AIDS Drug Assistance Programs (ADAPs) provide life-saving HIV treatments to low income, uninsured and underinsured individuals living with HIV/AIDS in all 50 states, the District of Columbia, the Commonwealth of Puerto Rico, the U.S. Virgin Islands, Guam, the Northern Mariana Islands, American Samoa, and the Republic of the Marshall Islands. Federal funding for ADAPs in FY2003 and FY2004 has been insufficient to meet the needs of those eligible and has led to ADAP access restrictions. On June 23, 2004, President Bush announced a plan to immediately provide $20 million in one-time funding to provide medications to people on ADAP waiting lists in ten (10) states (registered as of June 21, 2004). While this program is currently being implemented, individuals covered by it have yet to receive medications. Eleven (11) ADAPs currently report a waiting list. As of September 29, 2004, there are 1,307 individuals on ADAP waiting lists nationwide. Fifteen (15) ADAPs have instituted capped enrollment and/or other cost-containment measures since April 2003. Five (5) states anticipate the need to implement new or additional cost-containment measures during FY2004, ending March 31, 2005.

ADAPs with waiting lists covered by the President's Initiative* (as of September 29, 2004)

Alabama: 393 on waiting list (FY1999)
Alaska: 12 on waiting list (FY2003)
Idaho: 34 on waiting list (FY2000)
Iowa: 46 on waiting list (FY2004)
Kentucky: 191 on waiting list (FY1999)
Montana: 14 on waiting list (FY2002)
North Carolina: 524 on waiting list (FY2001)
South Dakota: 36 on waiting list (FY2000)
West Virginia: 35 on waiting list (FY2002)
* Fiscal year in parentheses indicates when waiting list was initially instituted

ADAPs with waiting lists not covered by the President's Initiative* (as of September 29, 2004)

Arkansas: 11 on waiting list (FY2004)
Utah: 11 on waiting list (FY2004)
* Fiscal year in parentheses indicates when waiting list was initially instituted

ADAPs with other cost-containment strategies (instituted since April 1, 2003)

Alabama: Client inactivity now necessitates re-enrollment and subject to waiting list
Arkansas: Reduced formulary and cost sharing
Hawaii: Reduced formulary
Indiana: Capped enrollment
Louisiana: Capped enrollment for Fuzeon access; 5 people on Fuzeon waiting list
Minnesota: Cost sharing between 100%-300% FPL (drug co-pays) and reapplication every 6 months
Missouri: Reduced formulary
Nebraska: Capped enrollment (waiting list begins October 1, 2004)
New Hampshire: Medical eligibility and formulary restrictions
Oklahoma: Annual per capita expenditure limit
South Dakota: Annual per capita expenditure limit
Texas: Capped enrollment for Fuzeon access; 16 people on Fuzeon waiting list
Utah: Reduced formulary and lowered FPL eligibility
Washington: Reduced formulary, lowered FPL eligibility, and increased and expanded cost-sharing
Wyoming: Capped enrollment (waiting list begins October 1, 2004)

ADAPs anticipating new/additional cost-containment measures during FY2004 Hawaii
Louisiana
Massachusetts
Oregon
Wyoming

NASTAD (www.NASTAD.org) is a non-profit national association of state health department HIV/AIDS program directors who have programmatic responsibility for administering HIV/AIDS health care, prevention, education, and supportive services programs funded by state and federal governments. If you would like to receive The ADAP Watch, please forward your email address to Beth Crutsinger-Perry at bcrutsinger-perry@nastad.org.