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Genetic and Rare Diseases Information Center
The Genetic and Rare Diseases Information Center (GARD) employs experienced information specialists to answer questions from the general public, including patients and their families, health care professionals and biomedical researchers. It was established by the National Human Genome Research Institute (NHGRI) and the Office of Rare Diseases (ORD).
How to Contact GARD:
By Telephone:
Monday - Friday, 12:00 p.m. to 6:00 p.m. Eastern Time
- Phone: (888) 205-2311
- International Phone: 1 (301) 519-3194
- TTY: (888) 205-3223
By E-mail or Fax: (answered within 5 to 10 working days)
By U.S. Mail: (answered within 5 to 10 working days)
- The Genetic and Rare Diseases Information Center
P.O. Box 8126
Gaithersburg, MD 20898-8126
The GARD Information Center does not provide genetic counseling and does not offer diagnostic testing, referrals, medical treatment or advice.
GARD Resources on genome.gov
Specific Genetic Disorders
Comprehensive information sheets on 17 specific genetic disorders, inlcuding Charcot-Marie-Tooth, Huntington's, Parkinson's, Progeria and Tay-Sachs disease.
Finding Reliable Health Information Online
Tips for finding accurate and reliable online information on genetic and rare diseases.
Financial Assistance Information
Resources for finding information on financial aid for medical treatment.
Resource Materials for Health Providers
Printed materials from NHGRI that describe the assistance offered by the Genetic and Rare Diseases (GARD) Information Center.
Newsletter Article and Sidebar for Health-Care Professionals
Designed for use in newsletters for health-care professionals, the article and sidebar describe the free services that GARD offers and lists GARD contact information. Groups are welcome to edit the article to suit their needs. The newsletter article and sidebar can be downloaded directly from this Web site.
Other GARD Resources:
Office of Rare Diseases (ORD) [rarediseases.info.nih.gov]
The National Institutes of Health Office of Rare Diseases partners with NHGRI in providing information through the Genetic and Rare Diseases Information Center.
Last Updated: June 2004
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