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HIV/AIDS Surveillance Methods
L266 slide series
(through 2000)
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Slide 1 Title: HIV/AIDS Case Surveillance HIV/AIDS surveillance is the on-going and systematic collection, analysis, interpretation, dissemination, and evaluation of population-based information about persons infected with HIV or diagnosed with AIDS Slide 2 Title: How HIV/AIDS Surveillance Data Are Collected Passive reporting -combinations of health care practitioners, hospitals, clinics and laboratories report cases of HIV/AIDS to state and local health departments Active reporting -state and local health department surveillance personnel collect information by contacting health care practitioners and reviewing medical records in hospitals and clinics
Slide #1
HIV/AIDS Case Surveillance
Slide #2
How HIV/AIDS Surveillance Data Are Collected
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Slide 3 Title: Core HIV/AIDS Surveillance Information Flow How HIV/AIDS Surveillance Works Slide 4 Title: What HIV/AIDS Surveillance Data Are Collected Demographic characteristics -sex, race/ethnicity, age, and locality Mode of exposure to HIV Opportunistic illnesses and virologic and immunologic status Supplemental information -prescription of antiretroviral and prophylactic therapies -use of medical and substance abuse treatment services -health insurance coverage
Slide #3
Core HIV/AIDS Surveillance Information Flow
Slide #4
What HIV/AIDS Surveillance Data Are Collected
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Slide 5 Title: Core Surveillance: Reporting the Spectrum of HIV/AIDS Morbidity and Mortality Slide 6 Title: Confidentiality of HIV/AIDS Surveillance Data HIV/AIDS surveillance data are protected under State and territory laws that address public health data CDC requires that HIV/AIDS case data in state and local health departments are maintained in physically secure environments with limited access by authorized personnel Patient and physician names and personal identifiers may be reported to state and local health departments, but they are not sent to CDC. Data maintained at CDC are protected by a federal Assurance of Confidentiality CDC does not collect names, social security numbers, addresses or phone numbers of persons with HIV/AIDS
Slide #5
Core Surveillance: Reporting the Spectrum of HIV/AIDS Morbidity and Mortality
Slide #6
Confidentiality of HIV/AIDS Surveillance Data
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Slide 7 Title: Evaluation of Surveillance Systems Surveillance systems are evaluated for: -completeness of case reporting (compared with an independent data source) -timeliness of reporting (time between diagnosis and report) -completeness and accuracy of data collected Evaluation of a surveillance system provides information needed to: -improve the system -interpret the data collected -promote the best use of public resources Slide 8 Title: Representativeness of HIV Surveillance Data HIV surveillance data only include persons who have been tested, and may not be representative of all HIV-infected persons It is estimated that at least two-thirds of HIV-infected persons have been confidentially tested and would be included in the HIV surveillance system HIV surveillance data can be statistically adjusted to provide an accurate profile of the HIV epidemic
Slide #7
Evaluation of Surveillance Systems
Slide #8
Representativeness of HIV/AIDS Surveillance Data
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Slide 9 Title: Limitations of HIV/AIDS Surveillance Data HIV surveillance data only include persons who have been tested confidentially Not all states require HIV surveillance AIDS surveillance data only represent persons with late-stage HIV disease Slide 10 Title: Uses of HIV/AIDS Surveillance Data Monitor the incidence and prevalence of HIV infection and AIDS, and HIV-related morbidity and mortality in the population Estimate incidence of HIV infection Identify changes in trends of HIV transmission and identify populations at risk Target prevention interventions and evaluate their effectiveness Allocate funds for social and health services Facilitate access to health, social and prevention services, including medical treatment
Slide #9
Limitations of HIV/AIDS Surveillance Data
 Slide #10
Uses of HIV/AIDS Surveillance Data
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Slide 11 Title: Dissemination of HIV/AIDS Surveillance Data AIDS hotline 800-342-AIDS Prevention and treatment guidelines MMWR Peer reviewed journals Public information data set CDC factsheets Presentations at meetings and conferences HIV/AIDS Surveillance Reports Slide sets websites: www.cdc.gov/hiv/surveillance.htm www.cdc.gov/nchstp/od/nchstp.htm www.cdc.gov/hiv/pubs/guidelines.htm www.cdc.gov/hiv/software/apids.htm www.cdc.gov/hiv/dhap.htm
Slide #11
Dissemination of HIV/AIDS Surveillance Data
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Last Updated: March 1, 2002
Centers for Disease Control & Prevention
National Center for HIV, STD, and TB Prevention
Divisions of HIV/AIDS Prevention
Surveillance Branch
Contact Us