Shwachman Diamond

SHWACHMAN-DIAMOND SYNDROME
FOUNDATION

Formerly known as:
Shwachman-Diamond Syndrome International

Please take note of New Address and Name change

710 Brassie Drive
Grand Junction, Colorado 81506 U.S.A.
Toll Free 877-SDS-INTL
or (614) 939-2324
Fax (970) 255-8293

WEB: www.shwachman-diamond.org

Email: 4sskids@shwachman-diamond.org

What is SDSF:
Shwachman-Diamond Syndrome Foundation is a nonprofit support organization helping the victims of this disease. Our primary goals are to link families for emotional support locally, nationally and internationally, and supply them with the most current medical information available. This information is provided through the knowledge and cooperation of our medical advisory board. We are in the forefront of the fight to find a cure for this disease.

This organization was founded in 1994 by concerned parents. Our membership is comprised of children and adults with Shwachman-Diamond Syndrome, their parents, families, friends, and concerned medical professionals. We are now offering support to families in seventeen countries from around the world and our membership is growing daily.

This is the only official website for Shwachman-Diamond Syndrome Support Foundation. a 501(c)(3) tax exempt organization under U.S. Internal Revenue Code. All medical information on this site is approved by medical advisors. We are not responsible for the accuracy of any medical information on Shwachman-Diamond Syndrome provided by any other website.

Our Mission:

	Provide emotional support to patients and their families.
	Educate the medical community and general public about Shwachman-Diamond Syndrome.
	Encourage training of and research by medical professionals.
	Advocate support of research.
	Link families through exchange of experience and ideas.
	Disseminate current medical information.
	Support an International Patient Registry/Database.