. Challenges to universal newborn hearing screening in a South Carolina Regional Medical Center. J S C Med Assoc 1999 Feb;95(2):68-70. Available from: PubMed; PMID 10048265

Cox LC, Toro MR. Evolution of a universal infant hearing screening program in an inner city hospital. Int J Pediatr Otorhinolaryngol 2001 Jun 14;59(2):99-104. Available from: PubMed; PMID 11378184

Culpepper B. Universal newborn hearing screening review. Curr Opin Otolaryngol Head Neck Surg 1998 Oct;6(5):346-1.

Daniels DE, Rene AA, Daniels VR. Race: an explanation of patient compliance--fact or fiction? J Natl Med Assoc 1994 Jan;86(1):20-5. Available from: PubMed; PMID 8151719

Data management for universal newborn hearing screening programs. Sound Ideas [serial on the Internet] 1997 Jul 1 [cited 2001 Jul 15];1(3):1, 3. Available from: http://www.infanthearing.org/newsletter/backissues/si_v1i3.pdf

Densham J. Health visitor screening for hearing loss: uptake, facilities and parents' views... part 2. Health Visit 1996 Nov;69(11):463-4.

Department of Health and Human Services (US), Maternal and Child Health Bureau, Division of Services for Children with Special Health Needs. Early identification of hearing loss: implementing universal newborn screening programs. Rockville (MD): The Division; [1998?]. 2 vols.

Diefendorf AO. Screening for hearing loss in infants. Volta Rev 1999 Nov;9(5):43-61.

Downs MP. Introduction: opening the door to early identification... Proceedings from the National Symposium on Hearing in Infants. Semin Hear 1999;20(4):255-7.

Drotar D, editor. Promoting adherence to medical treatment in chronic childhood illness: Concepts, methods, and interventions. Mahwah (NJ): Lawrence Erlbaum Associates, Inc., Publishers; 2000. 520 p.

Dunbar-Jacob J, Erlen JA, Schlenk EA, Ryan CM, Sereika SM, Doswell WM. Adherence in chronic disease. Annu Rev Nurs Res 2000;18:48-90. Available from: PubMed; PMID 10918932

Early identification of hearing impairment in infants and young children. NIH Consens Statement 1993 Mar 1-2;11(1):1-24. Available from: PubMed; PMID 8401641. Full text available from: http://odp.od.nih.gov/consensus/cons/092/092_statement.htm

Finitzo T, Crumley WG. The role of the pediatrician in hearing loss. From detection to connection. Pediatr Clin North Am 1999 Feb;46(1):15-34. Available from: PubMed; PMID 99179523

Finitzo T, et al. From advocacy to intervention: steps for successful establishment of universal infant hearing detection programs [audiocassette]. Rockville (MD): American Speech Language Hearing Association; 1997.

Finney JW, Hook RJ, Friman PC, Rapoff MA, Christophersen ER. The overestimation of adherence to pediatric medical regimens. Child Health Care 1993 Fall;22(4):297-304. Available from: PubMed; PMID 10130540

Flores G, Vega LR. Barriers to health care access for Latino children: a review. Fam Med 1998 Mar;30(3):196-205. Available from: PubMed; PMID 9532442

Flynn MF. Protection motivation theory, ambiguity, and adherence to medical treatment regimens. Tuscaloosa (AL): University of Alabama; 1991. 178 p.

Fotheringham MJ, Sawyer MG. Adherence to recommended medical regimens in childhood and adolescence. J Paediatr Child Health 1995 Apr;31(2):72-8. Available from: PubMed; PMID 7794628

Fowler KB, Dahle AJ, Boppana SB, Pass RF. Newborn hearing screening: will children with hearing loss caused by congenital cytomegalovirus infection be missed? J Pediatr 1999 Jul;135(1):60-4. Available from: PubMed; PMID 10393605

Freeman R. The psychology of dental patient care. 10. Strategies for motivating the non-compliant patient. Br Dent J 1999 Sep 25;187(6):307-12. Available from: PubMed; PMID 10589134

Fujikawa S, Yoshinaga-Itano C. Current status of universal newborn hearing screening. Curr Opin Otolaryngol Head Neck Surg 2000 Oct;8(5):404-8.

Gore P, Madhavan S, Curry D, McClung G, Castiglia M, Rosenbluth SA, Smego RA. Predictors of childhood immunization completion in a rural population. Soc Sci Med 1999 Apr;48(8):1011-27. Available from: PubMed; PMID 10390041

Gore P, Madhavan S, Curry D, McClurg G, Castiglia M, Rosenbluth SA, Smego RA. Persuasive messages. Development of persuasive messages may help increase mothers' compliance of their children's immunization schedule. Mark Health Serv 1998 Winter;18(4):32-43. Available from: PubMed; PMID 10339084

Gorga MP, Preissler K, Simmons J, Walker L, Hoover B. Some issues relevant to establishing a universal newborn hearing screening program. J Am Acad Audiol 2001 Feb;12(2):101-12. Available from: PubMed; PMID 11261458

Hall JW 3rd. Screening for and assessment of infant hearing impairment. J Perinatol 2000 Dec;20(8 Pt 2):S113-21. Available from: PubMed; PMID 21031364

Harrison M, Roush J. Age of suspicion, identification, and intervention for infants and young children with hearing loss: a national study. Ear Hear 1996 Feb;17(1):55-62. Available from: PubMed; PMID 8741968

Hayes D. Newborn hearing screening: selected experience in the United States. Scand Audiol Suppl 2001;(53):29-32. Available from: PubMed; PMID 11409774

Hayes D, Downs MP. Counterpoint: value of UNHS is priceless. Hear J 2000 Nov;53(11):61-2, 64-6.

Holcomb TK. Early intervention/late results: the need to "depathologize" the service model... Proceedings from the National Symposium on Hearing in Infants. Semin Hear 1999;20(4):269-77, 337-8.

Iannotti RJ, Bush PJ. Toward a developmental theory of compliance. In: Krasnegor NA, Epstein LH, et al., editors. Developmental aspects of health compliance behavior. Hillsdale (NJ): Lawrence Erlbaum Associates, Inc.; 1993. p. 59-76.

Jacobson CA, Jacobson JT. Follow-up services in newborn hearing screening programs. J Am Acad Audiol 1990 Oct;1(4):181-6. Available from: PubMed; PMID 2132602

Kennedy CR. Neonatal screening for hearing impairment. Arch Dis Child 2000 Nov;83(5):377-83. Available from: PubMed; PMID 20496708

Kileny PR, Jacobson GJ. Point: is UNHS worth the cost? Hear J 2000 Nov;53(11):61-2, 64-7.

Klein L, Huerta LE, compilers. Early identification of hearing impairment in infants and young children [bibliography on the Internet]. Bethesda (MD): National Library of Medicine (US); 1992 [cited 2001 Jul 5]. 48 p. (Current bibliographies in medicine; no. 92-10). 861 citations from January 1988 through December 1992. Available from: http://www.nlm.nih.gov/pubs/cbm/hearing.html

Kuchler-O' Shea R, Kritikos EP, Kahn JV. Factors influencing attendance of children in an early intervention program. Infant Toddler Interv 1999 Mar;9(1):61-8.

La Greca AM. Issues in adherence with pediatric regimens. J Pediatr Psychol 1990 Aug;15(4):423-36. Available from: PubMed; PMID 2258792

La Greca AM, Schuman WB. Adherence to prescribed medical regimens. In: Roberts MC, editor. Handbook of pediatric psychology. 2nd ed. New York: The Guilford Press; 1995. p. 55-83.

Lask B. Understanding and managing poor adherence in cystic fibrosis. Pediatr Pulmonol Suppl 1997;16:260-1. Available from: PubMed; PMID 9443303

Leickly FE, Wade SL, Crain E, Kruszon-Moran D, Wright EC, Evans R. Self-reported adherence, management behavior, and barriers to care after an emergency department visit by inner city children with asthma. Pediatrics 1998 May;101(5):E8. Available from: PubMed; PMID 9565441

Lundquist LM, Hansen DJ. Enhancing treatment adherence, social validity, and generalization of parent-training interventions with physically abusive and neglectful families. In: Lutzker JR, editor. Handbook of child abuse research and treatment. Issues in clinical child psychology. New York: Plenum Press; 1998. p. 449-71.

Magnuson M, Hergils L. The parents' view on hearing screening in newborns. Feelings, thoughts and opinions on otoacoustic emissions screening. Scand Audiol 1999;28(1):47-56. Available from: PubMed; PMID 10207956

Marlowe JA. The risk management perspective of the universal detection of hearing loss in newborns. Am J Audiol 1997 Nov;6(3):100-2.

Mauk GW, Barringer DG, Mauk PP. Seizing the moment, setting the stage, and serving the future: toward collaborative models of early identification and early intervention services for children born with hearing loss and their families, part II: follow-up and early intervention. Infant Toddler Interv Transdiscip J 1996 Mar;6(1):17-38.

Mauk GW, Barringer DG, Mauk PP. Seizing the moment, setting the stage, and serving the future: toward collaborative models of early identification and early intervention services for children born with hearing loss and their families -- part I: early identification of hearing loss. Infant Toddler Interv Transdiscip J 1995 Dec;5(4):367-93.

Mauk GW, White KR. Giving children a sound beginning: the promise of universal newborn hearing screening. Volta Rev 1995 Winter;97(1):5-32.

MRC Institute of Hearing Research. M. R. C. = Multi centre Otitis Media Study Group. Influence of age, type of audiometry and child's concentration on hearing thresholds. Br J Audiol 2000 Aug;34(4):231-40.

National Center for Hearing Assessment and Management. Universal newborn hearing screening [videocassette]. Logan (UT): The Center; 1997. 1 videocassette: 43 min., color, 1/2 in.

Nekahm D, Weichbold V, Welzl-Mueller K, Hirst-Stadlmann A. Improvement in early detection of congenital hearing impairment due to universal newborn hearing screening. Int J Pediatr Otorhinolaryngol 2001 May 31;59(1):23-28. Available from: PubMed; PMID 11376815

Newborn hearing screening expanding rapidly in Europe. Sound Ideas [serial on the Internet] 1997 Oct 1 [cited 2001 Jul 15];1(4):2, 6. Available from: http://www.infanthearing.org/newsletter/backissues/si_v1i4.pdf

Norton SJ, Gorga MP, Widen JE, Folsom RC, Sininger Y, Cone-Wesson B, Vohr BR, Fletcher KA. Identification of neonatal hearing impairment: summary and recommendations. Ear Hear 2000 Oct;21(5):529-35. Available from: PubMed; PMID 11059708

O'Neal J, Finizo T, Littman TA. Neonatal hearing screening: follow-up and diagnosis. In: Roeser R, Valente M, Hosford-Dunn H, editors. Audiology: diagnosis. New York: Thieme Medical Publishers; 2000. p. 527-34.

Owen M, Webb M, Evans K. Community based universal neonatal hearing screening by health visitors using otoacoustic emissions. Arch Dis Child Fetal Neonatal Ed 2001 May;84(3):F157-62. Available from: PubMed; PMID 11320040

Paul D. Contesting consent: the challenge to compulsory neonatal screening for PKU. Perspect Biol Med 1999 Winter;42(2):207-19. Available from: PubMed; PMID 10085559

Penn TO, Abbtt SE. Public health and newborn hearing screening. Am J Audiol 1997 Mar;6(1):11-6.

Prieve BA. What newborn hearing screening doesn't tell us. Hear J 2000 Nov;53(11):36, 38-9.

Principles and guidelines for early hearing detection and intervention programs. Year 2000 position statement from the Joint Commitee on Infant Hearing [monograph on the Internet]. [Washington]: The Committee; [modified 2000 Oct; cited 2001 Jul 15]. [38 p.]. Available from: http://www.audiology.org/professional/positions/jcih-early.php

Rienzi BM, Levinson KS, Scrams DJ. University students' perceptions of deaf parents. Psychol Rep 1992 Dec;71(3 Pt 1):764-6. Available from: PubMed; PMID 1454921

Ries PW. Prevalence and characteristics of persons with hearing trouble: United States, 1990-91. Vital Health Stat 10 1994 Mar;(188):1-75. Available from: PubMed; PMID 8165784

Roush J, editor. Screening for hearing loss and otitis media in children. San Diego (CA): Singular; 2001. 245 p.

Roush J, Harrison M. Age of suspicion, identification, and intervention for young children with hearing loss. In: Bess FH. Children with hearing impairment: contemporary trends. Nashville (TN): Vanderbilt Bill Wilkerson Center Press; 1998. p. 25-31.

Sainsbury SJ. Emergency patients who leave without being seen: are urgently ill or injured patients leaving without care? Mil Med 1990 Oct;155(10):460-4. Available from: PubMed; PMID 2122285

Samson Fang L, Simons McCandless M, Shelton C. Controversies in the field of hearing impairment: early identification, educational methods, and cochlear implants. Infants Young Child 2000 Apr;12(4):77-88.

Saylor CF, Elksnin N, Farah BA, Pope JA. Depends on who you ask: what maximizes participation of families in early intervention programs. J Pediatr Psychol 1990 Aug;15(4):557-69. Available from: PubMed; PMID 2147955

Schwartz J, Otto D. Lead and minor hearing impairment. Arch Environ Health 1991 Sep-Oct;46(5):300-5. Available from: PubMed; PMID 1953038

Serious hearing impairment among children aged 3-10 years--Atlanta, Georgia, 1991-1993. MMWR Morb Mortal Wkly Rep 1997 Nov 14;46(45):1073-6. Available from: PubMed; PMID 9385876

Sininger YS, Doyle KJ, Moore JK. The case for early identification of hearing loss in children. Auditory system development, experimental auditory deprivation, and development of speech perception and hearing. Pediatr Clin North Am 1999 Feb;46(1):1-14. Available from: PubMed; PMID 10079786

Specht EM, Bourguet CC. Predictors of nonattendance at the first newborn health supervision visit. Clin Pediatr (Phila) 1994 May;33(5):273-9. Available from: PubMed; PMID 8050256

Spivak LG. Universal newborn hearing screening. New York: Thieme; 1998. 274 p.

Stein LK. Factors influencing the efficacy of universal newborn hearing screening. Pediatr Clin North Am 1999 Feb;46(1):95-105. Available from: PubMed; PMID 10079793

Stein LK, Jabaley T, Spitz R, Stoakley D, McGee T. The hearing-impaired infant: patterns of identification and habilitation revisited. Ear Hear 1990 Jun;11(3):201-5. Available from: PubMed; PMID 2358130

Stern G, Brown R. The effect of a waiting list on attendance at initial appointments in a child and family clinic. Child Care Health Dev 1994 Jul-Aug;20(4):219-30.

Tomblin JB, Hardy JC, Hein HA. Predicting poor-communication status in preschool children using risk factors present at birth. J Speech Hear Res 1991 Oct;34(5):1096-105. Available from: PubMed; PMID 1749241

Truog RD. Is "informed right of refusal" the same as "informed consent"? J Clin Ethics 1996 Spring;7(1):87-9. Comment on: J Clin Ethics 1996 Spring;7(1):77-84. Available from: PubMed; PMID 8790704

Vandenhoff SE, Stuart A. Preferred listening levels among personal FM system users with severe-to-profound hearing impairment. J Speech Lang Pathol Audiol 1999 Sep;23(3):134-41.

Vohr BR, Simon S, Letourneau K. Public health implications of universal hearing screening. Semin Hear 2000 Nov;21(4):295-307.

Wall JE. Referral-making and referral-keeping for psychobehavioral care in a pediatric clinic for homeless children. Baltimore (MD): University of Maryland Baltimore County; 1995. 117 p.

White K, Maxon AB. Early identification of hearing loss: implementing universal newborn hearing screening programs. Rockville (MD): United States Maternal and Child Health Bureau, Division of Services for Children with Special Health Needs; [1999?]. 36 p.

Wilson SR. Patient and physician behavior models related to asthma care. Med Care 1993 Mar;31(3 Suppl):MS49-60. Available from: PubMed; PMID 8450686

Yoshinaga-Itano C. Efficacy of early identification and intervention. Semin Hear 1995 May;16(2):115-20.

Yoshinaga-Itano C. Universal newborn hearing screening, assessment,and intervention systems. Hear J 1999 Jun;52(6):10, 12, 14, 16, 18, 20-1.

Yoshinaga-Itano C, Sedey AL, Coulter DK, Mehl AL. Language of early- and later-identified children with hearing loss. Pediatrics 1998 Nov;102(5):1161-71. Available from: PubMed; PMID 9794949

Youngleson SM, Joubert G. A comparison of cross-sectional and longitudinal survey methods in measuring patient compliance with tuberculosis treatment. S Afr Med J 1991 Oct 5;80(7):331-5. Available from: PubMed; PMID 1925840

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- Specific Tests and Screening Tools

Ades AE, Walker J, Jones R, Thompson S, Leonard JV, Smith I. Obstacles to timely neonatal screening in North Thames. J Med Screen 1998;5(4):183-6. Comment in: J Med Screen 1999;6(2):112-3. Available from: PubMed; PMID 9934648

Ahmann E, Meny RG, Fink RJ. Use of home apnea monitors. J Obstet Gynecol Neonatal Nurs 1992 Sep-Oct;21(5):394-9. Available from: PubMed; PMID 1403225

Bailey RN. Assessing the predictive ability of the test-positive findings of an elementary school vision screening. Optom Vis Sci 1998 Sep;75(9):682-91. Comment in: Optom Vis Sci 1999 Jan;76(1):12. Available from: PubMed; PMID 9778702

Barker SE, Lesperance MM, Kileny PR. Outcome of newborn hearing screening by ABR compared with four different DPOAE pass criteria. Am J Audiol 2000 Dec;9(2):142-8. Available from: PubMed; PMID 11200191

Bates AS, Fitzgerald JF, Wolinsky FD. Reliability and validity of an instrument to measure maternal health beliefs. Med Care 1994 Aug;32(8):832-46. Available from: PubMed; PMID 8057698

Cranford JL, Kennalley T, Svoboda W, Hipp K. Changes in central auditory processing following temporal lobectomies in children. J Am Acad Audiol 1996 Aug;7(4):289-95.

Dancer J, Burl NT, Waters S. Effects of unilateral hearing loss on teacher responses to the SIFTER. Screening Instrument for Targeting Educational Risk. Am Ann Deaf 1995 Jul;140(3):291-4. Available from: PubMed; PMID 8651071

Dauman R, Debruge E, Carbonniere B, Lautissier-Berger S, Bouye J, Soriano V. Development of capacities of communication and socialization in young deaf children: utility of a common assessment protocol for implanted or hearing aid equipped children. Acta Otolaryngol 1996 Mar;116(2):234-9. Available from: PubMed; PMID 8725522

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- False-Positive Findings and Other Screening Barriers

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- Health Communication and Health Education on Early Screening

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- Follow-Up Studies

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- Patient Compliance

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- Nontraditional Settings

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- State and Other Program Models

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- Standards and Recommendations

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American Academy of Audiology, Joint Committee on Infant Hearing. Principles and guidelines for early hearing detection and intervention programs. McLean (VA): The Academy; 2000. 23 p.

American Speech-Language-Hearing Association, Panel on Audiologic Assessment. Guidelines for audiologic screening. Rockville (MD): The Association; 1997. 60 p.

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Expanded programme on immunization (EPI). Missed opportunities for immunization. Wkly Epidemiol Rec 1990 Jun 1;65(22):167-70. Available from: PubMed; PMID 2386696

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Ross M. Implications of audiologic success. J Am Acad Audiol 1992 Jan;3(1):1-4. Comment in: J Am Acad Audiol 1992 Jul;3(4):295-6. Available from: PubMed; PMID 1571580

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Year 2000 position statement: principles and guidelines for early hearing detection and intervention programs. Joint Committee on Infant Hearing. Am J Audiol 2000 Jun;9(1):9-29. Available from: PubMed; PMID 10943021

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Treatments and Interventions after Screening in Infants and Children

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Pakulski LA. Earmold fittings for children with severe-to-profound hearing impairment: a survey of the industry. Semin Hear 1999;20(3):197-204, 251-2.

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Phillips AL. "Future directions for cochlear implants": Peer commentary. J Speech Lang Pathol Audiol 1992 Jun;16(2):165-6.

Pratt SR. Nonverbal play interaction between hearing mothers and young deaf children. Ear Hear 1991 Oct;12(5):328-6. Available from: PubMed; PMID 1783236

Preisler GM. The development of communication in blind and in deaf infants--similarities and differences. Child Care Health Dev 1995 Mar;21(2):79-110. Available from: PubMed; PMID 7781155

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Spencer PE. Every opportunity: A case study of hearing parents and their deaf child. In: Spencer PE, Erting CJ, editors. The deaf child in the family and at school: Essays in honor of Kathryn P. Meadow-Orlans. Mahwah (NJ): Lawrence Erlbaum Associates, Inc; 2000. p. 111-32.

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Strong CJ, ClarkTC, Johnson D, Watkins S, Barringer DG, Walden BE. SKI-HI home-based programming for children who are deaf or hard of hearing: recent research findings. Infant Toddler Interv 1994 Mar;4(1):25-36.

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Swisher MV. The role of parents in developing visual turn-taking in their young deaf children. Am Ann Deaf 1992 Apr;137(2):92-100. Available from: PubMed; PMID 1609736

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Tomblin JB, Spencer L, Flock S, Tyler R, Gantz B. A comparison of language achievement in children with cochlear implants and children using hearing aids. J Speech Lang Hear Res 1999 Apr;42(2):497-509. Available from: PubMed; PMID 10229463

Tucker BP. Deaf culture, cochlear implants, and elective disability. Hastings Cent Rep 1998 Jul-Aug;28(4):6-14. Comment in: Hastings Cent Rep 1999 Mar-Apr;29(2):5. Available from: PubMed; PMID 9762533

Tye-Murray N, Kelsay DM. A communication training program for parents of cochlear implant users. Volta Rev 1993 Winter;95(1):21-31.

van der Lem GJ, Timmerman DE. Joint picture book reading in signs: An interaction process between parent and deaf child. In: Nelson KE, Reger Z, editors. Children's language. Hillsdale (NJ): Lawrence Erlbaum Associates, Inc.; 1995. p. 171-80.

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Yoshinaga-Itano C. Efficacy of early identification and intervention. Semin Hear 1995 May;16(2):115-20.

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Legal and Ethical Issues

Abrams MJ, Pensak ML, Buhrer K. Perspectives on a state enacted hearing screening assessment program in the newborn population. Am J Otol 1997 May;18(3):368-72. Available from: PubMed; PMID 9149833

Bennett B. Consent to treatment and refusal of treatment by minors. Collegian 2000 Jan;7(1):40-2. Available from: PubMed; PMID 10846989

Boswell S. Congress funds newborn hearing screening: federal bill passes and more states start programs. ASHA Lead 2000 Jan 18;5(1):1, 16-7.

Broome ME. Consent (assent) for research with pediatric patients. Semin Oncol Nurs 1999 May;15(2):96-103. Available from: PubMed; PMID 10222509

Coates J, Grierson S. When do parents have the right to refuse medical treatment on behalf of their children? N Z Med J 2000 Jul 14;113(1113):297. Available from: PubMed; PMID 10935574

Deafness Research Foundation [homepage on the Internet]. New York: The Foundation; [updated 2001 Mar 6; cited 2001 Jul 15]. Available from: http://www.drf.org/

Devereux JA, Jones DP, Dickenson DL. Can children withhold consent to treatment? BMJ 1993 May 29;306(6890):1459-61. Available from: PubMed; PMID 8518645

Griffen AL, Schneiderman LJ. Ethical issues in managing the noncompliant child. Pediatr Dent 1992 May-Jun;14(3):178-83. Available from: PubMed; PMID 1528787

Model Universal Newborn/Infant Hearing Screening, Tracking, and Intervention Bill [monograph on the Internet]. Rockville (MD): American Speech Language Hearing Association; American Academy of Audiology; Alexander Graham Bell Association for the Deaf, Inc; c1997-99 [updated 2000 Mar 9; cited 2001 Jul 15]. [9 p.]. Available from: http://professional.asha.org/infant_hearing/model_bill.htm

Olson K, Perkins J, Pate T. Children's health under Medicaid: a national review of early and periodic screening, diagnosis and treatment. Los Angeles: National Health Law Program; 1998. 126 p.

Tharpe AM, Clayton EW. Newborn hearing screening: issues in legal liability and quality assurance. Am J Audiol 1997 Jul;6(2):5-12.

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Economic Issues

Abrams MJ, Pensak ML, Buhrer K. Perspectives on a state enacted hearing screening assessment program in the newborn population. Am J Otol 1997 May;18(3):368-72. Available from: PubMed; PMID 9149833

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Barsky-Firkser L, Sun S. Universal newborn hearing screenings: a three-year experience. Pediatrics 1997 Jun;99(6):E4. Available from: PubMed; PMID 9164800

Boswell S. Congress funds newborn hearing screening: federal bill passes and more states start programs. ASHA Lead 2000 Jan 18;5(1):1, 16-7.

Bottom line: audiology reimbursement for newborn infant hearing screening. ASHA Leader 2000 Apr 25;5(8):3.

Carter R, Hailey D. Economic evaluation of the cochlear implant. Int J Technol Assess Health Care 1999 Summer;15(3):520-30. Available from: PubMed; PMID 10874379

Celano M, Geller RJ, Phillips KM, Ziman R. Treatment adherence among low-income children with asthma. J Pediatr Psychol 1998 Dec;23(6):345-9. Available from: PubMed; PMID 9824922

Cheng AK, Rubin HR, Powe NR, Mellon NK, Francis HW, Niparko JK. Cost-utility analysis of the cochlear implant in children. JAMA 2000 Aug 16;284(7):850-6. Available from: PubMed; PMID 10938174

Davis A, Bamford J, Wilson I, Ramkalawan T, Forshaw M, Wright S. A critical review of the role of neonatal hearing screening in the detection of congenital hearing impairment. Health Technol Assess 1997;1(10): 1-176. Available from: PubMed; PMID 9483157

Hayes D, Downs MP. Counterpoint: value of UNHS is priceless. Hear J 2000 Nov;53(11):61-2, 64-6.

Helfer TM, Shields AR, Gates KE. Outcomes analysis for hearing conservation programs. Am J Audiol 2000 Dec;9(2):75-83. Available from: PubMed; PMID 11200195

Kemper AR, Downs SM. A cost-effectiveness analysis of newborn hearing screening strategies. Arch Pediatr Adolesc Med 2000 May;154(5):484-8. Available from: PubMed; PMID 10807300

Kezirian EJ, White KR, Yueh B, Sullivan SD. Cost and cost-effectiveness of universal screening for hearing loss in newborns. Otolaryngol Head Neck Surg 2001 Apr;124(4):359-67. Available from: PubMed; PMID 11283492

Kileny PR, Jacobson GJ. Point: is UNHS worth the cost? Hear J 2000 Nov;53(11):61-2, 64-7.

Layug M, Sandor GK. The cost of non-compliance. Ont Dent 1996 Oct;73(8):27, 29-31. Available from: PubMed; PMID 9470607

Mehl AL, Thomson V. Newborn hearing screening: the great omission. Pediatrics 1998 Jan;101(1):E4. Available from: PubMed; PMID 9417168

Minkovitz C, Holt E, Hughart N, Hou W, Thomas L, Dini E, Guyer B. The effect of parental monetary sanctions on the vaccination status of young children: an evaluation of welfare reform in Maryland. Arch Pediatr Adolesc Med 1999 Dec;153(12):1242-7. Available from: PubMed; PMID 10591300

Mohr PE, Feldman JJ, Dunbar JL, McConkey-Robbins A, Niparko JK, Rittenhouse RK, Skinner MW. The societal costs of severe to profound hearing loss in the United States. Int J Technol Assess Health Care 2000 Autumn;16(4):1120-35. Available from: PubMed; PMID 11155832

Moore M. New audiology code approved by CPT editorial panel: will reimburse for newborn hearing screening procedure. ASHA Lead 2000 Feb 29;5(4):1, 36.

Penn TO, Abbtt SE. Public health and newborn hearing screening. Am J Audiol 1997 Mar;6(1):11-6.

Plaza CI. Finance issue brief: mandated benefits: newborn hearing screenings. Issue Brief Health Policy Track Serv 2000 Jun 1:1-7. Available from: PubMed; PMID 11073423

Severens JL, Brokx JP, van den Broek P. Cost analysis of cochlear implants in deaf children in The Netherlands. Am J Otol 1997 Nov;18(6):714-8. Available from: PubMed; PMID 9391666

Stevens JC, Hall DM, Davis A, Davies CM, Dixon S. The costs of early hearing screening in England and Wales. Arch Dis Child 1998 Jan;78(1):14-9. Available from: PubMed; PMID 9534670

Trace R. Newborn hearing screening: state programs developed to be cost-effective. Adv Speech Lang Pathol Audiol 1995 Mar 13;5(10):5,15.

Turner RG. Factors that determine the cost and performance of early identification protocols. J Am Acad Audiol 1992 Jul;3(4):233-41. Available from: PubMed; PMID 1421455

Turner RG. Modeling the cost and performance of early identification protocols. J Am Acad Audiol 1991 Oct;2(4):195-205. Comment in: J Am Acad Audiol 1991 Oct;2(4):193. Available from: PubMed; PMID 1773072

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Educational and Psychosocial Issues

Anderson BJ, Auslander WF, Jung KC, Miller JP, Santiago JV. Assessing family sharing of diabetes responsibilities. J Pediatr Psychol 1990 Aug;15(4):477-92. Available from: PubMed; PMID 2258796

Andrews R, Morgan JD, Addy DP, McNeish AS. Understanding non-attendance in outpatient paediatric clinics. Arch Dis Child 1990 Feb;65(2):192-5. Available from: PubMed; PMID 2317066

Bender B, Milgrom H, Rand C, Ackerson L. Psychological factors associated with medication nonadherence in asthmatic children. J Asthma 1998;35(4):347-53. Available from: PubMed; PMID 9669828

Bergstrom K, Halling A, Huggare J. Orthodontic treatment demand--differences between urban and rural areas. Community Dent Health 1998 Dec;15(4):272-6. Available from: PubMed; PMID 9973729

Brand HJ, Coetzer MA. Parental response to their child's hearing impairment. Psychol Rep 1994 Dec;75(3 Pt 1):1363-8. Available from: PubMed; PMID 7892406

Byrne MR. Diversity within the deaf or hard of hearing population: Wisdom from seeing the whole. Early Child Dev Care 1998;147:55-70.

Cherow E, Dickman DM, Epstein S. Organization resources for families of children with deafness or hearing loss. Pediatr Clin North Am 1999 Feb;46(1):153-62. Available from: PubMed; PMID 10079797

Daar L, Grunblatt H. An audiological fear reduction program for a child. Lang Speech Hear Serv Sch 1998 Jan;29(1):45-7.

Desselle DD. Self-esteem, family climate, and communication patterns in relation to deafness. Am Ann Deaf 1994 Jul;139(3):322-8. Available from: PubMed; PMID 7992777

Desselle DD, Pearlmutter L. Navigating two cultures: deaf children, self-esteem, and parents' communication patterns. Soc Work Educ 1997 Jan;19(1):23-30.

Foulkes LM, Boggs SR, Fennell RS, Skibinski K. Social support, family variables, and compliance in renal transplant children. Pediatr Nephrol 1993 Apr;7(2):185-8. Available from: PubMed; PMID 8476716

Gowers SG, Jones JC, Kiana S, North CD, Price DA. Family functioning: a correlate of diabetic control? J Child Psychol Psychiatry 1995 Sep;36(6):993-1001. Available from: PubMed; PMID 7593406

Hintermair M. Hearing impairment, social networks, and coping: the need for families with hearing-impaired children to relate to other parents and to hearing-impaired adults. Am Ann Deaf 2000 Mar;145(1):41-53. Available from: PubMed; PMID 10812689

Jacobson AM, Hauser ST, Lavori P, Willett JB, Cole CF, Wolfsdorf JI, Dumont RH, Wertlieb D. Family environment and glycemic control: a four-year prospective study of children and adolescents with insulin-dependent diabetes mellitus. Psychosom Med 1994 Sep-Oct;56(5):401-9. Available from: PubMed; PMID 7809339

Matesevac LR. Compliance to a medication regimen: Children in emotional support classes, kindergarten through twelfth grades. College Park (MD): University of Maryland College Park; 1998. 269 p.

Menahem S, Halasz G. Parental non-compliance--a paediatric dilemma. A medical and psychodynamic perspective. Child Care Health Dev 2000 Jan;26(1):61-72. Available from: PubMed; PMID 10696519

Otero S, Hodes M. Maternal expressed emotion and treatment compliance of children with epilepsy. Dev Med Child Neurol 2000 Sep;42(9):604-8. Available from: PubMed; PMID 11034453

Pachter LM, Weller SC. Acculturation and compliance with medical therapy. J Dev Behav Pediatr 1993 Jun;14(3):163-8. Available from: PubMed; PMID 8340470

Radcliffe D. Hearing care is a family affair: effective counseling strategies. Hear J 1999 Jun;52(6):23-30, 32-3.

Rienzi BM. Influence and adaptability in families with deaf parents and hearing children. Am Ann Deaf 1990 Dec;135(5):402-8. Available from: PubMed; PMID 2091456

Roush J, Harrison M, Palsha S. Family-centered early intervention. The perceptions of professionals. Am Ann Deaf 1991 Oct;136(4):360-6. Erratum in: Am Ann Deaf 1992 Mar;137(1):6. Available from: PubMed; PMID 1750377

Steinberg A, Brainsky A, Bain L, Montoya L, Indenbaum M, Potsic W. Parental values in the decision about cochlear implantation. Int J Pediatr Otorhinolaryngol 2000 Sep 29;55(2):99-107. Available from: PubMed; PMID 11006449

Stuart A, Moretz M, Yang EY. An investigation of maternal stress after neonatal hearing screening. Am J Audiol 2000 Dec;9(2):135-41. Available from: PubMed; PMID 11200190

Untermyer A. Constructing deaf behavior. Evanston (IL): Northwestern University; 1996. 201 p.

Vaccari C, Marschark M. Communication between parents and deaf children: implications for social-emotional development. J Child Psychol Psychiatry 1997 Oct;38(7):793-801. Available from: PubMed; PMID 9363578

Vohr BR, Letourneau KS, McDermott C. Maternal worry about neonatal hearing screening. J Perinatol 2001 Jan-Feb;21(1):15-20. Available from: PubMed; PMID 11268862

Watkin PM, Baldwin M, Dixon R, Beckman A. Maternal anxiety and attitudes to universal neonatal hearing screening. Br J Audiol 1998 Feb;32(1):27-37. Available from: PubMed; PMID 9643305

Watkin PM, Baldwin M, Laoide S. Parental suspicion and identification of hearing impairment. Arch Dis Child 1990 Aug;65(8):846-50. Available from: PubMed; PMID 2400221

Watson SM, Henggeler SW, Whelan JP. Family functioning and the social adaptation of hearing-impaired youths. J Abnorm Child Psychol 1990 Apr;18(2):143-63. Available from: PubMed; PMID 2348029

Weichbold V, Welzl-Mueller K, Mussbacher E. The impact of information on maternal attitudes towards universal neonatal hearing screening. Br J Audiol 2001 Feb;35(1):59-66. Available from: PubMed; PMID 11314912

Weinstein BD, Weinstein GW. Making decisions for minors: do parents have the final say? Case study and commentaries. Ophthalmic Surg 1992 Mar;23(3):215-7. Comment in: Ophthalmic Surg 1992 Dec;23(12):845. Available from: PubMed; PMID 1574294

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Registries, Organizations, and Web Sites

AGBell: Alexander Graham Bell Association for the Deaf and Hard of Hearing [homepage on the Internet]. Washington: The Association; c2000 [updated 2001 Jul 11; cited 2001 Jul 15]. Available from: http://www.agbell.org/

American Academy of Audiology [homepage on the Internet]. McLean (VA): The Academy; [cited 2001 Jul 15]. Available from: http://www.audiology.org/

American Speech Language Hearing Association [homepage on the Internet]. Rockville (MD): The Association; c1997-2000 [cited 2001 Jul 15]. Available from: http://www.asha.org/

Cherow E, Dickman DM, Epstein S. Organization resources for families of children with deafness or hearing loss. Pediatr Clin North Am 1999 Feb;46(1):153-62. Available from: PubMed; PMID 10079797

Deafness Research Foundation [homepage on the Internet]. New York: The Foundation; [updated 2001 Mar 6; cited 2001 Jul 15]. Available from: http://www.drf.org/

European consensus statement on neonatal hearing screening [monograph on the Internet]. [place unknown]: European Commission, Biomedicine and Health Programme; [modified 2001 Feb 9; cited 2001 Jul 16]. 6 slides Available from: http://www.ECDCevents.biomed.polimi.it/sld001.htm. Statement finalized at the European Consensus Development Conference on Neonatal Hearing Screening (ECDC-NHS), May 15-16, 1998, in Milan, Italy

Finitzo T, Albright K, O'Neal J. The newborn with hearing loss: detection in the nursery. Pediatrics 1998 Dec;102(6):1452-60. Available from: PubMed; PMID 9832584

Laurent Clerc National Deaf Education Center [homepage on the Internet]. Washington: Gallaudet University; c 2001 [updated 2001 Jul 6; cited 2001 Jul 15]. Available from: http://clerccenter.gallaudet.edu/

National Association of the Deaf [homepage on the Internet]. Silver Spring (MD): The Association; [updated 2001 Jun 22; cited 2001 Jul 15]. Available from: http://www.nad.org/

NCHAM: National Center for Hearing Assessment and Management [homepage on the Internet]. Logan (UT): Utah State University; [cited 2001 Jul 15].

OSERS: Office of Special Education and Rehabilitative Services [homepage on the Internet]. Washington: Department of Education (US); [updated 2001 Mar 26; cited 2001 Jul 15]. Available from: http://www.ed.gov/offices/OSERS/

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Health Communication

Austin EW, Pinkleton B, Fujioka Y. Assessing prosocial message effectiveness: effects of message quality, production quality, and persuasiveness. J Health Commun 1999 Jul-Sep;4(3):195-210. Available from: PubMed; PMID 10977288

Beck CS, Ragan SL, DuPré A. Partnership for health: building relationships between women and health caregivers. Mahwah (NJ): Lawrence Erlbaum Associates; 1997. 184 p. (LEA's communication series).

Becker A. Community health communication: guidelines through the maze of IEC methods. Eschborn (Germany): Deutsche Gesellschaft fur Technische Zusammenarbeit [GTZ]; 1998. 76 p.

Bethea LS, Balazs AL. Improving intergenerational health care communication. J Health Commun 1997 Apr-Jun;2(2):129-37. Available from: PubMed; PMID 10977241

Blobel B, Pharow P, Engel K, Spiegel V, Krohn R. Communication security in open health care networks. Stud Health Technol Inform 1999;68:291-6. Available from: PubMed; PMID 10724890

Branger PJ, Duisterhout JS. Communication in health care. Methods Inf Med 1995 Jun;34(3):244-52. Available from: PubMed; PMID 7666802

Brodie M, Flournoy RE, Altman DE, Blendon RJ, Benson JM, Rosenbaum MD. Health information, the Internet, and the digital divide. Health Aff (Millwood) 2000 Nov-Dec;19(6):255-65. Available from: PubMed; PMID 11192412

Buetow S, Cantrill J, Sibbald B. Risk communication in the patient-health professional relationship. Health Care Anal 1998 Sep;6(3):261-8. Available from: PubMed; PMID 10185178

Cardno EJ. Managing the 'fit' of information and communication technology in community health: a framework for decision making. J Telemed Telecare 2000;6 Suppl 2:S6-8. Available from: PubMed; PMID 10975082

Cassell MM, Jackson C, Cheuvront B. Health communication on the Internet: an effective channel for health behavior change? J Health Commun 1998 Jan-Mar;3(1):71-9. Available from: PubMed; PMID 10947375

Cegala DJ. A study of doctors' and patients' communication during a primary care consultation: implications for communication training. J Health Commun 1997 Jul-Sep;2(3):169-94. Available from: PubMed; PMID 10977246

Chamberlain MA. Health communication: making the most of new media technologies--an international overview. J Health Commun 1996 Jan-Mar;1(1):43-50. Available from: PubMed; PMID 10947352

Clift E. What did you say you do? Health communicators and where we fit in. J Health Commun 1997 Jan-Mar;2(1):65-7. Available from: PubMed; PMID 10977236

Clift E, Freimuth VS. Health communication: what is it and what can it do for you? J Health Educ 1995 Mar-Apr;26(2):68-74.

DuPré A. Communicating about health: current issues and perspectives. Mountain View (CA): Mayfield Pub. Co.; c2000. 376 p.

Edwards A, Elwyn G, Covey J, Matthews E, Pill R. Presenting risk information--a review of the effects of "framing" and other manipulations on patient outcomes. J Health Commun 2001 Jan-Mar;6(1):61-82. Available from: PubMed; PMID 11317424

Eng TR, Gustafson DH, editors. Wired for health and well-being: the emergence of interactive health communication [monograph on the Internet]. Washington: Department of Health and Human Services (US); 1999 Apr [cited 2001 Jul 15]. 177 p. Available from: http://www.health.gov/scipich/pubs/finalreport.htm. Report of the Science Panel on Interactive Communication and Health.

Fabregas SM, Kreps GL. Bioethics committees--a health communication approach. P R Health Sci J 1999 Mar;18(1):31-7. Available from: PubMed; PMID 10343984

Fodor JT. Advances in communication technologies: their application in health promotion and education. Promot Educ 1996 Mar;3(1):5-9, 40-1. Available from: PubMed; PMID 8750494

Fotheringham MJ, Owen N. Introduction. Interactive health communication in preventive medicine. Am J Prev Med 2000 Aug;19(2):111-2. Available from: PubMed; PMID 10913901

Freimuth VS, Mettger W. Is there a hard-to-reach audience? Public Health Rep 1990 May-Jun;105(3):232-8. Available from: PubMed; PMID 2113680

Greco M, Brownlea A, McGovern J, Cavanagh M. Consumers as educators: implementation of patient feedback in general practice training. Health Commun 2000;12(2):173-93. Available from: PubMed; PMID 10938912

Gupta VM. Communication: cornerstone to success in implementation of health programmes. Indian J Public Health 1996 Jul-Sep;40(3):62-7. Available from: PubMed; PMID 9119424

Guttman N. Public health communication interventions: values and ethical dilemmas. Thousand Oaks (CA): Sage Publications; c2000. 286 p.

Gwyn R, Elwyn G. When is a shared decision not (quite) a shared decision? Negotiating preferences in a general practice encounter. Soc Sci Med 1999 Aug;49(4):437-47. Available from: PubMed; PMID 10414804

Holt CL, Clark EM, Kreuter MW, Scharff DP. Does locus of control moderate the effects of tailored health education materials? Health Educ Res 2000 Aug;15(4):393-403. Available from: PubMed; PMID 11066457

Houston TK, Ehrenberger HE. The potential of consumer health informatics. Semin Oncol Nurs 2001 Feb;17(1):41-7. Available from: PubMed; PMID 11236364

Izenberg N, Lieberman DA. The Web, Communication Trends, and Children's Health. Part 2: The Web and the practice of pediatrics. Clin Pediatr (Phila) 1998 Apr;37(4):215-21. Available from: PubMed; PMID 9564570

Izenberg N, Lieberman DA. The Web, communication trends, and children's health. Part 4: How children use the Web. Clin Pediatr (Phila) 1998 Jun;37(6):335-40. Available from: PubMed; PMID 9637896

Izenberg N, Lieberman DA. The Web, Communication Trends, and Children's Health. Part 5: Encouraging positive and safe Internet use. Clin Pediatr (Phila) 1998 Jul;37(7):397-403. Available from: PubMed; PMID 9675432

Jackson LD, Duffy BK. Health communication research: a guide to developments and directions. Westport (CT): Greenwood Press; 1998. 248 p.

Johns Hopkins School of Public Health, Center for Communication Programs, Population Communication Services. Processes and principles of strategic communication for health. Baltimore (MD): Population Communication Services; 1997. 15 p.

Kar SB, Alcalay R, Alex S. Health communication: a multicultural perspective. Thousand Oaks (CA): Sage Publications; c2001. 380 p.

Kelly MP. Health education, the health promotion movement, and communication. J Biocommun 1996;23(1):13-7. Available from: PubMed; PMID 8723547

Kreps GL, Kunimoto EN. Multicultural communication training: the health communication context [place unknown: publisher unknown]; 1998. 12 p. Presented at the 48th Annual Conference of the International Communication Association, July 20-24, 1998, Jerusalem, Israel.

Lima VL, Pelicioni MC, Campos NZ, L'Abbate S. Health promotion, health education and social communication on health: specificities, interfaces, intersections. Promot Educ 2000;7(4):8-12, 39, 45. Available from: PubMed; PMID 11252989

Loveland M, Sims-Perry N. Compliance across the continuum: what works. Communication is key to home health compliance. J AHIMA 2000 Jun;71(6):30-1. Available from: PubMed; PMID 11010090

MacStravic S. The missing links in social marketing. J Health Commun 2000 Jul-Sep;5(3):255-63. Available from: PubMed; PMID 11185025

Maibach E, Holtgrave DR. Advances in public health communication. Annu Rev Public Health 1995;16:219-38. Available from: PubMed; PMID 7639871

Makoul G. Perpetuating passivity: reliance and reciprocal determinism in physician-patient interaction. J Health Commun 1998 Jul-Sep;3(3):233-59. Available from: PubMed; PMID 10977257

Maurana CA, Clark MA. The Health Action Fund: a community-based approach to enhancing health. J Health Commun 2000 Jul-Sep;5(3):243-54. Available from: PubMed; PMID 11185024

Morra ME. Communicating information about health. J Health Commun 1998;3 Suppl:v-vii. Available from: PubMed; PMID 10977264

Naber SJ, Halstead LK, Broome ME, Rehwaldt M. Communication and control: parent, child, and health care professional interactions during painful procedures. Issues Compr Pediatr Nurs 1995 Apr-Jun;18(2):79-90. Available from: PubMed; PMID 8707646

Northouse LL, Northouse PG. Health communication: strategies for health professionals. 3rd ed. Stamford (CT): Appleton & Lange; c1998. 322 p.

Ochs K. Communication in rural health care. Kans Nurse 1995 Aug;70(7):4. Available from: PubMed; PMID 7494390

Pombortsis AS. Communication technologies in health care environments. Int J Med Inf 1998 Oct-Dec;52(1-3):61-70. Available from: PubMed; PMID 9848403

Power JG. Evaluating health knowledge: an alternative approach. J Health Commun 1996 Jul-Sep;1(3):285-98. Available from: PubMed; PMID 10947365

Quigley D, Handy D, Goble R, Sanchez V, George P. Participatory research strategies in nuclear risk management for native communities. J Health Commun 2000 Oct-Dec;5(4):305-31. Available from: PubMed; PMID 11191016

Ratzan SC. 21st century communication age. J Health Commun 2000 Apr-Jun;5(2):101-3. Available from: PubMed; PMID 11010343

Ratzan SC. Ethical research and practice of how we communicate health and risk. J Health Commun 1998 Apr-Jun;3(2):91-2. Available from: PubMed; PMID 10977252

Ratzan SC. Health communication ethics. J Health Commun 1998 Oct-Dec;3(4):291-4. Available from: PubMed; PMID 10977259

Ratzan SC. Hope for the 21st century: health is a multilateral interest. J Health Commun 2000 Jan-Mar;5(1):1-2. Available from: PubMed; PMID 10848028

Ratzan SC. Revolutionizing health: communication can make a difference. J Health Commun 1999 Oct-Dec;4(4):255-7. Available from: PubMed; PMID 10790784

Ratzan SC. Strategic health communication and social marketing on risk issues. J Health Commun 1999 Jan-Mar;4(1):1-6. Available from: PubMed; PMID 10977274

Ratzan SC, Payne JG, Bishop C. The status and scope of health communication. J Health Commun 1996 Jan-Mar;1(1):25-41. Available from: PubMed; PMID 10947351

Rice RE, Atkin CK. Public communication campaigns. 3rd ed. Thousand Oaks (CA): Sage Publications; c2000. 428 p.

Rice RE, Katz JE. The Internet and health communication: experience and expectations. Thousand Oaks (CA): Sage Publications; c2001. 459 p.

Rostedt L. Interactive health communication on the Internet: advantages, disadvantages and implications for health professionals. Health Inf Manag 2000;29(4):172-4. Available from: PubMed; PMID 11143000

Rudd RE, Goldberg J, Dietz W. A five-stage model for sustaining a community campaign. J Health Commun 1999 Jan-Mar;4(1):37-48. Available from: PubMed; PMID 10977277

Ryan EB, Meredith SD, MacLean MJ, Orange JB. Changing the way we talk with elders: promoting health using the communication enhancement model. Int J Aging Hum Dev 1995;41(2):89-107. Available from: PubMed; PMID 8550234

Schroeder RE, Morrison EE, Cavanaugh C, West MP, Montgomery J. Improving communication among health professionals through education: a pilot study. J Health Adm Educ 1999 Summer;17(3):175-98. Available from: PubMed; PMID 11184900

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Medical Home for Children

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General principles in the care of children and adolescents with genetic disorders and other chronic health conditions. American Academy of Pediatrics Committee on Children with Disabilities. Pediatrics 1997 Apr;99(4):643-4. Available from: PubMed; PMID 9093322

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Ortega AN, Stewart DC, Dowshen SA, Katz SH. Perceived access to pediatric primary care by insurance status and race. J Community Health 2000 Dec;25(6):481-93. Available from: PubMed; PMID 11071229

Provision of educationally-related services for children and adolescents with chronic diseases and disabling conditions. American Academy of Pediatrics. Committee on Children with Disabilities. Pediatrics 2000 Feb;105(2):448-51. Available from: PubMed; PMID 10654975

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Sia CC, Iwaishi L, Taba S, Darling K. Learning to implement the medical home in communities. Hawaii Med J 2000 Jan;59(1):15-9. Available from: PubMed; PMID 10740929

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Simms MD, Dubowitz H, Szilagyi MA. Health care needs of children in the foster care system. Pediatrics 2000 Oct;106(4 Suppl):909-18. Available from: PubMed; PMID 11044143

Szilagyi PG, Holl JL, Rodewald LE, Shone LP, Zwanziger J, Mukamel DB, Trafton S, Dick AW, Raubertas RF. Evaluation of children's health insurance: from New York State's Child Health Plus to SCHIP. Pediatrics 2000 Mar;105(3 Suppl E):687-91. Available from: PubMed; PMID 10699145

Szilagyi PG, Zwanziger J, Rodewald LE, Holl JL, Mukamel DB, Trafton S, Shone LP, Dick AW, Jarrell L, Raubertas RF. Evaluation of a state health insurance program for low-income children: implications for state child health insurance programs. Pediatrics 2000 Feb;105(2):363-71. Available from: PubMed; PMID 10654957

Zanga JR, Bar-on M. Don't compromise the medical home. Arch Pediatr Adolesc Med 1998 Jul;152(7):714-5. Comment on: Arch Pediatr Adolesc Med 1998 Jan;152(1):65-70. Available from: PubMed; PMID 9667550

Zimmerman RK, Van Cleve SN, Medsger AR, Raymund M, Ball JA. Does the Vaccines for Children program influence pediatric nurse practitioner referral of disadvantaged children to public vaccine clinics? Matern Child Health J 2000 Mar;4(1):53-8. Available from: PubMed; PMID 10941760

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Last updated: 27 November 2002
First published: 27 November 2002
Metadata| Permanence level: Permanent: Dynamic Content