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helix behind image of gavel  Ethical, Legal and Social Issues (ELSI)

Links to non-federal organizations found at this site are provided solely as a service to our users. These links do not constitute an endorsement of these organizations or their programs by CDC or the federal government, and none should be inferred. The CDC is not responsible for the content of the individual organization web pages found at these links.

Australian Gene Ethics Network
A federation of Australian groups and individuals promoting critical discussion and debate on the environmental, social, and ethical impacts of genetic engineering technologies.

BIOMED-II-PROJECT-EUROPEAN DATABASE NETWORK
ETHICS IN MEDICINE, HEALTH CARE AND HEALTH PROFESSIONS
supported by the European Commission and coordinated by France, Germany, Netherlands and Sweden.

Department of Energy
Information about the Department of Energy’s Ethical, Legal, and Social Issues program.

Ethical Aspects of Genetic Testing in the Workplace
By the European Group on Ethics in Science and New Technologies (2003)

Eubios Ethics Institute
A nonprofit group that aims to stimulate the international discussion of ethical issues.

Ethical, Legal, and Social Issues In Public Health Genetics (PHELSI)
From the University of Michigan Center for Genomics and Public Health

Genes, Ethics & Environment
A Public Policy Quarterly of The Ramazzini Institute

The Genetics and Public Policy Center
An independent and objective source of credible information on genetic technologies and genetic policies for the public, media and policymaker.

Genomics Gateway Website
This website, from the University of Bradford, UK, is designed to guide the user through the area of international treaties, conventions, standards and guidelines applicable to biotechnology in the following three areas:

Harvard School of Public Health, Program on Ethical Issues in International Health
Provides information about medical clinical research ethics with an emphasis on the ethics of research in developing countries.

HumGen
This website access genetics policy documents for the scientific
community, industry, and for the public at-large. From the Centre de recherche en droit public (CRDP) of the Université de Montréal, Canada.

Informed Consent for Population Research Involving Genetics: A Public Health Perspective - Editorial
Summary: As in other areas of public health, it is crucial that population research involving genetics be done in an ethical framework with informed consent of study participants.

Institute of Ethics of the American Medical Association
Functions as an independent academy at the AMA, performing research in a range of areas in biomedical ethics.

Kansas University Medical Center
Links to a variety of web sites containing information on ethical, legal, and social issues surrounding genetics.

Lawrence Berkeley National Laboratory's ELSI Project
A pilot project designed to stimulate discussions on the implications of selected areas of scientific research.

National Bioethics Advisory Commission Homepage
Provides advice and makes recommendations to government entities regarding the appropriateness of departmental, agency, or other governmental programs, policies, assignments, missions, guidelines, and regulations as they relate to human research bioethical issues.

The National Conference of State Legislators
(NCSL) is a source of comprehensive information and research on critical state issues including genetics.

National Information Resource on Ethics & Human Genetics
Supports information services searchable via the Internet, the full text of online annotated bibliographies, and print publications - on topics related to ethics and human genetics.

The NHGRI Policy and Legislation Database
The free, searchable database currently focuses on the following subject areas: genetic testing and counseling; insurance and employment discrimination, newborn screening; privacy of genetic information and confidentiality; informed consent; and commercialization and patenting.

Mannvernd
Association for Ethics in Science and Medicine. Formed to promote ethical standards in medical research, science and in the biotechnology industry in Iceland.

National Human Genome Research Institute
The Ethical, Legal and Social Implications (ELSI) Program was established as an integral part of the Human Genome Project, and designed to provide a new approach to scientific research by identifying, analyzing and addressing the ethical, legal and social implications of human genetics research at the same time that the basic scientific issues are being studied.

Stanford University Center for Biomedical Ethics Program in Genomics, Ethics and Society
Provides a model for collaboration between industry and university-based researchers and scholars concerned with the social, ethical, legal, and political implications of advances in human genetics.

University of British Columbia Genetics and Ethics
Links to web sites related to all aspects of genetics and ethics.

University of Pennsylvania Center for Bioethics
General information about bioethics and links to genetics resources.

Last Updated October 12, 2004