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FAMILY
HISTORY WORKSHOP
AGENDA
Wednesday,
May 1, 2002
MORNING
SESSION
Moderator:
Maren Scheuner, Cedars-Sinai Medical Center
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8:30 a.m.
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CDC
Welcome..................................................................
Muin Khoury
Director, Office of
Genomics and Disease Prevention, CDC
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8:40 a.m. |
Introduction to the
Workshop and Participants................Maren Scheuner
Cedars-Sinai
Medical Center
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9:00 a.m. |
Background
and Evaluation Process (ACCE)........................
Paula Yoon
Office
of Genomics and Disease Prevention, CDC
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9:15 a.m. |
Family-Centered
Approaches to Understanding..................Sharon
Kardia |
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and
Intervening in Coronary Heart Disease
a.
Presentation
20 minutes
b. Discussion
10 minutes
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University of Michigan |
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9:45
a.m. |
Family
History of Colorectal Cancer....................................
Bob Millikan
University
of North Carolina, Chapel Hill
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a.
Presentation
20 minutes
b. Discussion
10 minutes
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10:30 a.m. |
Can Family History of
Type-2 Diabetes to be used.............Karen
Edwards |
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as a Tool for Public
Health?
a.
Presentation
20 minutes
b. Discussion
10 minutes
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University of
Washington |
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11:00 a.m |
Family History as a Potential Tool in Asthma
Prevention..... Wylie Burke
University
of Washington
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a.
Presentation
20 minutes
b. Discussion
10 minutes
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| SESSION
I. |
ANALYTIC
VALIDITY
Moderator:
Robin Bennett, University of Michigan
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1:00
p.m. |
Documenting the Family Health History: An.............
Kristen Peterson Oehlke |
| Overview of Available
Tools |
Office of Genomics and
Disease Prevention,CDC
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1:15
p.m. |
Family
History as a Tool for Risk Assessment in..............
Hoda Anton-Culver
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Public
Health Research and Practice and In Preventive Medicine
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University of California,
Irvine |
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1:35
p.m. |
Group
Discussion IdentifyKnowledge Gaps and Describe Studies
Needed to Assess Analytic Validity
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2:15
p.m |
Family History Collection and Pedigree Analysis..................
Maren Scheuner
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2:45 p.m
Family History of Cancer and Cancer Screening in the..........
Ingrid Hall
General
Population
National Center for Chronic Disease Prevention and Health Promotion, CDC
2:35
p.m..... Do
Americans Know Their Family History of ...........
Joelyn Tonkin
Asthma
and Heart Disease?
Office of Genomics and Disease Prevention,CDC
3:00
p.m.
BREAK
3:15
p.m............ Group Discussion Identify Knowledge Gaps and
Describe Studies
Needed to Assess Clinical Validity
SESSION
III.A
CLINICAL UTILITY
Moderator:
Christopher Friedrich, University of Mississippi Medical Center
4:00 p.m........... Population Versus High-Risk Prevention Strategies:
........... Steven Hunt
Do We Need to
Choose?
University of Utah
4:20 p.m.......... Association Between Family History of Colorectal
Cancer........... Jill Morris
and
Preventive Health
Office of Genomics and Disease Prevention, CDC
Behaviors
in Women United States, 1997
4:35 p.m............ Using Decision Analytic Method to Assess the
Utility........... Anupam Tyagi
........ of Family History for Public Health and
Preventive Medicine
National
Center for Chronic Disease and Prevention and Health Promotion, CDC
4:50 p.m............ Discussion
5:15 p.m............ ADJOURN
Thursday,
May 2, 2002
8:30 a.m............ Overview of the First Day
........... Maren Scheuner
SESSION
III.B ........... CLINICAL UTILITY
...........
Moderator: Christopher
Friedrich, University of Mississippi Medical Center
8:45 p.m............ Can Knowledge of Family History Affect Behavior
Change:........... Janet Audrain
Using
Family History of Breast Cancer as an Example?
Univ. of Pennsylvania
9:15 a.m............ Group Discussion Identify Knowledge Gaps and
Describe
Studies Needed to Assess Clinical Utility
10:00 a.m............ BREAK
SESSION
IV. ........... ETHICAL, LEGAL, AND
SOCIAL ISSUES (ELSI)
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Moderator: Wylie Burke,
University of Washington
10:15 ........... Using Family History to Achieve Public Health
Goals:........... Wylie Burke
Ethical, Legal, and Social Issues
University of Washington
10:45 ........... Group Discussion Identify Knowledge Gaps and
Describe
Studies Needed to Assess ELSI
11:15 ........... What We Have Learned: A Research Agenda...........
Muin Khoury
11:45........... Closing...........
Maren Scheuner
ADJOURN
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