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State Activities

CDC funds projects on autism spectrum disorders (ASDs) in several states.  These projects track the number of children who have an ASD, conduct studies to find out what factors make it more likely that a child will have an ASD, and offer education and outreach programs for researchers, families, and other people affected by ASD.  Current state activities include:

• Autism and Developmental Disabilities Monitoring Network (ADDM)
   

• Centers of Excellence for Autism and Developmental Disabilities Research and Epidemiology (CADDRE)
   

• Prevention of Secondary Conditions Related to Autism and Pervasive Developmental Disorder
   

• Community-Based Autism Spectrum Disorders Outreach and Education Project

ADDM Network:  Autism and Developmental Disabilities Monitoring Network

CDC funds ten ADDM Network projects.  These projects are developing or improving programs to track the number of children with ASDs in their states.  The goal of the ADDM Network is to provide comparable, population-based estimates of the prevalence rates of autism and related disorders in different sites over time.

The following states are part of the ADDM Network.  Please click on a state to learn more about its ASD monitoring activities.

• Alabama

• Arizona

• Arkansas

• Florida

• Missouri / Illinois

• New Jersey

• South Carolina

• Utah

• West Virginia

• Wisconsin

CADDRE:  Centers of Excellence for Autism and Developmental Disabilities Research and Epidemiology

The Children’s Health Act of 2000 directed CDC to establish regional centers of excellence for ASD and other developmental disabilities.  The centers will:

• Work with the ADDM Network to monitor the number of children with ASDs and other developmental disabilities.

• Improve community and service provider awareness of ASDs and other developmental disabilities, or improve access of children with ASDs and other developmental disabilities to comprehensive, community-based, family-centered care.

• Conduct epidemiologic research related to ASDs and other developmental disabilities.  These studies will address  topics such as what factors (genetic, environment, and others) make it more likely that a child will have an ASD, what other disabilities children with ASDs have, biomarkers, and the economic costs of ASDs.

CDC funds the following CADDRE programs.  Please click on a program to learn more about its activities.

• California (California Department of Health Services)

• Colorado (Colorado Department of Public Health and Environment) 

• Maryland / Delaware (Johns Hopkins University)

• North Carolina

• Pennsylvania (University of Pennsylvania / The Children's Hospital of Philadelphia) 

Prevention of Secondary Conditions Related to Autism and Pervasive Developmental Disorder

The Marshall University Autism Training Center, in West Virginia, is conducting an intervention study with families of children who have an ASD.  Marshall University staff have developed an in-depth program that helps reduce stress factors that have a negative effect on children with an ASD and their families.  The program includes the development of family support plans.  These plans coordinate the activities of the different professionals who work with the children, provide positive behavior support training for parents and teachers, and help create community partnerships, usually with another family who  has a child with an ASD.  [Read more about the Marshall University Autism Training Center]

Community-Based Autism Spectrum Disorders Outreach and Education Project

CDC funds SAFE, Inc., in Pennsylvania, to enhance their community-based ASD outreach and educational activities to help people with ASD to live a full and independent life. [Read more about the SAFE, Inc. outreach and education project]

This page last updated Thursday, September 02, 2004

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National Center on Birth Defects and Developmental Disabilities
 

The National Center on Birth Defects and Developmental Disabilities (NCBDDD) promotes the health of babies, children, and adults, and enhances the potential for full, productive living.  Our work includes identifying the causes of birth defects and developmental disabilities, helping children to develop and reach their full potential, and promoting health and well-being among people of all ages with disabilities.