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Click on the alpha-1 molecules below to go to our research library      

     
 
 
 
  
  
     

Pictured on the right are what scientists think the Alpha-1 Antitrypsin Protein looks like.

Click on one of the pictures to learn more.

 

     

One Person can make a difference!  

      In 1963, Erickson discovered Alpha-1 Antitrypsin deficiency. In 1988 some Alpha's got on the internet and forged their little place that over time, evolved into the Alpha-1 Association you see before you. Learn More

 

Useful links to other sites  

      We've put together a list of resources from the World Wide Web we think are useful to those with Alpha-1 Antitrypsin Deficiency. It isn't everything that is out there, just the ones we think you will find the most useful.

Click here to learn more

 

Anatomy of Alpha-1 Antitrypsin Deficiency
    Alpha-1 Antitrypsin is a protein produced by the body - mainly in the liver. If that protein is not formed exactly as it should be, people can become ill.      

LEARN MORE!

 
(Washington, DC) August 19, 2004  The FAA has extended the deadline for comments to support Air Travel for Oxygen Dependent People to August 30 and There IS Something YOU Can Do.

 Click here for more!

 

New Standards of Care for the Alpha-1 Patient Established by American Thorasic Society.

Click here for more information

                     
                       

                    

Are you having trouble making sense of your lab report. Just what do those levels mean? What is the difference between a "Z" , "M" and  Lowell variant gene?

 Click here to find out!

Unique...                                         But                      Never Alone                                

You might be an alpha if...

    

 

About US

  About A1AD   Sharing online - alpha one to one
About Us
 
What We Do
 
Our community Involvement
 
General Facts about A1AD,
 
General information,
 
Lung facts,       Liver facts,
Skin Facts
  Association online bulletin board (BBS)

 

         
Support One Another   Alpha Events   Alpha-1 News and Information
Support Groups, Peer Guides and more.   Annual Educational Conference,    News, Current issues affecting alphas, Research Studies, More.

Research Library

Regional ED days,
Support Groups
Peer to Peer Programs
Calendar of Events
         
Links to more support   Feedback   Table of Contents
Follow this link to our page of links, links and more links of useful Alpha-1 information.  

We value your opinion of our website. Please take a moment and let us now what you liked or disliked.

  Click here to see our sites full Table of Contents
         

Enter your State's Abbreviation to find the an Alpha-1 Association Support Group closest  to you:

      

 A new window will open with your State's Support Groups. Your browser may block the creation of a new window. If that happens, just disable or bypass your window pop up blocker temporarily.

IF you don't have a support group in your state, try a state that borders yours. If you'd like to start a new support group just call Cathey Horsack, Director of Public Ourtreach at 1.877.FINDA1A (1.877.346-3212)or send her an email at horsack@alpha1.org

The Alpha-1 Foundation has great information for the newly diagnosed too. Their site is at www.alphaone.org

Our featured support group this month is from the great state of Texas. Let's hear it for the North Texas Alpha-1 Support Group!

 

Click on their flag for more information.  

To find out a list of all the support group leaders and what states they are in please use, the Find a Support Group  page.

Bikes for bucks race

Team Alpha once again peddles around the great lakes of Michigan and Ontario. The next race is coming up this fall. Details will be posted we'll get the details posted soon, so check back!

 

ell us what you think

public opinion.

Take this month's poll!

The surveys will be up and running shortly. Please check back soon!

 

National Targeted    Detection Program Now Underway!

(August 9, 2004 Alph1- Foundation) -Kurt Panton of the Alpha--1 Foundation announces the opening of a new website who's stated goal is to get EVERYONE who has been diagnosed with COPD/Emphysema tested for Alpha-1 Antitrypsin Deficiency.  Go to their web site for more: www.shortofbreathgettested.org

Protecting Genomic's Promise

We now have the ability to see deep into a person's genes and identify if they may or may not be susceptible to disease or disorders. Should you worry? Michael Ashley Stein thinks so. More...

Short of Breath? GET TESTED!

The single most common symptom experienced by those with Alpha-1 Related lung disease is being short of breath (SOB) upon exertion. Sister organization The Alpha One Foundation has created a website designed to tell people to do just that. More...

 

©2004 Alpha-1 Association