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National Institutes of Health
Research and Clinical Trials
Research and Scientific Conference Programs
Rare Diseases Information
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Research Resources
Genetics Information
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Reports and Publications
About ORD

Welcome to the Site

This Web site provides information about ORD-sponsored biomedical research, scientific conferences, rare and genetic diseases in English and Spanish (Genetic and Rare Diseases Information Center), and a portal to information on major topics of interest in the rare diseases community. If you cannot locate on this Web site the specific information you seek, please call (301) 402-4336 or email ord@od.nih.gov

Rare Diseases List

A list of names of more than 6,000 rare diseases and related conditions with links to select government databases.

  Genetic and Rare Diseases Information Center

Information for patients and their families, health care professionals, biomedical researchers, and the general public. El Centro de Información sobre Enfermedades Genéticas y Raras

Conferences & Meetings

Future ORD Co-Sponsored Scientific Conferences

Toward the Development of Pediatric Stroke Trials, December 10-13
Conferences Search

ORD Co-Sponsored Meetings

Gaining Access to Research Resources
(for leaders of national patient support groups),
January 28-30, 2005
ORD Co-Sponsored Meetings Archives

Other Meetings

International Conference on Rare Diseases and Orphan Drugs,
Stockholm, Sweden,
February 14-16, 2005

Other Meetings Archives

What's New NIH Research and Training Opportunities

The Rare Diseases Clinical Research Network
Other Rare Diseases Related Research and Training Opportunities

Press Announcements and Other Related News

U.S. Surgeon General's Family History Initiative
Genetic Alliance BioBank Launched
Clinical Research Center Ribbon Cutting Ceremony
Notice: Enhanced Public Access to NIH Research Information
NIH Road Map Frequently Asked Questions

In the Spotlight Archives

Last Reviewed: November 16, 2004

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