The Dying Trajectory
Individuals who are dying do not move toward death at the same rates or in
the same ways. Different causes of death are associated with different
patterns of dying.[1] These patterns, referred to as dying trajectories,
indicate the path of the individual’s dying experience. Attitudes and
behaviors of people caring for the patient are strongly influenced by the
perception of the patient’s dying trajectory. Trajectories will also affect
the types of emotional responses and coping mechanisms patients and their
families will display, as well as the interventions that will be initiated.
For these reasons, the purpose of understanding one’s dying trajectory is to
anticipate and implement appropriate interventions.
The dying process can be described in terms of duration and shape. Duration refers to
the time involved between the onset of dying and the arrival of death. Shape
designates the course of the dying process (i.e., whether one can predict how
the process will advance, and whether the approximate timing of the death is expected or
unexpected).
The following examples of trajectories have been described:
- The gradual
slant characterized by a long slow decline, sometimes lasting over a period of
years.
- The downward slant represented by a rapid decline towards death
in which the chronic phase of the
illness is either short or nonexistent.
- The peaks and valleys trajectory,
in which there are alternating
patterns of remission and relapse.
- The descending plateaus trajectory, indicated by
long, slow periods of decline followed by restabilization.
Patients in this trajectory must repeatedly adjust to different levels of
functioning.
Deaths associated with cancer are often lengthy processes, and may be linked
with long-term pain and suffering, and/or a loss of control over one’s body or
mental faculties. Protracted deaths are more likely to drain a family’s physical
and emotional resources as caregivers will be required to provide care
for longer periods of time. The spectrum of chronic care needs of these patients and their caregivers may benefit from referral to a palliative care service, where resources more appropriate to their needs may be provided as compared to the more cure-centered focus of high-tech medical facilities.[2]
Uncertain trajectories are more difficult to cope with than certain
trajectories, since ambiguity generates anxiety and is often more difficult to
cope with than certainty.
References
- Glaser BG, Strauss AL: Time for Dying. Chicago: Aldine, 1968.
- McGrath P: Caregivers' insights on the dying trajectory in hematology oncology. Cancer Nurs 24 (5): 413-21, 2001.
[PUBMED Abstract]
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