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Office of Genomics and Disease Prevention  
Office of Genomics and Disease Prevention
Publications: Ethical, legal, and social implications
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Ethical, Legal and Social Implications of Genetic Testing: 25 recommendations from the European Commission (2004)

ACMG Statement on Direct-to-Consumer Genetic Testing
Genetics in Medicine 2004; 6(1):60
American College of Medicine Genetics Board of Directors

Securing Good Health for the Whole Population
Report by UK government adviser Derek Wanless (Feb 2004)

Center for Disease Control and Prevention sponsored materials Genomics and Public Health: Ethical, Legal, and Social Issues
Genomics and Population Health: United States 2003 Report

Center for Disease Control and Prevention sponsored materials Consent for genetic research in a general population: The NHANES experience
G. M. McQuillan, et al. Genet Med 2003

Standards for integrating Genetics into Social Work Practice
From the National Association of Social Workers (2003)

Center for Disease Control and Prevention sponsored materials Public Knowledge Regarding the Role of Genetic Susceptibility to Environmentally Induced Health Conditions
J Morris et al. Community Genetics (January 2003)

Center for Disease Control and Prevention sponsored materials The Ethics of Access to Online Genetic Databases: Private or Public?  (Acrobat Print File)
A. Marks, B.A., Karen K. Steinberg, PhD. (2002)

Center for Disease Control and Prevention sponsored materials Informed Consent for Population-Based Research Involving Genetics
Beskow L et al. JAMA, November, 2001

Center for Disease Control and Prevention sponsored materials Public Attitudes regarding the Donation and Storage of Blood Specimens for Genetic Research
Sophia S. Wang, Fred Fridinger, Kris M. Sheedy, Muin J. Khoury
Community Genetics (August 2001)

Center for Disease Control and Prevention sponsored materials Ethical Challenges at the Beginning of the Millennium
K. Steinberg, Stat Med 2001 May 15-30;20(9-10):1415-9

Center for Disease Control and Prevention sponsored materials Ethics in epidemiology at the end of the 20th century:  Ethics, values, and mission statements
Coughlin SS, Epidemiol Rev 2000

Center for Disease Control and Prevention sponsored materials Ethical Issues in the Use of Genetic Markers in Occupational Epidemiologic Research  (Acrobat Print File)
Article by Schulte, Lomax, Ward, and Colligan (1999)

Center for Disease Control and Prevention sponsored materials Ethical and social issues in the use of biomarkers in epidemiological research
Epidemiologic Reviews (1997)

Guidelines for the Retention, Storage, and Use of Residual Dried Blood Spot Samples after Newborn Screening Analysis: Statement of the Council of Regional Networks for Genetic Services
B.L. Therrell, Biochem Mol Med (1996)
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Last Updated October 12, 2004