Australian
Gene Ethics Network
A federation of Australian groups and individuals promoting
critical discussion and debate on the environmental, social,
and ethical impacts of genetic engineering technologies.
BIOMED-II-PROJECT-EUROPEAN
DATABASE NETWORK
ETHICS IN MEDICINE, HEALTH CARE AND HEALTH PROFESSIONS
supported by the European Commission and coordinated by France,
Germany, Netherlands and Sweden.
Department
of Energy
Information about the Department of Energys Ethical, Legal,
and Social Issues program.
Ethical
Aspects of Genetic Testing in the Workplace
By the European Group on Ethics in Science and New Technologies
(2003)
Eubios
Ethics Institute
A nonprofit group that aims to stimulate the international discussion
of ethical issues.
Ethical,
Legal, and Social Issues In Public Health Genetics (PHELSI)
From the University of Michigan Center for Genomics and
Public Health
Genes,
Ethics & Environment
A Public Policy Quarterly of The Ramazzini Institute
The
Genetics and Public Policy Center
An independent and objective source of credible information
on genetic technologies and genetic policies for the public,
media and policymaker.
Genomics
Gateway Website
This website, from the University of Bradford, UK, is designed
to guide the user through the area of international treaties,
conventions, standards and guidelines applicable to biotechnology
in the following three areas:
Harvard
School of Public Health, Program on Ethical Issues in International
Health
Provides information about medical clinical research ethics
with an emphasis on the ethics of research in developing countries.
HumGen
This website access genetics policy documents for the scientific
community, industry, and for the public at-large. From the Centre
de recherche en droit public (CRDP) of the Université de Montréal,
Canada.
Informed
Consent for Population Research Involving Genetics: A Public
Health Perspective - Editorial
Summary: As in other areas of public health, it is crucial that
population research involving genetics be done in an ethical
framework with informed consent of study participants.
Institute
of Ethics of the American Medical Association
Functions as an independent academy at the AMA, performing research
in a range of areas in biomedical ethics.
Kansas
University Medical Center
Links to a variety of web sites containing information on ethical,
legal, and social issues surrounding genetics.
Lawrence
Berkeley National Laboratory's ELSI Project
A pilot project designed to stimulate discussions on the implications
of selected areas of scientific research.
National
Bioethics Advisory Commission Homepage
Provides advice and makes recommendations to government entities
regarding the appropriateness of departmental, agency, or other
governmental programs, policies, assignments, missions, guidelines,
and regulations as they relate to human research bioethical
issues.
The
National Conference of State Legislators
(NCSL) is a source of comprehensive information and research
on critical state issues including genetics.
National
Information Resource on Ethics & Human Genetics
Supports information services searchable via the Internet,
the full text of online annotated bibliographies, and print publications
- on topics related to ethics and human genetics.
The NHGRI Policy and Legislation Database
The free, searchable database currently focuses on the following subject areas: genetic testing and counseling; insurance and employment discrimination, newborn screening; privacy of genetic information and confidentiality; informed consent; and commercialization and patenting.
Mannvernd
Association for Ethics in Science and Medicine. Formed to promote
ethical standards in medical research, science and in the biotechnology
industry in Iceland.
National
Human Genome Research Institute
The Ethical, Legal and Social Implications (ELSI) Program was
established as an integral part of the Human Genome Project,
and designed to provide a new approach to scientific research
by identifying, analyzing and addressing the ethical, legal
and social implications of human genetics research at the same
time that the basic scientific issues are being studied.
Stanford
University Center for Biomedical Ethics Program in Genomics,
Ethics and Society
Provides a model for collaboration between industry and university-based
researchers and scholars concerned with the social, ethical,
legal, and political implications of advances in human genetics.
University
of British Columbia Genetics and Ethics
Links to web sites related to all aspects of genetics and ethics.
University
of Pennsylvania Center for Bioethics
General information about bioethics and links to genetics resources. |