For Immediate Release
Office of Mrs. Bush
September 17, 2003
Remarks by Mrs. Bush National Childhood Cancer Foundation - Gold Ribbon Days 2003
Thank you, Congresswoman Pryce for your dedication to children and
families affected by cancer. A special thanks to Paul Burke and members
of the National Childhood Cancer Foundation and the Children's Oncology
Group for leading the charge to find cures for childhood cancer. Thanks
also to the survivors, parents and friends for sharing your stories and
inspiring us. I'm glad to be here to celebrate Gold Ribbon Days.
I'm wearing my gold ribbon because I believe that together we can
find a cure for every child with cancer. There are many personal
stories of triumph and tragedy. When told together-in one voice, these
stories become lessons-in courage and hope for us all. By sharing your
stories you show the world that children with cancer are not statistics
- but young people with hope, passion, and purpose. I've met some
amazing children and families this morning. And I want to share their
stories with you.
I'm here because of our friends Dick and Mary and their daughter
Lindsay. The Paynes' entire life was turned upside down in forty
minutes - when a blood test for mono revealed that Lindsay had
leukemia. A gifted athlete, Lindsay was devastated at the thought of
never swimming again. Mary's heart broke when Lindsay told her, "You'll
never know the dreams I had." Dick and Mary knew little about childhood
cancer, but at that moment, they knew they would fight to find a cure.
After two years of radiation, Lindsay's cancer was in remission. And
today, six years later, Lindsay is fulfilling her dreams as a swimming
champion at Williams College. Dick and Mary, thank you for including me
in this special day.
Lindsay is proof that cancer survivors can lead extraordinary lives
- and that hope is our greatest strength. Our progress against cancer
is dramatic, and it's improving. President Bush greatly increased the
budget of the National Institutes of Health because he knows that
research and education can help us find a cure. My husband was six
years old when his three-year-old sister Robin was diagnosed with
leukemia. His parents, George and Barbara Bush had never heard of
leukemia. The doctor told them there was no cure. Her advice was to
tell no one, go home, and make Robin as comfortable as possible. But
Robin's parents weren't willing to accept that advice.
The next day they left George and his baby brother Jeb at home in
Texas with friends, and took Robin to Sloan-Kettering hospital in New
York. The doctors could only give Robin medicine and wait. Robin
endured bone marrow tests and blood transfusions. To help ease her
pain, her grandfather taught her to play Gin Rummy. Three-year old
Robin called it Gin Mummy. Soon, Robin went into a coma and passed away
with her mom and dad by her side. Adjusting to life after Robin's death
was difficult. Friends and family didn't want to talk about her. George
help to ease the pain with humor only a child can provide.
George's dad took him to a football game one afternoon. During the
game, my husband suddenly said, "I wish I was Robin." All of the adults
stiffened with shock. His dad asked him what he meant and George said,
"I bet Robin can see the game better from up there than we can from
down here."
Robin's story is tragic, and yet we find hope in the progress that
has been made in fighting childhood cancer. Thirty years ago, cure
rates were less than ten percent, while today, the survival rate is
seventy-seven percent and rising. Thanks to the dedicated doctors,
nurses, and scientists of the Children's Oncology Group, we are closer
than ever to finding cures. This network is a model of excellence in
the world of medicine today. Cooperative research is essential to
advancing treatments and cures. Research and technology are helping us
make great strides - and so are survivors.
Amy Dilbeck said, "When I learned that I had an eighty percent
chance of living because of the Children's Oncology Group, I was so
thankful. This motivated me to get involved because I learned that
research and people can make a difference." Today, seven years after
she was diagnosed with cancer, Amy is making a difference for the
National Childhood Cancer Foundation. Amy was a typical
sixteen-year-old, daydreaming of boys and the prom when she learned
that she had sarcoma. She went from class president to a cancer patient
in two weeks.
Amy endured more than eight hours of surgery and then chemotherapy.
After hearing about the Children's Oncology Group, she realized what
she wanted to do with her life. Amy said, "When you're in the hospital
you can't do much, but you can when you get out. You can't expect
someone to understand you unless you share who you are with them.
Through this experience, I've learned my purpose in life."
Kelly Cotter also learned that helping children with cancer was her
purpose. When Kelly was diagnosed with leukemia at age eleven, she
thought cancer was something that happened to somebody else. She
started chemotherapy, but soon relapsed. Her only chance was a bone
marrow transplant. Her eight-year old brother Adam was a perfect match.
Adam endured six incisions in his hip bone and two hundred extractions
for a half liter of bone marrow. This brave little boy said it was the
best day of his life.
Kelly wanted to make something positive of her experience. She
said, "As a cancer patient, your views and perspectives are different -
you know what it's like to live or die. You want to help other
children." She started visiting children in the hospital and
volunteered with the National Childhood Cancer Foundation. She went to
law school with the hope of advancing legislation for childhood cancer.
Today, she is helping to create policy and awareness for the
foundation.
Kelly and Amy, thank you for inspiring us. Every child who has
survived cancer has developed an amazing resiliency to adapt to new
situations and people. Remember these experiences - they make you who
you are - and they will help you throughout your life. Cancer has
changed your lives - but it does not define you. You aren't just
survivors. You are sons and daughters, brothers and sisters, best
friends, lawyers and even magicians. Each of you is proof that there is
a little bit of magic in the world.
Chad Juros's story of survival is nothing short of magic. He was
diagnosed with leukemia at age three. He began treatment, but soon
relapsed. His chances of survival went from eighty percent to five
percent. He needed a bone marrow transplant. There were only eight
matches in the world, but none was close enough. Chad and his mom,
Penny moved into Children's Hospital of Philadelphia for seventeen
months and waited. Penny said, "I felt like I was pushed from an
airplane without a parachute."
Penny's husband Don had just opened his dental practice and could
only spend one night a week with Chad. Every Tuesday night Chad's room
was full of magic. His dad taught him card and rope tricks - anything
to take his mind off of cancer. After he mastered a few tricks, magic
was all Chad could think about. Months passed and doctors feared that
they would never find a match. They suggested a radical new clinical
trial. The treatments were excruciating. But Chad never complained -
even when he had to learn to walk and talk again because the medicine
weakened his muscles.
Chad started getting stronger. But tragically, while Chad was
getting better, Don started getting sick. In January of 1998, Chad
finished his treatment and came home. A short time later, Don was
diagnosed with malignant brain cancer. He passed away in 2000. Chad
kept up with his magic. Performing helped him remember his dad. He
joined the Leukemia Society and performed for children with lifelong
illnesses. A full life now seemed to await this teenager.
Then Chad began to have severe headaches. His mom feared it was a
relapse - but it was worse. Chad developed a hematoma on his brain.
Surgery would be tough - doctors were not sure they could save the
function in Chad's right arm. Chad had one request, "Please don't take
away the magic." Surgery was a success and today, Chad, a.k.a.
Chad-a-ka-zam, is performing magic once again. Getting back to school
and performing have helped Chad adjust to his new life. He plans to go
to college and is considering becoming a teacher. Chad, sharing magic
with children is a great way to carry on your dad's gift.
I commend Penny and every family member here who has sacrificed and
suffered - but never given up. I hope you continue to educate others
about childhood cancer. And continue to fight for a cure in honor of
every child lost. Your stories and strength help create awareness. And
this will help advance research, treatment and hope. Penny has a sign
in her home that says - cherish yesterday, dream tomorrow, live today.
You inspire the world to do just that. Thank you for sharing your
stories with me. May God bless you.
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