This web site was copied prior to January 20, 2005. It is now a Federal record managed by the National Archives and Records Administration. External links, forms, and search boxes may not function within this collection. Learn more.   [hide]
Centers for Disease Control and Prevention
Centers for Disease Control and Prevention
Centers for Disease Control and Prevention CDC Home Search CDC CDC Health Topics A-Z    
Office of Genomics and Disease Prevention  
Office of Genomics and Disease Prevention
Regional and State Genetics
Regional and State Genetics
Links to non-federal organizations found at this site are provided solely as a service to our users. These links do not constitute an endorsement of these organizations or their programs by CDC or the federal government, and none should be inferred. The CDC is not responsible for the content of the individual organization web pages found at these links.

General State Information

Center for Disease Control and Prevention sponsored materials State Capacity Grants for Integrating Genomics into Chronic Disease Prevention Program
Genomics and Population Health: United States 2003 Report

Genomics: A Guide for Public Health
A toolkit developed by ASTHO

Harnessing Genetics to Prevent Disease & Improve Health
The Partnership for Prevention's new guide that identifies ways states can shape genetics policies so as to advance individual and collective health. (PDF - 2003)

Integrating Genetics into State Chronic Disease Programs - Recommendations for Action
Report and recommendations resulting from a genetic retreat which brought together 33 federal and state health officials including representatives of four federal health agencies, state chronic disease directors, epidemiologists and genetic coordinators to discuss the impact of the human genome project on public health chronic disease programs (2001)

Center for Disease Control and Prevention sponsored materials The Role of State Public Health Agencies In Genetics And Disease Prevention:  Results Of A National Survey
Margaret A. Piper et al., Public Health Reports (2001)

Statewide Needs Assessment for a Comprehensive Genomics Plan
North Carolina (2003)

What Does Genetics Mean for Public Health Practice?
ASTHO Report article, March/April, 1999

Center for Disease Control and Prevention sponsored materials Frequently Asked Questions About the Genomic Workforce Competencies

Center for Disease Control and Prevention sponsored materials Think genomically.act locally
CDC fact sheet (2002)

Individual State Listings

Arizona Department of Health Services
Office of Women's and Children's Health
This web site includes descriptions of the office's newborn screening program and genetic services.

California Department of Health Services
Genetic Disease Branch
Works to protect and improve the health of all Californians.

Georgia Division of Public Health
Genetics Program

Information on the mission and objectives of the Georgia Division of Public Health's Genetics Program.

Hawaii Genetics Program

Iowa Department of Public Health
Division of Family and Community Health
Collects data from a variety of sources in order to observe trends and review statistics associated with birth defects in Iowa.

Kansas Newborn Screening Program
Responsible for screening and follow-up of infants for PKU, galactosemia, hypothyroidism and hemoglobinopathies.

Maryland Department of Health and Mental Hygiene
Office for Hereditary Disorders
"Works to reduce mortality, morbidity and the burdens to individuals and society from genetic disorders and birth defects and to
improve the quality of life for affected persons."

Michigan Hereditary Disorders Program
Helps families and professionals learn about the network of genetic services available in Michigan, and find information about a wide range of topics related to medical genetics.

Nebraska Newborn Screening Program
This site contains information on diseases screened for, how screening is done, how to get screening results, and more.

New Mexico Newborn Screening
Educational resources, references, and internet links for heath care practitioners, patients, and their families.

New York State Department of Health
Wadsworth Center
Investigates the mechanism of action of genes and how this rapidly evolving information base may be applied to the prevention, diagnosis and treatment of disease.

Oregon Newborn Screening Program
The Oregon State Public Health Laboratory's Newborn Screening Section conducts screening of all infants to prevent mental retardation and premature death in children through early detection and treatment of genetic disorders.

Oregon State Genetics Program
This program was initiated in June 2000, to address emerging issues in genetics and public health, including ethical, legal, and social issues.

Texas Department of Health
Genetics Services Division

The Genetics Services Division strives to improve the health of children who have genetic disorders.

Washington State Office of Newborn Screening
Tests every child born in Washington State for certain treatable disorders that may not otherwise be detected before developmental disability or death occurs.

Wisconsin Newborn Screening
Dedicated to promoting and encouraging the sharing of knowledge, communication and resources with health care agencies, families and anyone else interested in NBS for the benefit of babies born in Wisconsin.

Regional Genetics Networks

GENES
Genetics Network of the Empire State, Puerto Rico and the Virgin Islands (New York, Puerto Rico, Virgin Islands)

GeNeS-R-US (Genetic andNewborn ScreeningResource Center of the United States)  The National Newborn Screening and Genetics Resource Center web site.
Provides information and resources in the area of newborn screening and genetics to benefit health professionals, the public health community, consumers and government officials.

GPGSN
Great Plains Genetics Service Network (North Dakota, Nebraska, Iowa, Kansas, Missouri, Oklahoma, Arkansas)

MARHGN
Mid-Atlantic Regional Human Genetics Network
(Pennsylvania, New Jersey, Delaware, Maryland, Washington D.C., West Virginia, Virginia)

Mountain States Genetics Network
MoStGeNe is made up of genetic service providers and consumers from six Rocky Mountain States, Arizona, Colorado, Montana, New Mexico, Utah, and Wyoming.

NERGG
New England Regional Genetics Group (Maine, Vermont, New Hampshire, Massachusetts, Rhode Island, Connecticut)

PacNoRGG
Pacific Northwest Regional Genetics Group (Washington, Oregon, Idaho, Alaska)

PSRGN
Pacific Southwest Regional Genetics Group (California, NNevada, Hawaii)

SERGG
Southeastern Regional Genetics Group (Kentucky, Tennessee, North Carolina, Georgia, Florida, Alabama, Mississippi, Louisiana)


Multiple State Listings

March of Dimes Genetics Resource Directory
Provides information about state genetic resources

Last Updated October 12, 2004