Brain
Tumor Registry Reporting Training Materials Data Collection of Primary Central Nervous System Tumors
September 2003
Public Law 107-260, the Benign Brain Tumor Cancer Registries Amendment
Act, requires programs participating in the National Program for Cancer
Registries (NPCR) to collect data on benign and borderline tumors of the
central nervous system in addition to the previously required data on
malignant tumors. In addition to NPCR, both the National Cancer Institute’s
(NCIs) Surveillance, Epidemiology, and End Results (SEER) program, and the
American College of Surgeon’s Commission on Cancer began requiring that
these tumors be reported, starting with cases diagnosed on January 1, 2004.
NPCR is pleased to offer the following training materials covering data
collection for benign, borderline, and malignant central nervous system
tumors. All cancer registry standard setting organizations have agreed to
use these training materials to promote consistency in training. In addition
to NPCR, these materials have been approved by the American College of
Surgeon’s Commission on Cancer; NCI’s SEER program, and the North American
Association of Central Cancer Registries (NAACCR). The materials were pilot
tested during a train-the-trainer program held in Atlanta in September 2003
and feedback from participants in that program was incorporated into these
materials. Training instructors from NPCR and SEER cancer registries
attended this program. The PowerPoint presentation was developed through a
contract with NAACCR, and reviewed by a NAACCR Registry Operations
Committee’s Brain Tumor subcommittee, which included representation from all
the cancer registry standard setting organizations.
