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Publications

Publications

• Centers for Disease Control and Prevention (2000). CDC Recommendations Regarding Selected Conditions Affecting Women’s Health. MMWR. Vol. 49/No. RR-2. [Full Text]

• Krotoski DM, Nosek MA, Turk MA (1996). Women with Physical Disabilities: Achieving and Maintaining Health and Well-Being. [Find in a library]

Printed Resources and Materials

• Exercise for People with Disabilities: Getting Started on your Fitness Plan (December 2001).presents a convincing case for the importance of physical activity and provides the tools to make it happen:  A goals chart, activity log, list of exercise videos for people with disabilities, and a detailed personal physical activity plan form.  The booklet is funded by CDC and available from the Research and Training Center on Independent Living at the University of Kansas.  Visit http://www.rtcil.org or call (785) 864-4095.

• Orchid: Health and Wellness for Women with Disabilities (Summer 2001). [PDF]

• Untold Stories, Unmet Needs: Understanding the Needs of Sexual Assault and Domestic Violence Survivors with Physical and Sensory Disabilities (June 2001). Jane Doe Inc. The Massachusetts Coalition Against Sexual Assault and Domestic Violence. The following DPH-funded publications are available from Jane Doe, Inc: The Massachusetts Coalition Against Sexual Assault and Domestic Violence  (telephone: 617-248-0922).

• Sexual Assault Nurse Examination (SANE) Protocol. The Massachusetts Department of Health. [website]

• Working with Abuse Survivors: A Guide for Independent Living Centers
  Myers, Leslie A.. "Working with Abuse Survivors:." In: A Guide for Independent Living Centers. Independence First pp. 104. 1999.[Illinois Coalition Against Sexual Assault Library]

• Serving Women with Disabilities: A Guide for Domestic Abuse Programs
  Myers, Leslie A.. "Serving Women with Disabilities:." In: A Guide for Domestic Abuse Programs. Independence First pp. 65. 1999.[Illinois Coalition Against Sexual Assault Library]

• Serving Women with Disabilities: A Directory of Abuse Intervention Services.

• CDC Breast Cancer Screening and Treatment Study for Women with Disabilities: Recruitment Handbook

• Adaptive MammaCare. Mehn MA, Goldstein MK, Pennypacker HS. [website]

Videos

Reproductive Health for Women with SCI: The Gynecological Examination University of Alabama at Birmingham. Ordering Information: Produced and Distributed by RRTC in the Secondary Complications in SCI Training Office at the University of Alabama at Birmingham. Ordering Information: Phone: 205-934-3283 (No description Included)

Let's Talk About Health: What Every Woman Should Know
A video and curriculum workbook that is designed to help women with developmental disabilities feel more prepared for pelvic and breast exams. The video takes the viewer through each exam step by step in a calm and informative manner. Heaton, C, Roberts, BS, Murphy, L, Meagher, M, Randall, D., The Arc of NJ Women's Health Project, 985 Livingston Ave, N. Brunswick, NJ 08902
Ordering Information: (908) 246-2525; 1994 http://www.arcnj.org/publications.html

Sexuality and Me: I Am a Beautiful Person
Produced by PACER - Teens and young adults with disabilities discuss sexuality. 13 minutes. 1996. Closed-captioned. $35, Rental, $10 (VID-20 )
Ordering Information: http://www.pacer.org/publications/transition.htm 
Phone: 952-838-9000; TTY: 952-838-0190; Email: pacer@pacer.org

Sexuality Reborn: Spinal cord injury causes a number of changes in sexual functioning. Despite these changes, SCI individuals can participate in and enjoy an active and fulfilling sex life. In this video, Sexuality Reborn, which was funded by the Paralyzed Veterans of America, the physical and emotional effects of spinal cord injury are frankly discussed by four couples. These couples demonstrate and share their personal experiences concerning: self-esteem, dating, bowel and bladder function, sexual response and varying types of sexual activities.

This video is 48 minutes in length and is an educational tool produced by Kessler Institute for Rehabilitation in West Orange, New Jersey. This video is for people with spinal cord injured and other individuals with physical disabilities. It can be viewed by individuals, their partners or as part of a sexuality education session in rehabilitation.
Ordering Information: http://www.kmrrec.org/KM/nnjscis/sexuality_reborn.php3  Phone: (800) 435-8866, Fax (973)243-6963



Disability and Motherhood

Many women with disabilities who have children find that they face deep-seated prejudice that takes no account of their competence to assume parental responsibility, but assumes instead that their children will be raised improperly or abnormally. Lydia Thomas, a television presenter, wheelchair user, and mother, thinks that while there are still difficulties, attitudes have changed substantially since she was a child. Cathy Rafferty, who has cerebral palsy, discovered that when she fainted during pregnancy, an ER nurse rudely questioned why her doctor "let her get in this condition." Ellen Blackman, who is blind, felt that other mothers in the maternity hospital watched "this woman with the big bump and the white stick" and felt the need for a private room so she could learn to care for her baby away from the intrusive gaze of others. The program examines the experiences of these three mothers with disabilities, as well as public attitudes toward the combination. (25 minutes, color) Item: BVL5407 Format: VHS Price: $89.95 Item: BVL5407 Format: DVD Ordering Information: http://www.films.com/Films_Home/Item.cfm/1/5407

The Basics of Self-Defense: A training video from International Disabled Self-Defense Association. It covers the basics of self-defense: effective striking, wheelchair dynamics, defenses using one hand, self-defense and rehabilitation, and redirecting energy.
Ordering Information: http://www.defenseability.com

The Gyn Exam: A video and handbook with teacher’s guides and photos. The video takes the viewer through a breast and pelvic exam step-by-step. Ordering Information: Stanfield & Co., PO Box 1983, Santa Monica, CA 90406 (213) 395-7466

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National Center on Birth Defects and Developmental Disabilities

The National Center on Birth Defects and Developmental Disabilities (NCBDDD) promotes the health of babies, children, and adults, and enhances the potential for full, productive living.  Our work includes identifying the causes of birth defects and developmental disabilities, helping children to develop and reach their full potential, and promoting health and well-being among people of all ages with disabilities.