|
||||||||
|
Global Youth Tobacco SurveyData Release Policy
Global Youth Tobacco Survey Data Release PolicyIntroductionTobacco is a major preventable cause of premature death and disease worldwide. Tobacco control requires an efficient and systematic surveillance mechanism to monitor trends in its consumption. The Global Tobacco Surveillance System (GTSS) addresses this need through its three components: the Global Youth Tobacco Survey (GYTS), the Global School Personnel Survey (GSPS), and the Global Health Professional Survey (GHPS). The GYTS, a school-based survey of students aged 13-15 years, collects and disseminates information on prevalence of tobacco use and consumption, media and advertising coverage, exposure to secondhand smoke, access and availability of tobacco products, cessation of tobacco use, and school curricula that incorporate issues related to tobacco use. The GYTS was developed in late 1998 and initiated in 1999 to assist countries in planning, developing, implementing, and evaluating their comprehensive tobacco control programs to protect young people from using tobacco. This data release policy paper has been developed as a series of discussions between the lead agencies—the World Health Organization (WHO) and the U.S. Centers for Disease Control and Prevention (CDC). The purpose of this paper is to define the partners' roles formally, state the policies and procedures for data collecting and processing, and state details regarding release of the GYTS data. This paper is to ensure standardization of country-level GYTS development and serve as a reference guide for GYTS implementation and dissemination.
Section 1Partners and Partners’ RolesThe GYTS functions as a multi-partner project representing global, regional, and national associates. Its purpose is to assist countries in assessing and responding to their particular situation and needs. Countries should use the GYTS as a mechanism to guide the development, implementation, and evaluation of their tobacco control programs as part of their national capacity building process. By adopting the WHO Framework Convention on Tobacco Control (FCTC), GYTS can also serve as the primary data source to use in monitoring many of the FCTC articles. At the global and regional levels, WHO (headquarters and the six regional offices) and CDC are the lead agencies managing the GYTS. At the national level, the GYTS is managed through the governments, as defined by the countries’ policies and procedures and their contracts with global partners. CDC plays a predominantly technical role; WHO is primarily responsible for GYTS management and implementation. WHO HeadquartersThe role of the WHO headquarters (HQ) is to provide a global policy framework for implementing and using GYTS data. In particular, HQ facilitates the GYTS process through coordinating the efforts of the regional offices (ROs) and other programs, developing partnerships, disseminating data, and ensuring capacity building and political commitment. WHO Regional OfficesThe six WHO ROs plan, organize, operate, and manage the GYTS for countries within their respective regions. The ROs serve as the center for disseminating data, promoting political commitment, and urging countries to implement and distributing GYTS results in their respective regions. The ROs work collaboratively with the global partners in selecting the countries, training and analysis workshop plans and management, and administration the funds for GYTS implementation. ROs collaborate with CDC to train countries in the collectiing and analyzing of their country’s GYTS data. The ROs cooperate with WHO country representatives in the GYTS process. CDCCDC is a WHO collaborating center for the GTSS and has a cooperative agreement with WHO. CDC provides financial and technical support for GYTS, including survey design and sample selection, training research coordinators (RC) for fieldwork implementation procedures, data management and processing, initial tabulation of the data, and training the RC to analyze the data. CDC also serves as the GYTS data-coordinating center. National GovernmentsNational governments participate in GYTS by committing resources to the project, allying with national sponsors, nominating the RCs, facilitating the survey, making certain that the country’s report is completed in a timely manner, ensuring continuity, using GYTS results for developing policy and national tobacco control programs, and monitoring the implementing of national tobacco control programs and FCTC when applicable. National governments cannot use funds received either directly or indirectly (e.g., through a non-tobacco company controlled by a tobacco manufacturing company) from the tobacco industry to finance any aspect of the GYTS. National governments should obtain a commitment from the RCs and the national sponsors selected by them not to use funds received directly or indirectly from the tobacco industry to finance any aspect of their contribution to, or their participation in, the GYTS. National governments should also assure, to the extent possible, that RCs and national sponsors hold no other tobacco industry-related interests that could influence their participation in the GYTS. GYTS Country Research CoordinatorThe WHO ROs are responsible for contacting each country within their region to ascertain the countries’ interests for participating in GYTS. The selection of countries is based on mutual agreement between national and global partners and the availability of funds. The WHO ROs work in collaboration with governments to select the appropriate RC (institution and/or individual) within the country to implement the GYTS. Some countries may have several survey sites, and separate RCs per site may be selected. The RC is responsible at the survey site or the country level for survey implementation, data collection, analysis, publication, and dissemination. Associate PartnerAn associate partner is an agency or organization that collaborates with the lead agencies to provide financial and/or technical assistance. The associate partner agencies enter into a partnership through a memorandum of understanding with lead agencies. This memorandum of understanding contains a clause stating the associate partner guarantees that it will not use funds received either directly or indirectly from the tobacco industry for the purpose of its contribution to the GYTS and that it has no other interests concerning the tobacco industry that could influence its contribution to, or participation in, the GYTS. The management committee must approve all potential associate partners. In no case should an associate partner directly interact with a country without the involvement of WHO and CDC. The Canadian Public Health Association (CPHA) has been an important associate partner for the GYTS and has sponsored workshops and funded implementation costs for selected countries. Data Coordinating CenterCDC is designated as the data coordinating center and depository for the GYTS data. CDC provides technical assistance for survey design and sample selection, fieldwork procedures, data management processing (including scanning the forms and editing and weighting the data), and initial data analysis. This coordination function is vital to the continued success of GYTS in three ways:
ResourcesFunding for the GYTS can come from a variety of sources. When funding is made available through WHO, the appropriate contractual agreement will be issued by the RO to the RC. In cases when funding is made available directly to the country by associate partners, the appropriate contractual agreement from the associate partners will be used; it will be signed by the country and the funding partner; and the RO will be informed. When funding comes from a national sponsor, the RC has to execute the contractual agreement with that entity. Regardless of the funding source, all participating countries must adhere to the standard operating procedures of the GYTS. Section 2Data Collecting and Processing Data Collecting Agreement for National Data Collection Before collecting data, all RCs must participate in a training workshop, organized by the WHO RO in collaboration with other partners, to ensure a common methodology and unified procedures. This training assures continuity across the regions; consistency in sample design, selection procedures, and questionnaire development (ensuring the core remains intact); and uniformity in field procedures for data collection. Organization of the Training Workshop
Collection of National Data At the end of the training workshop, the RCs for each participating survey site or country will have a clear understanding of all issues concerning the GYTS implementation. The national government ensures that survey data collection is completed within six months after the training workshop. To ensure successful collection of national data, the following steps are taken:
Data Processing After completing the data collection phase of GYTS, the RCs send the survey forms (answer and header sheets and school and classroom level forms) to CDC for data processing. For each survey site, the sheets are optically scanned, a data file is prepared and edited, and survey weight adjustments are applied. CDC staff and the RC and RO interact throughout the cleaning and editing of data files. After the data file is completed, CDC produces 100+ weighted frequency tables and 100+ preferred tables. CDC drafts a one-page fact sheet highlighting the main GYTS findings. The final data file, tables, and fact sheet are sent to the corresponding RC via e-mail and as hard copy. Data Definitions Raw Data - Non-Tabulated The survey is conducted among students in selected schools. Each student completes a questionnaire with responses coded as filled-in bubbles on answer sheets. CDC uses optical scanning hardware to extract data from these sheets. Scanned data files proceed through a data-cleaning process that includes a match of record length to scanned format, review of faulty response to an item (i.e., out of range or missing), and logic edits. Each data record is weight-adjusted for school, class, and student non-participation. Finally, all records are adjusted for grade and gender stratification. Individual questionnaires are represented by a single row of data, each row containing responses from all questions. Additional identifiers on each row correspond to weight, STRATA, and PSU (primary sampling unit) (Fig. 1). Weight includes all final adjustments for sample selection, non-participation, and post-stratification. STRATA and PSU are based on the sample design. These rows of data are considered raw data. Fig. 1. Example of a row of raw data
Tabulated Data The raw data are used in calculating tabulated data. As part of the data processing for GYTS, CDC prepares two types of tables: (1) weighted frequency tables and (2) preferred tables. The weighted frequency tables are produced as separate tables for each question in the country’s questionnaires. Tabulations are reported for total participants, gender, and grade levels (Fig. 2). A codebook specific for each country’s questionnaire includes a listing of all questions and all response categories for each question. Unweighted frequency counts are included for each category response, for each question. All GYTS questionnaires contain 56 core questions and any other questions added by the individual country. CDC produces a set of preferred tables. This set translates each core question, according to historical classification and including cross-comparisons, into variables used as indicators to monitor tobacco activity within the country. An example of a preferred table entry is the translation of the question “Have you ever smoked cigarettes, even one or two puffs?” into the variable “ESMOKER.” Each country receives documentation describing how each preferred variable is created. Together, the weighted frequency and preferred tables are the tabulated data. Fig. 2. Sample of Weighted Frequency Table (% of current smokers)
Data Analysis After the data have been collected and processed, RO and CDC, in collaboration with associate partners, conduct data analysis workshops. Their purpose is to provide country coordinators with hands-on training to enable in-depth analysis of their data sets. Workshop participants include RCs who have completed the survey and have received their data files or those who have implemented the survey. Data analysis workshops provide training in using EpiInfo (free software that includes procedures for analyzing complex survey data) and in writing the country’s report. Section 3Data Release Part ITabulated Data CDC sends the initial data file, tables, and fact sheet to the RC for review and use. When these items are sent defines the data’s initial release date. After the country approves the fact sheet, the data and tables are sent to the corresponding WHO RO. After the RC has attended a data analysis workshop, the data and tables are sent to WHO HQ. At this point, data are considered final. If changes (e.g., corrections, new tabulations, etc.) are made to the data at any stage, then ALL parties that have previously received the data, tables, and fact sheet must be sent new versions. Within the first year of approval of the final data, the RCs are encouraged to use their country’s data for presentations and publications. CDC, WHO HQ, and WHO ROs agree on the following regarding their own use of approved country data:
Any other use of a country’s data within the first year requires approval by the RC, CDC, and WHO (HQ and RO). After one year, the data are open to everyone as a public-use dataset. Country Fact Sheet The following are procedures for release of countries’ fact sheets: CDC prepares a draft of the country’s fact sheet and sends copies to the corresponding country RC and WHO RO at the time the initial data are sent to the RC. RCs have one month to review and revise the draft fact sheet and to submit the draft to the government. RCs then return the final fact sheet to the corresponding WHO RO. Within one month, the RC should obtain official government agreement to release the fact sheet on applicable Web sites (CDC, HQ, regions). If an RO has not heard from the RC by one month after the initial data release, then the RO may contact the country directly to obtain approval for release of the fact sheet on the Web sites. The maximum time to release on Web sites is two months. Copies of the final fact sheet are sent to WHO HQ and, when applicable, to associate partners. The final version is subsequently uploaded onto the Web sites of CDC, WHO HQ, the corresponding WHO RO, and the country (when applicable). Country Report The draft report of a country should be available, preferably, at the end of the data analysis workshop attended by the RC or, at the latest, within three months after that workshop. The final country report must be completed within four months of the data analysis workshop attended by the RC. When the country report is final, the corresponding WHO RO should obtain official government agreement to release the report on applicable Web sites (CDC, HQ, regions). Copies of the final country report are sent to HQ and, when applicable, to associate partners. The final version is subsequently uploaded onto the Web sites of CDC, WHO HQ, the corresponding WHO RO, and the country (when applicable). If the RC does not complete the draft report within four months of the data analysis workshop, then the RO will contact the government to attempt to obtain the draft. If necessary, a new country RC may have to be selected to complete the draft. If the RC does not complete the final report within four months of the data analysis workshop and if a draft report is available, then the RO will contact the government to obtain its agreement to review and finalize the draft report. If the RC does not grant permission to put the country’s report on the Web sites, then the RO will contact the government to obtain its agreement to post that report on the Web sites. If the country does not grant permission, then the country’s report will not be posted. Press Releases Press releases are issued at the discretion of the country, CDC, and WHO. These entities can generate such publicity at any time after the data files and fact sheets are available. Any organization issuing a press release should inform the country, CDC, and WHO of the event. Country Articles The country coordinators can initiate the writing of articles on any specific topic with a view to publication in peer-reviewed or other journals. The country coordinators may seek collaboration with the partnering agencies in preparing articles, and they will decide which individuals to credit and the sequence of authors’ names in published articles. Funding and technical support from WHO, the regional and country offices, and CDC should be appropriately acknowledged in any such publication. Presentations To facilitate presentations at conferences incorporating the data from GYTS, the fact sheets for each site have been placed on the GYTS Web site. The fact sheets provide extensive information that can be used in any scientific presentation on the condition that appropriate credits are provided. If any new information is included from the data file, then the procedure established for cross-country papers needs to be followed. Cross-Country Articles Before data are released, a GYTS collaborative group may write a cross-country article. The composition of the group can vary depending on the topic, the persons taking the lead in performing the analysis, and the countries included in the analysis. The group should include all country coordinators whose data are being included, GYTS coordinating officials from WHO, the regional and country offices, and the technical GYTS-related personnel at CDC, and the associate partners. The group may also add other experts according to the topic and the need. Cross-country articles are those written by the GYTS collaborative group before the data are released publicly. A draft of the article should be circulated to all members of the GYTS collaborative group and any others deemed appropriate. WHO or CDC Logo According to WHO and CDC regulations and policies, the use of the name and emblem of WHO or CDC by national governments, research coordinators, national sponsors, or any other entities when publishing or presenting GYTS data requires explicit permission from WHO or CDC. Noted that the use of the name and emblem of WHO [or CDC] by third parties is strictly regulated and is normally not allowed other than in the case of a joint publication with WHO [or CDC].
Part IIRaw Data or Non-Tabulated Data Below are four specific issues defining external data release:
1. What products to release The following will be released:
2. What data to release All tobacco-related data and STRATA, PSU, and FWEIGHT will be released. Countries can ask that specific variables be omitted. For additional information or country-specific information, the partners will refer requests to the respective ROs. 3. When to release the products and data Data will be released one year after country RCs receive final data from CDC. 4. How to release the products and data First, each person requesting GYTS data must complete the GYTS dataset registration form online. This form is meant to track users of the data—it is not intended for approval. Second, after the form has been submitted online users will have access to the data.
|
1. Centers for Disease Control & Prevention Office on Smoking and Health) Global Tobacco Surveillance System GTSSinfo@cdc.gov Wick Warren WWarren@cdc.gov Nathan Jones NJones@cdc.gov Samira Asma SAsma@cdc.gov 2. Canadian Public Health Association 3. World Health Organization (HQ) 4. African Regional Office (AFRO) 5. European Regional Office (EURO) Fax Numbers for WHO Regional Offices AFRO: +47-241-39503 |
6. Eastern Mediterranean Regional Office Armando Peruga Perugaar@paho.org 8. South East Regional Office (SEARO) 9. Western Pacific Regional Office (WPRO) |
http://www.cdc.gov/tobacco/global/gyts.htm
http://www.euro.who.int/eprise/main/WHO/Progs/TOB/Home*
http://www.emro.who.int/TFI/TFI.htm*
http://www.paho.org/Project.asp?SEL=TP&LNG=ENG&CD=SMOKE*
http://www.wpro.who.int/tfi/default.cfm*
http://www.who.int/tobacco/en/*
AFRO — WHO African Regional Office
CDC — U. S. Centers for Disease Control and Prevention
CPHA — Canadian Public Health Association
EMRO — WHO Eastern Mediterranean Regional Office
EURO — WHO European Regional Office
FCTC —WHO Framework Convention on Tobacco Control
FWEIGHT — statistical sample design element—final weight factor—applied to each record in the GYTS analysis file
GHPS — Global Health Professional Survey
GSPS — Global School Personnel Survey
GTSS — Global Tobacco Surveillance System
GYTS — Global Youth Tobacco Survey
PAHO — Pan American Health Organization
PSU — Statistical sample design element—primary sampling unit—used in the analysis of the GYTS data
RC — Research coordinator
SEARO — WHO South East Asia Regional Office
STRATA — statistical sample design element used in the analysis of GYTS data
WPRO — WHO Western Pacific Regional Office
WHO — World Health Organization
HQ — headquarters, namely, WHO/Tobacco Free Initiative headquarters in Geneva
RO — regional office, namely, the six regional offices of the WHO/Tobacco Free Initiative
|
One or more documents on this Web page is available in Portable Document Format (PDF). You will need Acrobat Reader (a free application) to view and print these documents. |
|
* Links to non-Federal organizations are provided solely as a service to our users. Links do not constitute an endorsement of any organization by CDC or the Federal Government, and none should be inferred. The CDC is not responsible for the content of the individual organization Web pages found at this link.
Introduction | Datasets | Reports | Fact Sheets | GIS Maps | Questionnaires | GYTS Maps | GYTS Links |