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Office of Genomics and Disease Prevention  
Office of Genomics and Disease Prevention

 

List of attendees and Program Participants: 

Applying Genetic and Public Health Strategies to Primary Immunodeficiency Diseases
synopsis
 Full Meeting Summary

November 8-9, 2001

Mike Adams, MD
National Center on Birth Defects and Developmental Disabilities, CDC
Atlanta, GA 

Timothy G. Baker  
Office of Genomics and Disease Prevention, CDC  
Atlanta, GA 

Francisco Bonilla, MD  
American Academy of Asthma, Allergy, Immunology (AAAAI)
PID Committee Section Chief  
Children’s Hospital, Enders 8
Boston, MA

Coleen Boyle, PhD 
National Center on Birth Defects and Developmental Disabilities, CDC
Atlanta, GA

Barbara Brenner, DrPH, MSW  
Director of Community Relations
Mount Sinai Hospital  
New York, NY

Amanda Brown, PhD
National Center on Birth Defects and Developmental Disabilities, CDC
Atlanta, GA 

Rebecca H. Buckley, MD
J.B. Sidbury Professor of Pediatrics
Duke University Medical Center
Durham, NC 

Nancye Buelow
Secretary, Board of Directors, Genetic Alliance
Clyde, NC 

Preston Campbell, MD
Executive Vice President for Medical Affairs
Cystic Fibrosis Foundation
Bethesda, MD 

Elaine Collier, MD
Acting Chief of Clinical Immunology Branch
National Institute of Allergy and Infectious Diseases
National Institutes of Health
Bethesda, MD 

Anne Marie Comeau, PhD
Deputy Director
New England Newborn Screening Program
University of Massachusetts Medical School
Jamaica Plain, MA 

Mary Ellen Conley, MD
Professor of Pediatrics
St. Jude Children’s Research Hospital
Memphis, TN 

José Cordero, MD, MPH
Director, National Center on Birth Defects and Developmental Disabilities, CDC
Atlanta, GA 

Sally Crudder, MPH
National Center for Infectious Diseases, CDC
Atlanta, Georgia

Chris Cunniff, MD
Chairman, American Academy of Pediatrics,
Committee on Genetics
Professor of Pediatrics, Obstetrics & Gynecology
University of Arizona College of  Medicine
Tucson, AZ

Charlotte Cunningham-Rundles, MD, PhD
Professor of Medicine and Pediatrics
The Mount Sinai School of Medicine
New York, NY

Lyle Dennis
Cavarocchi Ruscio Dennis (CRD) Associates
Washington, DC

Roger Eaton, PhD
Director, New England Newborn Screening Program
University of Massachusetts Medical School
Jamaica Plain, MA

Larry Edmonds, MSPH
National Center on Birth Defects and Developmental Disabilities, CDC
Atlanta, GA

Mary Foley, EdD, RN, CHES
Assistant Professor
Dept. of Community Medicine, Box 1043
Mount Sinai Hospital
New York, NY

Norman Fost, MD, MPH
Professor, Department of Pediatrics
University of Wisconsin
Madison, WI

Jonathan Goldsmith, MD
Medical Director
Immune Deficiency Foundation
Towson, MD

Nancy S. Green, MD
Associate Medical Director
March of Dimes
White Plains,  NY

Scott Grosse, PhD
National Center for Environmental Health, CDC 
Atlanta, GA

Edward Gruson
National Organization for Rare Disorders
Fairfield, CT

Marta Gwinn, MD, MPH  
Office of Genomics and Disease Prevention, CDC  
Atlanta, GA

James Haddow, MD  
Foundation for Blood Research  
Scarborough, ME

Harry Hannon, PhD  
Division of Laboratory Services  
National Center for Environmental Health, CDC
Atlanta, GA

Celine Hanson, MD  
Bureau Chief  
Bureau of Communicable Disease Control  
Texas Department of Health
Austin, TX  

Michael Hershfield, MD  
Professor of Medicine and Biochemistry  
Department of Medicine,  
Div of Rheumatology, Allergy/Clinical Immunology  
Duke University Medical Center  

Richard Hong, MD  
Professor of Pediatrics  
University of Vermont  
Genetic Toxicology Laboratory  
Burlington, VT 

Richard J.  Jackson, MD, MPH
Director, National Center for Environmental Health Centers for Disease Control & Prevention  
Atlanta, GA 

Muin Khoury, MD, PhD
Director, Office of Genetics & Disease Prevention, CDC  
Atlanta, GA 

Lisa Kobrynski, MD  
Emory University  
Atlanta, GA 

Jeffrey Koplan, MD, PhD  
Director, Centers for Disease Control & Prevention
Atlanta, GA    

Harvey Levy, MD  
Children's Hospital  
Boston, MA 

Mary Lou Lindegren, MD
Office of Genomics and Disease Prevention, CDC  
Atlanta, GA 

Allan Lock, DVM  
Center for Research for Mothers & Children  
National Institute of Child Health & Human Development
Bethesda, MD

Katherine Lyon-Daniel, PhD  
National Centers on Birth Defects and Developmental Disabilities, CDC
Atlanta, GA

Marifran Mattson, PhD  
Office of Communication  
National Center for Environmental Health, CDC  
Atlanta, GA

Steve McDougal, MD  
Division of AIDS, STD & TB Laboratory Research  
National Center for Infectious Diseases, CDC
Atlanta, GA  

John Meaney, Ph.D
Research Associate Professor
Department of Pediatrics
University of Arizona Health Science Center
Tucson, AZ

Vicki and Fred Modell  
The Jeffrey Modell Foundation  
New York, NY 

Cynthia A. Moore, MD, PhD  
National Center on Birth Defects and Developmental Disabilities, CDC  
Atlanta, GA

Thomas L. Moran  
President, Immune Deficiency Foundation  
Towson, MD

Andre J. Nahmias, MD, MPH
Professor of Pediatrics  
Division of Infectious Diseases  
Emory University  
Atlanta, GA 

Hans D. Ochs, MD  
Professor of Pediatrics  
University of Washington School of Medicine
Seattle, WA  

James M. Oleske, MD, MPH  
Francios-Xavier Bagdoud Professor of Pediatrics  
National Pediatric and Family HIV Resource Center  
New Jersey Medical School  
Newark, NJ 

Sherry Orloff, MPH  
National Center for HIV, STD, & TB Prevention, CDC  
Atlanta, GA

Mary E. Paul, MD  
Associate Faculty Member  
Baylor College of Medicine  
Texas Children’s Hospital
Houston, TX 

Jennifer M. Puck, MD  
Genetics and Molecular Biology Branch  
National Human Genome Research Institute
National Institutes of Health
Bethesda, MD

Michele Lloyd-Puryear, MD, PhD
Division of Services for Children with Special Health Needs  
Health Resource Services Administration  
Rockville, MD 

Sonja Rasmussen, MD
National Center on Birth Defects and Developmental Disabilities, CDC  
Atlanta, GA 

Chaim Roifman, MD
Chief, Division of Immunology/Allergy  
Dept. of Pediatrics, The Research Institute  
The Hospital for Sick Children  
University of Toronto  
Toronto, Ontario

John Salamone
Member, Advisory Committee on Immunization Practices  
Executive Director  
National Italian American Foundation  
Washington, DC

William T. Shearer, MD, PhD
President, Clinical Immunology Society  
Professor of Pediatrics, Microbiology & Immunology  
Baylor College of Medicine  
Texas Children’s Hospital  
Houston, TX 

Priscilla Short, MD  
American Medical Association  
Chicago, IL

C.I. Edvard Smith, MD, PhD  
European Society for Immunodeficiency Diseases  
Professor, Center for BioTechnology  
Department of Biosciences at Novum  
Karolinska Institute  
Halsovagen, Sweden

Mike Soucie, PhD  
Division of AIDS, STD, & TB Laboratory Research  
National Center for Infectious Diseases, CDC
Decatur, GA 

Thomas Spira, MD  
Division of AIDS, STD, & TB Laboratory Research  
National Center for Infectious Diseases, CDC
Atlanta, GA

Richard Stiehm, MD  
Professor of Pediatrics  
Chairman, Division of Immunology  
UCLA, Department of Pediatrics  
Los Angeles, CA  

Brad Therrell, PhD  
Director  
National Newborn Screening and Genetics Resource Center  
Austin, TX 

Tracy Trotter, MD  
American Academy of Pediatrics, Committee on Genetics  
San Ramon Valley Primary Care  
San Ramon, CA 

Robert F. Vogt, Jr., PhD  
Division of Laboratory Services  
National Center for Environmental Health, CDC  
Atlanta, GA

Mike Watson, PhD
Executive Director
American College of Medical Genetics  
Bethesda, MD

Jerry Winkelstein, MD  
Chairman, Medical Advisory Committee,  
Immune Deficiency Foundation  
Department of Pediatrics, CMSC 1102  
Johns Hopkins Hospital  
Baltimore, MD

Paula Yoon, ScD, MPH  
Office of Genomics and Disease Prevention, CDC  
Atlanta, GA
 

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Last updated on August 17, 2004