Purpose
HuGENet represents the collaboration of individuals and organizations from diverse backgrounds who are committed to the development and dissemination of population-based human genome epidemiologic information.
View additional information regarding the rationale for establishing HuGENet, and a detailed definition of Human Genome Epidemiology.
Goals
To establish an information exchange that promotes global collaboration in developing peer-reviewed information on the relationship between human genomic variation and health and on the quality of genetic tests for screening and prevention.
To provide training and technical assistance to researchers and practitioners interested in assessing the role of human genomic variation on population health and how such information can be used in practice.
To develop an updated and accessible knowledge base on the World Wide Web.
To promote the use of this knowledge base by health care providers, researchers, industry, government, and the public for making decisions involving the use of genetic information for disease prevention and health promotion.
HuGENet Current Activities
HuGENet™ Collaborators
HuGENet™ collaborators come from multiple disciplines such as epidemiology, genetics, clinical medicine, policy, public health, education, and biomedical sciences. As of April 1, 2004,
HuGENet™ included 664 collaborators from 43 countries worldwide. HuGENet™ collaborators are students, researchers, teachers and providers. They represent academic organizations, government groups, the private sector and other organizations. HuGENet™ collaborators are interested in obtaining and contributing information on population data on human genes to advance policy development in using genetic information in medical and public health practice.
Examples of contributions and benefits for HuGENet™ collaborators:
1. Receive regular, e-mail updates on the latest information relevant to population data on human genes and disease in different populations.
2. Contribute peer-reviewed HuGE reviews to be published on the HuGENet™ web site and in selected journals. (view list of collaborating journals)
3. Develop a network of collaborations and working groups around specific subject areas for conducting research and collaborative reviews of the existing literature.
4. Contribute HuGE fact sheets, e-journal clubs and case studies that can be used for training and information dissemination.
5. Attend and contribute to HuGE workshops in training, methods development and synthesis of the knowledge base on genomics and health.