The
Cambridge Genetics Knowledge Park (CGKP)
One of six in UK aims to transform information from scientific
studies on genetics into knowledge; to stimulate the transition
from research into clinical benefits and to provide national
leadership in public health genetics.
CARTaGENE
Project
Aims to map genetic variation in a large reference population
of Quebec. This will allow large-scale medical, pharmacogenomic
and public health studies, including association studies of
common diseases and lead to the discovery of new susceptibility
genes.
The
Cochrane Collaboration
Preparing, maintaining and promoting the accessibility of
systematic reviews of the effects of health care (including
reviews on genetic-related issues).
Cooperative
Research Centre for Discovery of Genes for Common Human Diseases
(Gene CRC)
Gene CRC was established in July 1997 in Australia. The
mission of the Gene CRC is to enhance the capacity of Australian
society to apply the wealth of genetic information that will
accrue over the coming decades.
The
ENCODE Project: ENCyclopedia Of DNA Elements
Estonian
Genome Project
Aims to establish a database of heath and genetic data of the
people of Estonia that enables more exact and efficient diagnoses
of illnesses, improvement of treatment and determination of
risks of the development of an illness in the future.
EUROCAT
"A programme supported by the Commission of the European
Community for the epidemiologic surveillance of congenital anomalies."
European
committee on human genetics and other new technologies of modern
medicine
The
European Molecular Genetics Quality Network (EMQN)
Aims to raise and maintain the standards of Diagnostic Clinical
Molecular Genetics Testing in the EU through the provision of
standard External Quality Assessment (EQA) schemes and agreed
Best Practice protocols.
GENETHON
Human Genome Research Centre.
The
Genetic Enquiry Centre
Site contains information on genetics services in Europe and
the confidential enquiry into genetic counseling by non-geneticists
and primary care genetics services.
Genome
Canada
A primary funding and information resource relating to genomics
and proteomics in Canada. Dedicated to developing a national
strategy in genomics and proteomics research for the benefit
of all Canadians.
Genomics
Society and Human Health site from the University of Western
Australia
An opportunity for researchers and students, from as far a field
as molecular biology, medicine, computer science, philosophy,
law and public health to work together.
Health
Technology Assessment
A national Research and Development program for the
National Health Service, UK.
Hum-Molgen
"The international communication forum in human genetics."
IDCFA
International Database of Craniofacial Anomalies
Supported by the World Halth Organization
International
Agency for Research on Cancer
Coordinates and conducts research on the causes of human cancer,
and to develop scientific strategies for cancer control.
International
Birth Defects Information Systems
Seeks to ameliorate and prevent birth defects and genetic disorders.
International
Clearinghouse for Birth Defects Monitoring Systems
"Dedicated to the sharing of international data, news and
views on congenital malformations monitoring, research and prevention."
International
Federation of Human Genetics Societies
Provides a forum for organized groups dedicated to all aspects
of human genetics, including research, clinical practice, and
professional and lay education.
Medical
Research Council Human Genetics Unit, United Kingdom
Advances the understanding of genetic factors implicated in
human disease and normal and abnormal development.
New
South Wales Genetics Education Program
Part of the statewide program of New South Wales Health.
The
Oxford Primary Care Genetics Group
Monitors current research activities, facilitates further research,
and disseminates the evidence accrued in the field of primary
care genetics.
Public
Health Genetics Unit, Cambridge, UK
Provides news and information about advances in genetics and
their impact on public health and the prevention of disease.
Public
Population Program in Genomics (P3G)
Four population genomics research projects involving whole populations
-- Quebec’s CARTaGENE, GenomEUtwin project (involving
8 countries), Estonia’s genome project and the U.K. Biobank
-- have created an international consortium: Public Population
Project in Genomics (P3G).
UK
Biobank project
A world's resource for the study of genes, environment
and health.
University
of Sheffield-School of Health and Related Research -
Public Health Genetics page
World
Federation of Public Health Associations
"A coalition of national public health associations
joining efforts to strengthen the public health profession and
to improve community health worldwide."
World
Health Organization, Geneva: Human Genetics Programme
A separate program in WHO that develops genetic approaches to
the control of the most common hereditary diseases and those
with a genetic predisposition.
World
Health Organization: The Genomic Resource Centre:
This resource base has been developed to provide information
and build awareness on human genomics a new and rapidly developing
science.
|